ME/CFS Information

Chronic Fatigue Syndrome – A Roadmap For Testing And Treatment

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  Introduction Chronic fatigue syndrome (CFS), also called myalgic encephalomyelitis (ME) and usually abbreviated to ME/CFS, is a neurological condition characterized by cognitive dysfunction, mood disorders, fatigue, post-exertional malaise, and an array of other symptoms. The following guidelines will help you determine: (1) whether you have chronic fatigue syndrome, and if so: (2) which laboratory […]

Response To NICE 10 Year Surveillance (2017) – Chronic Fatigue Syndrome/Myalgic Encephalomyelitis

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  From Invest in ME Research.   Response by Invest in ME – First Thoughts Invest in ME Research have submitted a response to the request for comments on the NICE guideline on CG53 Chronic fatigue syndrome/myalgic encephalomyelitis: diagnosis and management Surveillance proposal consultation document. Invest in ME Research submitted a response in excess of […]

Review: People With ME/CFS Are More Functionally Impaired Than People With Multiple Sclerosis – 19 July 2017

ME

  From The ME Association. Review: People with ME/CFS are more functionally impaired than people with multiple sclerosis | 19 July 2017   Insights into biomedicine, 12 June 2017. This was the main finding from an online study that compared people with ME/CFS with those suffering from multiple sclerosis – a disease that shares an overlap […]

Health & Well-Being In York

Explore

The York ME Community are taking part in this event. Why not come along and support us and learn a little more about Myalgic Encephalomyelytis (ME) ?   Friday 28th July 10.30 am to 4 pm  York Explore Library and Archive   Come along to our health and wellbeing fair at York Explore to celebrate […]

What Is ME/CFS ?

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    An explanation given by the Centres of Disease Prevention and Control (CDC) in Australia.   Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a disabling and complex illness. People with ME/CFS are often not able to do their usual activities. At times, ME/CFS may confine them to bed. People with ME/CFS have overwhelming fatigue that […]

To Those Who Think Chronic Fatigue Syndrome/Myalgic Encephalomyelitis Is Just ‘Tiredness’

ME

  By Hayley Green in The Mighty.   Tiredness. Everyone gets it. That feeling you have after a long day at work, or a restless nights sleep. We can all relate to it. But myalgic encephalomyelitis (ME), sometimes called chronic fatigue syndrome (CFS) is just when you get tired easily… isn’t it? If you have […]

Children With ME

Radio

    From BBC Radio 4.   File on 4 investigates claims that parents whose children suffer from a crippling illness that leaves them sick and permanently exhausted have been falsely accused of child abuse. Parents of children with Myalgic Encephalomyelitis (ME) reveal how they have been investigated and referred for child protection measures on […]

On Your Marks GETSET: Don’t Go – Major Graded Exercise ME/CFS Trial Underwhelms (Again)

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    By Cort Johnson in Health Rising.   The Lancet — one of the most highly regarded journals in the world — is back on the chronic fatigue syndrome (ME/CFS) community’s front page. That’s probably enough to either elicit curses from ME/CFS patients or to produce a strong desire to hide under one’s bed. […]

No Increased Risk Of Chronic Fatigue Syndrome After HPV Vaccination

Vaccination

    From Medical Press.   Girls receiving one or more doses of HPV vaccine have no greater risk of chronic fatigue syndrome/myalgic encephalomyelitis (CFS / ME) than unvaccinated girls. This is shown in a new major study from the Norwegian Institute of Public Health. The study is part of the national surveillance of the […]

Prevalence Of And Risk Factors For Severe Cognitive And Sleep Symptoms In ME/CFS And MS

Biomed Central

  From Biomed Central.  Authors as listed.   Abstract   Background There are considerable phenotypic and neuroimmune overlaps between myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and multiple sclerosis (MS). While the precise aetiologies of both MS and ME/CFS are unclear, evidence suggests that deterioration in cognitive function is widely prevalent in patients with either condition. Little […]

Living With ME – Emelyne’s Transcript

Living with ME

  From the #SpeakforME Blog.   My name is Emelyne and I #SpeakforME because so many people suffer in the dark behind closed doors. ME has no bias, it affects men, women, children, adults, young and old. It can change during your life, it can get really tough. It can get better and there can […]

Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Diagnosis And Management In Young People: A Primer

Children

    From Frontiers in Pediatrics.  Authors as listed.   Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a complex disease that affects children and adolescents as well as adults. The etiology has not been established. While many pediatricians and other health-care providers are aware of ME/CFS, they often lack essential knowledge that is necessary for diagnosis […]

On Good Days, I Am Excited

Mental Health

      By Anna Ruddock in The Socialogical Review.   I am beginning this on a bad day. Not the worst kind of bad day – I am, after all, typing, and therefore thinking, albeit slowly, sludgily. How to describe this? Each time I try, I express it differently. Today it is as though […]

Myalgic Encephalomyelitis: International Consensus Criteria

ME Explanation

    From The Journal of Internal Medicine.   Abstract:   The label ‘chronic fatigue syndrome’ (CFS) has persisted for many years because of the lack of knowledge of the aetiological agents and the disease process. In view of more recent research and clinical experience that strongly point to widespread inflammation and multisystemic neuropathology, it […]

Failings Of The Establishment Organisations Toward People With ME

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  From Invest in ME Research.   It may have escaped the notice of some that the MRC is preparing to be absorbed into the new UK Research and Innovation (UKRI) and the existing CEO, Sir John Savill, will be winding down affairs until the transition is completed. Link to Appointment notification We have stated […]

ME/CFS: A New Explanation – And Cure ?

Dr Eriksen

      From TraceyDuvall.com.   In a recent paper, Dr. Willy Eriksen proposes a complete explanation for the development, diversity, and persistence of myalgic encephalomyelitis, aka chronic fatigue syndrome (ME/CFS). He also suggests a possible cure. Seeing that this potentially groundbreaking research was attracting little attention, I contacted Dr. Eriksen and interviewed him via […]

Fermanagh ME Sufferer Michelle, Wants People To See A Witty Side To Disability

Michelle Cowan

      By Katie Dickie in The Impartial Reporter.   Michelle Cowan (pictured right) from Tamlaght has started a blog called Witshelly, having suffered from ME (Myalgic Encephalomyelitis) since the age of 15. The condition meant she lost her eyesight, the power in her hands and legs, her swallow and memories from before the […]

I Changed Career In My Fifties… And Was Struck Down By ME

Jude Adams

    By Victoria Lambert in The Telegraph.   When Jude Adams was diagnosed with myalgic encephalomyelitis (ME), her illness could not have come at a more frustrating time. After years of nursing a secret passion for singing, Jude, a former fitness industry professional, had begun to take lessons, performing in public for the first […]

Muscle Spasms In Fibromyalgia & Chronic Fatigue Syndrome

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By Adrienne Dellwo in Very Well. Muscle spasms can be a source of considerable pain in many people withfibromyalgiaandchronic fatigue syndrome. Our muscles clench and just won’t relax, sometimes in spite of multiple treatments. These conditions often show up alongside others, like irritable bowel and irritable bladder syndromes, that involve smooth muscle spasm. I almost always […]

The ME/CFS Biomarker Roller-Coaster

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    From MEAction.   Biomarkers are a holy grail for ME/CFS because they have the potential to help diagnose disease, track disease progression or progress and help inform which treatments might help. The need for biomarkers is immense and researchers will identify many possible ones. It is encouraging that there have been more possible biomarker […]

My Apology To The Patient With ME I Treated Many Years Ago

Doctor

    By Annemarie McCall in The Mighty.   I was a psychiatric nurse before I developed ME. I was a good nurse and treated my patients holistically and with dignity, taking their wishes into consideration and trying at every turn to follow their wishes as much as I could, legally, ethically and professionally, but […]

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