ME Support and Awareness in York – The York ME Community

Underpaid Disability Claimants To Receive Up To £20,000

DWP Caxton House

  By Patrick Butler in The Guardian.   Tens of thousands of severely disabled and ill claimants are set to receive backdated payments of up to £20,000 after being wrongly underpaid for years by social security officials, the government spending watchdog has revealed. An estimated 70,000 claimants were underpaid about £340 m between 2011 and 2014 after […]

Queen Elizabeth And Imphal Barracks: MOD Commit To Exploring Opportunities For Retaining Civilian Posts

Imphal Barracks

  By Joe Penny from the York Liberal Democrats website.   In a recent letter from Tobias Ellwood MP, the Ministry of Defence (MOD) have openly committed to working with the Council to explore potential opportunities for retaining civilian posts in York, despite the closures of Queen Elizabeth and Imphal Baracks. Tobias Ellwood MP, the […]

PACE Trial’s Findings Fundamentally Challenged By A New Study


    By Simon McGrath in ME/CFS Research Review.   In a nutshell: Analysing PACE the way the authors originally promised to do showed that CBT and GET didn’t do much to improve self-reported physical function and fatigue and did not lead to recovery. Even the very limited self-reported gains in this unblinded trial are […]

The Best Fish And Chips In Yorkshire According To TripAdvisor

Fish and Chips

  By Helen Johnson in The Yorkshire Evening Post.   Fish and Chips are one of the nation’s best loved foods, with restaurants and takeaways always upping their game in the hopes of being the best place for people to get this delicious dish. This year, Millers Fish and Chip shop in Haxby, near York, […]

The Mainstream Medical Community Just Declared War On People Living With ME


  By Steve Topple in The Canary.   The publication of a study into what an MP called one of the “biggest medical scandals of the 21st century” has sparked a war of words between areas of the medical and science communities. Caught in the crossfire are between 17 and 24 million disabled people worldwide, on whom critics of […]

York Lib Dems Motion To Raise Awareness Of ME In York Passes Through Council Unanimously !

Lib Dem

On the evening of Thursday 22 March, Cllr Runciman proposed the Liberal Democrat motion to raise ME Awareness in York.  This was passed through council unanimously ! I would like to thank all in council who listened to my support of the motion and Cllr Runciman and her staff for getting this through.

Rethinking The Treatment Of Chronic Fatigue Syndrome – A Reanalysis And Evaluation Of Findings From A Recent Major Trial Of Graded Exercise And CBT


    By Carolyn E. Wilshire, Tom Kindlon, Robert Courtney, Alem Matthees, David Tuller,Keith Geraghty and Bruce Levin in BMC Psychology.   Abstract Background The PACE trial was a well-powered randomised trial designed to examine the efficacy of graded exercise therapy (GET) and cognitive behavioural therapy (CBT) for chronic fatigue syndrome. Reports concluded that both treatments were moderately effective, each leading to recovery in over a fifth of patients. […]

Trial By Error: Checking In From Melbourne And Canberra…


  By David Tuller, DrPH.   So I’ve been in Australia for a week. In Melbourne on Friday, I was happy to spend a couple of hours with Emerge Australia, the local ME/CFS advocacy group. We had video glitches so there is not a continuous tape of the discussion, but here’s a link to at […]

Stop Doing Quizzes On Facebook If You Place Any Value On Your Privacy


  By Mark Wycislik-Wilson in Beta News.   You might think that talking about Facebook and privacy in the same breath is a little odd. The two just don’t go hand in hand, surely? Trying to use Facebook whilst maintaining your privacy is an exercise in futility, right? Well, yes, it’s certainly true that hitting a social […]

Chronic Fatigue Syndrome Might Have A Crucial Hormonal Link


  By Peter Dockrill in Science Alert.   For years, a line has divided millions of patients from their doctors, separating those who experience the debilitating effects of chronic fatigue syndrome from a medical establishment that has traditionally refused to acknowledge or agree upon the condition. Now, finally, that barrier is beginning to crumble. In recent times, […]

Raising ME Awareness In York – A Short Video Chat With York TV


  Just a bit of a stumbling interview with York TV yesterday……hopefully it will help raise ME Awareness a little around York.  We need more businesses to come forward to lend their support. Many businesses will be missing staff due to this illness, and will not know how to help them back to work.  Maybe […]

How My Life Has Changed Since I Developed ME/CFS


  By Lisa Alioto in The Mighty.   When I was me… I always greeted you with a smile. I may have tried to say something funny to put a smile on your face and I was always excited about whatever plans we had for the day. When I was me… I worked out. Sweaty, hardcore workouts […]

Disabled Boy Shows Why People Parking On Pavements Are Being Selfish


    By Kate Buck in METRO.   A wheelchair-bound nine-year-old’s journey to school takes four times longer than it should because drivers are selfishly parking their car on the pavements. It should take 10 minutes for Josh Carter to get to school using his electric wheelchair. But when cars are parked on the curb, […]

Higher Prevalence Of “Low T3 Syndrome” In Patients With Chronic Fatigue Syndrome: A Case–Control Study


  By Begoña Ruiz-Núñez, Rabab Tarasse, Emar F. Vogelaar, D. A. Janneke Dijck-Brouwer, and Frits A. J. Muskiet in Frontiers Media.   Chronic fatigue syndrome (CFS) is a heterogeneous disease with unknown cause(s). CFS symptoms resemble a hypothyroid state, possibly secondary to chronic (low-grade) (metabolic) inflammation. We studied 98 CFS patients (21–69 years, 21 males) and 99 age- and sex-matched […]

Did A Multiple Sclerosis Study Give Us Clues About ME/CFS And Fibromyalgia ?


    By Cort Johnson in Simmaron Research.   Why should a blog focused on chronic fatigue syndrome (ME/CFS) and fibromyalgia (FM) be interested in multiple sclerosis? Because some distinct similarities exist between the three diseases, and when diseases like ME/CFS and FM aren’t getting much research, sometimes it pays to pay attention to diseases […]

Cortene – A New Drug For Chronic Fatigue Syndrome (ME/CFS) Pt III: The Clinical Trial


  By Cort Johnson in Health Rising.   An Exploratory Drug Trial For ME/CFS In the next month or so, Cortene, a small drug development company, will do a very unusual thing – trial a new drug in chronic fatigue syndrome (ME/CFS). The first two parts of the series on this new drug covered how […]

A Consensus-Driven ME/CFS Clinician Coalition Takes Shape

Bateman Horne Center

    By Stephanie Griffin.   On March 2-3, 2018, the Bateman Horne Center hosted an exciting summit of leading U.S. ME/CFS clinicians who came together to share their pearls of wisdom on diagnosis and treatment in order to improve ME/CFS clinical care and refine more precise research targets. The meeting was remarkable for the ambitious nature […]

What It Means To Experience ‘Payback’ With Chronic Fatigue Syndrome


  By Zoe Bacon in The Mighty.   Post-exertional malaise, or “payback,” is one of the key diagnostic criteria for myalic encephalomyelitis/chronic fatigue syndrome (ME/CFS). It is also one of the symptoms that is hardest for people who haven’t experienced the condition to understand. I often think of it as being similar to a hangover, […]

Street Food, A Bar And Juggling Jesters – York’s Shakespeare Village Unveiled

Cliffords Tower

  From YorkMix.   With a little over 100 days to go before the first night, organisers of York’s pop-up Shakespeare theatre have revealed more details of what we can expect. And there will be plenty to do in addition to enjoying some of the world’s greatest plays in an authentic setting. As previously reported, […]

55 Reasons Why NICE Must Recommend A Home Visiting, Biomedical Service, For People With Severe Myalgic Encephalomyelitis


  By Stonebird. People with Severe and Very Severe ME are not safe within the current health system; this is not an exhaustive list by any means : 1. It is virtually impossible for the most severely affected to travel to a clinic or a hospital. 2. It is extremely difficult to find a knowledgeable […]

Six Yorkshire Postcodes Appear In Sunday Times Best Places To Live Guide For 2018


  From The Yorkshire Post.   A total of 10 towns and suburbs from the north-east of England appear in the national list of desirable locations, including six in Yorkshire. Two of them, Malton and Pateley Bridge, appeared in the 2017 guide, but there are also four newcomers. The north Leeds suburb of Chapel Allerton […]

One Side Effect Of Being Young, Female And Sick: People Won’t Believe You


  By Emma Court in Market Watch.   After Michele Lent Hirsch had major hip surgery in her early 20s, even as she hobbled around on crutches, people didn’t always believe that she’d had surgery. “Oh, my grandmother had that,” she’d hear. Or, “Weird, hip surgery.” An older woman yelled at her for taking a […]

How To Future-Proof The NHS – Copy The Bank Of England


    By Anne Marie Rafferty and Jonathan Grant in The Conversation.   Faced with an ageing population and funding pressures, fresh thinking is needed to brace the NHS for what lies ahead. Perhaps the answer to some of the impending problems in health policy can be solved with a relatively old idea adapted from the world of monetary […]

Scientific Study Reveals Severe Level Of Disability Caused By ME

Scientist using a microscope

  From Ekklesia.   A misunderstood disease wrongly labelled make-believe by some GPs is more devastating to sufferers than multiple sclerosis, a new scientific study has found. More than 250,000 people in the UK have ME (myalgic encephalomyelitis), which manifests as unrelenting fatigue and profound pain. The condition, also known as Chronic Fatigue Syndrome, has no […]

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