Fibromyalgia

Having A Chronic Illness Is Not Romantic

Frustration Chronic Illness

  By Becca in Confessions of a Spoonie, as published by Scope.   Becca writes the blog Confessions of a Spoonie and today is talking about the romanticism of chronic illness in books and films and how she feels about it. I  worry about certain things; how clean is my house, all the books on my bookshelf […]

19 Lessons My Invisible Illnesses Have Taught Me

Free

  By Caz in The Mighty.   Living with invisible, chronic illness can often feel like trudging through mud – an endless downward spiral of problems, regrets and maybe a sprinkle or more of resentment, too. I know I have my down days and struggles with fibromyalgia, a stoma, fatigue, pain and migraines. But it’s important to appreciate […]

Finally – An Objective Measure of Fatigue ? An ME/CFS And Fibromyalgia Inquiry

Eye

  By Cort Johnson in Health Rising.   Making Fatigue Real Fatigue is like the Rodney Dangerfield of symptoms – it just gets no respect. The problem is the poor descriptive power of the word. It readily describes the everyday, manageable fatigue that most of the population regularly feels. That fatigue, though, has little relation […]

Cooking With A Physical Disability

Cooking

  By Emily Han in @Kitchen.   For those with a permanent or temporary physical disability involving mobility impairment, cooking can present challenges as well as opportunities for creative problem solving. Not all disabilities or people are the same, but some of the common issues include limitations in standing, reaching, or using one side of […]

Every Interview For PIP Should Be Recorded, MPs Say In Damning Report

Interview

  By Jen Mills in METRO.   Confidence in the application process for the main disability benefit is so low that every interview should be recorded, MPs said in a damning report. They said there was a ‘pervasive lack of trust’ among disabled people who applied for PIP (Personal Independence Payment). Since 2013, 290,000 rejected claims […]

‘I Am A Hard Worker’

Disability

    By Terrence McCoy in The Washington Post.   Roanoke, Ala. — She wanted her clients to look to her for inspiration, so Teresa Boullemet stamped out her cigarette, popped a peppermint, sprayed herself with perfume and applied fresh lipstick. “Are you going to the farthest corners of the world today?” her assistant asked […]

9 Shocking Errors Made In Assessments For PIP And ESA By Capita, Atos And Maximus

DWP Caxton House

  From Disabled Go News.   The Work and Pensions Select Committee received nearly 4,000 submissions – the most by a select committee inquiry – after calling for evidence on the assessments for personal independence payment (PIP) and Employment and Support Allowance (ESA). The MPs said: “We were so impressed and moved by the response […]

Prescribing Mindfulness Allows Doctors To Ignore Legitimate Female Pain

Mindfulness

  By Sarah Yahm in Slate.   A few years ago, after a series of cascading injuries and illnesses that rendered me unable to type, drive, or sleep, I briefly became a professional patient. Like all of my professions, I took it seriously. I went to appointments armed with lists of well-researched questions written down neatly […]

Travel Industry Still Failing To Meet Needs Of Disabled Holidaymakers Is Unacceptable

traveling-in-a-wheelchair

  From posabilitymagazine.   Charity responds to BBC One’s ‘Rip Off Britain’ as evidence travel industry needs to take disabled consumers more seriously. National respite holiday charity Revitalise has responded to BBC One’s latest episode of ‘Rip Off Britain’, using it as evidence that the travel industry needs to take requirements of disabled holidaymakers more seriously. According to […]

Empowering Patients, Advancing Research, And Improving Clinical Care For All Those Impacted By ME/CFS And Fibromyalgia

Bateman Horne Center

  From The Bateman Horne Center website.   The Bateman Horne Center of Excellence is leading the way in the medical advancement and treatment of and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Fibromyalgia. More than 5 million people in the US are affected by ME/CFS and Fibromyalgia—more than those with MS, lupus or many forms of cancer—yet […]

How Dare You Judge My Handicap Sticker

invisible_disability_stickers-r449f8209b2e24f9e99cbbfda6d03ece2_v9i40_8byvr_324

  By Ellen Smith in National Pain Report.   Having to go to appointments to my doctor here in Rhode Island, so we can again fill out the form for the state to confirm that I still qualify for a handicap sticker for me, causes a humiliating and heartbreaking feeling to have to be reminded […]

15 Secrets Of People Who Can’t Work Because Of An Illness

Chronic Illness

  By Paige Wyant in The Mighty.   If you have a chronic illness, you may know what it feels like to be a “full-time patient.” Between the physical and emotional symptoms, constant doctor appointments and numerous tests and procedures (not to mention keeping track of it all), being chronically sick can become a full-time job in itself. You […]

Healthwatch York Survey

Healthwatch

Hi. I met with Healthwatch York yesterday and was made aware of a survey where they are looking to find out what matters to the people of York ‘health-wise’. There are only a few questions, but most importantly there is an area to add what you think they should be looking into. This may be […]

Flu Jab: All You Need To Know About The Vaccination And The Illness

Flu (Text serie)

From iNews. Headlines about this season’s flu outbreak make for alarming reading. Considered to be the worst flu season since 2011, as many as 120 people have died in the UK. There is also concern about Aussie flu – the H3N2 strain – taking grip of the UK as it has in Australia. It is one […]

Elevations Of Ventricular Lactate Levels Occur In Both Chronic Fatigue Syndrome And Fibromyalgia

brain-power

  From Solve ME/CFS Initiative.   Note: the use of “CFS” in this article reflects the nomenclature used in the studies referenced. New research published in Fatigue: Biomedicine, Health & Behavior found ventricular lactate (lactate present in cerebrospinal fluid) might serve as a biological marker of underlying brain dysfunction for patients with chronic fatigue syndrome (CFS), fibromyalgia […]

Mapping Our Community

York Centre for Voluntary Service

  From York CVS.   In 2017 York’s Health and Wellbeing Board launched an ambitious Joint Health and Wellbeing Strategy, running till 2022. This effects all of us, living and working here. It has four key elements: mental health and wellbeing, starting and growing well, living and working well, ageing well. In 2018 we’ll be working […]

Get Wise To Flying With A Disablity

Disability

  From British Healthcare Trades Association.   Planning a holiday or travel as a disabled person or with a disabled family member can seem challenging. The question asked when it comes to offering travel options for people with disabilities or injuries is ‘how can travel change to positively benefit people’s lives and increase their independence?’ […]

Blue Badge Scheme Could Be Extended To Autism And Dementia Sufferers

access-bluebadge

  From BBC News:   People with dementia and autism could get blue badge parking permits in England under new government proposals. It is hoped that providing the permits for those with hidden disabilities will create equality between the treatment of physical and mental health. The Department for Transport said at the moment only certain […]

Reflecting On Dr. King And The Disability Rights Movement

Martin Luther King

  By Regina Weiss in Independence Care System.   In thinking about Dr. Martin Luther King as his birthday approaches, I was looking into connections between the civil rights movement that he helped to lead for racial equality and the disability rights movement. I’ve always been interested in the intersection of groups of people who are discriminated […]

Fast Food Makes The Immune System More Aggressive In The Long Term

Immune

  By Prof. Dr. Eicke Latz and Dr. Anette Christ from University of Bonn.   The immune system reacts similarly to a high fat and high calorie diet as to a bacterial infection. This is shown by a recent study led by the University of Bonn. Particularly disturbing: Unhealthy food seems to make the body’s defenses […]

To Those Who Find My Illness ‘Hard To Understand’ When They See Me Smiling

Chronic

    By Tiffany Early in The Conversation.   My husband and I had a conversation about how others perceive my illness the other day. It wasn’t a confrontational conversation — it was more the random musings that happen when you’re waiting for dinner to come out of the oven. Joe mentioned that a mutual friend had once […]

Review Of Wellbeing And Prevention Services

Partnership

  From North Yorkshire Partnerships.   Wellbeing and Prevention consultation – Proposals for future investment into support North Yorkshire County Council’s Health and Adult Services is currently holding a consultation on proposals for best use of the available investment in community-based support, to help adults in North Yorkshire stay well and independent in their local […]

Claiming Disability Benefit ? Don’t Ever Dare Shake Hands

DWP Caxton House

  By Peter Bradshaw in The Guardian.   Do you shake hands? I do – with people I’m meeting for the first time, and often meeting up with people I already know really well. But the classic handshake is now not the single accepted greeting, and even with strangers you must awkwardly negotiate the possibility […]

The Burdens Posed By Invisible Physical And Mental Illnesses

toni_bernhard_larger

    By Toni Bernhard J.D. in .   I look healthy. My friend, whom I’ll call Gail, also looks healthy. The difference is that I suffer from a physical illness and she suffers from a mental illness: depression. The similarity is that both of our conditions are invisible to others. Despite the different source of our illnesses, our […]

The York ME Community © 2015
Powered by Live Score & Live Score App