Invisible / Chronic Illness

No Increased Risk Of Chronic Fatigue Syndrome After HPV Vaccination

Vaccination

    From Medical Press.   Girls receiving one or more doses of HPV vaccine have no greater risk of chronic fatigue syndrome/myalgic encephalomyelitis (CFS / ME) than unvaccinated girls. This is shown in a new major study from the Norwegian Institute of Public Health. The study is part of the national surveillance of the […]

Living With ME – Emelyne’s Transcript

Living with ME

  From the #SpeakforME Blog.   My name is Emelyne and I #SpeakforME because so many people suffer in the dark behind closed doors. ME has no bias, it affects men, women, children, adults, young and old. It can change during your life, it can get really tough. It can get better and there can […]

Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Diagnosis And Management In Young People: A Primer

Children

    From Frontiers in Pediatrics.  Authors as listed.   Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a complex disease that affects children and adolescents as well as adults. The etiology has not been established. While many pediatricians and other health-care providers are aware of ME/CFS, they often lack essential knowledge that is necessary for diagnosis […]

When Self-Doubt Makes You Question Your Own Illness

Laura Chamberlain

      By Laura Chamberlain from her Blog, Laura’s Pen.   How self-doubt nearly stopped me finding an important diagnosis… I have found myself having a very similar conversation with multiple people recently, about self-doubt about your own illness when you’re chronically ill. I’d never previously spoken about it, because, I guess, I don’t […]

Dancers & CBT/GET-Realness

ballet

    By Anil van der Zee.   As a dancer I have been surprised by the treatments I’ve received for my disease Myalgic Encephalomyelitis. I want to share my opinion from a dancer’s perspective. What do other professional ballet dancers think about the treatments and the current care that’s being offered to ME patients??   […]

PACE-GATE: An Alternative View On A Study With A Poor Trial Protocol

Pace-Study-debunkedrev-330x330

    By Bart Stouten in Journal of Health Psychology.   Abstract The controversies surrounding the effectiveness of cognitive behavioural therapy and graded exercise therapy for chronic fatigue syndrome are explained using Cohen’s d effect sizes rather than arbitrary thresholds for ‘success’. This article shows that the treatment effects vanish when switching to objective outcomes. The preference […]

Meditation

Meditation

    From Yoga Journal.   “Meditation” and “mindfulness” are buzzwords these days for good reason. Yogis have been practicing dhyana (meditation) for millennia. Get expert insight here on meditation and its symbiotic relationship to yoga. Use this hub as your go-to resource for simple tips and guided practices to quiet your mind and make meditation part of your modern daily […]

Myalgic Encephalomyelitis: International Consensus Criteria

ME Explanation

    From The Journal of Internal Medicine.   Abstract:   The label ‘chronic fatigue syndrome’ (CFS) has persisted for many years because of the lack of knowledge of the aetiological agents and the disease process. In view of more recent research and clinical experience that strongly point to widespread inflammation and multisystemic neuropathology, it […]

Failings Of The Establishment Organisations Toward People With ME

invest

  From Invest in ME Research.   It may have escaped the notice of some that the MRC is preparing to be absorbed into the new UK Research and Innovation (UKRI) and the existing CEO, Sir John Savill, will be winding down affairs until the transition is completed. Link to Appointment notification We have stated […]

The Last Major Disease To Be Studied ? Ron Davis of Stanford Thinks So

Ron Davis

    by Ayanna Monteverdi in menedelspod.com.   Let’s say you’re a biomedical researcher looking for a place to make your mark. You find out that there is still a major disease that affects more than 2 million people in the US, and we still know virtually nothing about this disease at the molecular level. […]

What’s The Harm ? How I Turned To Wellness Out Of Desperation To Cure My Chronic Illness

Natasha Lipman

    By Natasha Lipman.   This week, I headed up to Leeds to speak at the British Dietetic Association’s Eat Fact Not Fiction event, where I had the pleasure of telling my story of falling for wellness, and why it’s so important that we don’t just dismiss people as stupid for falling for these trends. I’ve […]

10 Mic-Drop Replies For Every Time Someone Doubts Your Illness

Mike Drop

  by Elaine Atwell in Healthline.   If you’ve ever had to explain your medical condition to a stranger, you’ve probably experienced the wide-eyed pity, the awkward silence, and the “Oh yeah, my cousin has that” comment. But the most frustrating experience of all may be when you patiently explain your condition to someone, and […]

8 Things That Spoonies Are Totally Over

Spoonie Warrior

    From The Spoonie Warrior Blog.   While my condition has only been disabling for the past year and a half, I’ve technically had chronic illnesses my entire life. Even before being diagnosed, my illnesses affected my life greatly. Most people will want to hear that, despite my struggles, I make sure that I […]

Disabled Go – Access Information For The Disabled

Disabled Go

  A very warm welcome to DisabledGo.com. We hope that you find our services really useful and that you visit us often. On our website you’ll find detailed access information to thousands of venues across the UK and the Republic of Ireland: shops, pubs, restaurants, cinemas, theatres, railway stations, hotels, universities, hospitals and more. Established over […]

This 12-Year-Old Is Creating An App For Disabled People

Alexander Knoll

  By Joe Fryer in NBC News.   At just 12 years old, Alexander Knoll is already handing out business cards. Even more impressive, his title on those business cards is “CEO.” The inventive, freckle-faced redhead is creating something called the Ability App, which is like Yelp for accessibility. When it’s finished, the free application […]

The York ME Community © 2015