Links To Other ME Sites & Info

Viruses And CFS: Statements By Ron Davis And Bob Naviaux

Medicine Foundation

    From Open Medicine Foundation.   Ron Davis: There is a great deal of evidence that a variety of viruses can initiate ME/CFS, but it is less clear that a virus is involved in sustaining the disease. However, some patients may have a continuous problem with viruses, especially those viruses we always carry like […]

New Members Of The European ME Alliance

EMEA

  From the European ME Alliance Website.   Recently the European ME Alliance met in London for its 2017 Annual General Meeting. The events took place following the Invest in ME Research Conference week consisting of research Colloquium and Conference events. Amongst the other business at the meeting was the acceptance of applications from two […]

The Scientist, The Seahorse And The Nanoneedle – Catching Up With Ron Davis On ME/CFS

Ron Davis

      By Cort Johnson in Health Rising.   The “most famous scientist in the world” visited Ron Davis and his End ME/CFS group a couple of weeks ago and gave the project a thumbs up. James Watson and Francis Crick produced arguably the single most important breakthrough in science in the past 100 […]

ME/CFS And Sexism

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    From Jameson Writes.   For those who have watched Jen Brea’s Ted Talk, or read other accounts of life with MECFS, like Julie Rehmeyer’s new book, Through the Shadowlands and my essay in Quartz a few months ago, then you know that medical neglect is a big part of the disease’s narrative. Also within […]

York Advocacy

Advocacy

    General Advocacy Our general advocacy service provides professional advocacy in the city of York for people over the age of 18 years, who have a disability, mental ill-health or who are disadvantaged or vulnerable. This service will: Provide short-term, issue based advocacy and when required longer term advocacy support in specifically identified circumstances. […]

4 Blue Photos For M.E.

Blue for ME

    By Helen R Hyland’s Photographs.   Go BLUE for M.E? M.E. stands for myalgic encephalomyelitis. Chronic Fatigue Syndrome is easier to say, but doesn’t really sum up this cruel illness adequately. It’s not just tiredness that won’t go away, but it robs people of thought, restful sleep, comfort, and, often livelihood. A quarter of […]

Trial By Error, Continued: My Libelous Blogging On Virology Blog

David Tuller

  By David Tuller in Virology Blog.   During a recent talk at the annual conference of the British Renal Society, pediatrician and staunch PACE proponent Esther Crawley accused me of libeling her. I wasn’t at her presentation, but her slides were captured and tweeted. Dr. Crawley’s lecture recounted her heroic struggle against the dark […]

Ian Lipkin’s CII Team Shows Gut Bacteria In ME/CFS May Influence Disease Severity

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  From The Microbe Discovery Project.   Anticipated work from the CII teams’ early investigative research into ME/CFS is starting to be published. The new study in the journal Microbiome from Drs Ian Lipkin and Mady Horning at Columbia University Center for Infection and Immunity (CII) finds abnormal levels of certain types of bacteria in the gut […]

Researchers Review Melatonin’s Therapeutic Potential For Mitochondrial Dysfunction-Related Diseases

Mitochondrial

    By Alice Meloa in Mitochondria Disease News. Researchers from the Shahrekord University of Medical Sciences, in Iran presented the most recent findings of the clinical effects of the hormone melatonin on the development of diseases related to mitochondrial dysfunction, such as diabetes, cancer, gastrointestinal diseases, and conditions related to brain function. The review […]

The Shift: Top Science Journal Asserts Shift in Attitude Towards ME/CFS Has Occurred

Cort Johnson

  By Cort Johnson “Chronic Fatigue Syndrome is a biological disease” Dr. Ian Lipkin’s Center for Infection and Immunity at Columbia University From NIH Director Francis Collins’ high profile blog “Moving Toward Answers in ME/CFS“, to the New York Times Opinion piece “Getting It Wrong on Chronic Fatigue Syndrome” exposing the failures of the PACE trial, […]

What Is M.E ? 1 Million Americans And 17 Million Worldwide Affected By One Of The Most Disabling Diseases Ever…

ME-Advocacy-Logo-5

    From ME Advocacy.   Myalgic encephalomyelitis (ME), is a complex disease involving profound dysregulation of the central nervous system (CNS) and immune system, dysfunction of cellular energy metabolism and ion transport as well as cardiovascular abnormalities. The disease affects people of all ages, genders, races and economic levels.   To read more, click […]

The ME/CFS Biomarker Rollercoaster

Biomarkers

  From The Microbe Discovery Project. Biomarkers are a holy grail for ME/CFS because they have the potential to help diagnose disease, track disease progression or progress and help inform which treatments might help. The need for biomarkers is immense and researchers will identify many possible ones. It is encouraging that there have been more possible biomarker […]

Engaging People With ME As Partners In The CRCS

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    From #MEAction.   A view from the US.   The National Institute of Health’s RFA for ME/CFS Collaborative Research Centers breaks new ground. For the first time, the funding agency is strongly encouraging researchers “to establish partnerships with patients groups and solicit their input” as part of their research plan. #MEAction assembled a […]

ME/CFS Hits Nature News & A Call Out For An Urgent Advocacy Action !

Change

    From The Microbe Discovery Project.   It is wonderful to see an article in Nature covering emerging science in ME/CFS and quoting top scientists who are working on the disease. Not long ago in February, New Scientist featured a great piece and now Nature has published an excellent piece by Amy Maxemen, ‘Biological underpinnings of chronic fatigue syndrome begin to emerge’ with the sub-heading “Gut bacteria and altered […]

Biological Underpinnings Of Chronic Fatigue Syndrome Begin To Emerge

Ron Davis

    By Amy Maxmen in Nature International Weekly Journal of Science.   Before his 33-year-old son became bedridden with chronic fatigue syndrome, biochemist Ronald Davis created technologies to analyse genes and proteins faster, better and more cheaply. Now he aims his inventions at a different target: the elusive inner workings of his son’s malady. […]

A Biomarker for Chronic Fatigue Syndrome (ME/CFS) ? Immunosignature Provides Another Possibility

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  By Cort Johnson in Health Rising.   A Different Look at the Immune System The ultimate goal of this work is the development of a non-subjective clinical tool for diagnosing patients with ME. Lombardi et. al.  Last month Health Rising looked at a potential ion channel biomarker coming out of the NCNED in Australia. […]

Blood, Tissue And Organ Donation With ME/CFS

Donor

    By David Price in Emerge Australia.   Have you asked yourself the question: can I donate blood, tissues and/or organs even though I have ME/CFS? Well, the simple answers are no, and maybe. See below: Blood The Australian Red Cross Blood Service, along with international equivalents do not accept blood donations from people with […]

Differences So Clear

Suzanne Vernon

  New Research Brings Clear Differences to Light in ME/CFS by Suzanne D. Vernon, PhD  |  BHC Research Liaison   From The Bateman Horne Center.   There is a great song in the musical RENT titled “Seasons of Love” in which they sing about the number of minutes in a year. As I am reviewing and […]

Major Breakthrough In Chronic Fatigue Syndrome (ME/CFS) ? Aussies Believe Biomarker Found

research

  By Cort Johnson in Health Rising. Hot Story The media reports have been sizzling! Griffith University, the home of the NCNED group in Australia that produced the study, called it “groundbreaking”.  IFL Science lead off with a piece called “People With Chronic Fatigue Have A Defective Channel In Immune System Cells” which stated, “The finding confirms […]

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