By Simon McGrath in ME/CFS Research Review.
A new research team is hoping to boost UK biomedical research with a proposal for a very large genetic study and a major expansion of the UK ME/CFS biobank. The new ME/CFS Biomedical Partnership is headed up Professor Chris Ponting, and Dr Luis Nacul who leads the CureME and UK ME/CFS Biobank team. The partnership plans to submit a grant application for the two studies to the Medical Research Council (MRC) and the National Institute of Health Research (NIHR) early next year.
Not only are the partnership’s plans for research studies ambitious, but it is also setting new standards for involving patients and their representatives in research. This includes a patient and a patient representative joining Ponting and Nacul as co-investigators.
The proposal reflects a lot of work by the CFS/ME Research Collaborative (CMRC) to bring researchers together and boost biomedical research. Earlier this year, the CMRC joined forces with CureME to put forward an outline proposal to the MRC’s scientific strategy board. The strategy board recommended that there should be a workshop to strengthen the plans.
To read the rest of this story, click on the link below: