Medical General

How Imaginary Friends From Our Childhood Can Continue To Affect Us As Adults

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      By Paige Davis in The Conversation.   Crabby crab is my four-year-old son Fisher’s imaginary friend. Crabby appeared on a holiday in Norway by scuttling out of his ear after a night of tears from an earache. Like other childhood imaginary friends, Crabby should be an indication that Fisher’s mind is growing and […]

A Huge Step Forward For ME In The US

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    There’s been a huge step forward for ME in the US. Kaiser Permanente is the largest managed care organisation in the U.S. It’s a forward-thinking organisation with a great reputation – which has got everything wrong about ME/CFS – until now. This article explains how Kaiser Permanente are out to change the way […]

York City legend Andy McMillan Aims To Save NHS Thousands A Day

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    By Dave Flett in The Press. HE once tackled the likes of Ryan Giggs and Anders Limpar for the Minstermen, but Andy McMillan is now hoping to stop the city’s germs and bacteria in their tracks. The York City legend is taking a break from football to concentrate on an exciting new business […]

Some Claims That London 2012 Changed The World Are Nonsense, Says Disabled Peer

Disability Dice

  By John Pring in Disability News Service.   One of Britain’s greatest Paralympians has told a parliamentary meeting to beware of claims that London 2012 “changed the world” for disabled people. Baroness [Tanni] Grey-Thompson (pictured) was speaking at a parliamentary meeting held to discuss the need for more to be done to enable disabled […]

How British Sign Language Developed Its Own Dialects

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    By Adam Schembri and Kearsy Cormier in The Conversation.    There are many different ways of speaking English in the UK, with people using different regional dialects in different parts of the country. For example, some people would say “give it me” while others might say “give it to me”. There is also variation in the names […]

You Don’t Look Sick: ‘My Skin Condition Causes A Lot Of Pain But I Gave Up My Blue Badge Because Of Abuse’

Invisible Illness

  By Laura Abernethy in Metro.     Welcome to You Don’t Look Sick, our new weekly series about invisible illness and disabilities. There are 13.9 million disabled people in the UK, but for many of them, you would have no idea anything is wrong. Lots of people suffer from debilitating symptoms and daily struggles […]

Sleep Deprivation Can Mimic Chronic Fatigue

Fatigue

    From Blue Mountain Gazette.   The reason for fatigue can be difficult to pin down, be it due to an underlying illness, a mental health issue, or a new baby in the house. But fatigue is more than just tiredness. Chronic fatigue syndrome (CFS) or myalgic encephalomyelitis (ME) commonly affects the nervous, gut, […]

Using A Cane With An Invisible Disability

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  By Kit O’Connell in Approximately 8,000 Words Blog.   I thought I’d write for a moment about what it means to use a cane as a person with an invisible disability (fibromyalgia). Invisible disabilities are life-altering health conditions which are nonetheless not always visible to a normal observer. Even a trained medical professional might miss […]

Why I Gave Up Trying To Be The ‘Good Patient’

Chronic

    By Alexis Redenbach in The Mighty. We’ve all seen the movies: the patient stoically braves the struggles of treatment and only gets angry one time, in a huge but righteous burst of frustration. The person in a traumatic accident is told they will never walk again but by sheer force of will, they somehow […]

DVLA Driving Licence ALERT: Medical Conditions You Need To Inform The DVLA To Avoid A Fine

Driving Licence

By Luke John Smith in The Express.   MOTORISTS in the UK are required to inform the DVLA about a number of medical conditions as they could affect the way you drive and you could be fined £1,000 if you fail to do so.   Motorists could receive a fine of up to £1,000 for […]

Another Big Bill For The £24m Health Centre That Costs The NHS £2m A Year To Run And Has NEVER Been Used

Hospital

  By Lisa Meakin in the Manchester Evening News.   Not a single patient has used the Altrincham Health and Wellbeing Centre – now another £1.5m could be spent turning part of it into office space. Another £1.5m could be spent turning part of a brand new health centre into OFFICE space because the NHS services it […]

Allodynia: A Rare, Distinct Type Of Pain In Fibromyalgia And ME/CFS

Chronic Pain

    By Adrienne Dellwo in Very Well Health.   Allodynia is a rare type of pain, generally on the skin, that’s caused by something that wouldn’t normally cause pain. This pain type is frequently associated with fibromyalgia, and some people with chronic fatigue syndrome have it as well. Other conditions associated with allodynia include neuropathy, postherpetic neuralgia (shingles), and migraines. Outside of these conditions, […]

Government Is Failing On Disabled Women’s Rights, UN Is Told

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    By John Pring in Disability News Service.   Activists have told a UN committee how the UK government is failing to address the significant barriers and human rights violations faced by disabled women in accessing social security, justice, jobs and health services. Eleanor Lisney and Rachel O’Brien, from the disabled women’s collective Sisters of Frida, were […]

How To Cope With “Brain Fog” When You’re Chronically Ill

Brain Fog

  By Toni Bernhard J.D. in Psychology Today.   Cognitive dysfunction is often a distressing feature of chronic pain and illness.   People who are chronically ill (which includes chronic pain) often experience cognitive difficulties. Sometimes this is referred to as “brain fog,” which is defined as a lack of mental clarity due to an inability to focus or remember things. […]

Shock, Hypoxia & ME/CFS: Part I

Nervous system

From Syndrome A.   When I first got sick with ME/CFS, I was a teenager. I was quite baffled when I suddenly became too exhausted to make it to classes, stopped sleeping almost entirely and started sweating profusely. I sweat raindrops: huge drops of sweat rolled down my sides constantly. No antiperspirant was a match […]

To Those Who Say Chronically Ill People Are ‘So Lucky’ Not To Work Full-Time

Chronic Illness

  By Alexandra Ellen in The Mighty.   Have you ever had the “joy” of experiencing a conversation similar to this on a Sunday afternoon? “What time do you start work tomorrow?” “Ummm, I don’t work on Mondays.” “Ahhh, you’re so lucky!” I lost count of the number of times I’ve had similar conversations. I […]

Virgin Trains Launches New Alexa Feature For Disabled Passengers To Book Help

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  From ITV News.   A train company has launched a new service enabling disabled passengers to book travel assistance using voice commands. Virgin Trains customers can request help getting on and off trains and reserve wheelchair spaces with Alexa-enabled devices. The JourneyCare service for people with special requirements could previously only be booked by […]

People With Rare Diseases Get ‘Unequal Treatment’ From ‘Inflexible’ NHS Drug Regulator, Warns Report Calling For System Reform

NHS

    By Vanessa Chalmers in The Daily Mail.   The NHS drug regulator has been branded ‘inflexible’ when it comes to approving medicines for rare diseases in a report calling for it to be reformed. The National Institute for Health and Care Excellence (NICE) gives guidance on how to improve health care, including advising on how […]

Trial By Error: The Cost Of MUS

David Tuller

    By David Tuller, DrPH In January, I wrote about the problematic online training course developed by the Royal College of General Practitioners and touted by Steve Brine MP as addressing the “misconceptions” about ME (or CFS/ME, as the online course calls the illness). The lead author of the course was Carolyn Chew-Graham, a professor of general […]

Are Surgeons Missing The Major Differential Diagnosis That Is More Common Than Multiple Sclerosis And HIV combined ?

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        By Nina Muirhead in Royal College of Surgeons.   It’s a great feeling when we meet a new outpatient that we know how to manage surgically. Unfortunately, every surgical specialty experiences a subgroup of patients who present with symptoms that cannot be resolved by surgery. These symptoms may span immune, neurological […]

How To Move Forward When You’re Grieving Your Life Before Chronic Illness

Chronic

  By Paige Wyant in The Mighty.   When many people hear the word “grief,” what often comes to mind are the complex emotions a person experiences in the wake of a loved one’s death. Though this is certainly an accurate representation of grief, it is by no means the only one. Grief is much […]

Pacing Is A Simple Concept. So Why Do I Find It So Hard ?

Pacing

      By Jo Moss in A Journey Through The Fog.   Living with a chronic illness like ME/CFS creates many challenges. Along with the multitude of symptoms, we also have to learn to adapt to the restrictions placed on our lives and to manage our limited energy levels. The term “pacing” crops up […]

Chronic Fatigue Syndrome: Research: Written question – 221619

Parliament

  Q Asked by Mrs Sharon Hodgson (Washington and Sunderland West) on 14 Feb 2019. Department for Business, Energy and Industrial Strategy Chronic Fatigue Syndrome: Research 221619 To ask the Secretary of State for Business, Energy and Industrial Strategy, how many grant applications have been made to the Medical Research Council for ME/CFS related research since 2010; how […]

Researchers Net New Theory On Vitamin D And Cognitive Disorders

Research

      From The University Of Queensland.   New research from QBI may explain why vitamin D is so important to brain plasticity, and how vitamin D deficiency leads to a range of cognitive disorders, including depression and schizophrenia. This paves way for new research that could lead to preventative strategies or better interventions […]

21 People Describe What Sensory Overload Feels Like

Sensory

  By Melissa McGlensey in The Mighty.   Sensory overload happens when too much sensory stimulus is occurring at once — it can be triggered by a crowded room, a TV turned up too loud, strong aromas, fluorescent lighting — or a hundred other things. It’s often associated with certain diagnoses like autism, sensory processing disorder, chronic fatigue syndrome, fibromyalgia, post-traumatic stress […]

ME And My ‘Friend’

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  I want to Chat And things like that Like we used to do It hurts to talk It pains to walk But I’ll get myself to you.   I’ll get there, it’s not that far Travel by bus, too tough by car Vibrations turn senses into mire The slightest bump, the more I tire […]

The ‘Energy Bubble’ Analogy That Can Help Explain Pacing With A Chronic Illness

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    By Christina Baltais in The Mighty.   Pacing is about energy conservation, both physical and emotional. When you’re living with a chronic illness, it’s an essential skill for preventing flare-ups or “crashes.” This “energy bubble analogy” can be useful to help you visualize and understand the limits of your energy, and help you explain them […]

We Need To Stop Talking About Chronic Illness In This Particular Way

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  By Annie M. In The Mighty.   Have you ever noticed how people talk about illness, even mild illnesses like colds? We often say we are fighting them. We battle colds and fight the flu. We call our friends with scary medical conditions “warriors,” and we encourage them in their “battle” against their illness. It’s true […]

14 Things People May Not Realize We Do Because Of Sudden Flare-Ups

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  By Cassidy Colbert in The Mighty.   Living life with a chronic illness is basically living life constantly walking on eggshells. One day you may be bouncing off the walls because you are so full of energy and the next you are lying on the cool bathroom floor — your only source of relief from the agonizing […]

Foldalite Travel Powerchair Review

Natasha Lipman

    But Natasha Lipman.   I can’t believe that it has almost been a year since I finally bought my first ever powerchair, the Rascal P321 (also called my ‘Mario Kart’ or ‘The Dizzy Rascal’ by my friends – cos I have PoTS and am always dizzy, gettit?) It truly was a long time coming, and […]

Facing Skepticism From Others That My Illness Isn’t ‘Real’

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  By Rebecca Handler in The Mighty.   Those of us with chronic illness are often forced to wage two wars at once. Not only must we cope with the immeasurable impact of our illness, but many of us also face the burden of skepticism from peers, the medical community, friends, and even family. If you’re anything […]

Newly Discovered Gene Governs Need For Sleep When Sick

Genetics

    From Neuroscience News.   Humans spend nearly one-third of their lives in slumber, yet sleep is still one of biology’s most enduring mysteries. Little is known about what genetic or molecular forces drive the need to sleep–until now. In a study of over 12,000 lines of fruit flies, researchers from the Perelman School […]

The Power Of Listening

Doctor

      By Naomi Whittingham in A Life Hidden.   In September 2016, I contributed to a training course for junior doctors at my local hospital.  The following was used as part of a seminar entitled “Patients and doctors as partners in learning”.  I used the term ME/CFS for this piece, as this is how ME is […]

So You Went Vegan In January – Now What ?

Vegan

    By Sophie Medlin in The Conversation.   Many people will have had their fill of cheese, chocolate and meat over Christmas and have felt much more energised after going vegan in January (an event known as Veganuary). This invigorating feeling is largely due to the increase in fruit, vegetables, nuts and pulses as opposed […]

Amber Rudd Links Universal Credit To Rise In Food Bank Use

Universal Credit

  From BBC News.   Amber Rudd says the increased use of food banks is partly down to problems in rolling out universal credit. The work and pensions secretary said she was “absolutely clear there were challenges with the initial roll-out” of the benefit and that the difficulty in accessing money was “one of the […]

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