ME/CFS Information

No Increased Risk Of Chronic Fatigue Syndrome After HPV Vaccination


    From Medical Press.   Girls receiving one or more doses of HPV vaccine have no greater risk of chronic fatigue syndrome/myalgic encephalomyelitis (CFS / ME) than unvaccinated girls. This is shown in a new major study from the Norwegian Institute of Public Health. The study is part of the national surveillance of the […]

Prevalence Of And Risk Factors For Severe Cognitive And Sleep Symptoms In ME/CFS And MS

Biomed Central

  From Biomed Central.  Authors as listed.   Abstract   Background There are considerable phenotypic and neuroimmune overlaps between myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and multiple sclerosis (MS). While the precise aetiologies of both MS and ME/CFS are unclear, evidence suggests that deterioration in cognitive function is widely prevalent in patients with either condition. Little […]

Living With ME – Emelyne’s Transcript

Living with ME

  From the #SpeakforME Blog.   My name is Emelyne and I #SpeakforME because so many people suffer in the dark behind closed doors. ME has no bias, it affects men, women, children, adults, young and old. It can change during your life, it can get really tough. It can get better and there can […]

Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Diagnosis And Management In Young People: A Primer


    From Frontiers in Pediatrics.  Authors as listed.   Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a complex disease that affects children and adolescents as well as adults. The etiology has not been established. While many pediatricians and other health-care providers are aware of ME/CFS, they often lack essential knowledge that is necessary for diagnosis […]

Myalgic Encephalomyelitis: International Consensus Criteria

ME Explanation

    From The Journal of Internal Medicine.   Abstract:   The label ‘chronic fatigue syndrome’ (CFS) has persisted for many years because of the lack of knowledge of the aetiological agents and the disease process. In view of more recent research and clinical experience that strongly point to widespread inflammation and multisystemic neuropathology, it […]

Failings Of The Establishment Organisations Toward People With ME


  From Invest in ME Research.   It may have escaped the notice of some that the MRC is preparing to be absorbed into the new UK Research and Innovation (UKRI) and the existing CEO, Sir John Savill, will be winding down affairs until the transition is completed. Link to Appointment notification We have stated […]

ME/CFS: A New Explanation – And Cure ?

Dr Eriksen

      From   In a recent paper, Dr. Willy Eriksen proposes a complete explanation for the development, diversity, and persistence of myalgic encephalomyelitis, aka chronic fatigue syndrome (ME/CFS). He also suggests a possible cure. Seeing that this potentially groundbreaking research was attracting little attention, I contacted Dr. Eriksen and interviewed him via […]

Fermanagh ME Sufferer Michelle, Wants People To See A Witty Side To Disability

Michelle Cowan

      By Katie Dickie in The Impartial Reporter.   Michelle Cowan (pictured right) from Tamlaght has started a blog called Witshelly, having suffered from ME (Myalgic Encephalomyelitis) since the age of 15. The condition meant she lost her eyesight, the power in her hands and legs, her swallow and memories from before the […]

I Changed Career In My Fifties… And Was Struck Down By ME

Jude Adams

    By Victoria Lambert in The Telegraph.   When Jude Adams was diagnosed with myalgic encephalomyelitis (ME), her illness could not have come at a more frustrating time. After years of nursing a secret passion for singing, Jude, a former fitness industry professional, had begun to take lessons, performing in public for the first […]

Muscle Spasms In Fibromyalgia & Chronic Fatigue Syndrome


By Adrienne Dellwo in Very Well. Muscle spasms can be a source of considerable pain in many people withfibromyalgiaandchronic fatigue syndrome. Our muscles clench and just won’t relax, sometimes in spite of multiple treatments. These conditions often show up alongside others, like irritable bowel and irritable bladder syndromes, that involve smooth muscle spasm. I almost always […]

The ME/CFS Biomarker Roller-Coaster


    From MEAction.   Biomarkers are a holy grail for ME/CFS because they have the potential to help diagnose disease, track disease progression or progress and help inform which treatments might help. The need for biomarkers is immense and researchers will identify many possible ones. It is encouraging that there have been more possible biomarker […]

My Apology To The Patient With ME I Treated Many Years Ago


    By Annemarie McCall in The Mighty.   I was a psychiatric nurse before I developed ME. I was a good nurse and treated my patients holistically and with dignity, taking their wishes into consideration and trying at every turn to follow their wishes as much as I could, legally, ethically and professionally, but […]

The Difference Between Chronic Fatigue And Chronic Fatigue Syndrome

ME Explanation

  By Siohban Simper in The Mighty.     May 12th is International ME/CFS and FM Awareness Day, and throughout the month people are sharing posts which shed a bit more light on these misunderstood illnesses. For more, check out #May12BlogBomb, #MEAwarenessDay and #MillionsMissing on Twitter and Instagram.  One of the most common misconceptions about myalgic encephalomyelitis/chronic fatigue […]

‘My Body Doesn’t Recover’: ME Sufferer Calls For Greater Research


      By Andrew Brown in The Canberra Times.   Sasha Nimmo used to live an active lifestyle. In addition to full time work, Mrs Nimmo would regularly walk her dog, take yoga and ballet lessons and was in the middle of planning an overseas holiday. That all changed in 2012, when the Oxley […]

Living With M.E. Series …. A 17 Year Old Boy Who Is Living With M.E. For The Past 5 Years

Missing Shoes

  From LifewithMEWithoutme.   With May being International M.E. Awareness Month and with the #MillionsMissing campaign taking flight, it is the hope that we can bring the lived experiences of people with M.E. to the fore, in an effort to highlight the illness, the symptoms, the lack of care, the neglect, the isolation, the lack […]

Latest Update From The Guys Taking The ME Awareness Flag To Everest Base Camp For The York ME Community / Invest In ME & All With ME

Flag at National Park 17 May 2017

    17 May 2017. “We are now at Tingri which is the last stop before Everest Base Camp, the plan is to head to Base Camp early tomorrow morning. Unfortunately two of our team have been hospitalised with quite serious cases of Altitude Mountain Sickness which can be unpredictable and affect different people in […]

May 12, 2017, Is International ME/CFS And FM Awareness Day

ME Awareness Day

  By Jody Smith in Phoenix Rising.   Can you believe it’s been 25 years since Thomas Hennessy, Jr., chose May 12th to be our international awareness day? He was influenced by the fact that May 12th was also Florence Nightingale’s birthday. This famous English army nurse played a role in the creation of the Red Cross […]

‘Crippled By M.E But Doctors Say It’s MY Fault’ Protest Highlights Plight Of Scots Sufferers Who Struggle With Condition And Have No Drug Therapy


    By Anna Burneside in the Daily Record.   Emma Shorter was diagnosed with ME (myalgic encephalomyelitis) when she was 19 – but now, she’s campaigning for more research and better treatment for this forgotten illness. WhenEmma was 10, she asked her parents for a special birthday present. Could she, as a huge treat, […]

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