Beyond Tired : ME/CFS Life – Awareness Week 2020

Invisible Illness Graphic

From the Invisibly ME Blog.


The 11th to 17th May 2020 marks ME/CFS Awareness Week. It was also Fibromyalgia Awareness Day on 12th May, which I posted about recently with debunking 6 fibro myths. The colour blue is recognised as the colour of ME awareness and many charities, groups and individuals are doing their bit to raise awareness of this chronic condition.

ME (myalgic encephalomyelitis) or CFS (chronic fatigue syndrome) is a chronic, invisible condition. In a similar way to fibromyalgia, ME/CFS has faced much scepticism, misunderstanding and stigma. While research is expanding and social awareness is increasing, support for those with ME/CFS is still sadly lacking and stigma remains.

ME/CFS has been estimated to affect approximately 0.2 to 0.4% of the population, and as such around 265,000 people in the UK alone.

Here are a few thoughts around the exhausting experience of chronic fatigue and how it’s about far more than ‘being tired’.


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Link to ME story

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