Carers

Coronavirus: Government’s Continuing Failure On PA Guidance ‘Will Cost Lives’

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    By John Pring in Disability News Service.   The government’s continuing failure to produce accessible information and guidance to help disabled people protect themselves during the coronavirus crisis is unacceptable and will cost lives, disabled people’s organisations have warned. Disabled campaigners spoke out after the Department of Health and Social Care (DHSC) failed […]

Coronavirus: Council ‘Tells Social Workers To Stop All Their Usual Work’

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  By John Pring in Disability News Service.   A local authority apparently told its social workers to “stop all their usual work” until the coronavirus crisis was over, even before emergency powers to reduce their duties under the Care Act became law. The controversial Coronavirus Act, which became law last Wednesday (25 March), suspended […]

When You Say Coronavirus Will Only Kill The Vulnerable, You’re Talking About Me

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  BY BROOKE VITTIMBERG in Fast Company.  When news of COVID-19 started to spread, there were two popular responses. The first was to rush to the store, buying N95 masks and hand sanitizer until shelves were bare. The second was to shrug and comfort the masses because mostly immunocompromised people—people like me—would die. On Twitter, […]

Community Support Groups Spring Up In York To Help People Affected During The Coronavirus Outbreak

Support

    From YorkMix.   Community spirit is alive and well in York in the time of Covid-19. Groups are being set up to help fellow residents affected by coranavirus. There is now a York Covid-19 Mutual Aid group, with the aim of supporting vulnerable people in the city through the outbreak. George Turner explained more on the […]

York Carers Centre

York Carers Centre

Welcome to the March 2020 news update for York Carers Centre.   News Carers socials for 26 to 40 (ish) year olds We’re delighted to have received funding to offer socials for 26 to 40 year old carers in York. Our next one is at the Escape Room, Micklegate on Thursday 26 March early evening […]

Chronic Fatigue Syndrome: Living With An Invisible Illness

BBC News

  From BBCNews.   Lorna Bryson, 25, suffers from Myalgic Encephalomyelitis (ME) also known as chronic fatigue syndrome. The illness means she has a low immune system, gets headaches, sore muscles and joints, and needs at least 12 hours sleep every night. Doctors didn’t believe there was anything wrong with Lorna growing up as she […]

Labour Leadership: Starmer Backs Calls For Free Social Care

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  By John Pring in Disability News Service.   The MP leading the race to be Labour’s next leader has become the first candidate to back calls by disabled people’s groups for the introduction of free social care, funded by national progressive taxation. Sir Keir Starmer, Labour’s shadow Brexit secretary, said he supported the motion passed […]

Sainsbury’s, I Don’t Need A Lanyard To Warn You About My Disability – You Need To Provide Better Training

Sainsburys

    By Liz Johnsin in The Independent.   It’s great that major brands are getting serious about inclusion, but initiatives should focus on taking away barriers, rather than forcing marginalised groups to mark out their difference. Sunflower season may be over but Sainsbury’s wants to see more in bloom this autumn following its latest announcement. On […]

Ticketmaster Makes ‘Huge Step Forward’ For Disabled Music Fans

Music

  By Mark Savage in BBC News.   For years, deaf and disabled music fans have faced huge barriers when it comes to booking concert tickets. Whether it’s the requirement to call premium rate help lines, or having to provide evidence of their disabilities, the experience has put many fans off. Now Ticketmaster is introducing […]

One Day He Was ‘Gifted’, The Next He Couldn’t String Together A Sentence

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    By Carrol Baker in kidspot.   Once bright and energetic 12-year-old Ethan struggled to get out of bed in the morning. But, as his mum Shelley says, that was just the beginning. At first, doctors prescribed bed rest. They thought it was a virus and they said you can’t really do anything for a virus, he’ll just […]

He pioneered technology that fueled the Human Genome Project. Now his greatest challenge is curing his own son

Ron Davis

  By Ryan Prior, CNN.   (CNN)Multiple times a day, every day, Ron Davis sits with his head bowed, waiting outside his son’s bedroom for a subtle signal that it’s all right to come in. He opens the door to the space where Whitney has spent most of the last decade. Whitney lies motionless on […]

The Cure For Toxic Positivity

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  By Rebecca Renner in Forge.   When my dad was diagnosed with colon cancer at age 52, I was flooded with emails, calls, and in-person pep talks from friends and acquaintances. Anyone who’d ever met me, it seemed, was eager to offer up a platitude. “Think positive,” they told me. “It will be okay. […]

MPs Call For Overdue Government Action To Ban Pavement Parking

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    By John Pring in Disability News Service.     A committee of MPs has called on the government to ban parking on pavements, after hearing how the practice was putting disabled people all over the country in stressful, inconvenient and even dangerous situations. The Commons transport committee says in a new report that pavement parking […]

More Than Half Of Disabled Passengers Still Find Air Travel Difficult, Says Regulator

Air Travel

    By John Pring in Disability News Service.   More than half of passengers who describe themselves as having an impairment that limits their day-today activity find travelling by air difficult, according to a regulator’s annual report on access at the UK’s major airports. The Civil Aviation Authority’s (CAA) annual report on disability access contains […]

Care for Someone With Severe Myalgic Encephalomyelitis

Severe ME

By Greg Crowhurst in ME Support.   Linda, my wife, collapsed over two decades ago and very quickly became bed bound. In the months leading up to her collapse, she had had several operations and a long chest infection. For almost two years prior to that she was in constant pain, experiencing severe pins and […]

‘Grief And Confusion Clashed With Unconditional Love And Joy’: The Hidden Lives Of Young Carers

Young-Carers

  By Ellie Fry in The Independent.   Like many young carers, I can’t tell you the exact moment my mum got sick. Nor can I pinpoint the moment I started helping her and my family get through day-to-day life. But there was a moment, 10 years ago, when my mother went from healthy to bed […]

Welcome To The June 2019 News Update For York Carers Centre

York Carers Centre

York Carers Centre news Thank You Volunteers It’s National Volunteers Week and we’d like to say a huge thank you to all of our committed volunteers, who generously offer their skills and time to help carers in York. From the board of trustees and office volunteers to those who help carers at groups across the […]

Airline Forced To Apologise After Charging Woman For Carer’s Seat Reservation

Disability Travel

    By John Pring in Disability News Service.   An airline has been forced to apologise to a disabled woman after it charged her extra to reserve a seat next to her for her carer, and then refused to refund the charge. Helen Jenkins had informed Flybe when she was booking her return flights […]

‘Angel’ Investor Seeks Entrepreneurs To Transform Life For Disabled People

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      By John Pring in Disability News Service.   Disabled entrepreneurs with technology-based business ideas that could transform life for other disabled people have a chance to secure up to £100,000 of funding through an “angel” investment programme. Entrepreneur and investor Rohan Silva, a former senior policy adviser to Conservative prime minister David Cameron, […]

When Children Don’t Get Well

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From Utting-Wolff Spouts.   When children don’t get well, when there is no adequate treatment, and they remain ill, we need to step in and fight for their right to be part of society. When children don’t get well, time passes by, sometimes like treacle, sometimes quickly,  with the realisation that another school year has whipped […]

Hidden Disabilities – Heathrow’s Sunflower Lanyard

Air Travel

    From Heathrow.com.   At Heathrow we understand all passengers are unique and we offer different levels of support tailored to your needs. For a hidden disability such as autism, dementia or anxiety, help is always at hand at the airport. If you would like to book assistance just let your airline know 48 […]

Manchester Airport Disability Service Left Woman ‘Humiliated’

Air Travel

    From BBC News.   A woman with chronic fatigue syndrome has accused Manchester Airport of treating her like “cargo” and “cattle” following a long-haul flight. Jessica Stafford, 29, booked a special assistance service as she needed help to move through the airport. But she found the experience “distressing” and “humiliating” after being asked […]

How British Sign Language Developed Its Own Dialects

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    By Adam Schembri and Kearsy Cormier in The Conversation.    There are many different ways of speaking English in the UK, with people using different regional dialects in different parts of the country. For example, some people would say “give it me” while others might say “give it to me”. There is also variation in the names […]

Foldalite Travel Powerchair Review

Natasha Lipman

    But Natasha Lipman.   I can’t believe that it has almost been a year since I finally bought my first ever powerchair, the Rascal P321 (also called my ‘Mario Kart’ or ‘The Dizzy Rascal’ by my friends – cos I have PoTS and am always dizzy, gettit?) It truly was a long time coming, and […]

The Effects Of Graded Exercise Therapy And Positive Thinking On A Young Girl With ME

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      By Adriane Tillman in #MEAction.   Exercise protocols prescribed for myalgic encephalomyelitis (ME) were powerful enough for Cherry to ignore the physiological realities of her disease. Cherry is now 100 percent bedridden. When 16-year-old Cherry from North London began the treatment prescribed for her myalgic encephalomyelitis (ME) in 2013, she was able to walk […]

Opinion: ‘Nobody Should Have To Live Like This – I Need More Care To Meet My Basic Needs’

Lonely

  By Corina Duyn in the journal.ie.   I have been ill with Myalgic Encephalomyelitis (ME) for 20 years. But it is only in the last year, and especially in the past six months that my most basic needs are not being met – at a time when my illness has become more severe and […]

My Wife Isn’t Tired

ME

  By Paul James.   I’m not writing this for me, I’m not writing this for Amy my wife either, today I was made aware of a lady who suffers not only from ME but also from her family’s disbelief and ignorance – so this is for her.   I need however, to start with […]

Do You Have Family Or Friends You Haven’t Heard From In A While ?

'Hello Stranger'

    At this time of year we hear the cry go up for keeping in touch with family and friends.  Maybe to also call on someone elderly nearby. Whilst I totally agree with these sentiments, maybe we should be doing this throughout the year.  It’s too easy to forget those who were in our […]

Christmas Can Be Isolating For Young Carers – They Need Time To Be Children

Young-Carers

    By Jo Aldridge in The Conversation.   Most children look forward to the Christmas holidays as a time for fun and families. But for some young carers – children who provide care for someone in their family who is ill or disabled – the Christmas holidays are a mixed blessing. Dani* is one […]

Thinking Of Others……

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      It occurred to Pooh and Piglet that they hadn’t heard from Eeyore for several days, so they put on their hats and coats and trotted across the Hundred Acre Wood to Eeyore’s stick house. Inside the house was Eeyore. “Hello Eeyore,” said Pooh. “Hello Pooh. Hello Piglet,” said Eeyore, in a Glum […]

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