Hi everyone. I’ve received the following from Action for ME and pass it on should you wish to take part:
I am getting in touch to introduce myself as Action for M.E.’s Policy and Engagement Officer.
A large part of my role is engaging with politicians to improve services and support for local people with M.E. and their families. We also want to support people in whatever way we can to engage with them themselves so their representatives hear a local voice. We currently are undertaking a big survey of children and adults living with M.E. across the UK and wanted to see if you would like us to share the results with you when they are published in the Autumn? You can use these when engaging with MPs, councillors, or other representatives to show the reality of living with the condition. We will also be using the results of this survey to shape our policy and campaigning work, as well as inform Action for M.E.’s next five year strategy.
If you are able to share the survey www.surveymonkey.co.uk/r/afmebigsurvey with your members, we would appreciate it and it would also ensure a higher number of respondents from your area. The survey breaks down the results by postcode so we can give you the results specific to your region. We would be enormously grateful if you and your network are able to take the time and energy to complete the survey. I can also send out paper copies of the survey with freepost envelopes if you would prefer.
We will be launching the report of the results at our AGM on 15 October in London where we will run workshops on how to use this data and how to influence decision makers. I have attached a save the date information sheet which has more information.
If you have any questions about the survey, or anything else I can help you with, then please do not hesitate to get in touch.
Policy and Engagement Officer
Action for M.E.
Office: 0117 937 6623
My working hours are 8am till 3:30pm, Monday – Friday
Your experience matters: take our Big Survey on living with M.E.
Action for M.E., 42 Temple Street, Keynsham BS31 1EH. Tel: 0117 927 9551. Registered charity in England and Wales: 1036419. Registered in Scotland: SC040452. Company limited by guarantee, registered in England no. 2906840. This e-mail is confidential and may be privileged. It may be read, copied and used only by the addressee. If you have received it in error, please contact Action for M.E. immediately on 0117 927 9551. The views of this e-mail are the views of the individual and may not necessarily reflect the views of Action for M.E.