Disability

Living With ME – Emelyne’s Transcript

Living with ME

  From the #SpeakforME Blog.   My name is Emelyne and I #SpeakforME because so many people suffer in the dark behind closed doors. ME has no bias, it affects men, women, children, adults, young and old. It can change during your life, it can get really tough. It can get better and there can […]

Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Diagnosis And Management In Young People: A Primer

Children

    From Frontiers in Pediatrics.  Authors as listed.   Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a complex disease that affects children and adolescents as well as adults. The etiology has not been established. While many pediatricians and other health-care providers are aware of ME/CFS, they often lack essential knowledge that is necessary for diagnosis […]

When Self-Doubt Makes You Question Your Own Illness

Laura Chamberlain

      By Laura Chamberlain from her Blog, Laura’s Pen.   How self-doubt nearly stopped me finding an important diagnosis… I have found myself having a very similar conversation with multiple people recently, about self-doubt about your own illness when you’re chronically ill. I’d never previously spoken about it, because, I guess, I don’t […]

Failings Of The Establishment Organisations Toward People With ME

invest

  From Invest in ME Research.   It may have escaped the notice of some that the MRC is preparing to be absorbed into the new UK Research and Innovation (UKRI) and the existing CEO, Sir John Savill, will be winding down affairs until the transition is completed. Link to Appointment notification We have stated […]

The Last Major Disease To Be Studied ? Ron Davis of Stanford Thinks So

Ron Davis

    by Ayanna Monteverdi in menedelspod.com.   Let’s say you’re a biomedical researcher looking for a place to make your mark. You find out that there is still a major disease that affects more than 2 million people in the US, and we still know virtually nothing about this disease at the molecular level. […]

What’s The Harm ? How I Turned To Wellness Out Of Desperation To Cure My Chronic Illness

Natasha Lipman

    By Natasha Lipman.   This week, I headed up to Leeds to speak at the British Dietetic Association’s Eat Fact Not Fiction event, where I had the pleasure of telling my story of falling for wellness, and why it’s so important that we don’t just dismiss people as stupid for falling for these trends. I’ve […]

10 Mic-Drop Replies For Every Time Someone Doubts Your Illness

Mike Drop

  by Elaine Atwell in Healthline.   If you’ve ever had to explain your medical condition to a stranger, you’ve probably experienced the wide-eyed pity, the awkward silence, and the “Oh yeah, my cousin has that” comment. But the most frustrating experience of all may be when you patiently explain your condition to someone, and […]

8 Things That Spoonies Are Totally Over

Spoonie Warrior

    From The Spoonie Warrior Blog.   While my condition has only been disabling for the past year and a half, I’ve technically had chronic illnesses my entire life. Even before being diagnosed, my illnesses affected my life greatly. Most people will want to hear that, despite my struggles, I make sure that I […]

Disabled Go – Access Information For The Disabled

Disabled Go

  A very warm welcome to DisabledGo.com. We hope that you find our services really useful and that you visit us often. On our website you’ll find detailed access information to thousands of venues across the UK and the Republic of Ireland: shops, pubs, restaurants, cinemas, theatres, railway stations, hotels, universities, hospitals and more. Established over […]

This 12-Year-Old Is Creating An App For Disabled People

Alexander Knoll

  By Joe Fryer in NBC News.   At just 12 years old, Alexander Knoll is already handing out business cards. Even more impressive, his title on those business cards is “CEO.” The inventive, freckle-faced redhead is creating something called the Ability App, which is like Yelp for accessibility. When it’s finished, the free application […]

Viruses And CFS: Statements By Ron Davis And Bob Naviaux

Medicine Foundation

    From Open Medicine Foundation.   Ron Davis: There is a great deal of evidence that a variety of viruses can initiate ME/CFS, but it is less clear that a virus is involved in sustaining the disease. However, some patients may have a continuous problem with viruses, especially those viruses we always carry like […]

ME/CFS: A New Explanation – And Cure ?

Dr Eriksen

      From TraceyDuvall.com.   In a recent paper, Dr. Willy Eriksen proposes a complete explanation for the development, diversity, and persistence of myalgic encephalomyelitis, aka chronic fatigue syndrome (ME/CFS). He also suggests a possible cure. Seeing that this potentially groundbreaking research was attracting little attention, I contacted Dr. Eriksen and interviewed him via […]

ME And Me: Making Films About Disability To Raise Awareness

Film

      From Disability Horizons.   Disabled writer and actor Thom Jackson-Wood, who has ME, talks to Disability Horizons about his films, Awaken and The Black Box, both of which are about disability. Written after frustrations at disabled people being misrepresented on TV, he hopes the films will raise awareness of different disabilities, and […]

7 TV Shows That Got Chronic Illness (Mostly) Right

Golden Girls

    By Erin Migdol in The Mighty.   If you’re looking for an accurate, informative, compassionate representation of your illness, it’s safe to say you’ll probably have a hard time finding it on TV. Most shows portray illnesses in a sensational, highly dramatized way, picking and choosing certain symptoms or stereotypes to emphasize and […]

Could We Finally Have A Definitive Biomarker For ME/CFS ?

research

  From ME Research UK.   It’s a recurring theme, but the diagnosis of ME/CFS is severely hampered by the lack of a test that can distinguish people with the illness from those without. This is a challenge in many diseases, but particularly in ME/CFS which affects so many different systems of the body. ME/CFS […]

The York ME Community © 2015