A Consensus-Driven ME/CFS Clinician Coalition Takes Shape

Bateman Horne Center

    By Stephanie Griffin.   On March 2-3, 2018, the Bateman Horne Center hosted an exciting summit of leading U.S. ME/CFS clinicians who came together to share their pearls of wisdom on diagnosis and treatment in order to improve ME/CFS clinical care and refine more precise research targets. The meeting was remarkable for the ambitious nature […]

Much Can Be Done To Ease ‘Chronic Fatigue Syndrome’ Symptoms


    By Miriam E Tucker in Medscape.   SALT LAKE CITY, UT — The illness commonly known as chronic fatigue syndrome is complex and currently incurable, but clinicians can still do a great deal to manage symptoms and improve patients’ quality of life, experts agree. In a 2-day meeting held March 2 and 3, […]

Trial By Error: News About My Plans

David Tuller

  By David Tuller, DrPH.   So I’ve been asked about my plans after June 30th, which is the end of the period covered by last year’s crowdfunding campaign. There’s been significant progress since I launched that effort. Among other developments, the CDC dropped its recommendations for CBT and GET, NICE decided to withdraw its preliminary […]

Raising Awareness Of ME In The Heart Of London – The Royal Parks Half Marathon


  From Invest in ME Research.   Invest in ME Research have secured FIFTEEN places in the Royal Parks Half Marathon on Sunday 14th October 2018. This will be another great opportunity for the charity to raise awareness of its strategy of funding high-quality biomedical research and the development of a UK/European Centre of Excellence for ME – […]

York Carers Centre – March Update

York Carers Centre

  York Carers Centre news Vacancy – Office Manager We are seeking to recruit a highly organised and experienced Office Manager to join our friendly dedicated team to oversee the day to day running of our busy city centre office alongside taking an active role in the development of systems and procedures. The post-holder will […]

Mike’s EU Marathons For Invest In ME Research – Malta

Mike Malta

    By Mike Harley.   I made contact with the Malta ME, CFS and Fibromyalgia Alliance before flying out for number 15 of 28, here’s what they told me about life in Malta with ME.  I had lots of great support from the group and they managed to get the challenge featured in Lovin Malta alongside the coverage I managed […]

Ben Runs 4 ME – The Malta Marathon

Ben in Malta

    Marathon number 11 done at the beautiful Malta Marathon 2018! We started up in ancient Mdina and ran an overlapping first half of the course through the amazing countryside before turning towards the coast. After passing through a few small villages we arrived at the walled city of Valetta, the European Capital of […]

This Is Why Three Top Telly Presenters Were Sitting On A Sofa By The River In York

Look North

From YorkMix.   It might be the most famous sofa in Yorkshire. And now the red BBC Look North couch is going on tour across the county – hauled, pushed and rolled by the presenters themselves. Anchors Harry Gration and Amy Garcia, along with weatherman Paul Hudson, are leaving their Leeds studio to go on […]

The Fight That Follows Pain And Prejudice

Carol Head

  From MS Blog Magazine.   More than four decades ago, while a high school junior in Columbus, Indiana, I decided I wanted to run track. But I was told that girls were not allowed to compete in sports. Angry and confused—why can’t girls do sports?—I fought for and eventually won the right to start […]

Mike Harley’s 28 EU Marathons For ME Awareness

Mike Barcelona

  My name is Mike Harley, I’m 35 and live in Bristol, UK and I’m running Malta Marathon as part of my challenge to run a marathon in every country in the EU (28 in total) to help raise money and awareness for biomedical research to find a cure for Myalgic Encephalomyelitis (M.E.) One of […]

Worldwide ME Talent Search !


  Hi Everyone.  I’m on the lookout for anyone in the ME Community, anywhere in the world who would like to lend their talents to raising ME Awareness. We are working on putting together an album consisting of Music, Poetry Readings and the like, so are on the lookout for singers, writers and musicians to […]

Rituximab Trial And Research


  From Invest In ME Research.   Statement Following Preliminary Phase III Rituximab Clinical trial Results from Norway Following the preliminary results which Professor Olav Mella recently publicly released from the Phase III multi-centre double-blinded placebo-controlled Rituximab Clinical Trial (see statement 21st November 2017) the charity has had discussions with advisors and researchers and has now […]

ME/Chronic Fatigue Syndrome


  From The Quadram Institute.   Myalgic Encephalomyelitis (ME), also known as Chronic Fatigue Syndrome (CFS), is a severely debilitating condition that is thought to affect up to 250,000 people in the UK. Symptoms include widespread pain, extreme tiredness and an inability to concentrate. The causes of ME/CFS aren’t known, and there are no effective […]

‘Urgent Request’ To Investigate Motability Scheme Put To National Audit Office

Motability Logo

  By Joe Peskett in Access and Mobility Professional.   An urgent request has been put to the National Audit Office by Work and Pensions Secretary Esther McVey to look into the Motability charity after a row erupted this week exposing the scheme’s alleged £2.4 bn of cash reserves and the £1.7 m salary it […]

Letters To Professor Mark Baker At NICE


  From Invest in ME Research.   In July 2017 Invest in ME Research responded to the NICE 10 year surveillance (2017) – Chronic fatigue syndrome/myalgic encephalomyelitis click here This pdf is an easier format to read is here. Recently, whilst preparing for the planned Stakeholders’ Workshop (16 January 2018) to review the NICE guidelines for ME […]

13th Invest In ME Research International ME Conference


  Background   As an independent UK charity with one objective being to find, fund and facilitate biomedical research into ME, IiMER has, since 2007, been championing the idea and the necessity of international collaboration in research into ME. The charity has promoted the development of a Centre of Excellence for ME for eight years […]

The Boy Who Cleaned Up The Beach In Filey – A True Story From 1958


  By David Robinson in OAPsChat.   Seventy children, all aged about eight, crowded onto two buses for a 70-mile journey to the coast. I made sure I was sat with my best pal, Stubbsy. Our destination: Filey. Mother had prepared me well. I had a duffel bag packed with boiled egg sandwiches a bottle of fizzy […]

Bringing The Library To You

Home Instead

  From Home Instead, York & Ryedale Newsletter.   If you still love reading but find it difficult to get to your local library, the Home Library Service offers you the chance to get the books that you love to read delivered straight to your door. You can choose from a wide variety of fiction […]

Scientist Spotlight: Suzanne Vernon, Ph.D.


  By JAXMECFS. The Jackson Laboratory.   We are excited to present our second “People in ME/CFS Research” spotlight this week, which is my interview with Dr. Suzanne Vernon. Suzanne is the Research Director of the Bateman Horne Center (BHC), which is also the clinical core for the JAX ME/CFS CRC. At BHC, she is building a […]

OMF Receives $1 Million Donation

Ron Davis

  From The Open Medicine Foundation.   2018 is starting off to be a fantastic year. Today, OMF has received a $1 million donation! The Pineapple Fund has generously donated $1 million to OMF through Bitcoin, stating, “We chose the Open Medicine Foundation because ME/CFS is a serious and complicated condition that torments the life of its sufferers. […]

This Weekend Join The Nation In Discovering What Birds Are Visiting Our Gardens


  From The Yorkshire Times.   Spending an hour watching the birds in your garden this weekend will help provide the RSPB with an annual snapshot of the UK’s garden birds as more than half-a-million people take part in Big Garden Birdwatch. Taking part in the world’s largest garden wildlife survey is easy – simply […]

Mapping Our Community

York Centre for Voluntary Service

  From York CVS.   In 2017 York’s Health and Wellbeing Board launched an ambitious Joint Health and Wellbeing Strategy, running till 2022. This effects all of us, living and working here. It has four key elements: mental health and wellbeing, starting and growing well, living and working well, ageing well. In 2018 we’ll be working […]

Part 1: Interview With Retha Viviers, Founder Of ME/CFS Foundation S.A


  By Ynug Anabel in Afrika   In an attempt to understand and raise awareness about the situation of ME/CFS patients in our continent, our Afrika News team contacted the director of ME/CFS foundation South Africa, Mrs Retha Viviers. In this part of the interview, Mrs Viviers will thoroughly explain what ME/Chronic Fatigue syndrome is and she will […]

Older People Are Missing Out On Money They’re Due


  From Independent Age.   How to boost your income and save money The Independent Age website has a lot of information about extra money you can claim and ways you can cut your bills. For help tailored specifically to you, call our free Helpline on 0800 319 6789 to arrange to speak to an adviser. A […]

Support To Work


  Online employment support for disabled jobseekers Support to Work offers advice to disabled people applying for jobs. This employment support can be online, by telephone, Skype or text. It’s open to disabled people who: are working age are looking for paid work have access to a telephone, email and the internet and live in […]

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