ME Support and Awareness in York – The York ME Community

Panto Daft Lad Martin Barrass Is Bouncing Back At York Theatre Royal One Year After Bike Crash

Panto

  By Charles Hutchinson in The Press.   Martin Barrass has never performed on the reconfigured York Theatre Royal stage until this week. Indeed, he has only stepped on the main-house boards once since January 31 2015, the last night of Old Mother Goose, and that was to walk gingerly towards dame Berwick Kaler‘s embrace on […]

The Struggle You Don’t Realize When You See Me Out And About

Frustration Chronic Illness

    By Lindsay Karp in The Mighty.   There is a lot you don’t realize when you see me out and about. You may think I’m fine when you see me at the playground pushing my son on the swing. You may think this is an ordinary day for me when you see me […]

Post Twenty One. The Wheelchair Has Arrived.

Wheelchair

  From puffins&penguins&me A personal blog about my experience of living with the illness Myalgic Encephalomyelitis (ME)   So, the much anticipated wheelchair has arrived! It was delivered mid-November by a very nice engineer who unpacked and put it together for me, and he gave me some basic instructions, how to use the joystick, how to […]

From York To The North Pole: Brothers Publish Magical Children’s Christmas Book

Christmas

  From YorkMix.   One day a few years back, a little wooden door appeared overnight in an old tree near York. That mysterious moment has now inspired a magical new children’s book, co-authored by a very familiar face in the city. In his day job as communications and evaluation manager at York Museums Trust, […]

“Unrest” Aims For Awards Season Recognition

Jen Unrest

  By The Independent Critic.   Before we go any further, I must confess to you that prior to watching Jennifer Brea’s Sundance Film Festival award-winning documentary Unrest that I was, in fact, one of “those” people. What do I mean by “those” people? I was one of those people referenced in the film who, like many […]

Small Nerves – Big, Big Problem ? Drug Trial Points Finger At Autoimmunity In Fibromyalgia And ME/CFS

Cort_Johnson

  By Cort Johnson in Health Rising.   Dr. Anne Oaklander MD, PhD, is making a difference – maybe a very big difference in the lives of many. Making a difference runs actually runs in her  family. Her mother, the neurologist Louise Rapin, was one of the seminal figures advancing the concept of autism spectrum disorder. […]

Myalgic Encephalomyelitis (ME) – Treatment Database

Database

  From The American Myalgic Encephalomyelitis and  Chronic Fatigue Syndrome Society.   Although it is routine for doctors to prescribe drugs to help alleviate the symptoms of ME/CFS, patients may respond in unpredictable ways. Specialists report that it is common for ME/CFS patients to have paradoxical responses. For example, an anti-anxiety drug may produce anxiety. […]

Claiming PIP And ESA: “Horrific And Inhumane”

benefits

  Author: Liam.Evans@turn2us.org.uk   The inquiry into Personal Independence Payment (PIP) and Employment and Support Allowance (ESA) has revealed testimonies of despair.   A Work and Pensions Committee inquiry into disability benefits has heard from more than 3,000 people despondent with the system. The inquiry into PIP and ESA has revealed countless experiences of severely disabled […]

The Man Behind The World’s Best Restaurant Wants To Open A Venue In York

Tommy Banks

  From YorkMix.   We’ve got more than our fair share of award-winning chefs in York these days. Neil Bentinck saw his Micklegate restaurant Skosh awarded a Bib Gourmand by the Michelin Guide in September. Le Cochon Aveugle on Walmgate, run by Josh Overington, was named as one the UK’s Top Scorers in Harden’s Best UK Restaurants 2017. And Andrew […]

Chronic Fatigue Syndrome (ME/CFS) Researcher And Patients Shine During NIH Call

Cort_Johnson

  By Cort Johnson in Health Rising.   It’s great the NIH is doing telebriefings a couple of times a year to inform the chronic fatigue syndrome (ME/CFS) community of their progress.  The calls can be more or less interesting. This one was definitely on the more interesting side. NIH Intramural Study Proceeding on Pace Nath […]

Chronic Fatigue Syndrome, Fatigue, And Safety

cells

  by Kathleen Hoffman in Medivizor.   What’s the difference between Chronic Fatigue Syndrome and fatigue?  A huge difference according to an article in the Proceedings of the National Academy of Sciences that focused on a cutting edge research study conducted at Stanford University.  Researchers found that inflammation is the driver of Chronic Fatigue Syndrome or it’s other name myalgic encephomyelitis. […]

Support Myalgic Encephalomyelitis Research And Funding

research1

    By Lisa M. Alioto in SC Times.   Do you believe cancer exists? That heart attacks happen? Or that an aneurysm can kill you?  That Alzheimer’s really causes memory loss? Or that strokes can cause paralysis? Of course you do — they exist and they happen, sadly, every day. Do you know what else happens […]

My Promised Saline IV Update. How Did It Go ?

Anil

  By Anil van der Zee, from his Blog, Capture, Dance, Words.   This year I’ve arranged for saline IV’s. As I have a hard time tolerating any medication, and I’m not improving enough because of it. Saline IV’s seemed to be the best solution to help with my orthostatic intolerance or rather my postural […]

Is Prescribing Drugs ‘Off Label’ Bad Medicine ?

pills-main

  By Ravina Barrett in The Conversation.   A woman, let’s call her Sarah, is a young actor looking to make her debut at a major theatre. She is fit and healthy, but gets nervous on opening nights and can’t sleep. She’s tried zopiclone, but it didn’t work, so her GP prescribes a course of quetiapine. […]

Bring Back Conversation… By Shutting Up And Listening

Talking

  By Celeste Headlee in The Guardian.   It seems that we’re talking more than ever. And it’s true that we have more platforms for connection and communication than ever before. But what feels like conversation is actually just talking. Conversation – the exchange of ideas and thoughts between two people in which both understand […]

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