ME Support and Awareness in York – The York ME Community

Burnout Is Real


    By Jamison Hill in Jamison Writes.   I’m going to keep this post short because, to be honest, I’m burnt out and a few hundred words is all I can muster at this point. For the last several years, I’ve been devoting pretty much all of my free time to getting my book […]

ME Research On The Way Due To Long-Covid ?


  A bit of a breakthrough on the BBC 2 Horizon programme where Dr Strain explains to Dr Xand van Tulleken that ME, a physical illness, will be gaining research based on the Long-Covid situation.  It’s only a couple of minutes long, but worth a watch !   To watch the video, click on the […]

Headaches: Three Tips From A Neuroscientist On How To Get rid Of Them


  By Amanda Ellison in The Conversation.   Everyone experiences headaches. From dull throbbing dehydration headaches to incapacitating migraines, a sore head is an extremely common complaint. This is perhaps especially true at the moment. COVID-19 can cause them, as can sitting at desks for too long and not getting out of the house enough. When […]

Analysing Antibody Responses Against EBV-Derived Antigens In ME/CFS


  From ME Research UK. Principal investigators Dr Nuno Sepúlveda & Prof. Carmen Scheibenbogen. Background and Aim. The emergence of so-called ‘long COVID’ has highlighted the potential long-term health consequences of infection with a virus like SARS-CoV-2, leading to symptoms such as fatigue, muscle pain and brain fog that may last for weeks or months. […]

Cake And Inner Calm: 10 Ways To Improve Your Mood – Without Exercising


By Frances Ryan in The Guardian.   As lockdown continues, exercise is often touted as one of the best ways to promote good mental health. But as good as running and cold swimming are if they work for you, they do not appeal to everyone. Nor are they an option if you are ill, injured […]

I Was Reported To DWP And It Broke Me


  By Kate Stanforth in WheelAir. Kate Stanforth shares her story, from being an active young girl, to developing a chronic illness and navigating ESA, DWP and public opinion. I’m going to open this by saying that this is the most honest blog I have ever written. It’s on a subject that I know lots […]

Audio Recording Option Set To Be Introduced For All PIP Assessments, Says DWP

DWP Caxton House

  By John Pring in Disability News Service.   The Department for Work and Pensions (DWP) has finally agreed that all disabled people being assessed for personal independence payment (PIP) will be able to have their face-to-face assessments recorded. The promise has come in a letter to the Right to Record action group, a disabled-led […]

Experiences Of Living With Severe ME/CFS

ME Research UK

By Victoria Strassheim, Julia Newton & Tracy Collins in ME Research UK. Key findings Very little research has been conducted in people with severe ME/CFS, partly because their health burden make it difficult for them to engage in studies Interviews with five people with severe ME/CFS explored their lived experience, challenges to everyday life, and management […]

Ohio State Researchers Isolate Biomarker To Test For Chronic Fatigue Syndrome


By a Staff Writer at The Ohio State University College Of Medicine.   Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and Gulf War illness are complex, chronic diseases with overlapping symptoms and no definitive way to diagnose or differentiate between them. The one symptom they share in common is long-term, disabling fatigue. But widely varying symptoms affecting […]

Trial By Error: Happy Tenth Anniversary, PACE Trial !


  By David Tuller, DrPH It’s been ten years since The Lancet published the first results of the PACE trial. Wow! Ten years ago, I was 54 years old and still a graduate student in public health at UC Berkeley. I was also busy writing stories for The New York Times about the mouse retrovirus research that had roiled […]

Low Dose Hydrocortisone: Flare Buster For Fibromyalgia And Chronic Fatigue Syndrome ?


  By Cort Johnson in Health Rising.   Cortisol, our body’s main stress hormone, has an amazing reach. Given the effects it has on our metabolism, inflammation, blood pressure, blood sugar, energy production and even the sleep-wake cycle, it’s no surprise that researchers early on latched onto signs of cortisol problems in chronic fatigue syndrome (ME/CFS) and […]

Mum Launches Petition To Reopen Historic York Shop


  From YorkMix. A mum whose dream of reopening an historic York shop could be dashed by planners has launched a petition to support her cause. Last August Sara Winlow bought the property which used to house South Bank Stores on Balmoral Terrace, close to the racecourse. The shop had long since closed, and she […]

From Paralysis To Fatigue: A Critical Review Of Edward Shorter’s View On Chronic Fatigue Syndrome


  From ME/CFS Skeptic. Canadian historian Edward Shorter is one of the most influential writers to have dismissed the illness myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). In his articles, Shorter has described ME/CFS as a “trendy non-disease”, “a psychic epidemic” and a “pseudo-disease that does not exist.” Because Shorter’s work is still being cited, this blog […]

Post-Traumatic Stress Disorder – Recognizing PTSD, Treatments And Therapies


  By Rachel Green and Wendy Rhodes in Weighted Blanket Guides.   Post-Traumatic Stress Disorder (PTSD) is a psychiatric disorder that affects 7.7 million Americans every year. PTSD can occur in individuals who have witnessed or experienced a traumatic event, causing them debilitating stress. Some of the common causes of PTSD include war/combat, natural disaster, violence against […]

News In Brief – February 2021


  From Science For M.E. This thread has a Science for ME ‘News in Brief’ post for each week in February 2021 written by a team including @Trish, @Kalliope and @ahimsa. Scroll down to see this week’s news.   To read the rest of this update, click on the link below:   Link to February Update

Long COVID – We’ve Been Here Before


  by Jennifer Trueland in BMA. Long COVID is a new condition, but those who have endured years of ME/CFS can share their common experience – and a long history of being misunderstood. When it was becoming clear that COVID-19 was a serious issue early last year, Nina Muirhead (pictured) had a strong suspicion about […]

The 5 Best Vitamins For Energy & Tiredness


Updated by Rachel Bartholomew BA (Hons), Dip ION, mBANT, CNHC, GHW in Nutri Advanced. Despite the best marketing efforts of a huge drinks company, energy is not something you can buy in a can. Energy is actually something that your body makes. You supply the raw ingredients (aka food) and your body quickly gets to work on […]

Could ME/CFS Be A Chronic, Ongoing Brain And Spinal Cord Injury – That Is Exacerbated By Exertion ?

Vagus Nerve

By Jeff Woods in Health Rising.   (Jeff Wood’s remarkable recovery following spinal surgery to correct craniocervical instability (CCI) and tethered cord shocked the ME/CFS community. It’s safe to say that almost no one saw that coming.  In this piece Jeff – the former ME/CFS patient who started all this off – proposes that the pain, fatigue, […]

APPGs Should Collaborate On ME And Long Covid


  From #MEAction UK.   #MEAction UK has written to the chairs of the Coronavirus All Party Parliamentary Group (APPG) and the Myalgic Encephalomyelitis APPG requesting they collaborate. We have highlighted 3 specific areas of overlap that could benefit from a collaborative approach: Graded exercise, post-exertional malaise and NICE guidelines Misleading and potentially dangerous advice […]

All In Your Head ? Brain Research In ME/CFS


  From ME Research UK. Following last week’s introduction to the brain, here is an overview of some of the brain research conducted in ME/CFS in recent years, and how it has helped us understand more about the illness. The World Health Organisation has classified ME/CFS as a neurological disease, and brain inflammation has long […]

Say What ? Attention Deficits Highlight Why Fibromyalgia (And ME/CFS) Are Such Different Diseases


By Cort Johnson in Health Rising.   How fibromyalgia, chronic fatigue syndrome and allied diseases are so different from diseases like rheumatoid arthritis. Fibro-fog, brain-fog, chemo-fog… It can get pretty dim out there if you have fibromyalgia (FM), chronic fatigue syndrome (ME/CFS) and environmental illness (EI). If you have these conditions and feel like you’re […]

Special Issue “Biomarkers In Chronic Fatigue Syndrome (ME/CFS)”


  From MDPI.   Special Issue Information Dear Colleagues, Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a systemic disease that affects the central nervous system, the immune system, cell energy metabolism, the autonomic nervous system, etc. The main clinical sign is persistent chronic fatigue that is not relieved by rest and lasts for more than six […]

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