An Open Letter To The COVID-19 Long Hauler Community From A Person With ME/CFS



By Cort Johnson in Health Rising.

“If you look anecdotally, there is no question that there are a considerable number of individuals who have a post-viral syndrome that in many respects incapacitates them for weeks and weeks following so-called recovery. They report symptoms such as brain fog, difficulty concentrating and fatigue that resemble the symptoms of ME.”  Anthony Fauci


“With this very severe COVID-19 disease, where we’re now dealing with millions of people suffering from it worldwide, the question is not if [some] will develop ME/CFS—it’s how many.”  Alain Moreau in The Scientist

It’s critical that everyone – the public, doctors, researchers and funders – understand that the troubling “long hauler” phenomenon associated with COVID-19 that is making so much news is not new at all. It’s actually been around for a long time. It’s been documented for numerous infections.

Studies indicate that the type of infection – whether from the first SARS pathogen in 2003, the Epstein-Barr virus (infectious mononucleosis, glandular fever), the Ross-River virus, some bacteria (Coxsackie burnetiiBorrelia burgdorfiiGiardia lambia ) – doesn’t matter. However they start out, virtually all the post-infectious illnesses appear to resolve to the same general illness that’s characterized by extreme fatigue, pain and cognitive and sleep problems.


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Link to Covid-19 and ME story

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