By John Siddle in The Mirror. Serious health condition sufferers say they have been overlooked in the jab rollout after the Government chooses to vaccinate people by age once priority groups are done. Vulnerable Brits say they have been ‘forgotten’ in the vaccines rollout as young and healthy people get jabs. Those with serious health […]
Invisible / Chronic Illness
The Best Thing I’ve Ever Done: Filmmaker With ME Wants To Raise Awareness Of Hidden Illness
By Emily Coady-Stemp in SW Londoner. A Herne Hill filmmaker hopes his short film This is ME will bring awareness to those living with a common invisible disability. Josh Pickup, 29, was diagnosed with myalgic encephalomyelitis (ME), which is also known as chronic fatigue syndrome, at the age of 21. ME is among the most common […]
The History of ME
From ME International. The 1956 Lancet Editorial First Proposing the Name “Benign Myalgic Encephalomyelitis” A New Clinical Entity by E.D. Acheson, D.M., M.R.C.P. (26 May 1956) “From the purely practical standpoint it would be useful to have a name for this syndrome. As the most helpful single feature in the recognition of this syndrome […]
All In Your Head
Why My Wheelchair Is A Part Of My Body, And What This Means For You
A Surgeon’s ME Story
By Michael Gallagher. I am an orthopedic surgeon and former marathoner and triathlete living with chronic fatigue syndrome (ME/CFS). Below is an an email that I sent to my colleagues describing my battle with ME/CFS that has robbed me of my ability to do much of what I love. I think many people can […]
Burnout Is Real
ME Research On The Way Due To Long-Covid ?
New ME & Me Website For Leeds And Beyond !
ME & Me is a brand new site for local ME sufferers to access information, news and support all in one place! Due to my increasing ME activism, I’ve launched the site as a platform and safe space for local ME sufferers. Since organising Leeds first ever Millions Missing protest in 2019 I’ve become part […]
Analysing Antibody Responses Against EBV-Derived Antigens In ME/CFS
From ME Research UK. Principal investigators Dr Nuno Sepúlveda & Prof. Carmen Scheibenbogen. Background and Aim. The emergence of so-called ‘long COVID’ has highlighted the potential long-term health consequences of infection with a virus like SARS-CoV-2, leading to symptoms such as fatigue, muscle pain and brain fog that may last for weeks or months. […]
Cake And Inner Calm: 10 Ways To Improve Your Mood – Without Exercising
I Was Reported To DWP And It Broke Me
Audio Recording Option Set To Be Introduced For All PIP Assessments, Says DWP
By John Pring in Disability News Service. The Department for Work and Pensions (DWP) has finally agreed that all disabled people being assessed for personal independence payment (PIP) will be able to have their face-to-face assessments recorded. The promise has come in a letter to the Right to Record action group, a disabled-led […]
Experiences Of Living With Severe ME/CFS
By Victoria Strassheim, Julia Newton & Tracy Collins in ME Research UK. Key findings Very little research has been conducted in people with severe ME/CFS, partly because their health burden make it difficult for them to engage in studies Interviews with five people with severe ME/CFS explored their lived experience, challenges to everyday life, and management […]
Ohio State Researchers Isolate Biomarker To Test For Chronic Fatigue Syndrome
By a Staff Writer at The Ohio State University College Of Medicine. Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and Gulf War illness are complex, chronic diseases with overlapping symptoms and no definitive way to diagnose or differentiate between them. The one symptom they share in common is long-term, disabling fatigue. But widely varying symptoms affecting […]
Trial By Error: Happy Tenth Anniversary, PACE Trial !
By David Tuller, DrPH It’s been ten years since The Lancet published the first results of the PACE trial. Wow! Ten years ago, I was 54 years old and still a graduate student in public health at UC Berkeley. I was also busy writing stories for The New York Times about the mouse retrovirus research that had roiled […]
Low Dose Hydrocortisone: Flare Buster For Fibromyalgia And Chronic Fatigue Syndrome ?
By Cort Johnson in Health Rising. Cortisol, our body’s main stress hormone, has an amazing reach. Given the effects it has on our metabolism, inflammation, blood pressure, blood sugar, energy production and even the sleep-wake cycle, it’s no surprise that researchers early on latched onto signs of cortisol problems in chronic fatigue syndrome (ME/CFS) and […]
From Paralysis To Fatigue: A Critical Review Of Edward Shorter’s View On Chronic Fatigue Syndrome
From ME/CFS Skeptic. Canadian historian Edward Shorter is one of the most influential writers to have dismissed the illness myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). In his articles, Shorter has described ME/CFS as a “trendy non-disease”, “a psychic epidemic” and a “pseudo-disease that does not exist.” Because Shorter’s work is still being cited, this blog […]
Post-Traumatic Stress Disorder – Recognizing PTSD, Treatments And Therapies
By Rachel Green and Wendy Rhodes in Weighted Blanket Guides. Post-Traumatic Stress Disorder (PTSD) is a psychiatric disorder that affects 7.7 million Americans every year. PTSD can occur in individuals who have witnessed or experienced a traumatic event, causing them debilitating stress. Some of the common causes of PTSD include war/combat, natural disaster, violence against […]
News In Brief – February 2021
Long COVID – We’ve Been Here Before
by Jennifer Trueland in BMA. Long COVID is a new condition, but those who have endured years of ME/CFS can share their common experience – and a long history of being misunderstood. When it was becoming clear that COVID-19 was a serious issue early last year, Nina Muirhead (pictured) had a strong suspicion about […]
Could ME/CFS Be A Chronic, Ongoing Brain And Spinal Cord Injury – That Is Exacerbated By Exertion ?
By Jeff Woods in Health Rising. (Jeff Wood’s remarkable recovery following spinal surgery to correct craniocervical instability (CCI) and tethered cord shocked the ME/CFS community. It’s safe to say that almost no one saw that coming. In this piece Jeff – the former ME/CFS patient who started all this off – proposes that the pain, fatigue, […]