ME Symptoms

My Life With M.E. – Exploding The Myths

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    by Chrissy Russell. Myalgic encephalomyelitis (M.E.), chronic fatigue syndrome (CFS), Yuppy Flu, post-viral fatigue syndrome (PVFS), chronic fatigue immune dysfunction syndrome (CFIDS), systemic exertion intolerance disease (SEID)… The list goes on. Each decade has seen a new name, but the erroneous perception of it remains the same. The Word Health Organisation classifies the disease as Myalgic […]

Dietary Advice For Bedbound ME/CFS Patients: Protein

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      By Dr Courtney Craig.   Dietary protein requirements for the average person are about 0.8g/per kg body weight/day per the U.S. and European standards. That equates to about 67-114g per day for men, and between 59-102g per day for women. Adequate dietary protein allows for: Repair of tissues and cellular proteins: a […]

Thousands Of Studies Begin To Paint New Picture Of Chronic Fatigue

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  By HEATHER GOLDSTONE & ELSA PARTAN in Cape and Islands.    Chronic fatigue syndrome was first described in the early 1980s, and it affects an estimated two and a half million Americans. For many years, doctors’ tests couldn’t find an explanation for patients’ symptoms, so they were dismissed as “nothing wrong.” But a growing body of research reveals […]

Vitamin B12 Deficiency: The Six Main Signs You’re Lacking B12 And Could Be Deficient

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      By JESSICA KNIBBS in The Express.   Vitamin B12 is the water-soluble vitamin that plays an essential role in the production of red blood cells. Lacking in the vitamin could cause a number of signs in the body. What are the six main symptoms that could mean you are vitamin B12 deficient?   Vitamin […]

Are Chronic Illness And Trauma Related ? Here’s What You Need To Know

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      By Renee Fabian in The Mighty.   If you’ve been diagnosed with a chronic illness and experienced trauma, you may have some uneasy feelings about the connection between the two. After all, some doctors who don’t really understand tricky conditions like fibromyalgia or myalgic encephalomyelitis (ME/CFS), for example, might be quick to tell you your symptoms are […]

A Blue Badge And Invisible ME

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Gone from being life and soul Health gone down a huge black hole Rarely getting out too far Too much pain is the bar A blue badge now has rescued me When strength allows, it sets me free It gets me to a needed door Which was out of my aching reach before Many are […]

A Town For People With Chronic-Fatigue Syndrome

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      By Mike Mariani in The New Yorker. September 3, 2019   Patients moved from all over the country to Incline Village, Nevada, for an experimental drug. Then the drug disappeared.   In December of 2012, I came down with what at first looked like a bad case of mononucleosis. I felt tired and had […]

Living With Chronic Fatigue Syndrome

Australia

    On Nightlife with Philip Clark.   CFS is considered to be a complicated disorder which is not only difficult to diagnose but also has no effective treatment. Estimates show that about 1% of the Australian population which is about 250,000 people suffer from it and many of those suffering from it are unable […]

The Struggle Of Identifying Pain

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    By Lindsay Glenne.   How do you know when to seek help? When you have a chronic illness, it’s really hard to differentiate between your usual pain, and something new. With an illness like fibromyalgia, it can sometimes be even harder. It effects every single part of your body and a flare can […]

From Infectious Disease Specialist To ME/CFS Expert: Dr. Bela Chedda Talks

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  By Cort Johnson in Health Rising.   Dr. Chheda’s Road to ME/CFS I met Dr. Chheda of the Center for Complex Diseases at Ron Davis’s Working Group Meetings funded by the Open Medicine Foundation. She graciously agreed to talk more about how she approaches treating ME/CFS in her practice. I was particularly eager to talk to […]

How Do I Know If I Need A Wheelchair ?

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  From How To Get On.   Many people with Myalgic Encephalomyelitis or “Chronic Fatigue Syndrome” find that too much physical activity can make their condition worse. Sometimes permanently. Pacing, resting, and using equipment like wheelchairs and scooters can be important tools in helping yourself. How do you know when the time has come? Stories and […]

Myalgic Dncephalomyelitis (Or Encephalopathy)/Chronic Fatigue Syndrome: Diagnosis And Management

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      Call for evidence   What we need We need evidence from the areas listed below for the guideline we are developing on Myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome: 1. Studies that evaluate: Management strategies that are adopted while someone is being assessed for a diagnosis of ME/CFS. Methods of monitoring and/or reviewing […]

Cortene To Move Forward On New Drug For Chronic Fatigue Syndrome (ME/CFS)

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  By Cort Johnson in Health Rising.   In February of last year, Health Rising announced an unusual event was going to take place: a small drug company named Cortene was going to trial a new drug for chronic fatigue syndrome (ME/CFS). Cortene’s trial was unique in a number of ways. For one, it involved ME/CFS […]

ME/CFS Seahorse Energy Production Study Shows Surprises

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    By Cort Johnson in Simmaron Research.   Dr. Maureen Hanson leads one of the three NIH funded ME/CFS research centers, but her ME/CFS research doesn’t stop there.  Using samples from Dr. Daniel Peterson provided by the Simmaron Research Foundation, she’s also been assessing the metabolism of one of the most important cells in […]

Fatigue, Sleep, And Autoimmune And Related Disorders

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    Mark R. Zielinski1,2*, David M. Systrom3,4 and Noel R. Rose5 1Veterans Affairs Boston Healthcare System, Boston, MA, United States 2Department of Psychiatry, Harvard Medical School, Boston, MA, United States 3Department of Medicine, Harvard Medical School, Boston, MA, United States 4Department of Pulmonary and Critical Care Medicine, Brigham and Women’s Hospital, Boston, MA, United States 5Department of […]

Why Having ME/CFS Makes Me Dread The Summer

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    By Jo Moss in A Journey Through The Fog.   After I read the news that the temperatures in the UK were going to reach 27 degrees this week, my anxiety levels rose dramatically and panic set in. I hoped I would having longer to adjust to the summer – what happened to […]

GABA and Glutamate in Fibromyalgia and Chronic Fatigue Syndrome

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  By Adrienne Dellwo in Very Well Health.   GABA and glutamate are neurotransmitters—chemical messengers in your brain. One is calming, one is stimulating, and they’re supposed to stay in balance with each other. So what happens if this balance is thrown off?​ Some research suggests an imbalance of these two substances may play a role […]

Marijuana As Medicine For ME/CFS And FM III: Cannabis – More Than Just THC And CBD

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    By Cort Johnson in Health Rising.   For the relief of certain kinds of pain, I believe, there is no more useful medicine than Cannabis within our reach. Sir John Russell Reynolds 1859. This is the third part of a five-part series on the use of Cannabis in chronic fatigue syndrome (ME/CFS) and fibromyalgia (FM). […]

Chronic Illness & Grief

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  By Jo Moss in A Journey Through The Fog.   Each month a fellow blogger (A Chronic Voice) hosts a ‘Link-up party’. It is a monthly get-together for anyone with a chronic illness. An opportunity to share, to listen, and to learn from one another. It’s a great way to provide insight into life with […]

My Invisible Illness Just Became Visible And Here’s Why

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  By Lisa Alloto in Realistic Optimism.   I have an invisible illness, meaning you cannot see it, but it’s oh, so present for me every minute of my life. I’m constantly exhausted, in pain, have a variety of cognitive deficits, vision loss, light, sound, and temperature sensitivities, a weakened immune system, and many, many […]

A Love Letter To Anyone Who Struggled To Shower Today

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    By Sarah Mariann Martland in The Mighty.   This is a love letter to all those for whom showering is repeatedly a laborious exercise, physically, emotionally or both. To those who spend days putting it off because you know just how exhausting or painful it feels, right down to your bones, just to stand under the […]

Government Of Canada Invests $1.4M In Biomedical Research To Improve The Quality Of Life Of People Living With Myalgic Encephalomyelitis

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    From: Canadian Institutes of Health Research MONTRÉAL, August 22, 2019 – It is estimated that more than 580,000 Canadians live with myalgic encephalomyelitis (ME), formerly known as chronic fatigue syndrome, or ME/CFS. This poorly understood, multi-system disease is debilitating and can strike individuals of all backgrounds and at any age. Patients experience symptoms including unrelenting exhaustion […]

Trial By Error: Joan McParland’s Lightning Process Experience

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    By David Tuller, DrPH.   Aura-reader and Tarot expert Phil Parker, also known as the founder of the Lightning Process, has posted a video on YouTube of an “ME/CFS success story.” Without knowing anything about Amy’s situation or medical history beyond what she shares, I have no reason to disbelieve her testimony of […]

Musings Of A Police Officer On A Diagnosis Of ME/CFS

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  By Colin Paine in Disabled Police Association.   Colin Paine is a Detective Chief Superintendent in Thames Valley Police. He is currently working on the Police Spending Review with the NPCC. Here he reflects on his diagnosis of Myalgic Encephalopathy (ME)/Chronic Fatigue Syndrome (CFS). Police work feels inherently fast paced. It is in the nature of our […]

U.S School Nurses, Teachers & Counsellors Can Now Take Continuing Education Course About Pediatric ME/CFS

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  From #MEAction.   School nurses, counselors, social workers or teachers in any U.S. state can now earn earn 3.25 Continuing Education credits (CNE) for completing a course on pediatric myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS). The course is titled, ““Why Can’t This Child Get to Class? Learn How ME/CFS Keeps Youth from Attending School.” The course features Dr, […]

Leaving Frailty Behind. A Conversation With Laura Hillenbrand

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  By Paul Costello in Stanford Medicine.   She is an author of extraordinary success. Laura Hillenbrand’s Seabiscuit and Unbroken are literary phenomenons: Together, there are more than 13 million copies in print, and both have been made into blockbuster motion pictures. Seabiscuit, published in 2001, tells the story of a racehorse that captured America’s heart during the Great Depression. Unbroken, […]

Is The Brain Causing The Small Fiber Neuropathy In Fibromyalgia (And ME/CFS ?)

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    By Cort Johnson in Health Rising.   It seemed ever so clear. The reduction in the number of small nerves in the skin and eyes of roughly forty percent or so of the people with fibromyalgia (FM) and chronic fatigue syndrome (ME/CFS) must bring the body – as opposed to the brain – into […]

My Disabilities Are Invisible. I Shouldn’t Have To Prove Them To Strangers

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  By Isabelle Jani-Friend in The Guardian.   I was recently on a packed Central line train into London. Luckily, I managed to take the last priority disabled seat. My osteoporosis and the fatigue I experience meant it would be hard for me to stand for the 40-minute journey to Oxford Circus. I felt a […]

Pacing Is A Simple Concept. So Why Do I Find It So Hard ?

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    By Jo Moss in A Journey Through The Fog.   Living with a chronic illness like ME/CFS creates many challenges. Along with the multitude of symptoms, we also have to learn to adapt to the restrictions placed on our lives and to manage our limited energy levels. The term “pacing” crops up repeatedly […]

Trial By Error: An Ill-Informed Article In The Guardian

David Tuller

      By David Tuller, DrPH People who know little or nothing about the illness or cluster of illnesses variously called myalgic encephalomyelitis, chronic fatigue syndrome, CFS/ME, and ME/CFS can’t seem to stop writing stupid and ill-informed stories about it. And Professor Michael Sharpe seems to blame “Americans”–rather than his own disastrous research–for his […]

Anna spends 22 hours a day in bed. But experts hope they’re close to a cure

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      By Melissa Cunningham in The Sydney Morning Herald.   Anna Kerr often spends up to 22 hours a day in a darkened room unable to get out of bed. Following her first pregnancy, the Thornbury mother-of-two felt something was amiss. At first, it was a newfound reaction to wine and coffee, triggering nausea, weakness […]

No One Prepares You For The Grief Of Chronic Fatigue Syndrome

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    By Asa Lovell  in The Mighty.   No one prepares you for the grief and feelings of inadequacy you get when you have chronic illnesses. They make such a huge impact on your life that they derail you, stop you from achieving the things you’re working for in the time you’d planned. You […]

The Frail Teenager Set To Spend All Of Her Summer Holidays In Her Bedroom

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    By Mark Smith in Wales Online.   Lola Brandrick, 13, from Swansea, is crippled by pain and is constantly exhausted. While all her school mates are out enjoying their summer holidays, poor Lola Brandrick can only dream of joining them. The 13-year-old is confined to her bed, constantly exhausted and crippled by widespread […]

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