By Russell Logan in SHOUTABOUTME.
“…the opposite of life is not death, it’s indifference” — Elie Wiesel
They’re known as the ‘invisible’ ones, the severe Myalgic Encephalomyelitis (ME) patients that governments, doctors, researchers and communities refuse to acknowledge.
The US CDC even renamed the illness Chronic Fatigue Syndrome (CFS) after a single symptom ‘fatigue’ to deliberately downplay the illness, despite ME having a WHO classification as neurological.
August 8 has been set aside to remember the suffering of these invisible severe ME patients.
In the UK, A Report of the CFS/ME Working Group (2002), presented to the Chief Medical Officer, estimated that almost 25% of people with ME/CFS are so seriously affected that they are unable to perform the most basic personal tasks and are confined to bed or spend the majority of the day in bed.
“Such patients feel particularly alone and isolated. The severity, complexity, and longevity of the illness are poorly understood,” the report said.
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