Carers

Disabled People Highlight Scores Of Lockdown Concerns

Disability

  By John Pring in Disability News Service. Disabled people have highlighted gaps in social security support, flaws in the shielding system and worries about access to vaccines, after they were asked to describe their concerns as England entered its third national coronavirus lockdown*. They raised scores of different issues, ranging from worries about the accessibility […]

A Geneticist’s Quest To Understand His Son’s Mysterious Disease

Ron Davis

By Tracie White in The Scientist. Ronald Davis of Stanford University changed his focus to research on ME/CFS, the disease formerly known as chronic fatigue syndrome, in a bid to help his son and others like him.   About 10 years ago, Stanford University genomicist Ronald W. Davis began a new investigation into a mysterious […]

#Walking From Home: The Wheelchair User

Wheelchair

    Caroline lives in a seaside town in England and is a member of one of our Local Groups of volunteers.  As a wheelchair user, Caroline is passionate about improving streets and the access to them for everyone. In normal times, Caroline’s favourite things are being with friends, volunteering and seeing the sea. Here she […]

New ! ME/CFS Family Impact Survey By Dr Nina Muirhead & Cardiff University

hi-res-MEA-logo

By Russell Fleming in The ME Association. We are excited to announce a new international research study looking at the impact of ME/CFS on the quality of life of both patients and their family members. This is a short and simple online survey designed to be accessible to all adults 18+, including severely affected patients. […]

Here’s How Junction 32 Outlet Is Supporting The Needs Of Its Disabled Shoppers This Purple Tuesday

OIP

From The Yorkshire Times.   Purple Tuesday, the UK’s accessible shopping day, is taking place on 3rd November. This year, Junction 32 is highlighting the measures currently in place to raise awareness of the needs of disabled customers. Nearly one in five people in the UK have a disability or impairment, and there are very […]

A Little Health Reminder….

Doctor

  M.E. MOT Woke up today It’s not gone away This beast, it’s here for good Thought maybe a dream But a nightmare it seems I’d sleep through it all if I could As another day dawns There’s something more going on The pain’s a bit harder to stand It’s tougher to face, when it’s […]

City Of York Council Ban Blue Badge Holders From City Centre

access-bluebadge

  There are approximately 49,058 cities, towns and villages in the UK. The disabled spend is around £212 billion per year. I wonder how many of these places have banned Blue Badge holders from their centres stopping them spending some of that money with struggling retailers? York has..

Can You Help Steer The Future Of Healthwatch York ?

Healthwatch York

From Healthwatch York.   Healthwatch York at York CVS is keen to recruit at least three new Steering Group members, including a new Chair. Steering Group members play an essential role in setting our strategic direction and checking that we are on track to deliver our aims and objectives. The coronavirus pandemic has highlighted and […]

Your Shoes

empty shoes

  From YorkMix. Your Shoes will invite audiences to explore York from the perspectives of different York citizens. How is it to go shopping as a mother? How does someone with a disability experience the city? How does a Refugee experience York differently compared to someone who has lived here their entire lives? Through asking […]

Councils Face Calls To Re-Think COVID Streetscape Changes

Disability Parking

  By TJM in Disability News Service.   Local authorities in England and Wales are facing calls to re-think the “streetscape” changes being made in response to COVID-19, amid concerns that the new street infrastructure is making parts of towns and cities inaccessible to many disabled people. Disabled people and their organisations have previously warned that many […]

Disabled Peers Call On Government To Scrap Care Act Coronavirus Powers

Parliament

  By John Pring in Disability News Service.   Two disabled peers have called on the health and social care secretary to scrap powers given to local authorities that allow them to suspend some of their social care duties during the coronavirus pandemic. Crossbench peers Baroness [Jane] Campbell and Baroness [Tanni] Grey-Thompson have written to […]

September News From York Carers Centre

York Carers Centre

Our one to one carer support and advice is being provided over the telephone at the moment, please get in touch if you need us, we’re here to help. All our support groups and activities listed below are taking place online via zoom, and bookable by contacting our reception on enquiries@yorkcarerscentre or 01904 715490.  If you’d like to take […]

Blackpool Illuminations To Pay Tribute To The Corona Heroes

Blackpool

  By Graham Clark in The Yorkshire Times.   Blackpool’s 2020 Illuminations will feature a special tribute to the heroes of COVID-19 with a dazzling display of hearts and rainbows along the famous Golden Mile. The section, which will also feature the faces of 50 nominated “Corona Heroes”, pays homage to the extraordinary efforts of […]

News From York Carers Centre

York Carers Centre

Accessing carer groups from home  You can now access our carer support groups and activities online as we continue to work within government guidance, and explore ways we can offer our face to face groups in the future. If you’d like to take part in any of our groups/activities, and would like help setting up […]

Coronavirus: Government’s Continuing Failure On PA Guidance ‘Will Cost Lives’

Coronavirus Generic 1

    By John Pring in Disability News Service.   The government’s continuing failure to produce accessible information and guidance to help disabled people protect themselves during the coronavirus crisis is unacceptable and will cost lives, disabled people’s organisations have warned. Disabled campaigners spoke out after the Department of Health and Social Care (DHSC) failed […]

Coronavirus: Council ‘Tells Social Workers To Stop All Their Usual Work’

dns-sticky-short1

  By John Pring in Disability News Service.   A local authority apparently told its social workers to “stop all their usual work” until the coronavirus crisis was over, even before emergency powers to reduce their duties under the Care Act became law. The controversial Coronavirus Act, which became law last Wednesday (25 March), suspended […]

When You Say Coronavirus Will Only Kill The Vulnerable, You’re Talking About Me

Coronavirus Generic 1

  BY BROOKE VITTIMBERG in Fast Company.  When news of COVID-19 started to spread, there were two popular responses. The first was to rush to the store, buying N95 masks and hand sanitizer until shelves were bare. The second was to shrug and comfort the masses because mostly immunocompromised people—people like me—would die. On Twitter, […]

Community Support Groups Spring Up In York To Help People Affected During The Coronavirus Outbreak

Support

    From YorkMix.   Community spirit is alive and well in York in the time of Covid-19. Groups are being set up to help fellow residents affected by coranavirus. There is now a York Covid-19 Mutual Aid group, with the aim of supporting vulnerable people in the city through the outbreak. George Turner explained more on the […]

York Carers Centre

York Carers Centre

Welcome to the March 2020 news update for York Carers Centre.   News Carers socials for 26 to 40 (ish) year olds We’re delighted to have received funding to offer socials for 26 to 40 year old carers in York. Our next one is at the Escape Room, Micklegate on Thursday 26 March early evening […]

Chronic Fatigue Syndrome: Living With An Invisible Illness

BBC News

  From BBCNews.   Lorna Bryson, 25, suffers from Myalgic Encephalomyelitis (ME) also known as chronic fatigue syndrome. The illness means she has a low immune system, gets headaches, sore muscles and joints, and needs at least 12 hours sleep every night. Doctors didn’t believe there was anything wrong with Lorna growing up as she […]

Labour Leadership: Starmer Backs Calls For Free Social Care

keirstarmer1007

  By John Pring in Disability News Service.   The MP leading the race to be Labour’s next leader has become the first candidate to back calls by disabled people’s groups for the introduction of free social care, funded by national progressive taxation. Sir Keir Starmer, Labour’s shadow Brexit secretary, said he supported the motion passed […]

Sainsbury’s, I Don’t Need A Lanyard To Warn You About My Disability – You Need To Provide Better Training

Sainsburys

    By Liz Johnsin in The Independent.   It’s great that major brands are getting serious about inclusion, but initiatives should focus on taking away barriers, rather than forcing marginalised groups to mark out their difference. Sunflower season may be over but Sainsbury’s wants to see more in bloom this autumn following its latest announcement. On […]

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