6 Ways To Be Heard If You Live With Chronic Illness

Frustration Chronic Illness

 

By Victoria Weter in The Mighty.

 

Some days are worse than others. Some days it is a trial just to get out of bed in the morning, but still I manage to roll out and attempt my day. Through these days, I load up on vitamin B and caffeine, and most days it still isn’t enough. I’ve tried exercise to see if I can raise my endurance and some days, it still isn’t enough. I sit at work, stare at the clock, and long for my comfortable bed. It’s almost too painful to be awake. Most physicians and people do not understand this. Especially when they see us out in the world and there doesn’t appear to be anything wrong.

Just a hint of a facial expression that just barely lets people know that something may be wrong. Doctors seem to go to what is easiest in many cases. They try to adjust your vitamins or diet right before they accuse you of “faking it”’ or exacerbating your symptoms. That is unless you have found a compassionate practitioner – which as unbelievable as it sounds, I’ve managed to assemble a very compassionate medical team (although it took many years of trial and error and research).

 

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