Fibromyalgia

15 Secrets Of People Who Can’t Work Because Of An Illness

Frustration Chronic Illness

  By Paige Wyant in The Mighty.   If you have a chronic illness, you may know what it feels like to be a “full-time patient.” Between the physical and emotional symptoms, constant doctor appointments and numerous tests and procedures (not to mention keeping track of it all), being chronically sick can become a full-time job in itself. You […]

When You Can’t Just ‘Push Through the Pain’

Chronic Pain

  By Stacey T in The Mighty.   This post may get a little soap-box-like, but it’s something I need to talk about because it’s become a huge issue for me. So, most people have heard the phrases “pushing through pain,” “no pain, no gain” and similar ones. But when you have chronic illnesses or […]

7 Top Tips To Survive A Crash And Still Be Mum

Chronic Illness Bloggers

  From My Stripey Life.   Caring for a sick kid or kids when you have your own chronic illnesses to deal with can be one of the hardest things you will ever have to do.  I find myself repeatedly ignoring the warning signs that my symptoms are spiralling because I simply do not have […]

28 Unexpected Emotional Symptoms Of Chronic Illness

Chronic

  By Paige Wyant in The Mighty.   When you are diagnosed with a chronic illness, the doctor might give you an overview of the common symptoms associated with your illness, but often these are physical manifestations – pain, fatigue, swelling, even brain fog. Many of us are then surprised by all of the emotional side […]

The Missing Link: Why Disabled People Can’t Afford To #DeleteFacebook

Facebook

  By Frances Ryan in The Guardian.   Revelations about internet companies being negligent with our data have prompted a backlash against social media, but for many people in marginalised groups these networks are a vital lifeline. It’s 10.32 on a Friday night and I am staring at the glow of my iPhone screen. It […]

Limitless Travel

LIMITLESS LOGO-03

  One of the aims of The York ME Community is to bring businesses on board for various reasons.  One is where the business might be of interest and of use to those with ME. We have recently linked up with Limitless Travel, a company run to provide holidays for anyone living with a disability, […]

An ME/CFS And FM Pioneer Says Good-bye: The Charles Lapp Interview

Dr Lapp

  By Cort Johnson in Health Rising.   Dr. Lapp’s path to medicine and then into chronic fatigue syndrome (ME/CFS) and fibromyalgia (FM) was an unusual one. Lapp graduated from the Rensselaer Polytechnic Institute with both Bachelor’s and Master’s degrees in engineering. After doing research, consulting, and marketing in Boston, Lapp turned to medicine and […]

Practical Solutions To Everyday Spoonie Problems

DessertSpoons

  From ‘A Journey Through The Fog’. Having a chronic illness like ME/CFS or Fibromyalgia means everyday tasks can be challenging, exhausting and painful. But there are steps we can take to make life easier, to limit the stress caused and to conserve our energy for more enjoyable activities. Here are some practical solutions to […]

Your Legal Rights To Accessible Transport

Accessibility

  Equality Act 2010   The Equality Act 2010 replaced all previous equality legislation, including the Disability Discrimination Act 2005 (DDA). It protects disabled people in all areas, including transport. Under the Act, transport providers have the duty to provide an accessible service and make ‘reasonable adjustments’ to offer the same standard of service to […]

Did A Multiple Sclerosis Study Give Us Clues About ME/CFS And Fibromyalgia ?

research

    By Cort Johnson in Simmaron Research.   Why should a blog focused on chronic fatigue syndrome (ME/CFS) and fibromyalgia (FM) be interested in multiple sclerosis? Because some distinct similarities exist between the three diseases, and when diseases like ME/CFS and FM aren’t getting much research, sometimes it pays to pay attention to diseases […]

10 Guaranteed Ways To Cure Your Chronic Illness Instantly !

Miracle Cure

  By Bethany Freeman in The Mighty.   You might think chronic illness has no easy fix, that it’s a complex problem that often has no cure because it’s widely misunderstood and medically complex. You might think people who are chronically ill deserve nothing but love and understanding on their journey. Well, you’d be wrong. They just need to […]

How Doctors Gaslight Women into Doubting Their Own Pain

Gaslighting

  By Suzannah Weiss in Broadly Vice.   f all the ways women are disadvantaged in society, one of the most overlooked yet most fundamental is the way in which women’s physical health is misunderstood and neglected. Medical research tends to use male subjects and overlook conditions experienced primarily by women. A 2007 study in the Journal of Women’s Health found […]

Wheelchair Users In UK To Be Given Enhanced Rights For Bus Travel

wheelchair

  By Owen Bowcott in The Guardian.   Wheelchair users are to be given enhanced rights for bus travel, the government has announced, after a landmark supreme court judgment. The transport minister, Nusrat Ghani, has promised to improve access to spaces on vehicles that are intended to be reserved for disabled passengers. The decision follows the legal victory last […]

Accessibility Around The World – How Do Popular Cities Measure Up ?

traveling-in-a-wheelchair

  From Able Magazine.   Travelling and exploring different places around the world is a source of joy and excitement for many people. Travel presents opportunities to broaden your horizons, meet new and interesting people, and create memories that will last a lifetime. However, for people with disabilities, travel can be more of a challenge. […]

Good News: First Licence Granted to Treat Pain With Medicinal Cannabis

THC

  From Your Daily Ideas.   License to treat pain with medicinal cannabis given the go ahead A license to treat chronic pain with medicinal cannabis has been granted here for the first time, it has emerged. A 3-month agreement was given the green light by the Department of Health to use Tetrahydrocannabinol (THC) people […]

How Big Pharma Is Corrupting The Truth About The Drugs It Sells Us

pills-main

  By Kate Harveston / AlterNet.   Remember how appalled we felt as a society when we discovered that, for so long, we had been mistakenly taking Big Tobacco’s word that cigarettes are harmless? Rinse and repeat with lobbyists for Big Alcohol fear-mongering about legal weed. And again and again with a panoply of consumer-level commodities and goods. Nowadays we have […]

Bones Pt II: Chronic Fatigue Syndrome (ME/CFS), Fibromyalgia, Osteoporosis And Getting Older

Bones

By Carol Lefelt in Health Rising.    “Exercise encourages bone development, and lack of exercise means you’ll be more at risk of losing calcium from the bones and so developing osteoporosis….It also increases the risk of breaking a bone as a result of a fall.” NHS.UK Osteoporosis (bone loss) can be caused by multiple ways but since exercise builds strong bones, it’s clear that […]

A Love Letter To Anyone Who Struggled To Shower Today

Shower

  By Mariann Martland in The Mighty.   This is a love letter to all those for whom showering is repeatedly a laborious exercise, physically, emotionally or both. To those who spend days putting it off because you know just how exhausting or painful it feels, right down to your bones, just to stand under the water for that […]

Tory Peer Attacks McVey Over ‘Litany Of Inaccuracies’ On Motability

DisabledGo

From Disabled Go News.   A Tory peer has accused work and pensions secretary Esther McVey of making a series of untrue statements about the Motability car scheme to fellow MPs. Lord Sterling, who co-founded Motability in 1977, has told McVey in a letter that he found the “litany of inaccuracies” in the comments made […]

What It Means To Experience ‘Payback’ With Chronic Fatigue Syndrome

ME

  By Zoe Baker in The Mighty.   Post-exertional malaise, or “payback,” is one of the key diagnostic criteria for myalic encephalomyelitis/chronic fatigue syndrome (ME/CFS). It is also one of the symptoms that is hardest for people who haven’t experienced the condition to understand. I often think of it as being similar to a hangover, […]

The ‘Energy Bubble’ Analogy That Can Help Explain Pacing With A Chronic Illness

energy bubble

  By Christina Baltais in The Mighty.   Pacing is about energy conservation, both physical and emotional. When you’re living with a chronic illness, it’s an essential skill for preventing flare-ups or “crashes.” This “energy bubble analogy” can be useful to help you visualize and understand the limits of your energy, and help you explain them to others. […]

Having A Chronic Illness Is Not Romantic

Frustration Chronic Illness

  By Becca in Confessions of a Spoonie, as published by Scope.   Becca writes the blog Confessions of a Spoonie and today is talking about the romanticism of chronic illness in books and films and how she feels about it. I  worry about certain things; how clean is my house, all the books on my bookshelf […]

19 Lessons My Invisible Illnesses Have Taught Me

Free

  By Caz in The Mighty.   Living with invisible, chronic illness can often feel like trudging through mud – an endless downward spiral of problems, regrets and maybe a sprinkle or more of resentment, too. I know I have my down days and struggles with fibromyalgia, a stoma, fatigue, pain and migraines. But it’s important to appreciate […]

Finally – An Objective Measure of Fatigue ? An ME/CFS And Fibromyalgia Inquiry

Eye

  By Cort Johnson in Health Rising.   Making Fatigue Real Fatigue is like the Rodney Dangerfield of symptoms – it just gets no respect. The problem is the poor descriptive power of the word. It readily describes the everyday, manageable fatigue that most of the population regularly feels. That fatigue, though, has little relation […]

Cooking With A Physical Disability

Cooking

  By Emily Han in @Kitchen.   For those with a permanent or temporary physical disability involving mobility impairment, cooking can present challenges as well as opportunities for creative problem solving. Not all disabilities or people are the same, but some of the common issues include limitations in standing, reaching, or using one side of […]

Every Interview For PIP Should Be Recorded, MPs Say In Damning Report

Interview

  By Jen Mills in METRO.   Confidence in the application process for the main disability benefit is so low that every interview should be recorded, MPs said in a damning report. They said there was a ‘pervasive lack of trust’ among disabled people who applied for PIP (Personal Independence Payment). Since 2013, 290,000 rejected claims […]

‘I Am A Hard Worker’

Disability

    By Terrence McCoy in The Washington Post.   Roanoke, Ala. — She wanted her clients to look to her for inspiration, so Teresa Boullemet stamped out her cigarette, popped a peppermint, sprayed herself with perfume and applied fresh lipstick. “Are you going to the farthest corners of the world today?” her assistant asked […]

9 Shocking Errors Made In Assessments For PIP And ESA By Capita, Atos And Maximus

DWP Caxton House

  From Disabled Go News.   The Work and Pensions Select Committee received nearly 4,000 submissions – the most by a select committee inquiry – after calling for evidence on the assessments for personal independence payment (PIP) and Employment and Support Allowance (ESA). The MPs said: “We were so impressed and moved by the response […]

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