ME Symptoms

The PACE Trial Should Be Retracted, Because It Was Seriously Unethical, And The Lead Investigators Continue To Deny That.

  By Dr Neil MacFarlane MRCPsych in DrNMblog.   This was submitted (December 2020) to NICE in response to the new draft ME/CFS guidance of November 2020,[1] which had removed the recommendation for Graded Exercise Therapy (GET), and downgraded CBT from therapeutic to a ‘supportive’ option. [1] https://www.nice.org.uk/guidance/indevelopment/gid-ng10091/documents I appear to be the first UK psychiatrist to be […]

Trial By Error: Another Excellent Read On Long Covid, ME/CFS And Medically Unexplained Symptoms

By David Tuller, DrPH in Virology Blog. In a post earlier this week, I noted some differences in the tenor of the debate over Long Covid in the US and UK. Yesterday, another excellent and in-depth piece on the issues appeared on the domestic front, this time in VICE. The author, Alan Levinovitz, is associate professor of religious studies at […]

Scientist With Son Who Suffers From Chronic Fatigue Syndrome Hopes Research Can Help COVID-19 Patients

  By Austin Williams in Fox 26.   The National Institutes of Health identifies “COVID long haulers” as a “large numbers of patients who have been infected with SARS-CoV-2 continue to experience a constellation of symptoms long past the time that they’ve recovered from the initial stages of COVID-19 illness.” The chronic fatigue syndrome Ron Davis’ son suffers […]

Long Covid Isn’t As Unique As We Thought – (Mentions ME)

By Julia Belluz in Vox.   Dr. Craig Spencer, an emergency room doctor in New York City, was no stranger to dangerous viruses when a brush with one landed him in Bellevue Hospital for 19 days. But it was only after he was discharged, and declared virus-free, that the really bizarre symptoms set in. Back at home, he noticed he […]

Long-Covid Has A Baffling Sister: ME/CFS

  By Llewellyn King in Inside Sources.   Long COVID is the condition wherein people continue to experience symptoms for longer than usual after initially contracting COVID-19. Those symptoms are similar to the ones of another long-haul disease, Myalgic Encephalomyelitis, often called Chronic Fatigue Syndrome. For a decade, in broadcasts and newspaper columns, I have been detailing the […]

Research Digest 12/03/21

    From Emerge Australia.   Welcome to the 65th Emerge Australia Research Digest, where you will find summaries of some of the latest research and information about ME/CFS, with links to the complete articles. You can also join our community and choose to have the Digest delivered straight to your inbox every fortnight on […]

Study Suggests Similar Processes Are Driving Long COVID And ME/CFS

  By Cort Johnson in Health Rising. Eric Schadt, the study’s senior author, is not your average researcher, and Phillip Comella, the lead author, has personal experience with mysterious diseases and difficult diagnoses. A biomathematician and bioengineer, Schadt has been at the forefront of biocomputational technologies for years. Schadt’s goal has always been to get […]

ME And The PACE Trial

  By David F Marks. Here I review the disastrous trial known as the ‘PACE trial’. This updates a post from several years ago. Review of the evidence indicates that none of the Wessely School’s hypotheses about the causes of ME/CFS are supported by the science (see here, here and here). Under these circumstances it would be scientifically impossible for […]

ME/CFS And Deconditioning

  By David F Marks. A previous post examined the Wessely School hypothesis that ME/CFS is caused by unhelpful beliefs. This idea was exploded as a myth. Here I examine a second Wessely School hypothesis (H2) that states: Deconditioning causes, or exacerbates the symptoms of, ME/CFS and MUS Deconditioning refers to multiple, potentially reversible changes in body systems […]

Long Covid: Warning Over Combining ME Treatment

By Claire Smyth in The Mirror.   Charities that support people with ME have warned against combining new specialist treatment for the condition with proposed services for long Covid. The Health and Social Care Board is developing plans to help those still experiencing long-term health issues months after being unwell with Covid. Some of the […]

Fog And M.E.

Fog And M.E. In a car when fog descends Lights go on to see the bends Other dangers illuminated A flick of a switch, clarity created An M.E. fog is not the same It wraps around our words, our brain There is no switch, no helpful light Just confusion, loneliness and fright An M.E. symptom […]

The Best Thing I’ve Ever Done: Filmmaker With ME Wants To Raise Awareness Of Hidden Illness

By Emily Coady-Stemp in SW Londoner.   A Herne Hill filmmaker hopes his short film This is ME will bring awareness to those living with a common invisible disability. Josh Pickup, 29, was diagnosed with myalgic encephalomyelitis (ME), which is also known as chronic fatigue syndrome, at the age of 21. ME is among the most common […]

The History of ME

  From ME International. The 1956 Lancet Editorial First Proposing the Name “Benign Myalgic Encephalomyelitis” A New Clinical Entity by  E.D. Acheson, D.M., M.R.C.P. (26 May 1956) ​“From the purely practical standpoint it would be useful to have a name for this syndrome.  As the most helpful single feature in the recognition of this syndrome […]

All In Your Head

From Undiagnosis. I have been dropping various hints over the last few months about a non-fiction project I have been working on for the last two and a half years. It’s called All In Your Head, and you can find out more about it on the website here. In brief, it’s the story of what happens when […]

A Surgeon’s ME Story

By Michael Gallagher.   I am an orthopedic surgeon and former marathoner and triathlete living with chronic fatigue syndrome (ME/CFS). Below is an an email that I sent to my colleagues describing my battle with ME/CFS that has robbed me of my ability to do much of what I love. I think many people can […]

Burnout Is Real

    By Jamison Hill in Jamison Writes.   I’m going to keep this post short because, to be honest, I’m burnt out and a few hundred words is all I can muster at this point. For the last several years, I’ve been devoting pretty much all of my free time to getting my book […]

ME Research On The Way Due To Long-Covid ?

  A bit of a breakthrough on the BBC 2 Horizon programme where Dr Strain explains to Dr Xand van Tulleken that ME, a physical illness, will be gaining research based on the Long-Covid situation.  It’s only a couple of minutes long, but worth a watch !   To watch the video, click on the […]

Analysing Antibody Responses Against EBV-Derived Antigens In ME/CFS

  From ME Research UK. Principal investigators Dr Nuno Sepúlveda & Prof. Carmen Scheibenbogen. Background and Aim. The emergence of so-called ‘long COVID’ has highlighted the potential long-term health consequences of infection with a virus like SARS-CoV-2, leading to symptoms such as fatigue, muscle pain and brain fog that may last for weeks or months. […]

I Was Reported To DWP And It Broke Me

  By Kate Stanforth in WheelAir. Kate Stanforth shares her story, from being an active young girl, to developing a chronic illness and navigating ESA, DWP and public opinion. I’m going to open this by saying that this is the most honest blog I have ever written. It’s on a subject that I know lots […]

Experiences Of Living With Severe ME/CFS

By Victoria Strassheim, Julia Newton & Tracy Collins in ME Research UK. Key findings Very little research has been conducted in people with severe ME/CFS, partly because their health burden make it difficult for them to engage in studies Interviews with five people with severe ME/CFS explored their lived experience, challenges to everyday life, and management […]

Ohio State Researchers Isolate Biomarker To Test For Chronic Fatigue Syndrome

By a Staff Writer at The Ohio State University College Of Medicine.   Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and Gulf War illness are complex, chronic diseases with overlapping symptoms and no definitive way to diagnose or differentiate between them. The one symptom they share in common is long-term, disabling fatigue. But widely varying symptoms affecting […]

From Paralysis To Fatigue: A Critical Review Of Edward Shorter’s View On Chronic Fatigue Syndrome

  From ME/CFS Skeptic. Canadian historian Edward Shorter is one of the most influential writers to have dismissed the illness myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). In his articles, Shorter has described ME/CFS as a “trendy non-disease”, “a psychic epidemic” and a “pseudo-disease that does not exist.” Because Shorter’s work is still being cited, this blog […]

Long COVID – We’ve Been Here Before

  by Jennifer Trueland in BMA. Long COVID is a new condition, but those who have endured years of ME/CFS can share their common experience – and a long history of being misunderstood. When it was becoming clear that COVID-19 was a serious issue early last year, Nina Muirhead (pictured) had a strong suspicion about […]

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