By Elizabeth Thorne in #MEAction.
This is me, my story, I am one of the millions missing. I may not look ill to you, but if you see me, it will be because I am having a ‘good’ day because I am well enough to be able to get dressed and leave the house. The rest of the time I am missing from society, you will not see me as I am in bed, resting and sleeping, but never feeling rested or refreshed. I have missed out on so much of life… The nursing career I should have had… The children I should have had… The normal life I should have lived.
I’m now 39 and I have had myalgic encephalomyelitis (ME) for almost 20 years, I was just starting out in life with my boyfriend (now husband), having just moved out of my parents’ home for the first time. It was supposed to be the start of our life together. I had started a job that I loved and was hoping to train to be a nurse in the future. We were planning to get married and start a family, doing all the normal things that young couples take for granted. This was all pulled out from under me when I developed ME.
To read the rest of this story, click on the link below: