From The ME Association. A highly influential UK campaign group is demanding that a health warning be put on the existing NICE guideline for ME/CFS – to try and stop more patients being damaged by graded exercise. Some 24 members of the Forward-ME Group – led by founder The Countess of Mar – have signed […]
ME Symptoms
The Enduring Light Of Love
Study Suggests Energy Production Problems May Be Everywhere In Chronic Fatigue Syndrome (ME/CFS)
By Cort Johnson in Health Rising. As time has gone on, the energy production issue in chronic fatigue syndrome (ME/CFS) has become better and better documented as researchers take different slants on it. Take the whole body energy production tests. Workwell’s two day cardiopulmonary exercise tests (CPETs) have documented the damaging effects that exercise one day […]
How To Manage Long Covid-19 Symptoms And Fatigue
By Megan E. Doherty in elemental. Covid-19 is new, but the ME/CFS community has dealt with long-haul-like symptoms for years. Here’s how they cope. Asthe pandemic has progressed, it has become clear that a good chunk of Covid-19 patients suffer symptoms for weeks, even months, after first getting sick. Many of them deal with fatigue, muscle and […]
New Test For Chronic Fatigue Syndrome Could Help COVID-19 Patients
By Erica Gerald Mason in Very Well Health. Researchers have developed a new test to diagnose myalgic encephalomyelitis (ME), also known as chronic fatigue syndrome (CFS). The test stands out as the first successful molecular diagnostic tool for ME, a development that has been long anticipated by many healthcare providers and patients. This new tool […]
Trial By Error: Thoughts On The Observer, The Guardian, And Paradigm Shift
By David Tuller, DrPH Earlier this week, I blogged about a story in The Observer that provided an inaccurate description of what it called chronic fatigue syndrome. For much of the piece, the writer, Eleanor Morgan, offered a sympathetic portrait of people, including herself, experiencing prolonged symptoms after an acute bout of Covid-19. A lot of what […]
Blood MicroRNA Patterns Linked To Chronic Fatigue Syndrome
By Katarina Zimmer in The Scientist. A finding of distinct patterns of gene-regulating RNA snippets in the blood of ME/CFS patients in response to a stress test could pave the way for a diagnostic tool for the condition and help untangle its underlying mechanisms. Formerly known as chronic fatigue syndrome, myalgic encephalomyelitis/chronic fatigue syndrome […]
Deep phenotyping of myalgic encephalomyelitis/chronic fatigue syndrome in Japanese population
By Toshimori Kitami et al in Nature. Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a complex and debilitating disease with no molecular diagnostics and no treatment options. To identify potential markers of this illness, we profiled 48 patients and 52 controls for standard laboratory tests, plasma metabolomics, blood immuno-phenotyping and transcriptomics, and fecal microbiome analysis. […]
#Walkingfromhome: The Wheelchair User
From Living Streets. Caroline lives in a seaside town in England and is a member of one of our Local Groups of volunteers. As a wheelchair user, Caroline is passionate about improving streets and the access to them for everyone. In normal times, Caroline’s favourite things are being with friends, volunteering and seeing the […]
Whoops ! Did A GET Study Just Explain Why It DOESN’T Work In Chronic Fatigue Syndrome (ME/CFS) ?
By Cort Johnson in Health Rising. Question: When does a graded exercise study explain why graded exercise is not helpful for chronic fatigue syndrome (ME/CFS)? Answer: when it employs an exercise test with it. Just as NICE was pulling back on graded exercise therapy (GET) a GET study was published showing why it doesn’t work. The authors […]
Paul Garner On long Haul Covid-19—Don’t Try To Dominate This Virus, Accommodate It
From BMJ Opinion. “Has covid-19 gone?” My first thought every morning for six months. A few weeks ago, I was jubilant. The muscle aches had evaporated, my head was clear. I announced this to Rachael, a friend who knows chronic fatigue well. “Fantastic, Paul. You have found your baseline.” Crestfallen, I realised this […]
Long Covid: Overlap Emerges With ME – Including Debate Over Treatment
By Linda Geddes in The Guardian. Six weeks after contracting Covid-19 in April, Dr Amy Small felt well enough to attempt a walk around Holyrood park in Edinburgh with her young family. Her kids wanted to climb Arthur’s Seat – the craggy hill at its centre. Thinking it would be OK if she walked slowly, […]
Living Life Light With M.E.
Activity And Energy Management – Pacing
From the ME/CFS Clinician Coalition USA. “Striking the right balance between activity and rest is one of the most difficult aspects of coming to terms with M.E. On one hand is the need to take an appropriate amount of rest and relaxation, especially during the very early stages, as well as during periods of […]
The Present (And Future) CoQ10 for Fibromyalgia And Chronic Fatigue Syndrome (ME/CFS)
No More Mr NICE Guy…
By Brian Hughes in The Science Bit. The newly released draft NICE guidelines for the management of “myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome” continue to cause a stir. And rightly so. The new guidelines not only repudiate a heretofore favoured treatment approach for a particular illness, they also threaten to discredit an entire (albeit quirky) branch of medicine — […]
First In Our Superhero Series : The Whitney
“Ice Cream & Hypothermia” Revisited + A Chilling NICE Consultation Process
By Valerie Eliot Smith in Law and Health: due process and civil society. Note: this post runs at 2270 words. It falls naturally into two sections of approximately the same length. ************** The blog has been rather quiet for a while. While my day-to-day work does not stop, my ability to write blog posts is […]
Long-Covid And Exercise
Why Do We Need To highlight Disability History Month ?
Proposed British Guidelines Reject Useless Chronic Fatigue Syndrome Treatments
By DAVID TULLER and STEVEN LUBET in Statnews.com. irrational fears they had an organic illness. The favored treatments were graded exercise therapy, designed to counter the deconditioning with a program of progressively increasing activity, a form of cognitive behavior therapy specifically designed to address the unfounded illness beliefs, or a combination of the two. In the […]
Montreal Researchers Make Chronic Fatigue Syndrome Discovery
By Jean-Benoit Legault The Canadian Press. A discovery by Montreal researchers is expected to improve the diagnosis and treatment of patients with myalgic encephalomyelitis (ME), better known as chronic fatigue syndrome. In most instances, ME is currently diagnosed by elimination, as doctors put aside other possible causes of the patient’s symptoms. But researchers from the University […]
Time To Add Some Sunshine (Vitamin D) To Milk And Bread
By Jeremy Howick in The Conversation. Free vitamin D supplements will be sent to over two million clinically vulnerable people in England this winter. Over 80% of patients hospitalised with COVID-19 are vitamin D deficient compared with the general population. In a small study, a high dose of vitamin D appeared to reduce the severity of COVID-19. […]