By Jonny Foster in #MEAction.
The love of my life battles ME/CFS. It’s a disease that my father has also struggled with since I was a boy, so it’s one I know well. I knew life wasn’t going to be simple when we met, but I dove in head-first anyway.
I can’t say it’s been easy, but I can definitely say it’s been worth it. Now, as she completes an enormous milestone – graduating from veterinary school – I couldn’t be prouder. It’s an achievement that she says we all share, something that would have been impossible without the support and assistance that her loving parents and I have given her over the years.
It took a long time for me to grasp that just because my partner wasn’t asking for help, didn’t mean she didn’t need it. After all, it’s important to do what you can to understand ME/CFS. Reading papers and research is good but speaking openly with your loved one is better. Have them explain their struggles – at a rate comfortable to them – so that you can better understand their wants and needs.
My hope is that by sharing some tips learned from our experience with the world, others can help their loved ones in the fight against ME/CFS, too. MEAction already has some excellent resources on this topic, including their Caregiver’s Guide and a Facebook support group, which I implore you to look into.
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