Politics

ESA Sanctions Are Counter-Productive And Dangerous, MPs Are Told

DWP Caxton House

  By John Pring in Disability News Service.   Imposing benefit sanctions on disabled people is counter-productive, ineffective and “probably too dangerous”, a trio of experts have told MPs. The Commons work and pensions committee also heard that the failure of the Department for Work and Pensions (DWP) to research the impact of its sanctions […]

Belle And Sebastian’s Stuart Murdoch To Join Campaigners Marking ME Awareness Day

Stuart

  By Catriona Webster in The Sunday Post.   BELLE and Sebastian frontman Stuart Murdoch will call on people to “make a noise” to help improve the lives of at least 20,000 Scots living with myalgic encephalomyelitis (ME). The lead singer of the indie band, who has lived with the condition most of his adult life, […]

Clifford’s Tower In York Turning Blue For M.E Awareness

Clifford's Tower York 9 May 2018

  The City of York is supporting ME awareness week, as a result of a recent Liberal Democrat motion to kick-start an awareness campaign on the issue. Over this week, York’s historic city walls and Clifford’s Tower will be lit up every night until the 13thMay to show support for The York ME Community, who […]

Researcher Disinterest Still Hampering Chronic Fatigue Syndrome (ME/CFS) Field

Funding

  By Cort Johnson in Health Rising.   A Freedom of Information Act (FOIA) reveals that during the three grant review panels from July 2017 to April 2018, chronic fatigue syndrome (ME/CFS) researchers applied for a total of 12 grants.  It was the lowest number of grant applications to the panel dating back at least […]

Mike Harley’s EU Marathons For Invest In ME Research – Denmark

Denmark

  By Mike Harley.   I spoke to Rebecca Hansen from the Danish ME Association ME Foreningen and severe ME patient Kamilla Thomsen.  Here’s what they told me about living with ME in Denmark. For Danish translations click here Rebecca Hansen​ ​ Can you give us an overview of what life is like for ME patients in […]

Greenland: How Rapid Climate Change On World’s Largest Island Will Affect Us All

Greenland

  By Kathryn Adamson in The Conversation.   The largest wildfire ever recorded in Greenland was recently spotted close to the west coast town of Sisimiut, not far from Disko Island where I research retreating glaciers. The fire has captured public and scientific interest not just because its size and location came as a surprise, but also because it is […]

What Does The New Financial Year Mean For Me ?

Benefits

  From Independent Age.   These are the main changes you need to know about for the start of the new financial year (1 April) and tax year (6 April), including changes to State Pension and benefit rates. The figures listed below are the weekly amounts you’ll get unless stated otherwise.   To read the rest […]

Almost A Third Of PIP Disability Assessments Are ‘Not Up To Scratch’

DisabledGo

  From Disabled Go News.   Almost a third of assessments for the PIP disability benefit are not fully up to scratch, figures reveal. The data shows the shocking full story behind the official figure that 95% of reports are “acceptable”. Atos and Capita have a target for 3% or fewer of their reports to […]

Picture Post: Nearly All Gone – Third Energy Empties Kirby Misperton Fracking Site

Fracking

  By Ruth Hayhurst in Drill Or Drop.   Drone pictures taken today of Third Energy’s Kirby Misperton fracking site in North Yorkshire show that the site has now been cleared. Third Energy told local people last week that is was releasing the frack spread after the contractor wanted to use it in Europe. Equipment has gradually […]

BBC One To Broadcast Live From York Next Weekend – And You Can Take Part

Nicky Campbell

  From YorkMix.   The big issues of the day are to be debated live on TV in York this weekend – and you can be a part of it. Discussion show The Big Questions will come live from Manor CE Academy between 10am-11am on Sunday (April 8). Hosted by Nicky Campbell, the programme debates moral, ethical and religious issues. A […]

Underpaid Disability Claimants To Receive Up To £20,000

DWP Caxton House

  By Patrick Butler in The Guardian.   Tens of thousands of severely disabled and ill claimants are set to receive backdated payments of up to £20,000 after being wrongly underpaid for years by social security officials, the government spending watchdog has revealed. An estimated 70,000 claimants were underpaid about £340 m between 2011 and 2014 after […]

Queen Elizabeth And Imphal Barracks: MOD Commit To Exploring Opportunities For Retaining Civilian Posts

Imphal Barracks

  By Joe Penny from the York Liberal Democrats website.   In a recent letter from Tobias Ellwood MP, the Ministry of Defence (MOD) have openly committed to working with the Council to explore potential opportunities for retaining civilian posts in York, despite the closures of Queen Elizabeth and Imphal Baracks. Tobias Ellwood MP, the […]

The Mainstream Medical Community Just Declared War On People Living With ME

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  By Steve Topple in The Canary.   The publication of a study into what an MP called one of the “biggest medical scandals of the 21st century” has sparked a war of words between areas of the medical and science communities. Caught in the crossfire are between 17 and 24 million disabled people worldwide, on whom critics of […]

York Lib Dems Motion To Raise Awareness Of ME In York Passes Through Council Unanimously !

Lib Dem

On the evening of Thursday 22 March, Cllr Runciman proposed the Liberal Democrat motion to raise ME Awareness in York.  This was passed through council unanimously ! I would like to thank all in council who listened to my support of the motion and Cllr Runciman and her staff for getting this through.

Disabled Boy Shows Why People Parking On Pavements Are Being Selfish

Parking

    By Kate Buck in METRO.   A wheelchair-bound nine-year-old’s journey to school takes four times longer than it should because drivers are selfishly parking their car on the pavements. It should take 10 minutes for Josh Carter to get to school using his electric wheelchair. But when cars are parked on the curb, […]

55 Reasons Why NICE Must Recommend A Home Visiting, Biomedical Service, For People With Severe Myalgic Encephalomyelitis

ME3

  By Stonebird. People with Severe and Very Severe ME are not safe within the current health system; this is not an exhaustive list by any means : 1. It is virtually impossible for the most severely affected to travel to a clinic or a hospital. 2. It is extremely difficult to find a knowledgeable […]

How To Future-Proof The NHS – Copy The Bank Of England

NHS

    By Anne Marie Rafferty and Jonathan Grant in The Conversation.   Faced with an ageing population and funding pressures, fresh thinking is needed to brace the NHS for what lies ahead. Perhaps the answer to some of the impending problems in health policy can be solved with a relatively old idea adapted from the world of monetary […]

Trial By Error: The Australian Situation, And Professor Crawley’s New Position

David Tuller

  By David Tuller, DrPH.   So I arrived in Melbourne on Wednesday afternoon. I’ll be in Australia for several weeks for meetings, interviews and general information-gathering. I’ll post occasionally, but some of the information might be for future blogs and stories. I’ve conducted a Q-and-A about the general situation in the country with Penelope […]

Trial By Error: The Dutch Review; My Trip; Bristol’s Silence

DavidTuler-265x300

  By David Tuller, DrPH.   And now some potentially good news from the Netherlands. Two years ago, the Dutch parliament asked the Health Council—an independent scientific advisory body—to review the state of evidence related to the illness generally called chronic fatigue syndrome in the Netherlands. That review was to include the evidence for rehabilitative […]

Victories For People Appealing For Disability Benefit Reach Their Highest Rate Ever

Benefits

    From Disabled Go News.   The victory rate for people appealing for disability benefit has reached its highest ever. Personal Independence Payment (PIP) assessments have been branded a “total failure” as 69% of people appealing them at a tribunal now win their case. That is the highest percentage success rate ever recorded since […]

Raising ME Awareness In York Through City Of York Council

York Council

You will be aware that I had a meeting with City of York Council on the subject of Raising ME Awareness.  I have received notification that the Lib Dem Group will be proposing a motion at the next full council to raise awareness of ME in York. There will also be a Press Release by […]

Authors Of Premier Medical Textbook Didn’t Disclose $11 Million In Industry Payments

overseas-medical[1]

  By Adam Marcus and Ivan Oransky in STAT News.   It’s a textbook that has graced the shelves of untold thousands of medical students going back decades. Harrison’s Principles of Internal Medicine, now in its 20th edition, is a must-read for medical students and young internists. It has been called “the most recognized book in all of medicine.” It’s also […]

Myalgic Encephalomyelitis. Unknown Cause. No Cure. New Hope.

ME

By Lily Williams in ASBMB Today. Lizzie Mooney is 12 years old. She is tall for her age with long blonde hair. She likes to wear Chicago Bears pajama bottoms and a hoodie. She’s funny, making up games and teasing her siblings. Lizzie excels in reading and math. She spends time crafting and watches science […]

Trial By Error: Yesterday’s News From The CFS/ME Research Collaborative

DavidTuler-265x300

  By David Tuller, DrPH.   Two pieces of news dominated yesterday’s announcement from the CFS/ME Research Collaborative: First, the group is narrowing its scope of activities to focus on promoting “the discovery of the biological mechanisms that underpin CFS/ME.”Second, Professor Esther Crawley is not only stepping down as deputy chair of the executive board but leaving […]

How Will Inflation Affect My State Pension ?

Pensions

  By Paul Lewis in SAGA Magazine.   Every April, state pensions and benefits for older people are increased to help them pay for the rising cost of food, energy and other essentials. But this year the amount paid to around two million of the poorest pensioners will not keep up with rising prices, as […]

Good News: First Licence Granted to Treat Pain With Medicinal Cannabis

THC

  From Your Daily Ideas.   License to treat pain with medicinal cannabis given the go ahead A license to treat chronic pain with medicinal cannabis has been granted here for the first time, it has emerged. A 3-month agreement was given the green light by the Department of Health to use Tetrahydrocannabinol (THC) people […]

How Big Pharma Is Corrupting The Truth About The Drugs It Sells Us

pills-main

  By Kate Harveston / AlterNet.   Remember how appalled we felt as a society when we discovered that, for so long, we had been mistakenly taking Big Tobacco’s word that cigarettes are harmless? Rinse and repeat with lobbyists for Big Alcohol fear-mongering about legal weed. And again and again with a panoply of consumer-level commodities and goods. Nowadays we have […]

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