Chronic Fatigue Syndrome

Chronic Fatigue Syndrome

The Guardian View On Disability Rights: A Deficit Of Attention

disability-rights

  From The Guardian.   Twenty-five years after discrimination was outlawed, progress towards inclusion and equality has gone into reverse. There should have been a feature film, or a primetime TV series. Maybe one day there will be. But this year, the 25th anniversary of the Disability Discrimination Act – a landmark piece of legislation […]

Expert Reaction To The BMJ Editorial Calling For The Abandonment Of Standards

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  By Brian Hughes in The Science Bit.   An invited, non-peer-reviewed guest editorial in the BMJ has claimed that behavioural interventions for “complex conditions” (such as ME or CFS) should not be judged using the customary criteria — and that the relevant studies should not be evaluated as though they were proper randomised controlled trials — […]

NICE, The Media And The Cultural Problem Of Myalgic Encephalomyelitis (ME)

Valerie Eliot-Smith

  By Valerie Eliot Smith.   RE-CAP: the ongoing NICE guideline in development (GID) process. In 2017, the English National Institute for Health and Care Excellence (NICE) began the process of updating the existing guideline on myalgic encephalomyelitis (ME), originally published in 2007. The draft consultation documents were published on 10 November 2020, followed by a six-week consultation period concluding […]

Science Behind DecodeME Uncovers Potential Covid-19 Treatments

DNA-Double-Helix-made-of-people-DecodeME

  From DecodeME.   DecodeME’s Dr Veronique Vitart, Dr Shona Kerr and Professor Chris Ponting are among a group of researchers who have just published a study in the top science journal Nature on the role that genetics plays in severe Covid-19. Using the same technique that will power DecodeME, they found that people with particular DNA […]

Researchers Claim Proof Chronic Fatigue Syndrome Is A Bodily Disease – Expert Reaction

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  From Science Media Centre. Researchers claim they have “unequivocally proved” that Chronic Fatigue Syndrome is not a psychosomatic disease. One of their studies finds mitochondria – known as the “powerhouse of the cell” – are dysfunctional in patients with the syndrome. A second study finds epigenetic similarities among sufferers. The SMC asked experts to comment on the research.  Associate […]

Trial By Error: Professors Chalder And Crawley Join Forces To Push CBT For Kids

David Tuller

  By David Tuller, DrPH On November 10th, the National Institute of Health and Care Excellence published a draft of new clinical guidelines for ME/CFS. The draft represented a blunt rejection of the argument that the combination of “unhelpful cognitions” and deconditioning drive the illness. Under this once-hegemonic framework, indicated therapies include cognitive behavior therapy to […]

Today’s Best Practice Will Be Rubbished Tomorrow

Medical

  Posted by BJGP Life. Charles Todd qualified as a GP in 1981 and then spent twenty years working in Zimbabwe. He recently retired as a GP partner in Buckinghamshire. IN MY FIRST JOB AFTER QUALIFYING in 1977 as a house physician in cardiology, on call frequently involved “clerking” mostly middle-aged men having heart attacks and admitting them […]

Chronic Fatigue Syndrome, Migraines And “Brain Fog” – An Interview With Dr. Nancy Klimas

Migraine

From The Honest Migraine.   The Honest Migraine is pleased to share an exclusive, three-part interview with highly respected expert, Dr. Nancy Klimas, who holds multiple noteworthy positions including Director, Institute for Neuro-Immune Medicine, Nova Southeastern University. Klimas specializes in myalgic encephalomyelitis – chronic fatigue syndrome (ME/CFS), which commonly results in migraines, “brain fog,” and […]

Trial By Error: GP Group Removes Online GET/CBT Medical Training Program

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    By David Tuller, DrPH In early 2019, I wrote about an awful online training course for general practitioners on recognizing and caring for patients diagnosed with what was referred to as CFS/ME. The module, called METRIC, promised to provide “GPs and other primary care practitioners with an overview of the presentation, diagnosis, assessment and ongoing […]

Forward-ME Call For Health Warning To Be Put On Existing NICE Guideline For ME/CFS

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  From The ME Association. A highly influential UK campaign group is demanding that a health warning be put on the existing NICE guideline for ME/CFS – to try and stop more patients being damaged by graded exercise. Some 24 members of the Forward-ME Group – led by founder The Countess of Mar – have signed […]

Study Suggests Energy Production Problems May Be Everywhere In Chronic Fatigue Syndrome (ME/CFS)

Fatigue

By Cort Johnson in Health Rising.   As time has gone on, the energy production issue in chronic fatigue syndrome (ME/CFS) has become better and better documented as researchers take different slants on it. Take the whole body energy production tests. Workwell’s two day cardiopulmonary exercise tests (CPETs) have documented the damaging effects that exercise one day […]

New ! ME/CFS Family Impact Survey By Dr Nina Muirhead & Cardiff University

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By Russell Fleming in The ME Association. We are excited to announce a new international research study looking at the impact of ME/CFS on the quality of life of both patients and their family members. This is a short and simple online survey designed to be accessible to all adults 18+, including severely affected patients. […]

How To Manage Long Covid-19 Symptoms And Fatigue

Fatigue

  By Megan E. Doherty in elemental. Covid-19 is new, but the ME/CFS community has dealt with long-haul-like symptoms for years. Here’s how they cope. Asthe pandemic has progressed, it has become clear that a good chunk of Covid-19 patients suffer symptoms for weeks, even months, after first getting sick. Many of them deal with fatigue, muscle and […]

New Test For Chronic Fatigue Syndrome Could Help COVID-19 Patients

Blood Test

  By Erica Gerald Mason in Very Well Health.    Researchers have developed a new test to diagnose myalgic encephalomyelitis (ME), also known as chronic fatigue syndrome (CFS). The test stands out as the first successful molecular diagnostic tool for ME, a development that has been long anticipated by many healthcare providers and patients. This new tool […]

Trial By Error: Thoughts On The Observer, The Guardian, And Paradigm Shift

David Tuller

    By David Tuller, DrPH Earlier this week, I blogged about a story in The Observer that provided an inaccurate description of what it called chronic fatigue syndrome. For much of the piece, the writer, Eleanor Morgan, offered a sympathetic portrait of people, including herself, experiencing prolonged symptoms after an acute bout of Covid-19. A lot of what […]

Manx Radio Turn Up The Volume For A Specialist ME/CFS Service On The Island

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  By Ewan Gawne on The ME Association website. A Manx Radio reporter has produced an excellent 25-minute podcast on the campaign for a specialist service for people with ME/CFS on the Isle on Man. Ewan Gawne, the radio station’s deputy news editor, featured relaxed chat with three guests on the podcast – broadcast on […]

Blood MicroRNA Patterns Linked To Chronic Fatigue Syndrome

Blood Test

By Katarina Zimmer in The Scientist.   A finding of distinct patterns of gene-regulating RNA snippets in the blood of ME/CFS patients in response to a stress test could pave the way for a diagnostic tool for the condition and help untangle its underlying mechanisms. Formerly known as chronic fatigue syndrome, myalgic encephalomyelitis/chronic fatigue syndrome […]

Deep phenotyping of myalgic encephalomyelitis/chronic fatigue syndrome in Japanese population

Research

  By Toshimori Kitami et al in Nature.   Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a complex and debilitating disease with no molecular diagnostics and no treatment options. To identify potential markers of this illness, we profiled 48 patients and 52 controls for standard laboratory tests, plasma metabolomics, blood immuno-phenotyping and transcriptomics, and fecal microbiome analysis. […]

#Walkingfromhome: The Wheelchair User

Wheelchair

  From Living Streets. Caroline lives in a seaside town in England and is a member of one of our Local Groups of volunteers.  As a wheelchair user, Caroline is passionate about improving streets and the access to them for everyone. In normal times, Caroline’s favourite things are being with friends, volunteering and seeing the […]

Government’s Quiet Confession: We Must Do More To Protect Disabled People From COVID

Disability

  By John Pring in Disability News Service. The UK government appears to have bowed to months of pressure from disabled campaigners and allies, after quietly revealing that it is considering taking “further action” to protect disabled people from the pandemic. It comes alongside an admission that disabled people have been “disproportionately impacted” by COVID-19, […]

Whoops ! Did A GET Study Just Explain Why It DOESN’T Work In Chronic Fatigue Syndrome (ME/CFS) ?

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  By Cort Johnson in Health Rising.   Question: When does a graded exercise study explain why graded exercise is not helpful for chronic fatigue syndrome (ME/CFS)? Answer: when it employs an exercise test with it. Just as NICE was pulling back on graded exercise therapy (GET) a GET study was published showing why it doesn’t work. The authors […]

Paul Garner On long Haul Covid-19—Don’t Try To Dominate This Virus, Accommodate It

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  From BMJ Opinion.   “Has covid-19 gone?” My first thought every morning for six months. A few weeks ago, I was jubilant. The muscle aches had evaporated, my head was clear. I announced this to Rachael, a friend who knows chronic fatigue well. “Fantastic, Paul. You have found your baseline.” Crestfallen, I realised this […]

Why Is ME/CFS Getting So Little Research Funding?

Funding

  By ME/CFS Skeptic.   In a previous blog, Evelien and I argued that ME/CFS is getting less research funding than illnesses with a comparable prevalence and disability. In this article, we will try to get a better understanding of why ME/CFS gets so little research funding. Many causes have been proposed such as stigma, lack […]

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