ME Support and Awareness in York – The York ME Community

The Victorians Caused The Meat Eating Crisis The World Faces Today – But They Might Help Us Solve It

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    By Paul Young in The Conversation.   Increasing consumption of meat rich diets throughout the world in the 21st century raises pressing concerns about human health, animal welfare and environmental sustainability. Too much mass-produced meat is bad for us, bad for the livestock we eat, and bad for the planet on which we live. […]

York’s Wheelchair-Accessible Indie Coffee Shops And Cafes

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  By Pippa, from The Life Of Pippa Blog.   If you’ve ever visited York, you’ll know it’s an absolute goldmine for cute and quirky independent businesses. You could visit a different indie coffee shop for breakfast every weekend, and in my former years as a student (prior to becoming a wheelchair-user), that’s pretty much […]

Novel Insights Into Overtraining Syndrome Suggest Chronic Fatigue Syndrome (ME/CFS) Connection

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  By Cort Johnson in Health Rising.   Were you an avid exerciser prior to becoming diagnosed with chronic fatigue syndrome (ME/CFS)? Are you sure you were diagnosed correctly? Symptomatically, overtraining syndrome (OTS) and ME/CFS appear almost identical. Symptoms like fatigue, pain, post-exertional malaise, sleep problems and cognitive issues pervade both “syndromes”. If it was […]

Shakespeare’s Rose Theatre Goes Into Liquidation

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      By Chloe Laversuch at Minster FM.   The theatre say they’ve suffered “unsustainable losses” from it’s recent seasons in York and at Blenheim Palace. THE closure of Shakespeare’s Rose Theatre, which has gone into liquidation, “will be a loss” for York. Organisations have reacted with sorrow to news that the theatre – which […]

The Importance Of Accurate Diagnosis Of ME/CFS In Children And Adolescents: A Commentary

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    By Keith James Geraghty and Charles Adeniji in Frontiers.   Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a chronic illness that causes a range of debilitating symptoms. While most research has focused on adults, the illness also presents in children and adolescents. Many physicians find it difficult to diagnose the illness. In this commentary […]

Why The Way Healthcare Professionals Measure Patient Pain Might Soon Be Changing

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    By Richard Day in The Conversation.   The last time you went to see a doctor, it was probably because you were in pain – it’s by far the main reason people access the health service. And if you did go because of pain, your doctor probably asked you to rate it on […]

How My Life Has Changed Since I Developed ME/CFS

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    By Lisa Alloto in The Mighty.   When I was me… I always greeted you with a smile. I may have tried to say something funny to put a smile on your face and I was always excited about whatever plans we had for the day. When I was me… I worked out. […]

Cutting Out Toxic People From My Life After Becoming Chronically Ill

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    By Shannon Marie in The Mighty.   I can count my friends on one hand, and I spend a fair amount of time alone. I prefer it this way. I’m often fatigued or otherwise symptomatic of Hashimoto’s with joint pain, brain fog, mood swings or back pain. So a day or two completely alone in […]

2018 ME/CFS Research

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    By Rochelle Joslyn.   2018 was a pivotal year for ME/CFS research, yielding over 200 publications specifically addressing various aspects of ME/CFS. Foundational work emerged from prominent biomedical scientists around the globe, leveraging powerful novel technologies and analysis strategies to advance our understanding of the disease presentation, pathophysiology, and effective treatment modalities. From sophisticated […]

York Ghost Merchants – The ‘World’s First’ Spook Shop – Opens In Shambles

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  By George Dodd in The Press. THE “world’s first” ghost shop has opened its doors in York – stocking more than 1,000 spooky collectables. The York Ghost Merchants, located in the former Pinder and Scott’s bakery shop at number 6 Shambles, stocks unique ghost-related souvenirs for visitors to take home. The shop has been created and […]

Mitochondria Play An Unexpected Role In Killing Bacteria

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  By Katarina Zimmer in The Scientist.   B.H. Abuaita et al., “Mitochondria-derived vesicles deliver antimicrobial reactive oxygen species to control phagosome-localized Staphylococcus aureus,” Cell Host Microbe, 24:625–36, 2018. According to biology textbooks, a macrophage engulfs a bacterium, internalizes it in a toxin-filled vesicle called a phagosome, then shuttles the cellular remains to a lysosome for degradation. […]

Struggling to Accept the Days When Illness Keeps Me From Doing Anything

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By Sally Doherty in The Mighty.   I’ve had some of those awful days recently (they happen now and then, and more often than I’d like). You know the type: days when instead of your bed being somewhere that you go to rest, your bed becomes a prison that you can barely get out of. […]

Chronic Fatigue Syndrome: New Evidence Of Immune Role

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By Tim Newman in Medical News Today. Researchers recently investigated the immune system’s role in chronic fatigue syndrome in unprecedented depth. The findings might help design future treatments. Chronic fatigue syndrome (CFS), or myalgic encephalomyelitis (ME), is a mysterious condition. The main symptom of CFS is extreme and often unrelenting fatigue. Others include muscle and joint pain, sleep issues, and flu-like […]

The York ME Community – York Inter Company Fantasy Football League For The York ME TGA Shield – Update

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  The York ME Community runs an Inter-Company Fantasy Football League sponsored by TGA Mobility. This is to help raise awareness of the illness that affects around 250,000 people in the UK, and 800 in the York area alone. Of those around York, 200 are likely to be severe, meaning house or bed bound.   […]

Sjögren’s Syndrome

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  From ME Support. What is Sjögren’s Syndrome Sjögren’s Syndrome is the UK’s second most common autoimmune rheumatic disease, yet the condition remains under-recognised and frequently under-treated. It does not command a high profile within the medical profession, and the general public is largely unaware of the problems faced by sufferers. In reality, Sjögren’s Syndrome is […]

Why You Can’t Always Trust Online Customer Reviews

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  From Which?   Which? has found a range of home and tech products that seriously failed to impress in our tough lab tests – but online customer review scores might have you believe they’re a sure thing. Five products that scored so poorly in our tests we rated them as Don’t Buys looked largely […]

What It’s Really Like To Work Part-Time Because Of Chronic Illness

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    By Rachel Calhoun in The Mighty. My life of leisure is so amazing. I only have to work two days a week because I am so financially secure. I get to have days off during the week to do whatever I want while others are working their full time jobs.  I couldn’t keep from […]

Ten Ways To Prove That Chronic Fatigue Syndrome (ME/CFS) Is A Serious Illness

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      By Cort Johnson in Health Rising. Chronic fatigue syndrome is a terrible name. It’s such a terrible name that you have to give the people around you a little break. With that name, they’re almost doomed, at least at first, to think ME/CFS is a milquetoast kind of disease best suited to […]

Becoming A Wheelchair User: 3 Things I’ve Learned

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  From @creamcrackeredblog.   I became a wheelchair user two years ago, and in that time I’ve really had to work through a lot of anxiety and internalised ableism to become comfortable using my chair out in public. It hasn’t been easy and I still have my wobbles, but I’m now at the point where […]

The ‘All In The Mind’ Myth Of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

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  From Nursing In Practice. Health professionals should be made aware that ME/CFS is not a psychological illness and in order to improve patient care, nurses need to better understand this illness and its impact on patients. Nurses often witness close-up the impact of acute and chronic illness on patients. Myalgic encephalomyelitis (ME)/chronic fatigue syndrome […]

I Believe You: Three Powerful Words For The Chronically Ill

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    By Laura Chamberlain in Laura’s Pen.   Sometimes, you feel alone in your suffering and misunderstood. Sometimes, all you need is someone to say they believe you… I believe you. Those are three very powerful words. When I put together my post on what you SHOULD say to your chronically ill friend, I received […]

Fibromyalgia And Chronic Fatigue Syndrome: The Gap Widens

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    By Cort Johnson in Health Rising. The similarities are striking: the symptoms, the shoddy research funding, the poor treatment from doctors, the gender imbalance and the stigma both still face. Both diseases still really exist on the fringes of medicine and medical research. Yet one disease is moving forward rapidly and the other […]

MS And ME – A Comparison

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  From ME Support.   What is Multiple Sclerosis? In common with M.E., we do not yet know the exact causes of Multiple Sclerosis (MS), though research suggests that a combination of genetic and environmental factors may play a role in its development. It is not directly inherited and genes are only part of the […]

York Balloon Fiesta

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      About York Balloon Fiesta York Balloon Fiesta returns for 2019 with the biggest hot air balloon festival York has ever seen. This free festival brings a weekend of hot air balloons, children’s entertainment, live music, tribute acts, food and drink, as well as a funfair with rides never seen before in York. […]

I’m Disabled & I Rely On Single-Use Plastics – Please Don’t Judge Me

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      By Jo Moss in A Journey Through The Fog.   Reading through this month’s writing prompts, the one that sparked my interest the most was ‘Reusing’. When I think of ‘reusing’ I automatically turn to the need to reduce single-use plastic, and the detrimental effect plastic has on our oceans. It’s been […]

Why I’m Disappointed In The Lack Of Awareness About ME/CFS Almost 20 Years Post Diagnosis

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      By Emma Tierney in The Mighty.   We are 19 years on now from the year I was diagnosed with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). The year a GP said to me in the most patronizing of voices, “you need an exercise bike” during an appointment that I’d been carried into by my […]

Hannah Pearl Discusses Writing With M.E.

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    From Female First.   As Hannah Pearls’ debut novel appears on bookshop shelves, she talks to us of writing – and reading – with M.E. … I’ve always loved books. One of my first memories of school was finding a small gap between pieces of furniture where I could sit and read. Even […]

High Street Businesses Losing Millions By Shunning Disabled Consumers, New Research Reveals

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    From Purple. More than 13 million people in the UK – a fifth of the population – are disabled. A new poll of people who consider themselves to be disabled has found that more than half of respondents are struggling to make purchases of a product/service due to their disability. Disabled young people […]

The Unique Type Of Loneliness That Comes With Chronic Illness

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    By Britt Renee in The Mighty.   It seems like getting familiar with loneliness is inherent in living the chronic illness life. This loneliness doesn’t come from being literally and physically alone, though I’m learning there is a decent amount of “alone time” one has to learn to appreciate when being chronically ill. […]

MPs Call For Overdue Government Action To Ban Pavement Parking

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    By John Pring in Disability News Service.     A committee of MPs has called on the government to ban parking on pavements, after hearing how the practice was putting disabled people all over the country in stressful, inconvenient and even dangerous situations. The Commons transport committee says in a new report that pavement parking […]

My Letter To The BMJ Regarding Their Lax Editorial Approach To Bogus Therapy Paper

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    By Brian Hughes in The Science Bit.   Here it is. I think it is pretty self-explanatory (nonetheless, I have added some additional context below the fold): For context, my email is part of a now lengthy correspondence following an Open Letter to the BMJ arising from the correction of the ‘Lightning Process’ paper. I […]

My Life With M.E. – Exploding The Myths

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    by Chrissy Russell. Myalgic encephalomyelitis (M.E.), chronic fatigue syndrome (CFS), Yuppy Flu, post-viral fatigue syndrome (PVFS), chronic fatigue immune dysfunction syndrome (CFIDS), systemic exertion intolerance disease (SEID)… The list goes on. Each decade has seen a new name, but the erroneous perception of it remains the same. The Word Health Organisation classifies the disease as Myalgic […]

Don’t Assume I Have A Carer Just Because I’m Disabled

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  By Samantha Renke in The Metro.   Sometimes people ask me if I have a carer – a question which I find highly inappropriate, ableist and offensive. Still, let’s clear this up: I live alone in London, but I do have a young woman who works for me. I don’t call her a carer, […]

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