Medical General

Airports Are Failing Disabled Passengers, And We Are Tired Of It

Air Travel

    By Elizabeth Wright in The Guardian.   Returning from Rome after a holiday, my plane taxied to its stand and I waited for all the more ambulatory passengers to disembark. I had wheelchair assistance booked – a much-needed service for someone who, like me, struggles to walk long distances – and the drill […]

Using Mobility Aids When You Have An Invisible Illness

Invisible Illness

    “What happened to you, then?” There’s no ideal time to acquire a long-term chronic illness, but becoming disabled halfway through your undergraduate degree has to be up there in the Least Convenient Life Situations list. Adapting to the student experience whilst learning to live with a painful and debilitating neurological condition isn’t a […]

If You Don’t ‘Click’ With Your Doctor, You’re Allowed To Find A Different One

Doctor

  By Shana Burns in The Mighty.   The patient-doctor relationship is an important one in many of our lives, even more so when we have a disability or chronic illness, and that’s why it’s essential this relationship runs as cleanly and smoothly as it possibly can. I have seen many different doctors, specialists and medical practitioners in different […]

Four In Five Unpaid Carers Socially Isolated Because Of Their Role

caring-for-carers

    By Paul Gallagher in iNews.   Four in five unpaid carers feel lonely or socially isolated because of their role, a new poll suggests. The amount of people struggling to deal with caring rises to 86 per cent for those who provide care for 50 hours or more each week, according to a […]

Genetic Home Testing: Why It’s Not Such A Great Guide To Your Ancestry Or Disease Risk

dna

    By Johnathan Pettitt in The Conversation.   Genetic variation is an unavoidable feature of life. As a consequence of this – and unless you are an identical twin – you are genetically unique. You have a distinctive combination of genetic variants, almost all of which are shared with your parents, although shuffled into […]

Chronic Fatigue Syndrome – A Roadmap For Testing And Treatment

Road map vector with street pathway route pin icon on the way tr

  Introduction Chronic fatigue syndrome (CFS), also called myalgic encephalomyelitis (ME) and usually abbreviated to ME/CFS, is a neurological condition characterized by cognitive dysfunction, mood disorders, fatigue, post-exertional malaise, and an array of other symptoms. The following guidelines will help you determine: (1) whether you have chronic fatigue syndrome, and if so: (2) which laboratory […]

Disabled Passengers ‘Forced To Wait Hours To Disembark At Heathrow’

Air Travel

    From The Guardian.   Disabled passengers arriving at Heathrow airport are being forced to wait up to two hours for help in disembarking aircraft, the aviation regulator has said. The west London hub is one of four airports where the Civil Aviation Authority judged the service for wheelchair users and other disabled passengers to be […]

A Plea From A Fallen Doctor On Chronic Fatigue Syndrome (ME/CFS)

Doctor

  From Reddit.   I was educated at Baylor and practiced medicine for 30 years. I had a thriving practice, a rich social life, and excellent physical and mental health. I loved what I did and loved my life. I ran marathons, spoke at conferences, and chaired non-profits. I am now completely bedridden from post […]

The Importance Of Having A Partner Who Understands Your invisible Illness

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    By Hattie Gledwell in The Metro.   One of the most important aspects of being in a relationship when you have an invisible, chronic illness is that your partner is supportive.  There are a number of reasons for this, but it all mainly comes down to the fact that if your partner doesn’t understand what […]

Scope Role Models

Scope

  We’re working with secondary schools to help them create inclusive learning environments and start conversations about disability. What is Scope Role Models?   One hour workshops for secondary school students, hosted by Scope and a disabled role model. In a relaxed style, we talk about issues like attitudes, stereotyping and how they impact the […]

Thousands Of Benefit Claimants Win Legal Victory Over Tory Government’s Welfare Appeals Regime

Benefits

  By Dan Bloom in The Mirror.   Top judges ruled a one-month time limit on appealing for benefits is unlawful – meaning people have been wrongly blocked from justice for years. Thousands of benefit claimants have won a landmark legal victory over the Tory government’s welfare regime. Three top judges today ruled a one-month […]

Carer Awareness Training Sessions

York Carers Centre

  Hello, We are offering two stand alone bite-size Carer Awareness training sessions to professionals across the city, on Tuesday 3 October in the Rowntree Room at West Offices.  You are welcome to attend either the morning or the afternoon session.   Morning Session 9.15am to 12pm Afternoon Session 1 to 3.45pm   This course […]

My PIP Diary Part Four – The Stacked Deck

Mik Scarlet

  By Mik Scarlet in The Huffington Post.   I called the first entry in my PIP diary The Saga Begins. I had no idea how prophetic that would be. What I expected to be a fairly straight forward enterprise has turned into a nightmare. Surely as someone with a fairly static impairment that will never […]

What To Do When Doctors Don’t Give A Crap !

Doctor

  From The Little Lifestyle Blog.   Now doctors have very hard and demanding jobs dealing with life and death situations all the time, so I highly respect them and what they do but while being ill with Fibromyalgia, Chronic fatigue and Depression I had some bad experiences with them! They weren’t all bad I had […]

Getting Back On Your Feet After An Illness

Blue and white 3D illustration with the word blog repeated  in different shades

    From The Little Lifestyle Blog By Keira.   I’ve recently started talking  about my experience with M.E (chronic fatigue syndrome) and we have barely scratched the surface of that topic but right now I’d like to talk about how I went from bed ridden to where I am now, I’m not saying I […]

The European ME/CFS Biomarker Landscape Project: An Initiative Of The European Network EUROMENE

Scientist using a microscope

  From The Journal of Translational Medicine.   Authors and Contributors as listed in article. Abstract Myalgic encephalomyelitis or chronic fatigue syndrome (ME/CFS) is a common and severe disease with a considerable social and economic impact. So far, the etiology is not known, and neither a diagnostic marker nor licensed treatments are available yet. The EUROMENE […]

NICE Guidelines Consultation – Misinformed Or Cynical ?

invest

  From Invest in ME Research.   The NICE decision “to not update the NICE guideline on chronic fatigue syndrome/myalgic encephalomyelitis” at this time seems to be an error of judgement based on misinformation. That is clearly so. Yet on delving deeper one begins to see something more from what must have been a pre-determined decision made […]

York Carers Centre

York Carers Centre

  Welcome to the August 2017 email update from York Carers Centre.   York Carers Centre Carer wellbeing programme York Carers Centre in partnership with York Mind, Converge, St Nicks, York LGBT Forum, Sunshine Changing Lanes and Kindlewoods have an exciting new opportunity to deliver a bespoke range of activities to support individuals’ mental health […]

10 Proven Health Benefits Of Turmeric And Curcumin

Tumeric

  By Kris Gunnars, BSc in Authority Nutrition.   Turmeric may be the most effective nutritional supplement in existence. Many high quality studies show that it has major benefits for your body and brain. Here are the top 10 evidence-based health benefits of turmeric. 1. Turmeric Contains Bioactive Compounds With Powerful Medicinal Properties Turmeric is the spice […]

The Scientific Reason You Don’t Like LED Bulbs — And The Simple Way To Fix Them

LED bulb and simple light bulbs.Green background

  By Arnold J Wilkins in The Conversation.   There’s a handy trick for reading station signs that otherwise fly past in a blur as you travel in a high-speed train. Look at one side of the window and then immediately at the other side of the window. When you change your gaze, your eyes […]

New Diesel And Petrol Vehicles To Be Banned From 2040 In UK

Traffic

    From BBC News.   New diesel and petrol cars and vans will be banned in the UK from 2040 in a bid to tackle air pollution, the government is set to announce. Ministers will also unveil a £255m fund to help councils tackle emissions from diesel vehicles, as part of a £3bn package […]

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