From ME Support.
I have had Myalgic Encephalomyelitis of varying degrees for the majority of my life, including periods of being housebound and bedridden. Conventional medicine offers us few options, and we’re faced with conflicting advice on living with M.E.; therefore, it’s difficult to know which way to turn. One thing that has struck me is how ‘simple’ management really is, although that doesn’t mean it’s easy! Coming to terms with your restrictions and making sensible lifestyle changes are important aspects of self-help. It is imperative that you learn to listen to your body and respond accordingly in order to manage M.E. In addition, it’s important to look after your mental wellbeing just as much as your physical health.
It is difficult to adjust, regardless of your age or circumstances, and of course no two days are ever the same; therefore, you’ll be constantly learning – and making mistakes! I understand that each day is a struggle, but you need to take charge and help yourself through this life changing condition. M.E. doesn’t define you, although you do need to accept that it’s a part of who you are. That doesn’t mean giving up or losing hope; this is the way it is right now though, and you need to find ways of improving your life. It is important to focus on one day at a time, along with having the confidence to trust your own instincts. Little things will make a huge difference, especially during your most challenging times; therefore, it’s wise to look at every aspect of daily life.
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