ME Symptoms

Post Twenty One. The Wheelchair Has Arrived.

Wheelchair

  From puffins&penguins&me A personal blog about my experience of living with the illness Myalgic Encephalomyelitis (ME)   So, the much anticipated wheelchair has arrived! It was delivered mid-November by a very nice engineer who unpacked and put it together for me, and he gave me some basic instructions, how to use the joystick, how to […]

Small Nerves – Big, Big Problem ? Drug Trial Points Finger At Autoimmunity In Fibromyalgia And ME/CFS

Cort_Johnson

  By Cort Johnson in Health Rising.   Dr. Anne Oaklander MD, PhD, is making a difference – maybe a very big difference in the lives of many. Making a difference runs actually runs in her  family. Her mother, the neurologist Louise Rapin, was one of the seminal figures advancing the concept of autism spectrum disorder. […]

Myalgic Encephalomyelitis (ME) – Treatment Database

Database

  From The American Myalgic Encephalomyelitis and  Chronic Fatigue Syndrome Society.   Although it is routine for doctors to prescribe drugs to help alleviate the symptoms of ME/CFS, patients may respond in unpredictable ways. Specialists report that it is common for ME/CFS patients to have paradoxical responses. For example, an anti-anxiety drug may produce anxiety. […]

Claiming PIP And ESA: “Horrific And Inhumane”

benefits

  Author: Liam.Evans@turn2us.org.uk   The inquiry into Personal Independence Payment (PIP) and Employment and Support Allowance (ESA) has revealed testimonies of despair.   A Work and Pensions Committee inquiry into disability benefits has heard from more than 3,000 people despondent with the system. The inquiry into PIP and ESA has revealed countless experiences of severely disabled […]

Chronic Fatigue Syndrome (ME/CFS) Researcher And Patients Shine During NIH Call

Cort_Johnson

  By Cort Johnson in Health Rising.   It’s great the NIH is doing telebriefings a couple of times a year to inform the chronic fatigue syndrome (ME/CFS) community of their progress.  The calls can be more or less interesting. This one was definitely on the more interesting side. NIH Intramural Study Proceeding on Pace Nath […]

Chronic Fatigue Syndrome, Fatigue, And Safety

cells

  by Kathleen Hoffman in Medivizor.   What’s the difference between Chronic Fatigue Syndrome and fatigue?  A huge difference according to an article in the Proceedings of the National Academy of Sciences that focused on a cutting edge research study conducted at Stanford University.  Researchers found that inflammation is the driver of Chronic Fatigue Syndrome or it’s other name myalgic encephomyelitis. […]

Support Myalgic Encephalomyelitis Research And Funding

research1

    By Lisa M. Alioto in SC Times.   Do you believe cancer exists? That heart attacks happen? Or that an aneurysm can kill you?  That Alzheimer’s really causes memory loss? Or that strokes can cause paralysis? Of course you do — they exist and they happen, sadly, every day. Do you know what else happens […]

My Promised Saline IV Update. How Did It Go ?

Anil

  By Anil van der Zee, from his Blog, Capture, Dance, Words.   This year I’ve arranged for saline IV’s. As I have a hard time tolerating any medication, and I’m not improving enough because of it. Saline IV’s seemed to be the best solution to help with my orthostatic intolerance or rather my postural […]

A Glimpse Into What Fatigue Really Feels Like

Fatigue

By Mikala West in The Mighty.   This is the most difficult piece I have ever shared. I like to share things that are uplifting and inspiring, that have a happy ending. So, if you’re expecting that, I’m sorry to disappoint. This piece is about honesty, truth, and real life. Fatigue is a symptom that […]

Cold Weather Alerts And Health Warnings Issued – Latest Update

Cold

  From The Yorkshire Times.   Weather forecasters are warning that all parts of England could experience cold, snow and ice over the next week, prompting PHE to again warn people to plan ahead. The change of weather will bring cold air to all parts of England from Thursday and is likely to affect all […]

What Acceptance Looks Like After My Chronic Fatigue Syndrome Relapsed

Lonely-man

  By Gemma Cresswell in The Mighty.   Years ago, I was able to confidently see the positive sides of how myalgic encephalomyelitis (ME) had affected my adolescence and made me the person I’d become. Yes, it had been tough, isolating and upsetting, but being seemingly on the other side of it, I could see how […]

Cellular Bioenergetics Is Impaired In Patients With Chronic Fatigue Syndrome

Stem Cells

    From ME Research UK.   Authors Cara Tomas C, Brown A, Strassheim V, Elson J, Newton J, Manning P Institution Institute of Cellular Medicine, Newcastle University, Newcastle upon Tyne, UK Abstract Chronic fatigue syndrome (CFS) is a highly debilitating disease of unknown aetiology. Abnormalities in bioenergetic function have been cited as one possible cause for […]

Through The Looking Glass: Cerebral Spinal Fluid Leaks & Ehlers Danlos Syndrome – An Alternate Reality To ME/CFS ?

brain-power

  by Caroline Christian in Health Rising.   Caroline returns with a not uncommon story of a complicated chronic fatigue syndrome (ME/CFS) diagnosis. From fibromyalgia to Ehlers-Danlos syndromes to postural orthostatic tachycardia syndrome (POTS) to mast cell activation syndrome (MAST) to intracranial hypertension to mold sensitivity (and more), the number of alternate or comorbid diagnoses associated with […]

ME Questions Put To Department Of Health

Soap Box

    Hi.  You might recall that I posted a few weeks ago to say that my MP was writing to the Department of Health on a couple of points on my behalf.   Julian Sturdy is my local MP and I’ve got him on board to help me on the ME Awareness front.   I received […]

SAHMRI Researchers In Hunt To Find Cure For Chronic Fatigue Syndrome

research

  Rebecca Baker, Social Affairs Reporter, The Advertiser (Australia).   World-first research in Adelaide that involves taking the blood samples of donors every seven minutes aims to unlock the mystery of a debilitating illness that has no cure or treatment. Thousands of samples taken for the study are now being stored in a freezer to […]

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