By Sasha Nimmo in #MEAction.
The University of South Australia has approval to begin the trial, “Active video gaming to increase physical activity in adults with Chronic Fatigue Syndrome/Myalgic Encephalomyelitis.” The study has no set research criteria, despite studies that show 2 out of 5 patients are misdiagnosed with CFS/ME in Australia. The study does not include patients who are unable to attend the university, which automatically excludes 25% of the target group.
Dr Katia Ferrar (physiotherapist) of the University of South Australia says that state organisations will be recruiting patients for them, but Bridges and Pathways refuted that, saying it isn’t part of their research collaborations.
ME/CFS Association of SA confirmed that they are in the trial’s Stakeholder Advisory group and are recruiting people via their website. The association was asked their opinion on this study not using any criteria (i.e. Fukuda or International Consensus Criteria) and asked why this booklet for GPs is on their website, when the first recommendation for management is to “gradually increase activity”? They replied that they will not be answering questions directly.
Those questions remain unanswered.
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