Personal Stories

Living With ME – Emelyne’s Transcript

Living with ME

  From the #SpeakforME Blog.   My name is Emelyne and I #SpeakforME because so many people suffer in the dark behind closed doors. ME has no bias, it affects men, women, children, adults, young and old. It can change during your life, it can get really tough. It can get better and there can […]

York’s Five-Time Oscar Winning Hollywood Superstar Is Honoured With A Blue Plaque

John Barry Plaque

      From YorkMix.   His music conquered Hollywood, moved millions and won him countless awards. And now his home town has a permanent memorial to his genius. Composer John Barry grew up in Fulford House, what is now the Pavilion Hotel. And on Tuesday (June 20) his widow and son flew in from […]

Dancers & CBT/GET-Realness

ballet

    By Anil van der Zee.   As a dancer I have been surprised by the treatments I’ve received for my disease Myalgic Encephalomyelitis. I want to share my opinion from a dancer’s perspective. What do other professional ballet dancers think about the treatments and the current care that’s being offered to ME patients??   […]

What’s The Harm ? How I Turned To Wellness Out Of Desperation To Cure My Chronic Illness

Natasha Lipman

    By Natasha Lipman.   This week, I headed up to Leeds to speak at the British Dietetic Association’s Eat Fact Not Fiction event, where I had the pleasure of telling my story of falling for wellness, and why it’s so important that we don’t just dismiss people as stupid for falling for these trends. I’ve […]

10 Mic-Drop Replies For Every Time Someone Doubts Your Illness

Mike Drop

  by Elaine Atwell in Healthline.   If you’ve ever had to explain your medical condition to a stranger, you’ve probably experienced the wide-eyed pity, the awkward silence, and the “Oh yeah, my cousin has that” comment. But the most frustrating experience of all may be when you patiently explain your condition to someone, and […]

8 Things That Spoonies Are Totally Over

Spoonie Warrior

    From The Spoonie Warrior Blog.   While my condition has only been disabling for the past year and a half, I’ve technically had chronic illnesses my entire life. Even before being diagnosed, my illnesses affected my life greatly. Most people will want to hear that, despite my struggles, I make sure that I […]

This 12-Year-Old Is Creating An App For Disabled People

Alexander Knoll

  By Joe Fryer in NBC News.   At just 12 years old, Alexander Knoll is already handing out business cards. Even more impressive, his title on those business cards is “CEO.” The inventive, freckle-faced redhead is creating something called the Ability App, which is like Yelp for accessibility. When it’s finished, the free application […]

Passionate Pragmatist: Carol Head And The Fight For ME/CFS Equality: The SMCI Pt. I

Carol Head

    By Cort Johnson in Health Rising.   As we head for International ME/CFS Awareness Day and the biggest advocacy effort that I’ve ever seen, it’s a good time to look at The Solve ME/CFS Initiative (formerly the CFIDS Association of America) – the oldest and most prominent chronic fatigue syndrome (ME/CFS) organization. For […]

Fermanagh ME Sufferer Michelle, Wants People To See A Witty Side To Disability

Michelle Cowan

      By Katie Dickie in The Impartial Reporter.   Michelle Cowan (pictured right) from Tamlaght has started a blog called Witshelly, having suffered from ME (Myalgic Encephalomyelitis) since the age of 15. The condition meant she lost her eyesight, the power in her hands and legs, her swallow and memories from before the […]

PIP Assessment Lies And Distortions Exposed By Double Apology To Claimant

DWP Caxton House

    By John Pring in Disability News Service.   A disabled teacher has told how a government contractor apologised to him for a dishonest benefit assessment, and then had to apologise again after it ordered a replacement assessment which was even worse. He says his experience is a damning indictment of the assessment process […]

Twenty Years On From Deep Blue vs Kasparov: How A Chess Match Started The Big Data Revolution

Chess

  By Mark Robert Anderson in The Conversation.   On the seventh move of the crucial deciding game, black made what some now consider to have been a critical error. When black mixed up the moves for the Caro-Kann defence, white took advantage and created a new attack by sacrificing a knight. In just 11 […]

The Mystery Illness That Plagued This Writer For Years

Julie

      By Julie Rehmeyer in Opera.com.   On Saturday, November 4, 2006, I woke up semiparalyzed. My legs felt lead-plated; the signals instructing them to move seemed to get scrambled on the way down. It was as if someone had sloppily replaced my limbs with those of an elephant and connected only 10 percent […]

ME/CFS And Sexism

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    From Jameson Writes.   For those who have watched Jen Brea’s Ted Talk, or read other accounts of life with MECFS, like Julie Rehmeyer’s new book, Through the Shadowlands and my essay in Quartz a few months ago, then you know that medical neglect is a big part of the disease’s narrative. Also within […]

The Judgement People With Chronic Illness Face After Posting On Social Media

Frustration Chronic Illness

  By Yvonne Evans in The Mighty.   How many of you out there have had people accuse you of faking your illness based on things you post on social media? It really can be a lose/lose situation for those of us with disabilities. If you post yourself getting out and having fun, you’re not […]

I Changed Career In My Fifties… And Was Struck Down By ME

Jude Adams

    By Victoria Lambert in The Telegraph.   When Jude Adams was diagnosed with myalgic encephalomyelitis (ME), her illness could not have come at a more frustrating time. After years of nursing a secret passion for singing, Jude, a former fitness industry professional, had begun to take lessons, performing in public for the first […]

Life On The Edge: Yorkshire’s Coastline In A New Light

camera

  From The Yorkshire Post.   Dave Zdanowicz thought he knew the Yorkshire coast. Or at least a good chunk of it. He had after all spent his childhood holidays on the beaches of Scarborough, Bridlington and Filey, but when he began turning his lens on the coastline which runs from Spurn Point in the […]

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