Fibromyalgia

MPs Raise Concerns With McVey Over ‘Stress And Poverty’ Caused By WRAG Cuts

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  By John Pring in Disability News Service. Cross-party MPs have raised a series of concerns with work and pensions secretary Esther McVey about the government’s treatment of disabled people on out-of-work benefits. Members of the Commons work and pensions select committee were questioning McVey (pictured) more than a year after her government introduced cuts of nearly […]

Mother Of Epileptic Boy Becomes First Person To Legally Enter UK With Cannabis Oil

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  By Benjamin Butterworth in INews.   The mother of a six-year-old epileptic boy has legally brought medicinal cannabis oil through the border in the first known successful attempt since the Government paved the way for reforms. Hannah Deacon was allowed to pass through London City Airport on Tuesday carrying a five-month supply of the […]

PIP Announcement ‘Shows Replacing DLA Was Waste Of Time And Money’

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  From Disabled Go News.   The government’s decision to stop regular benefit reassessments for some people with “the most severe, lifelong conditions” shows that replacing disability living allowance (DLA) with personal independence payment (PIP) was a waste of time and money, it has been claimed. Sarah Newton, the minister for disabled people, confirmed this […]

Tips Suggested By Members Of Our Online Community About Work

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  From Scope.   Negotiating the world of work can seem like a difficult challenge if you’re a disabled person. Fortunately there are many resources that you can draw on to make things a little easier, whether you’re currently experiencing difficulties at work or you’re looking for a job. Read on for our top tips […]

What I Wish Others Knew About Living With Chronic Pain

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  By Emily Murray in The Mighty.   You open your eyes and look at the clock. It’s 4:45 a.m. You only have about an hour left in your bed, your safe haven. Sure, maybe you could use a little more sleep. Most people do need that. But lack of sleep isn’t what drives you to hit the […]

Chronic Fatigue Syndrome – It’s Worse Than Multiple Sclerosis – And Fibromyalgia Is No Walk In The Park Either

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  By Cort Johnson in Health Rising.   Multiple sclerosis (MS) is a dreaded disease. About ten years into having chronic fatigue syndrome (ME/CFS), I still remember being tested for it and how thankful I was that I didn’t have it. MS does things to people that ME/CFS doesn’t. For one thing, it kills more […]

6 Ways To Be Heard If You Live With Chronic Illness

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  By Victoria Weter in The Mighty.   Some days are worse than others. Some days it is a trial just to get out of bed in the morning, but still I manage to roll out and attempt my day. Through these days, I load up on vitamin B and caffeine, and most days it […]

Minister For Disabled People Caught Misleading MPs On Cuts To Support… Again

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  By John Pring in Disability News Service.   The minister for disabled people has been caught misleading MPs – again – as she tried to defend her government’s repeated breaches of the UN disability convention. It was the second time in five months that Sarah Newton (pictured) has misled MPs in a House of […]

People With Chronic Conditions Don’t Want Pity – We Want Understanding

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  By Jo Cole in HUFFPOST.   If you see a person who you know has a chronic health condition out and about it’s probably because they’re having a ‘better’ day When I bumped into a former colleague who told me I was looking well I had mixed emotions. I don’t want to seem ungrateful […]

Ill Versus Disabled – Is There A Distinction Between The Two ?

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  From The Chronic Illness Inclusion Project.   Disabled activist, Stella Young recently wrote: ‘The social model tells us that we are far more disabled by inaccessible environments and hostile attitudes than we are by our physicality. My disability comes not from the fact that I’m unable to walk but from the presence of stairs.’ […]

Fibromyalgia, Chronic Fatigue Patients Show Similar Issues With Postural Control In Study

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  By Jose Marques Lopes, PhD in Fibromyalgia News Today.   Patients with fibromyalgia and patients with chronic fatigue syndrome (CFS) both show similar differences in postural control in comparison with healthy subjects, researchers found in a study. The study, “Lower regulatory frequency for postural control in patients with fibromyalgia and chronic fatigue syndrome,” appeared in the journal PLOS ONE. Patients […]

15 Secrets Of People Who Can’t Work Because Of An Illness

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  By Paige Wyant in The Mighty.   If you have a chronic illness, you may know what it feels like to be a “full-time patient.” Between the physical and emotional symptoms, constant doctor appointments and numerous tests and procedures (not to mention keeping track of it all), being chronically sick can become a full-time job in itself. You […]

When You Can’t Just ‘Push Through the Pain’

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  By Stacey T in The Mighty.   This post may get a little soap-box-like, but it’s something I need to talk about because it’s become a huge issue for me. So, most people have heard the phrases “pushing through pain,” “no pain, no gain” and similar ones. But when you have chronic illnesses or […]

7 Top Tips To Survive A Crash And Still Be Mum

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  From My Stripey Life.   Caring for a sick kid or kids when you have your own chronic illnesses to deal with can be one of the hardest things you will ever have to do.  I find myself repeatedly ignoring the warning signs that my symptoms are spiralling because I simply do not have […]

28 Unexpected Emotional Symptoms Of Chronic Illness

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  By Paige Wyant in The Mighty.   When you are diagnosed with a chronic illness, the doctor might give you an overview of the common symptoms associated with your illness, but often these are physical manifestations – pain, fatigue, swelling, even brain fog. Many of us are then surprised by all of the emotional side […]

The Missing Link: Why Disabled People Can’t Afford To #DeleteFacebook

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  By Frances Ryan in The Guardian.   Revelations about internet companies being negligent with our data have prompted a backlash against social media, but for many people in marginalised groups these networks are a vital lifeline. It’s 10.32 on a Friday night and I am staring at the glow of my iPhone screen. It […]

Limitless Travel

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  One of the aims of The York ME Community is to bring businesses on board for various reasons.  One is where the business might be of interest and of use to those with ME. We have recently linked up with Limitless Travel, a company run to provide holidays for anyone living with a disability, […]

An ME/CFS And FM Pioneer Says Good-bye: The Charles Lapp Interview

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  By Cort Johnson in Health Rising.   Dr. Lapp’s path to medicine and then into chronic fatigue syndrome (ME/CFS) and fibromyalgia (FM) was an unusual one. Lapp graduated from the Rensselaer Polytechnic Institute with both Bachelor’s and Master’s degrees in engineering. After doing research, consulting, and marketing in Boston, Lapp turned to medicine and […]

Practical Solutions To Everyday Spoonie Problems

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  From ‘A Journey Through The Fog’. Having a chronic illness like ME/CFS or Fibromyalgia means everyday tasks can be challenging, exhausting and painful. But there are steps we can take to make life easier, to limit the stress caused and to conserve our energy for more enjoyable activities. Here are some practical solutions to […]

Your Legal Rights To Accessible Transport

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  Equality Act 2010   The Equality Act 2010 replaced all previous equality legislation, including the Disability Discrimination Act 2005 (DDA). It protects disabled people in all areas, including transport. Under the Act, transport providers have the duty to provide an accessible service and make ‘reasonable adjustments’ to offer the same standard of service to […]

Did A Multiple Sclerosis Study Give Us Clues About ME/CFS And Fibromyalgia ?

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    By Cort Johnson in Simmaron Research.   Why should a blog focused on chronic fatigue syndrome (ME/CFS) and fibromyalgia (FM) be interested in multiple sclerosis? Because some distinct similarities exist between the three diseases, and when diseases like ME/CFS and FM aren’t getting much research, sometimes it pays to pay attention to diseases […]

10 Guaranteed Ways To Cure Your Chronic Illness Instantly !

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  By Bethany Freeman in The Mighty.   You might think chronic illness has no easy fix, that it’s a complex problem that often has no cure because it’s widely misunderstood and medically complex. You might think people who are chronically ill deserve nothing but love and understanding on their journey. Well, you’d be wrong. They just need to […]

How Doctors Gaslight Women into Doubting Their Own Pain

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  By Suzannah Weiss in Broadly Vice.   f all the ways women are disadvantaged in society, one of the most overlooked yet most fundamental is the way in which women’s physical health is misunderstood and neglected. Medical research tends to use male subjects and overlook conditions experienced primarily by women. A 2007 study in the Journal of Women’s Health found […]

Wheelchair Users In UK To Be Given Enhanced Rights For Bus Travel

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  By Owen Bowcott in The Guardian.   Wheelchair users are to be given enhanced rights for bus travel, the government has announced, after a landmark supreme court judgment. The transport minister, Nusrat Ghani, has promised to improve access to spaces on vehicles that are intended to be reserved for disabled passengers. The decision follows the legal victory last […]

Accessibility Around The World – How Do Popular Cities Measure Up ?

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  From Able Magazine.   Travelling and exploring different places around the world is a source of joy and excitement for many people. Travel presents opportunities to broaden your horizons, meet new and interesting people, and create memories that will last a lifetime. However, for people with disabilities, travel can be more of a challenge. […]

Good News: First Licence Granted to Treat Pain With Medicinal Cannabis

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  From Your Daily Ideas.   License to treat pain with medicinal cannabis given the go ahead A license to treat chronic pain with medicinal cannabis has been granted here for the first time, it has emerged. A 3-month agreement was given the green light by the Department of Health to use Tetrahydrocannabinol (THC) people […]

How Big Pharma Is Corrupting The Truth About The Drugs It Sells Us

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  By Kate Harveston / AlterNet.   Remember how appalled we felt as a society when we discovered that, for so long, we had been mistakenly taking Big Tobacco’s word that cigarettes are harmless? Rinse and repeat with lobbyists for Big Alcohol fear-mongering about legal weed. And again and again with a panoply of consumer-level commodities and goods. Nowadays we have […]

Bones Pt II: Chronic Fatigue Syndrome (ME/CFS), Fibromyalgia, Osteoporosis And Getting Older

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By Carol Lefelt in Health Rising.    “Exercise encourages bone development, and lack of exercise means you’ll be more at risk of losing calcium from the bones and so developing osteoporosis….It also increases the risk of breaking a bone as a result of a fall.” NHS.UK Osteoporosis (bone loss) can be caused by multiple ways but since exercise builds strong bones, it’s clear that […]

A Love Letter To Anyone Who Struggled To Shower Today

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  By Mariann Martland in The Mighty.   This is a love letter to all those for whom showering is repeatedly a laborious exercise, physically, emotionally or both. To those who spend days putting it off because you know just how exhausting or painful it feels, right down to your bones, just to stand under the water for that […]

Tory Peer Attacks McVey Over ‘Litany Of Inaccuracies’ On Motability

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From Disabled Go News.   A Tory peer has accused work and pensions secretary Esther McVey of making a series of untrue statements about the Motability car scheme to fellow MPs. Lord Sterling, who co-founded Motability in 1977, has told McVey in a letter that he found the “litany of inaccuracies” in the comments made […]

What It Means To Experience ‘Payback’ With Chronic Fatigue Syndrome

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  By Zoe Baker in The Mighty.   Post-exertional malaise, or “payback,” is one of the key diagnostic criteria for myalic encephalomyelitis/chronic fatigue syndrome (ME/CFS). It is also one of the symptoms that is hardest for people who haven’t experienced the condition to understand. I often think of it as being similar to a hangover, […]

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