Invisible / Chronic Illness

Vulnerable Say They’ve Been ‘Forgotten’ As Covid Vaccine Goes To Young And Healthy


By John Siddle in The Mirror. Serious health condition sufferers say they have been overlooked in the jab rollout after the Government chooses to vaccinate people by age once priority groups are done. Vulnerable Brits say they have been ‘forgotten’ in the vaccines rollout as young and healthy people get jabs. Those with serious health […]

The Best Thing I’ve Ever Done: Filmmaker With ME Wants To Raise Awareness Of Hidden Illness


By Emily Coady-Stemp in SW Londoner.   A Herne Hill filmmaker hopes his short film This is ME will bring awareness to those living with a common invisible disability. Josh Pickup, 29, was diagnosed with myalgic encephalomyelitis (ME), which is also known as chronic fatigue syndrome, at the age of 21. ME is among the most common […]

The History of ME


  From ME International. The 1956 Lancet Editorial First Proposing the Name “Benign Myalgic Encephalomyelitis” A New Clinical Entity by  E.D. Acheson, D.M., M.R.C.P. (26 May 1956) ​“From the purely practical standpoint it would be useful to have a name for this syndrome.  As the most helpful single feature in the recognition of this syndrome […]

All In Your Head


From Undiagnosis. I have been dropping various hints over the last few months about a non-fiction project I have been working on for the last two and a half years. It’s called All In Your Head, and you can find out more about it on the website here. In brief, it’s the story of what happens when […]

Why My Wheelchair Is A Part Of My Body, And What This Means For You


  By Ginny Butcher in Conscious Being. When I was young I would say that my relationship with my wheelchair was akin to that of a turtle and her shell. I stand by this analogy. To me, my wheelchair is most literally a part of my body. It enables me, supports me, and if you […]

A Surgeon’s ME Story


By Michael Gallagher.   I am an orthopedic surgeon and former marathoner and triathlete living with chronic fatigue syndrome (ME/CFS). Below is an an email that I sent to my colleagues describing my battle with ME/CFS that has robbed me of my ability to do much of what I love. I think many people can […]

Burnout Is Real


    By Jamison Hill in Jamison Writes.   I’m going to keep this post short because, to be honest, I’m burnt out and a few hundred words is all I can muster at this point. For the last several years, I’ve been devoting pretty much all of my free time to getting my book […]

ME Research On The Way Due To Long-Covid ?


  A bit of a breakthrough on the BBC 2 Horizon programme where Dr Strain explains to Dr Xand van Tulleken that ME, a physical illness, will be gaining research based on the Long-Covid situation.  It’s only a couple of minutes long, but worth a watch !   To watch the video, click on the […]

Analysing Antibody Responses Against EBV-Derived Antigens In ME/CFS


  From ME Research UK. Principal investigators Dr Nuno Sepúlveda & Prof. Carmen Scheibenbogen. Background and Aim. The emergence of so-called ‘long COVID’ has highlighted the potential long-term health consequences of infection with a virus like SARS-CoV-2, leading to symptoms such as fatigue, muscle pain and brain fog that may last for weeks or months. […]

Cake And Inner Calm: 10 Ways To Improve Your Mood – Without Exercising


By Frances Ryan in The Guardian.   As lockdown continues, exercise is often touted as one of the best ways to promote good mental health. But as good as running and cold swimming are if they work for you, they do not appeal to everyone. Nor are they an option if you are ill, injured […]

I Was Reported To DWP And It Broke Me


  By Kate Stanforth in WheelAir. Kate Stanforth shares her story, from being an active young girl, to developing a chronic illness and navigating ESA, DWP and public opinion. I’m going to open this by saying that this is the most honest blog I have ever written. It’s on a subject that I know lots […]

Audio Recording Option Set To Be Introduced For All PIP Assessments, Says DWP

DWP Caxton House

  By John Pring in Disability News Service.   The Department for Work and Pensions (DWP) has finally agreed that all disabled people being assessed for personal independence payment (PIP) will be able to have their face-to-face assessments recorded. The promise has come in a letter to the Right to Record action group, a disabled-led […]

Experiences Of Living With Severe ME/CFS

ME Research UK

By Victoria Strassheim, Julia Newton & Tracy Collins in ME Research UK. Key findings Very little research has been conducted in people with severe ME/CFS, partly because their health burden make it difficult for them to engage in studies Interviews with five people with severe ME/CFS explored their lived experience, challenges to everyday life, and management […]

Ohio State Researchers Isolate Biomarker To Test For Chronic Fatigue Syndrome


By a Staff Writer at The Ohio State University College Of Medicine.   Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and Gulf War illness are complex, chronic diseases with overlapping symptoms and no definitive way to diagnose or differentiate between them. The one symptom they share in common is long-term, disabling fatigue. But widely varying symptoms affecting […]

Trial By Error: Happy Tenth Anniversary, PACE Trial !


  By David Tuller, DrPH It’s been ten years since The Lancet published the first results of the PACE trial. Wow! Ten years ago, I was 54 years old and still a graduate student in public health at UC Berkeley. I was also busy writing stories for The New York Times about the mouse retrovirus research that had roiled […]

Low Dose Hydrocortisone: Flare Buster For Fibromyalgia And Chronic Fatigue Syndrome ?


  By Cort Johnson in Health Rising.   Cortisol, our body’s main stress hormone, has an amazing reach. Given the effects it has on our metabolism, inflammation, blood pressure, blood sugar, energy production and even the sleep-wake cycle, it’s no surprise that researchers early on latched onto signs of cortisol problems in chronic fatigue syndrome (ME/CFS) and […]

From Paralysis To Fatigue: A Critical Review Of Edward Shorter’s View On Chronic Fatigue Syndrome


  From ME/CFS Skeptic. Canadian historian Edward Shorter is one of the most influential writers to have dismissed the illness myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). In his articles, Shorter has described ME/CFS as a “trendy non-disease”, “a psychic epidemic” and a “pseudo-disease that does not exist.” Because Shorter’s work is still being cited, this blog […]

Post-Traumatic Stress Disorder – Recognizing PTSD, Treatments And Therapies


  By Rachel Green and Wendy Rhodes in Weighted Blanket Guides.   Post-Traumatic Stress Disorder (PTSD) is a psychiatric disorder that affects 7.7 million Americans every year. PTSD can occur in individuals who have witnessed or experienced a traumatic event, causing them debilitating stress. Some of the common causes of PTSD include war/combat, natural disaster, violence against […]

News In Brief – February 2021


  From Science For M.E. This thread has a Science for ME ‘News in Brief’ post for each week in February 2021 written by a team including @Trish, @Kalliope and @ahimsa. Scroll down to see this week’s news.   To read the rest of this update, click on the link below:   Link to February Update

Long COVID – We’ve Been Here Before


  by Jennifer Trueland in BMA. Long COVID is a new condition, but those who have endured years of ME/CFS can share their common experience – and a long history of being misunderstood. When it was becoming clear that COVID-19 was a serious issue early last year, Nina Muirhead (pictured) had a strong suspicion about […]

Could ME/CFS Be A Chronic, Ongoing Brain And Spinal Cord Injury – That Is Exacerbated By Exertion ?

Vagus Nerve

By Jeff Woods in Health Rising.   (Jeff Wood’s remarkable recovery following spinal surgery to correct craniocervical instability (CCI) and tethered cord shocked the ME/CFS community. It’s safe to say that almost no one saw that coming.  In this piece Jeff – the former ME/CFS patient who started all this off – proposes that the pain, fatigue, […]

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