The Burdens Posed By Invisible Physical And Mental Illnesses


    By Toni Bernhard J.D. in .   I look healthy. My friend, whom I’ll call Gail, also looks healthy. The difference is that I suffer from a physical illness and she suffers from a mental illness: depression. The similarity is that both of our conditions are invisible to others. Despite the different source of our illnesses, our […]

Post Twenty One. The Wheelchair Has Arrived.


  From puffins&penguins&me A personal blog about my experience of living with the illness Myalgic Encephalomyelitis (ME)   So, the much anticipated wheelchair has arrived! It was delivered mid-November by a very nice engineer who unpacked and put it together for me, and he gave me some basic instructions, how to use the joystick, how to […]

My Promised Saline IV Update. How Did It Go ?


  By Anil van der Zee, from his Blog, Capture, Dance, Words.   This year I’ve arranged for saline IV’s. As I have a hard time tolerating any medication, and I’m not improving enough because of it. Saline IV’s seemed to be the best solution to help with my orthostatic intolerance or rather my postural […]

How To Treat A Person With Chronic Illness – A Step-By-Step Guide

Frustration Chronic Illness

  By Jaime from her ‘I Told You I Was Sick’ Blog.   If you have a friend with chronic illness but don’t know how to talk to them, it’s OK. You’re not alone. When you’re healthy, trying to get inside the mind of a person who is always in pain can be confusing. In […]

Trial By Error: The Crawley Chronicles, Continued….

David Tuller

  By David Tuller, DrPH.   Update: About 20 minutes after posting this blog, I received the following communication from Ms. Paterson: Dear Dr Tuller Thank you for your email of 22 November. If by a ‘cease and desist’ letter you mean a letter threatening legal action if the recipient does not stop a specified […]

Welcome to IiMER Research Blog !


  From Invest in ME Research.   Invest in ME Research have created a page on their Centre of Excellence website for blogs by researchers funded by the charity to describe what they are doing, what experiences they have, what they think of research into ME, what they hope to achieve – and allow more communication with […]

My Secret Life – M.E/CFS Kids And Motherhood


      From the Mystripeylife Blog by Sarah Wells.   I am leading a double life. Each morning I get up, my make up goes on and I leave the house to do the school run.  I make small talk in the playground with friends.  Go to coffee once a week with a group […]

Trial By Error: My Brief Encounter With Professor Crawley

David Tuller

  By David Tuller, DrPH.   At noon last Friday, at the University of Exeter’s Mood Disorders Centre, Professor Esther Crawley gave a talk called “What is new in paediatric CFS/ME research.” When I saw a notice about the event the day before, I felt it might be my one chance to ask her directly […]

What Happened When I Attended A Screening Of ‘Unrest’

Jen Unrest

  By Christina Baltais in The Mighty.   “Unrest” follows the story of Jennifer Brea becoming ill with ME/CFS. The film goes so much farther beyond this narrative. It’s also a science lesson, moving love story, a tale on the adaptability of the human spirit and a call to action. This past spring I attended a screening for “Unrest” at […]

A Woman Who Dared, With ME


  by Rivka Solomon It was late afternoon, and I could barely get my body out of bed. In fact, I had been in bed most of the last few days––or was it weeks? Even with all that rest, my legs were still too weak to stand up. It wasn’t that I lacked the desire to […]

Spoonie Utopia


  By TIPSFORME I am just home from going out in my new wheelchair (a Foldawheel). It was great to go out socially and not to the doctor’s! For me this is rare and the gaps of time are significant enough that observations make quite an impression. It must be a bit like being released from prison. Other times I […]

Resisting Attempts To Silence #PwME


  By Gabby Klein in Relating to ME.   Methods of Silencing Dissent to Control a Specific Agenda Globally, government agencies and officials as well as private sector companies, and organizations use known astroturfing and silencing methods to achieve their intended goals.  They use media to spread propaganda to manipulate opinions. They employ specific tactics […]

How To Understand CFS Crashes in 5 Minutes Or Less


    From the Sweet Briar Sisters website.   If you have a friend with Chronic Fatigue Syndrome you’ve, no doubt, heard about how she’ll crash after an eventful day.  But hearing about such a thing and understanding it are two very different things.  What amount of activity is ok and what isn’t?  Does she […]

The York ME Community Links Up With OAPSchat !


    Just to let you know that The York ME Community has linked up with OAPSchat, a group and website aimed at the over fifty-fives founded by Jan. OAPSchat stands for Optimistic And Proactive Seniors Chat.  Loneliness is a big scourge on our society worldwide and the website helps combat this awful isolation by […]

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