Fibromyalgia

Is The Brain Causing The Small Fiber Neuropathy In Fibromyalgia (And ME/CFS ?)

Cort_Johnson

    By Cort Johnson in Health Rising.   It seemed ever so clear. The reduction in the number of small nerves in the skin and eyes of roughly forty percent or so of the people with fibromyalgia (FM) and chronic fatigue syndrome (ME/CFS) must bring the body – as opposed to the brain – into […]

My Disabilities Are Invisible. I Shouldn’t Have To Prove Them To Strangers

Invisible Illness

  By Isabelle Jani-Friend in The Guardian.   I was recently on a packed Central line train into London. Luckily, I managed to take the last priority disabled seat. My osteoporosis and the fatigue I experience meant it would be hard for me to stand for the 40-minute journey to Oxford Circus. I felt a […]

When I Can’t Control How Chronic Illness Is Affecting My Body

Chronic

  By Laurel Younis in The Mighty.   OK, here it – the biggest and most important secret you will need to survive chronic illness. The key to surviving chronic illness is surviving it in any way you can. Now I know what you may be thinking, “Really? Is this seriously the advice you’re giving […]

Finding Accessible Work With A Chronic Illness

Life of Pippa

    From the Life of Pippa Blog.   Since I started blogging, there’s one question I’ve consistently been asked more than any other: how I found my flexible, work from home opportunities. If you don’t already know, I split my time between social media management and content creation in the charity sector, self-employment as […]

“This Is What Disabled Looks Like”: The Sometimes Hard-To-See Line Between Visible And Invisible Disabilities

invisible_disability_stickers-r449f8209b2e24f9e99cbbfda6d03ece2_v9i40_8byvr_324

  From the CoffeeSpoonie Blog.   There are disabilities we think of as visible, and disabilities we think of as invisible. (Mental illness? Invisible. Quadriplegia? Visible. Autoimmune disease? Invisible. Blindness, with a cane and guide dog? Visible.) Neat little categories that we are expected to sort our disabilities into, to help others understand better when […]

It’s OK To Feel Angry Or Resentful Sometimes When You Have A Chronic Illness

Chronic Pain

  By Juliana Philippa Kerrest  in The Mighty.   Something I greatly struggle with are the emotional ups and downs that come with dealing with a chronic illness. I have three chronic conditions that have affected me to varying degrees throughout my life: psychological, neurological, and autoimmune. Most of the time, I handle it relatively well; I […]

Preparing For University When You Have A Disability

University

  By Chloe Tear.   Oh how I remember this time well! I actually graduated on Wednesday, but preparing for the whole thing only seems like yesterday. University was such an unknown step, even if it was a step I knew I wanted to take. My health at the time was far from ideal and […]

How To Book Access Theatre Tickets – Seats For Disabled Patrons

Life of Pippa

    From the Life of Pippa Blog.   Ever since I started theatre blogging and my chronic illness-friendly reviews, I’ve had messages asking about how I book my access tickets and ensure my needs are met. It’s one of those things that I’ve been doing for so long now that it’s become second nature, so […]

More Than Half Of Disabled Passengers Still Find Air Travel Difficult, Says Regulator

Disability

    By John Pring in Disability News Service.   More than half of passengers who describe themselves as having an impairment that limits their day-today activity find travelling by air difficult, according to a regulator’s annual report on access at the UK’s major airports. The Civil Aviation Authority’s (CAA) annual report on disability access contains […]

Potential Dangers Of Exercise Or Activity For ME And Chronic Fatigue Syndrome

Graded-exercise-therapy-300x192

    From the How To Get On Blog.   We are taught that exercise is supposed to make us feel better. Staying active is supposed to make us healthier. Getting out of bed is supposed to improve our quality of life. Sadly, for people with Myalgic Encephalomyelitis or “Chronic Fatigue Syndrome,” the opposite can […]

What To Consider When Employing People With Disabilities

Disability

  By Robert Stack Forbes Councils Member.   President Trump kicked off his re-election campaign last month with a list of accomplishments, from the market rebound to unemployment being “the lowest it has been in 51 years.” According to a Society for Human Resource Management (SHRM) article, “With unemployment at a low, fewer people are looking for jobs. Many employers […]

Practical Solutions To Everyday Spoonie Problems

Spoonie

  By Jo Moss in A Journey Through The Fog.   Having a chronic illness means everyday tasks can be challenging, exhausting and painful. But there are steps we can take to make life easier, to limit the stress caused and to conserve our energy for more enjoyable activities. Here are some practical solutions to […]

World Emoji Day 2019: First Look At The New Disability Emojis For Release On iOS This Autumn

emoji-wheelchair

  By Rhiannon Williams in iNews.   Disability-themed icons, a yawning face and a sloth are among the new characters to be released in honour of World Emoji Day. Apple has previewed a selection of emoji due for release in the autumn, including a range of inclusive disability-themed characters. The reveal coincides with World Emoji Day, an unofficial […]

Stress, PTSD And Parents Of Kids With Disabilities

disability

    By Dr. Liz Matheis  in The Mighty.   As a Psychologist, I am in the business of receiving phone calls from parents worried about their kids with disabilities. During that initial phone call, parents give me a quick run-down of their child’s symptoms, the struggles the family at large is facing, and the specific goals […]

The Secret Of Change: Spend Your Energy Wisely With Chronic Illness

chronic

    From A Chronic Voice.   Chronic illness is a monster consumer of energy, leaving little to spare. Why waste it on unnecessary thoughts and unchangeable circumstances? So I ask myself, “what can I do to make things better? Is there something I’d like to create for myself today? How can I become a […]

Extreme Itch In Fibromyalgia And Chronic Fatigue Syndrome

0

By Adrienne Dellwo in Very Well Health.   Because fibromyalgia and chronic fatigue syndromeinvolve the central nervous system, we get all kinds of strange things goings on with our nerves. Along with burning, tingling, numbness, and pinpricks, we can experience itchiness that can be severe and persistent. It’s maddening, especially since scratching doesn’t do a thing to help. For […]

20 ‘Comebacks’ To Use When A Doctor Isn’t Taking You Seriously

Doctor

  By Erin Migdol in The Mighty.   When you have an illness that is invisible, complex and/or difficult to treat, that sometimes translates into challenging experiences with doctors. While there are many kind, compassionate doctors out there who are willing to put in the time to figure out your health issues, unfortunately many in […]

Crippled: Austerity And The Demonisation Of Disabled People By Frances Ryan – Review

Disability Dice

  By Yvonne Roberts in The Guardian.   Two years ago the United Nations released the findings of a secret inquiry into state-level violations of the human rights of disabled people. Its conclusion was that a “human catastrophe” was under way. In every sphere, including employment, housing, education and social security, disabled people are hugely disadvantaged. Shamefully, […]

Disabled People Are Sharing The Worst ‘Compliments’ They’ve Received

Disability-symbol-2

  By Serena Coady in The Metro.   Ever felt the sting of a backhanded compliment? Perhaps you’ve been told that your English is ‘surprisingly’ good, or that you’re funny… ‘for a woman’. A new Twitter hashtag, #DisabledCompliments, is highlighting that veiled insults are sometimes a daily reality for people with a disability. The viral […]

One North-West Town Is Getting It Right For Disabled People On Public Transport – So Why Can’t The Rest Of Britain ?

Accessibility

  By James Moore in The Independent.   When you’re disabled the phrase “back to earth with a bump” is all too familiar. On Thursday I wrote about what I’d describe as a rare win: the Greater London Authority sent a motion to London mayor Sadiq Khan following my humiliating experience on the tube (I was […]

Chronic Illness & Boredom – The Real Groundhog Day

RT-fog11-ml-170203_20x13_1600

    By Jo Moss in A Journey Through The Fog.   Each month a fellow blogger (A Chronic Voice) hosts a ‘Link-up party’. It is a monthly get-together for anyone with a chronic illness. An opportunity to share, to listen, and to learn from one another. It’s a great way to provide insight into life […]

Disabled People Already Fight Battles Every Day. Making Us Prove We Need Benefits Is Almost Inhumane

0

  By Samantha Renke in The Metro.   Living with a disability in the UK today means living in a state of perpetual fear, feeling unheard, patronised and at times like a burden – and it can take a huge toll on your mental health. I was born with a genetic condition called Osteogenesis Impefecta […]

9 Relatable Comics That Nail What It’s Like To Have Chronic Illness

chronic

      By Michelle Levy in The Mighty.   Getting sick is no laughing matter, but it often takes humor to be able to get through the ups and downs of chronic illness. While some of these comics make us laugh out loud in pained affirmation, mostly they raise awareness of chronic illness, and […]

My Label And Me: I Am Not A ‘Scrounger’ Because I Claim Benefits

Benefits

      By Nina Grant in The Metro.   At 18, after six months in a psychiatric unit, I first claimed disability benefits. A social worker helped me apply for supported housing, as well as for the benefits needed to cover my rent and cost of living. Because I was so young, I didn’t […]

Government Admits Not Considering Impact Of No-Deal Brexit On People With A Disability

Disability Dice

    By Benjamin Kentish in The Independent.   Ministers have been condemned after admitting that they have not carried out any assessment of the impact that a no-deal Brexit would have on the lives of people with disabilities. The government was accused of having “ignored” people with a disability after admitting that “no formal assessment” had been conducted, despite fears over a […]

PIP: Ombudsman To Start Benefits Investigation

benefits

  From BBC News.   The Northern Ireland Public Services Ombudsman is to investigate how Stormont’s Department for Communities administers Personal Independence Payments (PIP). PIP replaced the Disability Living Allowance (DLA) benefit in June 2016. The ombudsman Marie Anderson can investigate suspected maladministration in public services. The Department for Communities said only 12 out of […]

The ME/CFS And Fibromyalgia “What Would You Have Done Differently” Survey

What-I-Would-Do-Differently-If-I-Started-Again

By Cort Johnson in Health Rising. when you get it right you pass it on… Gary Snyder   When things go wrong, the “If only I had known! “, “If only I could have that back!” mantra shows up in spades. Of course, we all make mistakes – major mistakes – that we wish we could […]

The Struggle To Balance Between Resting And Using Energy When You’re Chronically Sick

Chronic

  By Chelsea Morris in The Mighty.   Balance! How do we achieve it? I think for any human being balance is very difficult. But for those of us with chronic pain and disease it seems to be even harder. I wake up one day and feel actually pretty good. So I want to accomplish more than […]

The Crash That Follows The Push Of ME/CFS And FM Awareness Day

Feeling_Fatigued_and_Drained_Ayurvedic_tips_to_Re-energize_Yourself

  By Jodie Smith in Phoenix Rising.   It’s been about a month since the ME/CFS community pulled out all the stops for our May 12 International ME/CFS and FM Awareness Day. I think we have a great deal to be proud of, and encouraged by. With each passing year this bunch of chronically ill […]

Spinal Stenosis, Chronic Fatigue Syndrome (ME/CFS) and Fibromyalgia: The Spinal Series #3

johnson_cort

  By Cort Johnson in Health Rising.   The Spinal Series This is part three of a series examining spinal issues which may mimic chronic fatigue syndrome (ME/CFS) and fibromyalgia. The first two in the series involved two very ill ME/CFS patients who have recovered or are recovering following surgery to correct craniocervical instability. Could […]

DWP Quietly Hands Private Firms £600m Extra To Test Disabled People For Benefits

DWP Caxton House

  By Dan Bloom in The Mirror.   EXCLUSIVE: Atos and Maximus had their PIP and ESA contracts extended for the second time despite accusations they’re running a “failing” welfare system. Now the eye-watering cost to taxpayers can be revealed. Tory ministers are quietly handing private firms an extra £630 million to test sick and […]

2019 Blue Badge Scheme: Everything You Need To Know About The Hidden Disability Changes

access-bluebadge

    By James Kelly in Leasing.com.   The blue badge disabled parking scheme is supposedly undergoing its biggest shake-up since it was introduced in 1970, but what exactly will change, and when? Last year it was revealed that, from 2019, people with hidden disabilities will be granted access to the scheme too. The idea […]

Spinal Stenosis, Chronic Fatigue Syndrome (ME/CFS) And Fibromyalgia: The Spinal Series #3

Cort_Johnson

  By Cort Johnson in Health Rising.   The Spinal Series This is part three of a series examining spinal issues which may mimic chronic fatigue syndrome (ME/CFS) and fibromyalgia. The first two in the series involved two very ill ME/CFS patients who have recovered or are recovering following surgery to correct craniocervical instability. Leader in the […]

The ‘Activity Hangover’ I Experience Because of Chronic Illness

chronic

  By Heather Wallace in The Mighty.   As someone who has recently moved to a new town and is trying to figure things out and find my groove, I have been out a lot more than I usually am, and I am paying for it. Having fibromyalgia means things are different for me now. Planning on going […]

The York ME Community © 2015
Powered by Live Score & Live Score App