ME/CFS Information

“Unrest” Aims For Awards Season Recognition

Jen Unrest

  By The Independent Critic.   Before we go any further, I must confess to you that prior to watching Jennifer Brea’s Sundance Film Festival award-winning documentary Unrest that I was, in fact, one of “those” people. What do I mean by “those” people? I was one of those people referenced in the film who, like many […]

Small Nerves – Big, Big Problem ? Drug Trial Points Finger At Autoimmunity In Fibromyalgia And ME/CFS

Cort_Johnson

  By Cort Johnson in Health Rising.   Dr. Anne Oaklander MD, PhD, is making a difference – maybe a very big difference in the lives of many. Making a difference runs actually runs in her  family. Her mother, the neurologist Louise Rapin, was one of the seminal figures advancing the concept of autism spectrum disorder. […]

Myalgic Encephalomyelitis (ME) – Treatment Database

Database

  From The American Myalgic Encephalomyelitis and  Chronic Fatigue Syndrome Society.   Although it is routine for doctors to prescribe drugs to help alleviate the symptoms of ME/CFS, patients may respond in unpredictable ways. Specialists report that it is common for ME/CFS patients to have paradoxical responses. For example, an anti-anxiety drug may produce anxiety. […]

A Glimpse Into What Fatigue Really Feels Like

Fatigue

By Mikala West in The Mighty.   This is the most difficult piece I have ever shared. I like to share things that are uplifting and inspiring, that have a happy ending. So, if you’re expecting that, I’m sorry to disappoint. This piece is about honesty, truth, and real life. Fatigue is a symptom that […]

What is Myalgic Encephalomyelitis ?

ME

  by John Duncan and Maryann Spurgin.   A Brief Historical Introduction.   In the first half of the twentieth century, Myalgic Encephalomyelitis outbreaks appeared to be associated with polio outbreaks, but with the eradication of polio the meaning of this connection has not been given attention [6-8].The name “Myalgic Encephalomyelitis” comes from a 1955 outbreak […]

Chronic Fatigue Syndrome (CFS)

MECFS

  From Better Health Channel.   Chronic fatigue syndrome (CFS), also known as myalgic encephalomyelitis (ME), is an illness that affects a person’s nervous system (commonly called a ‘neurological illness’). It can occur at any age and can affect children as well as adults. At least 35,000 Victorians have ME/CFS. The term ‘myalgic encephalomyelitis’ means pain in […]

Chronic Fatigue Syndrome: One Woman’s Debilitating Experience With ME

International Business Times

  By Ruchira Sharma in International Business Times.   The illness myalgic encephalomyelitis (ME), more commonly known as chronic fatigue syndrome, is bewildering for a number of reasons. For one, there are thought to be around 250,000 sufferers in the UK, most of whom are women. Women account for four times the number of male sufferers. While ME follows […]

Chronic Fatigue Syndrome: More Research Backs Up Patients

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By Temma Ehrenfeld in Psychology Today.   Researchers at Georgetown University Medical Center have found changes in brain chemistry 24 hours after riding a stationary bike for 25 minutes that they consider a molecular signature for chronic fatigue syndrome. Chronic fatigue syndrome was dubbed “psychosomatic” by many until a couple of years ago and sometimes considered a reaction to early trauma. The turning point […]

ME; Transcript + Stats

ME

      by drfarrellhotmailcouk in #IrishMed   What is Myalgic Encephalomyelitis?  Myalgic Encephalomyelitis (M.E.) is an acquired complex neurological disorder affecting multiple systems of the body. Many cases are preceded by a viral infection with onset being usually rapid (acute). However gradual onsets have also been reported. Affected individuals do not recover from the infection and instead experience a […]

2017 Ramsay Award Program Results

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  A Letter from President Carol Head in Solve ME/CFS Initiative.   With Dr. Nahle, I’m delighted to announce our 2017 Ramsay Award Program recipients. As you may know, the Ramsay Award program is a foundation of SMCI’s commitment to explore all worthy research avenues. We’re proud that our organization is operating at the center […]

Resisting Attempts To Silence #PwME

Silence

  By Gabby Klein in Relating to ME.   Methods of Silencing Dissent to Control a Specific Agenda Globally, government agencies and officials as well as private sector companies, and organizations use known astroturfing and silencing methods to achieve their intended goals.  They use media to spread propaganda to manipulate opinions. They employ specific tactics […]

Could This Documentary Change The Way We Perceive Chronic Fatigue Syndrome ?

Jen

    By Guy Kelly in The Telegraph.   It has been more than 60 years since a bewildering epidemic swept through the Royal Free Hospital in north London, rendering almost 300 members of staff incapacitated and forcing the place to close for three months. At the time, in 1955, the mysterious, polio-like outbreak (called […]

Trial By Error: Current NICE Guidance Stands, For Now

David Tuller

  By David Tuller, DrPH   Last week I sent an e-mail with some questions to Sir Andrew Dillon, the chief executive of the National Institute for Health and Care Excellence (NICE). In particular, the questions involved the status of the ten-year-old guidance for CFS/ME, CG53, and of references to the illness elsewhere within the NICE system. A […]

Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

CDC

    From the CDC (Centers for Disease Control and Prevention) Website.   Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a serious, long-term illness that affects many body systems. People with ME/CFS are often not able to do their usual activities. At times, ME/CFS may confine them to bed. People with ME/CFS have severe fatigue and […]

Mike’s EU Marathons – Amsterdam Report

Mike Amsterdam

    From Mike Harley’s EU Marathons Website.   Ahead of my trip to Amsterdam I’d made contact with a number of Dutch patient groups and associations who had all been very interested in supporting my challenge.  I interviewed M.E patients Anil and Frank along with campaigner and carer Rob, click here to read what they had […]

Trial By Error: Another Letter to NICE’s Sir Andrew Dillon

David Tuller

  By David Tuller.   First, for those who might have missed it, here’s a conversation from This Week in Virology (TWiV), posted a few days ago. Dr. Racaniello and I discuss the CDC, NICE, Esther Crawley’s ethically challenged behavior, the CMRC, and other stuff. Second, earlier today, I sent the following e-mail to Sir Andrew Dillon, […]

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