Chronic Fatigue Syndrome

Chronic Fatigue Syndrome

Scotland Could Be Set For ‘Ground-Breaking’ Move On UN Convention

  By John Pring in Disability News Service.   Disabled people in Scotland could be set for “ground-breaking” improvements to the “protection, progression, and promotion” of their human rights, after their government pledged to incorporate the UN disability convention into Scottish law.  The promise came as the Scottish government accepted the 30 recommendations made in a […]

The PACE Trial Should Be Retracted, Because It Was Seriously Unethical, And The Lead Investigators Continue To Deny That.

  By Dr Neil MacFarlane MRCPsych in DrNMblog.   This was submitted (December 2020) to NICE in response to the new draft ME/CFS guidance of November 2020,[1] which had removed the recommendation for Graded Exercise Therapy (GET), and downgraded CBT from therapeutic to a ‘supportive’ option. [1] https://www.nice.org.uk/guidance/indevelopment/gid-ng10091/documents I appear to be the first UK psychiatrist to be […]

Trial By Error: Another Excellent Read On Long Covid, ME/CFS And Medically Unexplained Symptoms

By David Tuller, DrPH in Virology Blog. In a post earlier this week, I noted some differences in the tenor of the debate over Long Covid in the US and UK. Yesterday, another excellent and in-depth piece on the issues appeared on the domestic front, this time in VICE. The author, Alan Levinovitz, is associate professor of religious studies at […]

Scientist With Son Who Suffers From Chronic Fatigue Syndrome Hopes Research Can Help COVID-19 Patients

  By Austin Williams in Fox 26.   The National Institutes of Health identifies “COVID long haulers” as a “large numbers of patients who have been infected with SARS-CoV-2 continue to experience a constellation of symptoms long past the time that they’ve recovered from the initial stages of COVID-19 illness.” The chronic fatigue syndrome Ron Davis’ son suffers […]

Long Covid Isn’t As Unique As We Thought – (Mentions ME)

By Julia Belluz in Vox.   Dr. Craig Spencer, an emergency room doctor in New York City, was no stranger to dangerous viruses when a brush with one landed him in Bellevue Hospital for 19 days. But it was only after he was discharged, and declared virus-free, that the really bizarre symptoms set in. Back at home, he noticed he […]

Long-Covid Has A Baffling Sister: ME/CFS

  By Llewellyn King in Inside Sources.   Long COVID is the condition wherein people continue to experience symptoms for longer than usual after initially contracting COVID-19. Those symptoms are similar to the ones of another long-haul disease, Myalgic Encephalomyelitis, often called Chronic Fatigue Syndrome. For a decade, in broadcasts and newspaper columns, I have been detailing the […]

Research Digest 12/03/21

    From Emerge Australia.   Welcome to the 65th Emerge Australia Research Digest, where you will find summaries of some of the latest research and information about ME/CFS, with links to the complete articles. You can also join our community and choose to have the Digest delivered straight to your inbox every fortnight on […]

ME/CFS And The Lightning Process

  By David F Marks in Science, Behaviour, Homeostasis. Here I review research by the Wessely School on the Lightning Process (LP). LP is a pseudoscientific cult founded by Phil Parker, a Tarot reader, specialist in auras and spiritual guides, and an osteopath. It has triggered a spate of shoddy evidence and false claims that brings a new low level […]

When Rest May Be Best For Post-Viral Fatigue

  From The Guardian. Graded exercise therapy is not the right way to treat people with ME or long Covid, argue Dr Charles Shepherd and Rachel Harding. Dr Alastair Miller, Professor Paul Garner and Professor Peter White are not correct when they state that graded exercise therapy (GET) is a safe and effective treatment for ME/chronic fatigue syndrome (Letters, […]

Study Suggests Similar Processes Are Driving Long COVID And ME/CFS

  By Cort Johnson in Health Rising. Eric Schadt, the study’s senior author, is not your average researcher, and Phillip Comella, the lead author, has personal experience with mysterious diseases and difficult diagnoses. A biomathematician and bioengineer, Schadt has been at the forefront of biocomputational technologies for years. Schadt’s goal has always been to get […]

Chronic Fatigue Syndrome (ME/CFS) Study

  From The Thompson Institute.   USC’s Thompson Institute is seeking volunteer research participants who will help us understand the underlying illness process of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). Participants will also help us develop imaging criteria that will aid the diagnosis of ME/CFS. The study is the first to investigate brain function in ME/CFS in terms […]

Long Covid: Warning Over Combining ME Treatment

By Claire Smyth in The Mirror.   Charities that support people with ME have warned against combining new specialist treatment for the condition with proposed services for long Covid. The Health and Social Care Board is developing plans to help those still experiencing long-term health issues months after being unwell with Covid. Some of the […]

Fog And M.E.

Fog And M.E. In a car when fog descends Lights go on to see the bends Other dangers illuminated A flick of a switch, clarity created An M.E. fog is not the same It wraps around our words, our brain There is no switch, no helpful light Just confusion, loneliness and fright An M.E. symptom […]

Treatment Harms To Patients With ME/CFS

    By David F Marks. Despite evidence of physiological and cellular abnormalities in myalgic encephalomyelitis (ME)/chronic fatigue syndrome (CFS), the dominant therapeutic approach has been cognitive behaviour therapy (CBT) and graded exercise therapy (GET).  Patients report  distress and dissatisfaction following healthcare encounters based on GET and CBT.  A significant body of research suggests that CBT and GET […]

M.E./CFS In The Media

This past month has seen M.E. receive mention on a number of radio shows, tv shows, and newspaper articles. Below are a few examples of M.E. coverage in the media: On Friday 26 February, a Coronavirus special on BBC show, Horizon, featured Dr David Strain highlighting the fight for people with M.E. to get recognition, […]

Disabled People And Carer’s Experiences Of Accessing The Coronavirus Vaccine

From Disability Horizons. The coronavirus vaccine programme has been in action across the UK since December 2020 and more than 10 million people have received their first dose so far. With the first four priority groups being given the vaccine, we ask disabled people, those with health conditions and carer’s thoughts and experiences of accessing […]

Vulnerable Say They’ve Been ‘Forgotten’ As Covid Vaccine Goes To Young And Healthy

By John Siddle in The Mirror. Serious health condition sufferers say they have been overlooked in the jab rollout after the Government chooses to vaccinate people by age once priority groups are done. Vulnerable Brits say they have been ‘forgotten’ in the vaccines rollout as young and healthy people get jabs. Those with serious health […]

The History of ME

  From ME International. The 1956 Lancet Editorial First Proposing the Name “Benign Myalgic Encephalomyelitis” A New Clinical Entity by  E.D. Acheson, D.M., M.R.C.P. (26 May 1956) ​“From the purely practical standpoint it would be useful to have a name for this syndrome.  As the most helpful single feature in the recognition of this syndrome […]

All In Your Head

From Undiagnosis. I have been dropping various hints over the last few months about a non-fiction project I have been working on for the last two and a half years. It’s called All In Your Head, and you can find out more about it on the website here. In brief, it’s the story of what happens when […]

A Surgeon’s ME Story

By Michael Gallagher.   I am an orthopedic surgeon and former marathoner and triathlete living with chronic fatigue syndrome (ME/CFS). Below is an an email that I sent to my colleagues describing my battle with ME/CFS that has robbed me of my ability to do much of what I love. I think many people can […]

ME Research On The Way Due To Long-Covid ?

  A bit of a breakthrough on the BBC 2 Horizon programme where Dr Strain explains to Dr Xand van Tulleken that ME, a physical illness, will be gaining research based on the Long-Covid situation.  It’s only a couple of minutes long, but worth a watch !   To watch the video, click on the […]

Analysing Antibody Responses Against EBV-Derived Antigens In ME/CFS

  From ME Research UK. Principal investigators Dr Nuno Sepúlveda & Prof. Carmen Scheibenbogen. Background and Aim. The emergence of so-called ‘long COVID’ has highlighted the potential long-term health consequences of infection with a virus like SARS-CoV-2, leading to symptoms such as fatigue, muscle pain and brain fog that may last for weeks or months. […]

I Was Reported To DWP And It Broke Me

  By Kate Stanforth in WheelAir. Kate Stanforth shares her story, from being an active young girl, to developing a chronic illness and navigating ESA, DWP and public opinion. I’m going to open this by saying that this is the most honest blog I have ever written. It’s on a subject that I know lots […]

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