Medical General

York ‘No One Expected This’: York At Crossroads As Coronavirus Takes Toll

York

  By Josh Halliday in The Guardian. For a city that has been at the heart of major national events for 17 centuries, beloved both by medieval kings and warring Romans, York has seen its fortunes rise and fall over the years. But new questions about the future of the former Viking capital of England […]

Ritalin (Methylphenidate) For Chronic Fatigue Syndrome And Fibromyalgia

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  From Health Rising.   Ritalin Is… a central nervous system stimulant. Created in 1954, Ritalin has been in use for over sixty years. (Check out a History of Ritalin here). It was first FDA approved in 1955 to treat ‘hyperactivity’ and later was approved to treat attention deficit hyperactivity disorder (ADHD). Ritalin increases extracellular levels […]

Coronavirus: ‘Scandalous’ Silence Of Government’s Disability Unit As Thousands Die

Disability Parking

By John Pring in Disability News Service.   The government has been accused of a “totally reprehensible failure” after its new Disability Unit failed to make a single announcement in more than three months, while more than 20,000 disabled people were dying from COVID-19. The unit was set up last year to “break down the […]

Helen Salisbury: When Will We Be Well Again ?

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  By Helen Salisbury, GP in BMJ. Author affiliations helen.salisbury@phc.ox.ac.uk Follow Helen on Twitter: @HelenRSalisbury In the heat of the pandemic, news reports focused on patients who were severely ill, in hospital and on ventilators. Fortunately, this was a minority of patients, and most people with covid-19 remained at home—some of them horribly unwell but not […]

Coronavirus And ME: Doctors Fear Wave Of Chronic Fatigue Syndrome

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  From The Week.   As the UK’s daily death tolls fall and the immediate threat of Covid-19 recedes, doctors are warning that the outbreak may lead to a long-term surge in cases of a debilitating and untreatable disease. Chronic fatigue syndrome, also known as myalgic encephalomyelitis or CFS/ME, is an “illness with a wide […]

News From York Carers Centre

York Carers Centre

Accessing carer groups from home  You can now access our carer support groups and activities online as we continue to work within government guidance, and explore ways we can offer our face to face groups in the future. If you’d like to take part in any of our groups/activities, and would like help setting up […]

Update: Post-Covid Fatigue, Post/Long-Covid Syndromes, And ME/CFS

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  By Dr Charles Shepherd, Hon. Medical Adviser, ME Association. I am aware that some people with ME/CFS have a number of concerns about the amount of time and effort we are devoting to people with Post-COVID Fatigue and Post/Long-COVID Syndromes. In particular: — the possibility that people with post-COVID fatigue and post/long-COVID syndromes are […]

We’re 20 Percent Of America, And We’re Still Invisible

USA

  By Judith Heumann and John Wodatch in the New York Times. Ms. Heumann is a disability rights activist. Mr. Wodatch is a civil rights lawyer.   This month as the 30th anniversary of the Americans With Disabilities Act approached, we asked two prominent figures in the disability rights movement, Judy Heumann and John Wodatch, where they thought […]

Covid And Chronic Fatigue: We Must Learn From ME Patients’ Suffering

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  By Danni Watts, Journalist. Content warning: Contains an image of an ME patient, at her request, which readers may find distressing. There are growing numbers of Covid-19 patients reporting ongoing symptoms, for some lasting months after the initial infection. The cluster of post-viral symptoms commonly includes extreme fatigue, brain fog and widespread pain. For ME patients this […]

An Open Letter To The COVID-19 Long Hauler Community From A Person With ME/CFS

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  By Cort Johnson in Health Rising. “If you look anecdotally, there is no question that there are a considerable number of individuals who have a post-viral syndrome that in many respects incapacitates them for weeks and weeks following so-called recovery. They report symptoms such as brain fog, difficulty concentrating and fatigue that resemble the […]

Chronic Fatigue Syndrome May Hold Keys To Understanding Post-Covid Syndrome

Virus

By DAVID TULLER and STEVEN LUBET in Stat News. Some survivors of acute bouts of Covid-19 experience a range of persistent medical issues — some lasting for weeks, or even months — that include profound exhaustion, trouble thinking or remembering, muscle pain, headaches, and more. One survivor described it as feeling like she was “hit by a truck.” Anthony Fauci, the […]

COVID-19 Patients Could Be At Risk For Chronic Fatigue Syndrome: ‘Your Whole Life Can Change If You Get This’

Chronic

By Darcel Rockett in The Chicago Tribune. As the world continues to watch the number of COVID-19 cases increase (and daily records being broken), patients with myalgic encephalomyelitis, aka chronic fatigue syndrome, want to tell those recovering from coronavirus to listen up. COVID-19 patients may be at risk of developing the neuroimmune condition ME/CFS that depletes one’s energy. ME/CFS, […]

Changing Places Toilets For Disabled People To Be Compulsory

Changing Places

  From BBC News. Large accessible toilets for severely disabled people – known as Changing Places – will be made compulsory for new buildings in England from 2021. Shopping centres, supermarkets, sports and arts venues will be required to include at least one Changing Place, a government spokesman said. The facilities include hoists, changing benches […]

Could COVID-19 Trigger Chronic Disease In Some People ?

chronic

  By Katarina Zimmer in The Scientist.   A handful of viruses have been associated with long-term, debilitating symptoms in a subset of those who become infected. Early signs hint that SARS-CoV-2 may do the same. When 32-year-old artist Hannah Davis fell sick in late March this year, her symptoms were so severe that even watching […]

Coconut Oil Production Threatens Five Times More Species Than Palm Oil – New Findings

Coconut

  By Erik Meijaard in The Conversation.   Born in the Netherlands and brought up in Germany, it wasn’t until I was 21 that I met my first coconut. It was on a beach in Thailand where I ended up during a one-year sojourn away from home, trying to grow up. With nothing better to do, […]

COVID-19 & The 2nd Wind Blows Into ME/CFS

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  By Jennie Jacques.   I have a keen interest in what happens to our body after severe infection, particularly viral infection. And I would like to start my article by highlighting (with gratitude) ‘New Scientist’ who have pre-warned us, “Viral infections have previously been linked to problems with long-term fatigue symptoms. For example Chronic Fatigue […]

Does Vitamin D Ward Off Coronavirus ? Don’t Reach For The Supplements Yet

Vitamin D

  By David C Gaze in The Conversation.   It has been suggested that taking vitamin D may protect people from getting COVID-19. But should we be using supplements to ward off the virus? We need to separate fact from fiction. Vitamin D is essential for maintaining overall health, especially for bones, teeth and muscle. It regulates the […]

Feeling Alone With ME/CFS, Fibromyalgia Or POTS ? Why Finding A Connection Matters – A Tribute To A Leader Of The Community

Lonely

  By Michael Cuthbert in ProHealth.   It was about 4 years into severe illness, when pain had become more than just an issue during flare ups – it had become a daily occurrence. What was causing all these symptoms? Just when I had found a way to adjust to a new normal, a new […]

From The Tahoe Outbreak To COVID-19 Dr. Peterson And Simmaron Take On The Coronavirus – And ME/CFS

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  By Cort Johnson in Simmaron Research.   “Testing is so important to everyone in our community, especially front-line workers and people who are at higher risk of severe disease. Simmaron is excited to serve our neighbors and lead the way to broader testing, so we help keep Nevada safe and learn more about this […]

Coronavirus And ME: Doctors Fear Wave Of Chronic Fatigue Syndrome

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  From The Week.   As the UK’s daily death tolls fall and the immediate threat of Covid-19 recedes, doctors are warning that the outbreak may lead to a long-term surge in cases of a debilitating and untreatable disease. Chronic fatigue syndrome, also known as myalgic encephalomyelitis or CFS/ME, is an “illness with a wide […]

The York Access Group

Disabled Access

Just to let you know that The York Access and Mobility Club has been renamed The York Access Group. This group will be working with others in the York area to improve disability access to amenities in York, so that we can all enjoy our beautiful city to the full, and to not be restricted […]

EHRC Failed To Consult Its Own Disabled Advisers Before Snubbing DWP Deaths Probe

Disability

  By John Pring in Disability News Service.   The equality watchdog failed to consult its own committee of disabled advisers before deciding not to investigate deaths of benefit claimants that have been linked to the Department for Work and Pensions (DWP). It came as disabled activists and relatives of disabled people whose deaths have […]

Post-Covid Research & Clinical Care Must Include ME/CFS

Research

  From #MEAction.   People with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) have been concerned since the start of the coronavirus pandemic that a subset of COVID-19 patients will go on to develop ME/CFS. Unfortunately, we are already hearing from many COVID-19 survivors around the world that they are continuing to experience debilitating symptoms for many months, even […]

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