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  From the ‘This Thing They Call Recovery’ Blog by Jenny. Sickness is scary, end of. It’s something that you carry with you, you can’t just leave it at home and forget that it’s there. If I’m being honest, my own body scares me a bit. I don’t feel safe in my own skin. Your […]

York Neighbours

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      York Neighbours supports people over the age of 65 living within the City of York in 3 different ways, please see the What Do We Do section for further details. Although we are a church-led initiative we positively welcome people of any or no faith as volunteers and users of our service. Our history We […]

Travel Insurance Companies Are Legally Allowed To Discriminate Against Disabled People – Isn’t it About Time Someone Challenged Them ?

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  By James Moore in The Independent.   Discrimination against disabled people is, in theory, banned in law, even if it’s depressingly common in practice. Unless, that is, you happen to be selling, say, travel insurance. Then the law says, go right ahead. Feel free to put the boot in. If that means people can’t travel, well that’s just […]

Transitioning From An Abled Life

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  By Christina Baltais in #MEAction.   When a sudden and unexpected illness catapulted my life into a completely different path, life as I had come to know it, was irrevocably changed. Prior to this, I thrived on the fast paced career trajectory that our Western ableist society promotes, rewards, and idolizes. I was by […]

Losing Myself To Myalgic Encephalomyelitis

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  By Lisa Alioto in The Mighty.   The doctor walks into the room and gives me my diagnosis – myalgic encephalomyelitis (ME). Finally, a name (and what a name!) to what has been happening.   A sense of relief actually washes over me. Almost a weird sense of elation. Even though I’ve just been told I […]

Disability Campaigners From Britain Tell The United Nations The Government Has Betrayed People In The UK

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    By Ben Glaze in The Mirror on 21 August 2017.   United Nations officials will hear evidence of how British ministers are breaching disabled people’s rights today. The UN’s Committee on the Rights of Persons with Disabilities is investigating the UK’s progress in implementing the UN Convention on the Rights of Disabled People. […]

How Can You Be Sure Where ‘Charity’ Donations Go?

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  By Sean Dilley & James Melley in BBC News.   Some 800 cases of charity fraud were reported in the UK last year. But with police warning that they represent just a fraction of the number actually taking place, is enough being done to deal with the scammers? Within hours of the Grenfell Tower […]

“Never Give Up”: Disabled Teacher Scores Victory Over ME/CFS Discrimination In The U.K.

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  Pike’s story from Health Rising.   The Brown Envelope I recently received the dreaded brown Department of Work and Pensions (DWP) envelope. Fully expecting yet more bad news, I tore open the envelope, ready to rip up the letter and fling it in the bin. The letter informed me that in light of my […]

The Benefits Of Rest In ME/CFS: Swapping Afternoon Naps For Regular Rests

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      From Laura’s Pen Blog By Laura Chamberlain.   I am a member of several ME support groups on Facebook and it has shocked me on several occasions to see people ask “My doctor/ME clinic have told me not to nap, but I can’t get through the day with out it. How do you […]

The Science Of Stress And How Our Emotions Affect Our Susceptibility To Burnout And Disease

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By Maria Popova in brainpickings.   I had lived thirty good years before enduring my first food poisoning — odds quite fortunate in the grand scheme of things, but miserably unfortunate in the immediate experience of it. I found myself completely incapacitated to erect the pillars of my daily life — too cognitively foggy to […]

Lucy Wicks MP Reveals Mystery Illness Of High Mould Sensitivity

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  By Jordan Baker in The Sunday Telegraph.   Every time she went to see Prime Minister Malcolm Turnbull, Federal Liberal MP Lucy Wicks thought it was nerves that left her feverish and stammering. It took her a while to work out it wasn’t her, or even him — it was his office making her […]

Airports Are Failing Disabled Passengers, And We Are Tired Of It

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    By Elizabeth Wright in The Guardian.   Returning from Rome after a holiday, my plane taxied to its stand and I waited for all the more ambulatory passengers to disembark. I had wheelchair assistance booked – a much-needed service for someone who, like me, struggles to walk long distances – and the drill […]

ME/CFS In Young People: A Primer

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    By Russell Logan in Shout Out About ME.   Leading international me/cfs experts have written a primer for diagnosing and managing the illness in children and adolescents. The new primer lifts the veil on a poorly-recognized disease ravaging our most vulnerable, leaving some children wheelchair dependent, housebound, or bedbound and many more unable […]

Post Seventeen – The PACE Trial Scandal

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    From the Blog, puffins&penguins&me   I have been wanting to write about The PACE Trial for some time, about the background, the controversy and where we are at today. I have tried, but unlike my usual posts it is very technical, involves a lot of research and there’s a lot to cover. I just don’t […]

Using Mobility Aids When You Have An Invisible Illness

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    “What happened to you, then?” There’s no ideal time to acquire a long-term chronic illness, but becoming disabled halfway through your undergraduate degree has to be up there in the Least Convenient Life Situations list. Adapting to the student experience whilst learning to live with a painful and debilitating neurological condition isn’t a […]

Exercise Tests Suggest Autoimmunity Causes The Exertion Problems In Chronic Fatigue Syndrome, Fibromyalgia And POTS

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  By Cort Johnson in Health Rising.   Researchers and doctors get interested in ME/CFS in different ways. Many have a personal connection, but for David Systrom,  a pulmonologist, it was all about demand. He didn’t seek chronic fatigue syndrome patients out – quite the contrary.  When Systrom was given control of a clinical cardiopulmonary […]

M.E. Meant This Blog Took Me Several Months To Write

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    By Isabel Walter in Huffpost.   On holiday in the Peak District in June 2007, three months after being diagnosed with ME, I sat down one afternoon with a pile of postcards and discovered I could no longer write. The words were clear in my head, but the pen in my hand made […]

Why Are Doctors And Patients Still At War Over M.E.? How The Best Treatment For The Debilitating Condition Is One Of The Most Bitterly Contested Areas In Medicine

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  By Jerome Burne For The Daily Mail.   Myalgic encephalomyelitis (ME) is a debilitating condition that can leave those affected bedridden for years. It’s linked with as many as 60 symptoms, the most common being a feeling of constant exhaustion — ‘like a dead battery’. The condition first reached mainstream consciousness in the Eighties following […]

How A Relapse Of ME/CFS Caused Me To Develop Anxiety

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  By Clare Rudderty in The Mighty.   I’m going to tell you something only my husband, parents, sister and one friend know. Why would I share such a secret with thousands of people? Well, I hope having the courage to do so helps some of you know you’re not alone in your experiences. So, […]

Trial By Error: My E-Mail Exchange With NICE Chief Executive

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  By David Tuller, DrPH.   On Friday, I had an e-mail exchange with Sir Andrew Dillon, chief executive of the NICE Guidance Executive. The other seven Guidance Executive members are various directors within the NICE hierarchy, including the communications director. This group will make the final decision about whether to accept the provisional decision of a […]

How A New Map Is Guiding Tourists To Some Of York’s Best Businesses

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  From YorkMix.   Want to know where you can find some of the best indepenedent shops and businesses in York? There’s a map for that! Indie York’s new map details more than 100 of the city’s independents, from bars to bookshops, designers to delicatessens. It is now stocked across York, helping both visitors to […]

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