Carers

More Than Half Of Disabled Passengers Still Find Air Travel Difficult, Says Regulator

Air Travel

    By John Pring in Disability News Service.   More than half of passengers who describe themselves as having an impairment that limits their day-today activity find travelling by air difficult, according to a regulator’s annual report on access at the UK’s major airports. The Civil Aviation Authority’s (CAA) annual report on disability access contains […]

Care for Someone With Severe Myalgic Encephalomyelitis

Severe ME

By Greg Crowhurst in ME Support.   Linda, my wife, collapsed over two decades ago and very quickly became bed bound. In the months leading up to her collapse, she had had several operations and a long chest infection. For almost two years prior to that she was in constant pain, experiencing severe pins and […]

‘Grief And Confusion Clashed With Unconditional Love And Joy’: The Hidden Lives Of Young Carers

Young-Carers

  By Ellie Fry in The Independent.   Like many young carers, I can’t tell you the exact moment my mum got sick. Nor can I pinpoint the moment I started helping her and my family get through day-to-day life. But there was a moment, 10 years ago, when my mother went from healthy to bed […]

Welcome To The June 2019 News Update For York Carers Centre

York Carers Centre

York Carers Centre news Thank You Volunteers It’s National Volunteers Week and we’d like to say a huge thank you to all of our committed volunteers, who generously offer their skills and time to help carers in York. From the board of trustees and office volunteers to those who help carers at groups across the […]

Airline Forced To Apologise After Charging Woman For Carer’s Seat Reservation

Disability Travel

    By John Pring in Disability News Service.   An airline has been forced to apologise to a disabled woman after it charged her extra to reserve a seat next to her for her carer, and then refused to refund the charge. Helen Jenkins had informed Flybe when she was booking her return flights […]

‘Angel’ Investor Seeks Entrepreneurs To Transform Life For Disabled People

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      By John Pring in Disability News Service.   Disabled entrepreneurs with technology-based business ideas that could transform life for other disabled people have a chance to secure up to £100,000 of funding through an “angel” investment programme. Entrepreneur and investor Rohan Silva, a former senior policy adviser to Conservative prime minister David Cameron, […]

When Children Don’t Get Well

childcare

From Utting-Wolff Spouts.   When children don’t get well, when there is no adequate treatment, and they remain ill, we need to step in and fight for their right to be part of society. When children don’t get well, time passes by, sometimes like treacle, sometimes quickly,  with the realisation that another school year has whipped […]

Hidden Disabilities – Heathrow’s Sunflower Lanyard

Air Travel

    From Heathrow.com.   At Heathrow we understand all passengers are unique and we offer different levels of support tailored to your needs. For a hidden disability such as autism, dementia or anxiety, help is always at hand at the airport. If you would like to book assistance just let your airline know 48 […]

Manchester Airport Disability Service Left Woman ‘Humiliated’

Air Travel

    From BBC News.   A woman with chronic fatigue syndrome has accused Manchester Airport of treating her like “cargo” and “cattle” following a long-haul flight. Jessica Stafford, 29, booked a special assistance service as she needed help to move through the airport. But she found the experience “distressing” and “humiliating” after being asked […]

How British Sign Language Developed Its Own Dialects

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    By Adam Schembri and Kearsy Cormier in The Conversation.    There are many different ways of speaking English in the UK, with people using different regional dialects in different parts of the country. For example, some people would say “give it me” while others might say “give it to me”. There is also variation in the names […]

Foldalite Travel Powerchair Review

Natasha Lipman

    But Natasha Lipman.   I can’t believe that it has almost been a year since I finally bought my first ever powerchair, the Rascal P321 (also called my ‘Mario Kart’ or ‘The Dizzy Rascal’ by my friends – cos I have PoTS and am always dizzy, gettit?) It truly was a long time coming, and […]

The Effects Of Graded Exercise Therapy And Positive Thinking On A Young Girl With ME

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      By Adriane Tillman in #MEAction.   Exercise protocols prescribed for myalgic encephalomyelitis (ME) were powerful enough for Cherry to ignore the physiological realities of her disease. Cherry is now 100 percent bedridden. When 16-year-old Cherry from North London began the treatment prescribed for her myalgic encephalomyelitis (ME) in 2013, she was able to walk […]

Opinion: ‘Nobody Should Have To Live Like This – I Need More Care To Meet My Basic Needs’

Lonely

  By Corina Duyn in the journal.ie.   I have been ill with Myalgic Encephalomyelitis (ME) for 20 years. But it is only in the last year, and especially in the past six months that my most basic needs are not being met – at a time when my illness has become more severe and […]

My Wife Isn’t Tired

ME

  By Paul James.   I’m not writing this for me, I’m not writing this for Amy my wife either, today I was made aware of a lady who suffers not only from ME but also from her family’s disbelief and ignorance – so this is for her.   I need however, to start with […]

Do You Have Family Or Friends You Haven’t Heard From In A While ?

'Hello Stranger'

    At this time of year we hear the cry go up for keeping in touch with family and friends.  Maybe to also call on someone elderly nearby. Whilst I totally agree with these sentiments, maybe we should be doing this throughout the year.  It’s too easy to forget those who were in our […]

Christmas Can Be Isolating For Young Carers – They Need Time To Be Children

Young-Carers

    By Jo Aldridge in The Conversation.   Most children look forward to the Christmas holidays as a time for fun and families. But for some young carers – children who provide care for someone in their family who is ill or disabled – the Christmas holidays are a mixed blessing. Dani* is one […]

Thinking Of Others……

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      It occurred to Pooh and Piglet that they hadn’t heard from Eeyore for several days, so they put on their hats and coats and trotted across the Hundred Acre Wood to Eeyore’s stick house. Inside the house was Eeyore. “Hello Eeyore,” said Pooh. “Hello Pooh. Hello Piglet,” said Eeyore, in a Glum […]

The Isolation I Feel as I Parent Kids With Disabilities

disability

    By Laura McLean in The Mighty. Raising children with disabilities can be challenging and rewarding, often within the same day — or even hour. Our emotions as parents are complicated. We can simultaneously feel like giving up and also be ready to go to the ends of the earth for our children. We […]

Care Charges Are Driving Disabled People Into Debt, Says Report

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  By John Pring in Disability News Service. Charging disabled people for their care and support is driving many of them into debt and forcing them to cut their spending on food or heating, according to new research by a network of disabled people’s organisations and their allies. The study by the Independent Living Strategy Group […]

Dear Bug… When The Nights Are Long…

Jessica

    By Jessica Taylor-Bearman. My escapades with the change of drugs reached fever pitch three weeks ago, when I rang up the doctors with a blood pressure of 80/50….The dearest junior doctor had told me or more like made me promise that if my blood pressure went under 90/60, that I’d ring for an […]

New Way Of Monitoring Medicines Could Vastly Improve Lives Of People In Care Homes

pills-main

By Sue Jones and Mel Storey in The Conversation.   More than 50% of care home residents are being prescribed medicines that they do not need, or which do not properly address their health problems. Antipsychotics, for example, are often overused to treat the behavioural and psychological symptoms of dementia. But this problem is not easy to remedy. The […]

The Care Home Fee Trap

Author-PaulLewis

  By Paul Lewis in SAGA Magazine.   The fear of having to sell a home to pay for care is being exploited by commercial firms offering risky schemes to shelter homes from means-testing. Don’t fall for them. There are other, perfectly legitimate ways to preserve the value of a family home. When someone moves […]

York Carers Centre News

York Carers Centre

    Carers Rights Day Friday 30 November 2018 is Carers Rights Day; a national campaign to help carers know their rights and what help is available in their local community. This year we are pleased to be able to give carers the chance to meet and talk about their rights with York’s two MPs; […]

Ibiza: What It’s Like Raving In A Wheelchair On The Party Island

wheelchair crowd surfing

  By Alex Taylor in BBC News. A year ago, I was told I would have to pay double to get into a nightclub in Ibiza. Why? I have cerebral palsy, a condition which affects mobility, and rely on a carer to help me on nights out – who also needed to pay the entry […]

Australia Needs Lasting Consensus On NDIS Funding

disability

  From Probono Australia.   People with disability, their families, carers and advocates deserve the certainty of a National Disability Insurance Scheme which is sustainable, writes Bruce Bonyhady. Australia urgently needs a lasting consensus on the funding of the NDIS which builds trust in the disability sector, confidence in the Australian community and sustainability of […]

York Carers Centre News

York Carers Centre

May Bank holiday We will not be open on Monday 7 or Monday 28 May. We will not be checking our answer machine or emails on these days. If you need urgent help when we are closed please contact the Emergency Duty Team on 01609 780780.   Job opportunity We are recruiting for a Sessional Carer […]

Chronic Illness Is A Rollercoaster Ride You Can Never Get Off

Sarah Wells

  By Sarah Wells in My Stripey Life.   I must admit this morning I’m having a bit of a meltdown. Schools again are causing me stress.  Different schools, different reasons, different children. I’m in the midst of hunting for a secondary school for my son and I am trying desperately hard to make to […]

Blue Badge Scheme

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  From Which ? Elderly Care.   If a person has a disability that affects their ability to walk, they may be entitled to a Blue Badge disabled-parking permit. In this guide, you’ll find information on: 1. What is the Blue Badge scheme? 2. Eligibility 3. How to apply 4. Blue Badge renewal 5. Using your Blue Badge What is […]

Mother Releases Pictures Of Dying Daughter Merryn Crofts To Prove That ME Is Real

Merryn Crofts

  By Richard Hartley-Parkinson in The Metro.   A mother has spoken out about seeing her daughter waste away from a condition that some medical professionals say does not exist. Merryn Crofts died 10 days after her 21st birthday weighing less than six stone.   Her mother Clare said that Merryn from Norden, Rochdale, had spent […]

Daughter Died Aged 21 After Illness Some Experts Don’t Believe Is Real Left Her Bed-Bound And Wasting Away

Loss

  By Damon Wilkinson in The Mirror.   A young woman spent the last three years of her life bed-bound and in extreme pain as she wasted away from a disease some experts refuse to believe exists. Merryn Crofts weighed less than 6st when she died on May 23 last year, 10 days after she […]

Your Legal Rights To Accessible Transport

Accessibility

  Equality Act 2010   The Equality Act 2010 replaced all previous equality legislation, including the Disability Discrimination Act 2005 (DDA). It protects disabled people in all areas, including transport. Under the Act, transport providers have the duty to provide an accessible service and make ‘reasonable adjustments’ to offer the same standard of service to […]

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