Fibromyalgia

Nine Journeys In One Day Expose ‘Sham’ Of National Express ‘Accessible’ Coaches

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  By John Pring in Disability News Service.   A disabled campaigner who took nine journeys on the same day to check the accessibility of the services provided by the UK’s largest coach operator experienced signifcant problems on all but one of them. Wheelchair-user Doug Paulley had booked assistance in advance for services between Leeds and Bradford […]

Mitochondria Play An Unexpected Role In Killing Bacteria

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By KATARINA ZIMMER, in The Scientist.   EDITOR’S CHOICE IN CELL & MOLECULAR BIOLOGY The paper B.H. Abuaita et al., “Mitochondria-derived vesicles deliver antimicrobial reactive oxygen species to control phagosome-localized Staphylococcus aureus,” Cell Host Microbe, 24:625–36, 2018. According to biology textbooks, a macrophage engulfs a bacterium, internalizes it in a toxin-filled vesicle called a phagosome, then shuttles the […]

Living My Life In The Grey Area Of Disability

disability

    By Victoria Venable in The Mighty.   When people talk about the “isms” in society, racism and sexism are usually the first that come to mind. Later in the list comes ageism. Often forgotten and misunderstood, is ableism. Ableism: Discrimination or prejudice against individuals with disabilities. In the last nine months of my […]

Officials Fail To Collect Data On People Wanting To Apply Offline For Online-Only Universal Credit

Universal Credit

  By Simon Rushton in iNews.   Officials behind Universal Credit are being criticised for failing to track data on people who want to apply offline. Universal Credit is the government’s first digital-only service, and claimants must apply online for the Department of Work and Pensions benefit. But there worries that the system is excluding […]

Not All Disabilities Are Visible……..

Invisible Illness

One of my favourite Christmas presents this year, a sticker for the car from my wife and daughter…… There is a need for a Government backed, nationwide TV and Radio educational campaign to raise awareness of Invisible Illnesses and Disabilities.    

Do You Have Family Or Friends You Haven’t Heard From In A While ?

'Hello Stranger'

    At this time of year we hear the cry go up for keeping in touch with family and friends.  Maybe to also call on someone elderly nearby. Whilst I totally agree with these sentiments, maybe we should be doing this throughout the year.  It’s too easy to forget those who were in our […]

Christmas Can Be Isolating For Young Carers – They Need Time To Be Children

Young-Carers

    By Jo Aldridge in The Conversation.   Most children look forward to the Christmas holidays as a time for fun and families. But for some young carers – children who provide care for someone in their family who is ill or disabled – the Christmas holidays are a mixed blessing. Dani* is one […]

When You’re Stuck In The Middle Of ‘Sick’ And ‘Well’

Chronic

  By Cherilyn Schutze in The Mighty.   Stuck in the middle of sick and well. That’s how I feel. Chronic illness is never easy, whether you are the person who’s sick, or the caretaker or family member of a person with a protracted illness. Before I became ill, I was very busy multi-tasking, care-taking, mothering, wife-ing, and working. […]

Thinking Of Others……

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      It occurred to Pooh and Piglet that they hadn’t heard from Eeyore for several days, so they put on their hats and coats and trotted across the Hundred Acre Wood to Eeyore’s stick house. Inside the house was Eeyore. “Hello Eeyore,” said Pooh. “Hello Pooh. Hello Piglet,” said Eeyore, in a Glum […]

UN Day Of Disabled People: Government Could Face Court Over Universal Credit

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  By John Pring in Disability News Service.   The government could be forced into court to defend its failure to make the much-criticised universal credit benefit system accessible to disabled people. A parliamentary meeting held to mark the International Day of Persons with Disabilities (IDPD) on Monday – and to call for universal credit […]

Nationwide Joins Purple Light Up Movement To Recognise Contribution Of Disabled Employees

Disability

  By Sid Hayns-Worthington in the Swindon Advertiser.   The society’s Employee Disability Network organised sessions at the HQ to have open conversations about obsessive compulsive disorder, dementia, understanding anxiety and stress, and also included a mental health resilience workshop. The company held around 35 events across the country, coinciding with International Day of Persons with Disabilities […]

Motability Charity Boss To Go After Extra Bonus Revealed

Motability Logo

    From BBC News.   The boss of Motability Operations is to step down by 2020 following criticism over his pay and a scathing review from the government’s spending watchdog. The report from the National Audit Office revealed Mike Betts was in line for an extra £1.86m bonus on top of already “generous” pay. The […]

‘Invisible’ Disabilities Campaign Calls On Community To ‘Think Outside The Chair’

disability

  By Laura Collins and Lucy Robinson in ABCNews Australia.   Living in an Australian society that understands and accepts all forms of disability is no longer a pipedream for New South Wales woman Marni Walkerden. Ms Walkerden is the brains behind the Think Outside the Chair campaign, which is launching in the NSW central […]

Tips For Newbies With Fibromyalgia And/Or Chronic Fatigue Syndrome (ME/CFS)

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  By Cort Johnson in Health Rising.   Having any disease is scary, but having chronic fatigue syndrome (ME/CFS) and/or fibromyalgia (FM) often adds a hefty dose of confusion and bewilderment to that fear.  Not only are people with ME/CFS and FM typically exhausted and in pain, but problems with short-term memory and information processing […]

If Someone With Chronic Illness Says They’re Tired, Please Think Before Responding, ‘Me Too’

Chronic

    By Kaisha Holloway in The Mighty.   When being “tired” is more than just feeling tired… Don’t you just hate it when people try to get one up on you, by always striving to be worse off than yourself? Don’t you just hate it when people assume that tiredness is the same for […]

DWP Admits Failing To Keep Track Of Disability Discrimination Claims By Its Own Staff

DWP Caxton House

By John Pring in Disability News Service. The government department responsible for running the Disability Confident employment scheme has admitted failing to keep track of how many complaints of disability discrimination are made by its own staff. The Department for Work and Pensions (DWP) repeatedly brags about its much-criticised scheme, which aims to help employers recruit […]

15 Signs That People Needed To Take Time Off For Their Health

Chronic

  By  Julia Metraux in The Mighty.   If you have a chronic illness, you know that managing your symptoms can feel like a full-time job. There’s a chance that you also have different responsibilities in your life besides managing your symptoms, like work, school, or taking care of your family. But what happens when you need […]

96 Patients Prescribed Medical Cannabis

Medical-Marijuana

by Denise Grech in Times of Malta. Ninety-six patients have been prescribed medical cannabis since the law was amended in March this year, Superintendent of Public Health Charmaine Gauci said. The 96 patients were under the care of 14 doctors, she said, adding the superintendence was also following the cases closely. Many of these patients suffered from fibromyalgia, […]

17 Things People With Chronic Illness Mean When They Say ‘I’m Tired’

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  By Erin Migdol in The Mighty.   Everyone has said “I’m tired” at one point or another. But those deceptively simple words can have so many meanings. Without knowing the extent of the exhaustion someone with chronic illness is feeling when they say they’re tired, people may think your “tiredness” can be cured by a nap or early night, like theirs, not […]

Invisible Disabilities: Just Because You Can’t See it Doesn’t Mean it’s Not Real

Invisible Illness

  From Healthy Living Facts.   Have you ever heard diseases like fibromyalgia called an “invisible disability?” Essentially, invisible disabilities are conditions that can’t be seen but still have serious effects on your ability to live a normal life. The term makes a distinction between conditions like cerebral palsy, where the effects of the disability are […]

Care Charges Are Driving Disabled People Into Debt, Says Report

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  By John Pring in Disability News Service. Charging disabled people for their care and support is driving many of them into debt and forcing them to cut their spending on food or heating, according to new research by a network of disabled people’s organisations and their allies. The study by the Independent Living Strategy Group […]

I Can Walk, But That Doesn’t Mean I Don’t Need A Wheelchair

Wheelchair

By Rebecca Giddings in The Mighty. Everyone knows when you are ill, you are in bed and can’t do anything. Obviously this example is great for someone with the flu, but what if you have a chronic illness, an illness that is going to last your lifetime? Are you supposed to just hide away in […]

Woman’s Fight To Stop Disabled People Travelling For Benefit Assessments

disability

  By Emily Hennings in This Is Local London.   Claudette Lawrence, 49, is an activist and campaigner who also suffers with myalgic encephalomyelitis (ME), which can cause extreme mental and physical exhaustion. She has set up the petition because she has recently come into contact with a lot of people who are having problems when it […]

The Differences Between Temporary And Chronic Pain

Chronic Pain

By Krista Germanis in The Mighty. Pain and sickness are really difficult things to write about. Trying to describe things you’re feeling, but many people have never dealt with before, is essentially attempting to put pen to paper about the way butterflies feel in the beginning of a relationship to someone who still has yet […]

Why People With Chronic Illness Can’t Simply ‘Push Through’

Chronic

By Alicia Thompon in The Mighty.   It never ceases to frustrate me to realize how pervasive the “Just Do It” culture is. Whenever I discuss my physical limitations with others, I’m often met with the suggestion that I simply need to “push through.” Which leaves me wondering, what does this phrase really mean to […]

Trial By Error: Per Fink In New York

David Tuller

  By David Tuller, DrPH.   Someone uninformed or stupid or maybe both decided to invite Danish physician Per Fink to present at a conference on so-called psychosomatic medicine being held this weekend at Columbia University. Fink—I won’t dignify him by using an honorific–is a scary guy. He should never have been provided with this […]

The Differences Between Temporary And Chronic Pain

ChronicPainManagement

  By Krista Germanis in The Mighty.   Pain and sickness are really difficult things to write about. Trying to describe things you’re feeling, but many people have never dealt with before, is essentially attempting to put pen to paper about the way butterflies feel in the beginning of a relationship to someone who still has yet […]

Why My Chronic Fatigue Is Like A Cell Phone Battery

Smart Phones

  By Christen Marie in The Mighty.   For those of us dealing with chronic pain or chronic illness such as fibromyalgia, autoimmune disorders, or any host of other physical or mental health issues, there is often this one overriding issue that can wreak havoc on our lives and yet be very difficult to explain to the average person. Chronic fatigue. Chronic […]

The Disability Defenders: The Workwell Foundation, Chronic Fatigue Syndrome (ME/CFS) And Fibromyalgia

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By Cort Johnson.   You don’t need to be a large organization to make a big difference. You simply need to be committed to a field (and producing jaw-dropping results doesn’t hurt either.)  Consisting of three exercise physiologists (one with ME/CFS), a clinical coordinator, and working with one of the top chronic fatigue syndrome (ME/CFS) […]

BBC Announces A Major New Opportunity For Disabled Writers – The Writers Access Group

BBC News

From The BBC Media Centre.   BBC Writersroom has set up The Writers Access Group, a brand-new initiative to give talented disabled writers the chance to expand their writing skills and to be offered opportunities in TV and radio at the BBC. Working with a number of organisations and practitioners in the field, ten disabled […]

Plans For New Scottish Disability Support Assessments Set Out

Disability

  In BBC News.   Changes to the way assessments for disability support will be carried out under Scotland’s new social security agency have been announced at Holyrood. The new body is to take responsibility for a range of welfare benefits, including disability support. Ministers have set out plans for how assessments will be run […]

Sorry, Netflix: We Don’t Need Another Freak Show

Netflix

By Frances Ryan in The Guardian.   Afflicted has enraged its participants, but it wouldn’t be the first TV show to use people with disabilities as entertainment fodder. An open letter to Netflix was published on Tuesday criticising its recent docu-series, Afflicted, which chronicles the lives of seven people with chronic illnesses. The letter highlighted what it called the […]

The Case For IVIG Treatment In Chronic Fatigue Syndrome (ME/CFS), Fibromyalgia, Small Fiber Neuropathy, And POTS : IVIG#3

Cort_Johnson

  By Cort Johnson in Health Rising.   “The bottom line is that we should rethink this whole area and encourage proper clinical trials.” Dr. Nancy Klimas This article is the last of a three-part series on IVIG which came out of my attending the 2018 Dysautonomia Conference in Nashville, Tennessee. An IVIG Chronic Fatigue […]

Ibiza: What It’s Like Raving In A Wheelchair On The Party Island

wheelchair crowd surfing

  By Alex Taylor in BBC News. A year ago, I was told I would have to pay double to get into a nightclub in Ibiza. Why? I have cerebral palsy, a condition which affects mobility, and rely on a carer to help me on nights out – who also needed to pay the entry […]

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