By Naomi Whittingham in A Life Hidden.

 

In Part 1, I highlighted some positive aspects of the BACME guidelines, as well as giving an overview of my concerns.

Here, in Part 2, I look more closely at the guidelines’ focus on deconditioning and graded exercise therapy (GET), as well as their failure to address issues of critical importance in severe ME.

As this is a lengthy piece and will likely be a challenge for those who are ill, I have once again included a short summary at the end of each section, for anyone unable to read the full text.

Part 2 contains the following:

• The guidelines’ underlying message
• Pressure on families
• When progress isn’t possible

 

To read the rest of this story, click on the link below:

 

Link to Severe ME story