Invisible / Chronic Illness

The Struggle You Don’t Realize When You See Me Out And About

Frustration Chronic Illness

    By Lindsay Karp in The Mighty.   There is a lot you don’t realize when you see me out and about. You may think I’m fine when you see me at the playground pushing my son on the swing. You may think this is an ordinary day for me when you see me […]

Post Twenty One. The Wheelchair Has Arrived.

Wheelchair

  From puffins&penguins&me A personal blog about my experience of living with the illness Myalgic Encephalomyelitis (ME)   So, the much anticipated wheelchair has arrived! It was delivered mid-November by a very nice engineer who unpacked and put it together for me, and he gave me some basic instructions, how to use the joystick, how to […]

“Unrest” Aims For Awards Season Recognition

Jen Unrest

  By The Independent Critic.   Before we go any further, I must confess to you that prior to watching Jennifer Brea’s Sundance Film Festival award-winning documentary Unrest that I was, in fact, one of “those” people. What do I mean by “those” people? I was one of those people referenced in the film who, like many […]

Small Nerves – Big, Big Problem ? Drug Trial Points Finger At Autoimmunity In Fibromyalgia And ME/CFS

Cort_Johnson

  By Cort Johnson in Health Rising.   Dr. Anne Oaklander MD, PhD, is making a difference – maybe a very big difference in the lives of many. Making a difference runs actually runs in her  family. Her mother, the neurologist Louise Rapin, was one of the seminal figures advancing the concept of autism spectrum disorder. […]

Myalgic Encephalomyelitis (ME) – Treatment Database

Database

  From The American Myalgic Encephalomyelitis and  Chronic Fatigue Syndrome Society.   Although it is routine for doctors to prescribe drugs to help alleviate the symptoms of ME/CFS, patients may respond in unpredictable ways. Specialists report that it is common for ME/CFS patients to have paradoxical responses. For example, an anti-anxiety drug may produce anxiety. […]

Chronic Fatigue Syndrome (ME/CFS) Researcher And Patients Shine During NIH Call

Cort_Johnson

  By Cort Johnson in Health Rising.   It’s great the NIH is doing telebriefings a couple of times a year to inform the chronic fatigue syndrome (ME/CFS) community of their progress.  The calls can be more or less interesting. This one was definitely on the more interesting side. NIH Intramural Study Proceeding on Pace Nath […]

Chronic Fatigue Syndrome, Fatigue, And Safety

cells

  by Kathleen Hoffman in Medivizor.   What’s the difference between Chronic Fatigue Syndrome and fatigue?  A huge difference according to an article in the Proceedings of the National Academy of Sciences that focused on a cutting edge research study conducted at Stanford University.  Researchers found that inflammation is the driver of Chronic Fatigue Syndrome or it’s other name myalgic encephomyelitis. […]

Support Myalgic Encephalomyelitis Research And Funding

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    By Lisa M. Alioto in SC Times.   Do you believe cancer exists? That heart attacks happen? Or that an aneurysm can kill you?  That Alzheimer’s really causes memory loss? Or that strokes can cause paralysis? Of course you do — they exist and they happen, sadly, every day. Do you know what else happens […]

My Promised Saline IV Update. How Did It Go ?

Anil

  By Anil van der Zee, from his Blog, Capture, Dance, Words.   This year I’ve arranged for saline IV’s. As I have a hard time tolerating any medication, and I’m not improving enough because of it. Saline IV’s seemed to be the best solution to help with my orthostatic intolerance or rather my postural […]

Is Prescribing Drugs ‘Off Label’ Bad Medicine ?

pills-main

  By Ravina Barrett in The Conversation.   A woman, let’s call her Sarah, is a young actor looking to make her debut at a major theatre. She is fit and healthy, but gets nervous on opening nights and can’t sleep. She’s tried zopiclone, but it didn’t work, so her GP prescribes a course of quetiapine. […]

Why Is The Government Waging A War Against Disabled People ?

Disability Dice

  By Peter Beresford in The Guardian.   A recent United Nations report on its inspection into the UK’s record on disabled people’s rights was described as a “17-page-long catalogue of shame” by one commentator, who wrote: Over the past seven years, cuts to benefits, social care, the legal system and local authority funding have effectively put decades of […]

Bus Travel And Wheelchair Users

wheelchair

    By Jonathan Webb in Disabled Travel Advice.   Bus travel can often cause problems for wheelchair users, but this is changing as more and more wheelchair accessible buses are introduced.Buses which carry more than 22 passengers are subject to the Public Service Accessibility Regulation 2000, which at a practical level means that all […]

A Glimpse Into What Fatigue Really Feels Like

Fatigue

By Mikala West in The Mighty.   This is the most difficult piece I have ever shared. I like to share things that are uplifting and inspiring, that have a happy ending. So, if you’re expecting that, I’m sorry to disappoint. This piece is about honesty, truth, and real life. Fatigue is a symptom that […]

Cold Weather Alerts And Health Warnings Issued – Latest Update

Cold

  From The Yorkshire Times.   Weather forecasters are warning that all parts of England could experience cold, snow and ice over the next week, prompting PHE to again warn people to plan ahead. The change of weather will bring cold air to all parts of England from Thursday and is likely to affect all […]

How To Talk To Your Doctor About Information You Find Online

Health Online

  By Elizabeth Sillence and Lauren Georgia Bussey in The Conversation.   More and more people are going online to search for information about their health. Though it can be a minefield, where unverified sources abound, searching the internet can help people to understand different health problems, and give them access to emotional and social support. For many in the UK, […]

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