Fibromyalgia

I Can Walk, But That Doesn’t Mean I Don’t Need A Wheelchair

Wheelchair

By Rebecca Giddings in The Mighty. Everyone knows when you are ill, you are in bed and can’t do anything. Obviously this example is great for someone with the flu, but what if you have a chronic illness, an illness that is going to last your lifetime? Are you supposed to just hide away in […]

Woman’s Fight To Stop Disabled People Travelling For Benefit Assessments

disability

  By Emily Hennings in This Is Local London.   Claudette Lawrence, 49, is an activist and campaigner who also suffers with myalgic encephalomyelitis (ME), which can cause extreme mental and physical exhaustion. She has set up the petition because she has recently come into contact with a lot of people who are having problems when it […]

The Differences Between Temporary And Chronic Pain

Chronic Pain

By Krista Germanis in The Mighty. Pain and sickness are really difficult things to write about. Trying to describe things you’re feeling, but many people have never dealt with before, is essentially attempting to put pen to paper about the way butterflies feel in the beginning of a relationship to someone who still has yet […]

Why People With Chronic Illness Can’t Simply ‘Push Through’

Chronic

By Alicia Thompon in The Mighty.   It never ceases to frustrate me to realize how pervasive the “Just Do It” culture is. Whenever I discuss my physical limitations with others, I’m often met with the suggestion that I simply need to “push through.” Which leaves me wondering, what does this phrase really mean to […]

Trial By Error: Per Fink In New York

David Tuller

  By David Tuller, DrPH.   Someone uninformed or stupid or maybe both decided to invite Danish physician Per Fink to present at a conference on so-called psychosomatic medicine being held this weekend at Columbia University. Fink—I won’t dignify him by using an honorific–is a scary guy. He should never have been provided with this […]

The Differences Between Temporary And Chronic Pain

ChronicPainManagement

  By Krista Germanis in The Mighty.   Pain and sickness are really difficult things to write about. Trying to describe things you’re feeling, but many people have never dealt with before, is essentially attempting to put pen to paper about the way butterflies feel in the beginning of a relationship to someone who still has yet […]

Why My Chronic Fatigue Is Like A Cell Phone Battery

Smart Phones

  By Christen Marie in The Mighty.   For those of us dealing with chronic pain or chronic illness such as fibromyalgia, autoimmune disorders, or any host of other physical or mental health issues, there is often this one overriding issue that can wreak havoc on our lives and yet be very difficult to explain to the average person. Chronic fatigue. Chronic […]

The Disability Defenders: The Workwell Foundation, Chronic Fatigue Syndrome (ME/CFS) And Fibromyalgia

Cort_Johnson

By Cort Johnson.   You don’t need to be a large organization to make a big difference. You simply need to be committed to a field (and producing jaw-dropping results doesn’t hurt either.)  Consisting of three exercise physiologists (one with ME/CFS), a clinical coordinator, and working with one of the top chronic fatigue syndrome (ME/CFS) […]

BBC Announces A Major New Opportunity For Disabled Writers – The Writers Access Group

BBC News

From The BBC Media Centre.   BBC Writersroom has set up The Writers Access Group, a brand-new initiative to give talented disabled writers the chance to expand their writing skills and to be offered opportunities in TV and radio at the BBC. Working with a number of organisations and practitioners in the field, ten disabled […]

Plans For New Scottish Disability Support Assessments Set Out

Disability

  In BBC News.   Changes to the way assessments for disability support will be carried out under Scotland’s new social security agency have been announced at Holyrood. The new body is to take responsibility for a range of welfare benefits, including disability support. Ministers have set out plans for how assessments will be run […]

Sorry, Netflix: We Don’t Need Another Freak Show

Netflix

By Frances Ryan in The Guardian.   Afflicted has enraged its participants, but it wouldn’t be the first TV show to use people with disabilities as entertainment fodder. An open letter to Netflix was published on Tuesday criticising its recent docu-series, Afflicted, which chronicles the lives of seven people with chronic illnesses. The letter highlighted what it called the […]

The Case For IVIG Treatment In Chronic Fatigue Syndrome (ME/CFS), Fibromyalgia, Small Fiber Neuropathy, And POTS : IVIG#3

Cort_Johnson

  By Cort Johnson in Health Rising.   “The bottom line is that we should rethink this whole area and encourage proper clinical trials.” Dr. Nancy Klimas This article is the last of a three-part series on IVIG which came out of my attending the 2018 Dysautonomia Conference in Nashville, Tennessee. An IVIG Chronic Fatigue […]

Ibiza: What It’s Like Raving In A Wheelchair On The Party Island

wheelchair crowd surfing

  By Alex Taylor in BBC News. A year ago, I was told I would have to pay double to get into a nightclub in Ibiza. Why? I have cerebral palsy, a condition which affects mobility, and rely on a carer to help me on nights out – who also needed to pay the entry […]

The Reality Of Chronic Fatigue And Exhaustion

Fatigue

    By Caz in The Mighty.   What exhaustion and fatigue are not: 1. Laziness. It’s not simply not “wanting” to do something or not being bothered. 2. A temporary state you can simply overcome with a little positive thinking or an energy drink. 3. Cured by sleep. Being “sleep tired” and being exhausted are not mutually exclusive but […]

The Other Side Of The Opioid Epidemic: Denying Treatment To People With Chronic Pain

pills

    By Kate Nicholson in The Mighty.   When I went into the office one Saturday afternoon in August 1994, I planned to spend a few hours finishing a brief that was due in federal court Monday morning. At the time, I was a civil rights attorney for the justice department. After 30 minutes […]

Stickman Communications

Stickman

  About Us   Stickman Communications’ Mission: To create understanding and acceptance of disability as a different normal, through producing products which enable individuals to create the accesibility they need. Stickman Communications products All Stickman Communiations products feature the work of stickman cartoonist Hannah Ensor. Hannah’s unique approach to communicating about disability and medical conditions […]

Minister Snubs DPOs – And ‘Breaches UN Convention’ – By Refusing Meeting

disability

By John Pring in Disability News Service.   The minister for disabled people is refusing to meet a coalition of disabled people’s organisations, in an apparent breach of the UN disability convention. The coalition wrote to Sarah Newton yesterday (Wednesday) to express its “deep disappointment and concern” about her refusal to meet them to discuss […]

The UK’s General Medical Council Just Threw 250,000 Disabled People Under A Bus

General Medical Council

By Steve Topple in The Canary.   A response from the General Medical Council (GMC) to hundreds of complaints has effectively abandoned 250,000 disabled people. It also demonstrates the GMC’s contempt for the patients it’s supposed to protect. Moreover, in dismissing patient’s concerns, it’s whitewashed what one MP believes could be the “biggest medical scandal of the 21st century”. […]

Why Blackpool Is One Of The UK’s Great Accessible Holiday Destinations

Blackpool

  From Euan’s Guide.   The seaside resort is home to the country’s most-loved Changing Places toilet inside a waterpark that goes above and beyond to welcome disabled visitors, so it’s no wonder that Blackpool sits high on the list of must-visit accessible UK destinations. Add to that a wheelchair accessible tram whizzing back and […]

Please Don’t Confuse My Chronic Pain With ‘Low Pain Tolerance’

ChronicPainManagement

By Alexandra Kaye in The Mighty.   “Pain tolerance” and “pain threshold” are phrases used to describe how much pain a person can handle, but they don’t actually mean the same thing. Pain tolerance is how much pain you can handle while still functioning (for me, this means how much pain I can handle without taking medication). […]

DWP Figures Provide Fresh Evidence To Explain PIP Claim Rejections

DWP Caxton House

  By John Pring in Disability News Service.   New figures show that Department for Work and Pensions (DWP) civil servants are questioning only a tiny proportion of the benefit assessment reports written by discredited government contractors Atos and Capita. Campaigners have been trying for months to secure evidence that would explain why such a […]

Why The Netflix Docuseries ‘Afflicted’ Is Harmful For The Chronic Illness Community

Netflix

  By Paige Wyant in The Mighty.   “Afflicted,” a new Netflix docuseries that premiered on August 10, follows seven people who live with chronic illnesses. I originally thought “Afflicted” was going to shed light on less-known illnesses and elevate the stories and voices of those who struggle with them, but the docuseries did the opposite. Instead […]

Martin Lewis: A Drugs Bust – Stop Letting Big Pharmaceuticals Rip You Off !

pills-main

  By Martin Lewis in MoneySavingExpert.com.   Harry Potter’s got nowt on the pharmaceutical industry. It’s full of real wizards – both those who make drugs that help, and the marketers who have a raft of tricks to persuade us there’s hidden magic in their brands. Drug companies spend millions promoting ‘only-use-the-name-you-know’ messages… but it’s […]

“Sticky Blood” – Antiphospholipid Syndrome, POTS, Chronic Fatigue Syndrome And Fibromyalgia – The Dysautonomia Conference #4

Blood Test

  By Cort Johnson in Health Rising.   This blog is part IV in a series of blogs covering the issues presented at the 2018 Dysautonomia International Conference in Nashville, Tennessee. As if we needed another syndrome.  Chronic fatigue syndrome (ME/CFS), postural orthostatic tachycardia syndrome (POTS), fibromyalgia (syndrome), irritable bowel syndrome (IBS) are old-timers in the ME/CFS/FM world. In the last […]

The RCCX Hypothesis: Could It Help Explain Chronic Fatigue Syndrome (ME/CFS), Fibromyalgia And Other Diseases ?

Genetics

  By Remy in Health Rising.   The RCCX hypothesis blog by Remy is the third in a series of blogs by Health Rising which highlight hypotheses produced by health care professionals which attempt to shed a new light on the chronic fatigue syndrome / fibromyalgia spectrum of diseases. Chronic illness is exploding in modern […]

5 Mistaken Assumptions About The Chronically Ill

toni_bernhard_larger

  By  Toni Bernhard J.D. in Psychology Today.   The chronically ill carry the extra burden of frequently being misunderstood. I hope the day will come when chronic illness (which includes chronic pain) is recognized as a normal—and inevitable—part of the human life cycle. I also hope the day will come when people understand that chronic illness can […]

When Gaining Weight Because Of Chronic Illness Is A Common Story

Chronic

  By Lorna Fenech in The Mighty.   Even before I was diagnosed with myalgic encephalomyelitis (ME), I always found it hard to love myself and my body. Low self-esteem and body dysmorphia contributed to a generally negative perception of myself, particularly my weight. Over the years I tried to manage this by staying healthy. I have […]

8 Ways You Can Support Your Friends With ME And Fibromyalgia

Frustration Chronic Illness

  By Victoria Fernando in The Mighty.   I have myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), and I am writing this post in honor of International ME/CFS and Fibromyalgia Awareness Day, this Saturday, May 12th, 2018. Kudos to all those surviving and doing their best whilst living with these diseases, and to the caregivers and loved ones who love and […]

Twitter Unleashes Fury Over Medical Exam Question – And For Good Reason

Doctor

  By Kayleigh Dray in Stylist.   Karina Wagenpfeil, a writer and scientist, first brought the issue to the internet’s attention when she tweeted photos of a problematic practice question for a medical licensing exam. Grey’s Anatomy fans will no doubt recall the episode where Miranda Bailey (Chandra Wilson) – a talented and adept surgeon, with a wealth […]

Why I Experience ‘Flare Fear’ On My Good And Bad Health Days

ME !

  By Samantha Taylor in The Mighty.   The Fear. The anxious, stomach churning, paranoia riddled feeling deep inside when you feel that something is about to go wrong. You feel sick, you’re sweating and there’s an impending sense of doom. You’ve felt it right? I think we all have at some point. I certainly […]

What I Wish People Knew About My Illness, Even When I Look Fine

chronic-illness

  By Deema H in The Mighty.   I haven’t quite decided what I think is worse: living with a chronic illness or living with an invisible chronic illness. I’ve come to find people don’t realize it’s offensive, not a compliment, to say, “But you don’t look sick!” Let me tell you something: Looking healthy doesn’t make […]

Blue Badge Parking Permits To Cover ‘Hidden Disabilities’ In England

access-bluebadge

  From BBC News.   Blue badge parking permits are to be made available for people in England with “hidden disabilities” such as autism or mental health problems. The Department for Transport said people with non-physical disabilities would have an equal right to free parking from next year. Currently the rules do not explicitly exclude […]

An Honest Doctor On Treating Chronic Fatigue Syndrome (ME/CFS) And Fibromyalgia (FM)

Cort_Johnson

  By Cort Johnson in Health Rising.   Ari Whitten is a Scottsdale, Arizona naturopath who runs the Energy Blueprint website. He’s done an amazing number of podcasts with alternative health practitioners. If you’re interested in alternative health, his website is a good resource. I find that Whitten asks good questions.His May 28th interview with JE Williams, […]

LDN Chosen As First Choice For Treating Fibromyalgia And CFS/ME Pain

LDN

    From LDN Science.   Two-day summit of specialists in fibromyalgia and chronic fatigue syndrome concludes: LDN is the top choice for treatment of chronic pain in these patients. In a recent story, Medscape News Reporter Miriam E. Tucker shares new insights into LDN’s use for treatment of chronic pain conditions. University of Alabama’s […]

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