Politics

The Netherlands Is Set To Make A Huge Investment In Biomedical Research

Research

  By Simon McGrath in ME/CFS Research Review.   A patient-led petition asked the Dutch parliament to tackle ME properly. It instructed the Government to take action, which eventually led to the Dutch health research agency recommending a €25m biomedical research programme. Patients are playing a central role in the process. The Dutch national health […]

Coronavirus: ‘Scandalous’ Silence Of Government’s Disability Unit As Thousands Die

Disability Parking

By John Pring in Disability News Service.   The government has been accused of a “totally reprehensible failure” after its new Disability Unit failed to make a single announcement in more than three months, while more than 20,000 disabled people were dying from COVID-19. The unit was set up last year to “break down the […]

We’re 20 Percent Of America, And We’re Still Invisible

USA

  By Judith Heumann and John Wodatch in the New York Times. Ms. Heumann is a disability rights activist. Mr. Wodatch is a civil rights lawyer.   This month as the 30th anniversary of the Americans With Disabilities Act approached, we asked two prominent figures in the disability rights movement, Judy Heumann and John Wodatch, where they thought […]

A Picture Of ME

Writing Poetry

  A Picture Of ME In my mind there is a picture That fades some more each day It shows how my life used to be Before M.E. came to stay A picture full of colour Of fun, of laughs, of life Not of where I am today Of worries, pain, of strife My picture […]

Changing Places Toilets For Disabled People To Be Compulsory

Changing Places

  From BBC News. Large accessible toilets for severely disabled people – known as Changing Places – will be made compulsory for new buildings in England from 2021. Shopping centres, supermarkets, sports and arts venues will be required to include at least one Changing Place, a government spokesman said. The facilities include hoists, changing benches […]

ME/CFS And Covid-19 Congressional Bill

ME Research UK

From ME Research UK.   In May, a Bill was introduced into the US Congress (H.R. 5057) by Representative Jaime Raskin calling for “the expansion, intensification, and coordination of the programs and activities of the National Institutes of Health with respect to post-viral chronic neuroimmune diseases, specifically myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), to support the […]

EHRC Failed To Consult Its Own Disabled Advisers Before Snubbing DWP Deaths Probe

Disability

  By John Pring in Disability News Service.   The equality watchdog failed to consult its own committee of disabled advisers before deciding not to investigate deaths of benefit claimants that have been linked to the Department for Work and Pensions (DWP). It came as disabled activists and relatives of disabled people whose deaths have […]

Coronavirus: Government’s Failure To Offer Video PIP Appeals ‘Is Discrimination’

Benefits

  By John Pring in Disability News Service.   The government’s continuing failure to allow benefit appeals to be heard via video conferencing is discriminating against disabled claimants, say welfare rights experts. Many disabled people are being forced to ask for their tribunals to be postponed, because they are only being offered a telephone hearing, […]

Coronavirus: Disabled People Have Been Excluded And Marginalised, Says Report

Disability Parking

  By John Pring in Disability News Service.   Disabled people have faced discrimination in every area of their lives from the beginning of the coronavirus pandemic, new research by a user-led organisation has found. The research by Inclusion London reveals that the COVID-19 crisis is impacting disabled people across every part of their lives. Disability News […]

Disabled People Forced To Fight For Right To Live Ordinary Lives, MPs Hear

dns-sticky-short1

By John Pring in Disability News Service.   Disabled people are being forced to fight for their right to live ordinary lives because of the flawed and under-resourced social care system, MPs have been told by a disabled campaigner. Anna Severwright told members of the Commons health and social care committee on Tuesday that she and […]

Press Release – Scientists Call For More European Research On ME/CFS

OIP

From European ME Coalition.   Brussels, 10 June 2020  More than one hundred scientists have signed an open letter calling for more European research into the illness Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). On 17 June, the European Parliament plans to vote on a resolution on ME/CFS research following a popular petition signed by thousands of patients and […]

The (Welsh) Health Minister Comments On Covid-19, ME, Rehabilitation & NICE

img

From The Welsh Association of ME & CFS Support (WAMES).   The Health Minister Vaughan Gething has replied to the letter WAMES sent to him on International ME Awareness Day highlighting the links between Covid-19, PVFS and ME, and requesting a combined strategy for care.  We note that the forthcoming guidance on rehabilitation “will not be condition specific” so […]

Bus Company Forced To Act After Campaigner’s Wheelchair Space Victory

wheelchair

  By John Pring in Disability News Service.   A disabled campaigner has secured an “important victory” that has forced a transport company to bring in new measures to protect the rights of wheelchair-users to use buses. Wheelchair-user Nina Grant, from north London, began legal action against Arriva after repeatedly being left on the pavement […]

Minister Criticised By Government ‘Disability Champion’ Over Third Access Exemption

Accessibility

By John Pring in Disability News Service.   The government has been criticised by one of its own “disability champions” after it granted the transport industry its third temporary exemption from access laws, so it could continue to use inaccessible vehicles for rail replacement services. In December, it emerged that the government was allowing the […]

Welcome To Law And Health

Valerie Eliot-Smith

  By Valerie Eliot Smith in Law And Health.   “The history of ME remains one of the worst examples of unacknowledged institutional abuse in modern times.” ~ Valerie Eliot Smith 2019  ***************************** Note: this blog works across all devices but can be viewed most easily on a computer or tablet. Thank you for visiting […]

Coronavirus: MPs And Peers Ask PM For A ‘Disability Inclusive’ Response To Pandemic

Disability Dice

By John Pring in Disability News Service. At least 10 disabled MPs and peers have signed a letter calling on the prime minister to ensure that the government improves its support for disabled people in its response to the coronavirus pandemic. The letter, sent to Boris Johnson by the all-party parliamentary group for disability and […]

Coronavirus: Disabled Benefit Claimants Tell MPs How Crisis Has Hit Them Hard

Benefits

    By John Pring in Disability News Service.   Disabled people have told MPs how they have been hit particularly hard by the impact of the COVID-19 crisis on the benefits system. The Commons work and pensions committee carried out a survey of benefit claimants as part of an inquiry into the response of the Department […]

Stalwart Champion Of The ME Community Retires After Distinguished Parliamentary Career

Margaret_of_Mar

By Dr Charles Shepherd, Hon. Medical Adviser, ME Association.   ME advocate and parliamentary champion, the Countess of Mar, retires from The House of Lords after 45 years. Earlier in the week the Countess of Mar wrote to members of Forward-ME to say that she would be retiring from the House of Lords as from today. […]

Disabled People Deserve Equal Access To Critical Care – Judicial Review

Disability-symbol-2

By Doug Paulley in his kingqueen Blog.   Many disabled people may be left to die so that others can be saved. That’s the impact of likely coming increased demand for hospital treatment, intensive care beds and ventilators, according to multiple reports in the Press. Guidance by the National Institute for Clinical Excellence, from the British Medical Association, […]

Labour’s New Leader Faces Pressure To Follow Through On Campaign Rights Pledges

disability

By John Pring in Disability News Service.   Keir Starmer is set to face pressure from the disabled people’s movement to commit his party to keep a series of pledges he made during his successful campaign to replace Jeremy Corbyn as Labour leader. Among the most striking of those pledges was to back calls by […]

Coronavirus: Government’s Continuing Failure On PA Guidance ‘Will Cost Lives’

Coronavirus Generic 1

    By John Pring in Disability News Service.   The government’s continuing failure to produce accessible information and guidance to help disabled people protect themselves during the coronavirus crisis is unacceptable and will cost lives, disabled people’s organisations have warned. Disabled campaigners spoke out after the Department of Health and Social Care (DHSC) failed […]

Government Blames Coronavirus Crisis For Closure Of Elected Office Fund

Parliament

  By John Pring in Disability News Service.   The government has blamed the coronavirus crisis for its decision to close a temporary fund that was set up to support disabled people with the extra costs of running for political office. One disabled politician has described the permanent closure of the EnAble fund as a “kick in […]

Coronavirus: Council ‘Tells Social Workers To Stop All Their Usual Work’

dns-sticky-short1

  By John Pring in Disability News Service.   A local authority apparently told its social workers to “stop all their usual work” until the coronavirus crisis was over, even before emergency powers to reduce their duties under the Care Act became law. The controversial Coronavirus Act, which became law last Wednesday (25 March), suspended […]

Benefit Assessment Companies ‘Have Made Almost No Progress’ On Safeguarding

benefits

  By John Pring in Disability News Service.   The three companies that carry out disability benefit assessments for the government have made almost no progress in the last year on alerting local authorities to concerns about claimants whose safety is at risk, according to a disabled campaigner. Last year, freedom of information responses from […]

Coronavirus V: Lipkin, Bateman And Klimas Talk Plus Treatment Updates

USA

  By Cort Johnson in Health Rising.   My, how things change. Less than a month ago, only 70 coronavirus cases had been reported in the country. Our president had just recently announced that the virus was under control. The sun was shining brightly. How naïve we all were. Just a month later, the U.S. leads the […]

Coronavirus: Lack Of Engagement With DPOs ‘Has Led To Bad Policies’

disability

  By John Pring in Disability News Service.   The government is facing claims that its continuing and repeated refusal to consult with disabled people’s organisations (DPOs) has contributed to its failure to protect disabled people’s rights in responding to the coronavirus crisis. Successive governments since 2012 have been criticised for their failure to engage […]

Using A Service: Reasonable Adjustments For Disabled People

Disability

  From the Equality and Human Rights Commission.   Equality law recognises that bringing about equality for disabled people may mean changing the way in which services are delivered, providing extra equipment and/or the removal of physical barriers. This is the ‘duty to make reasonable adjustments’. A duty is something someone must do, in this […]

Bus Pass Restrictions Relaxed In North Yorkshire

park and ride bus

  By Karen Lie in Yorkshire Coast Radio.   Restrictions on the use of bus passes in North Yorkshire have been relaxed to help pass holders to take advantage of early morning shopping opportunities and medical appointments. North Yorkshire County Council have temporarily enhanced their National Concessionary Travel Scheme to enable pass holders to use […]

When You Say Coronavirus Will Only Kill The Vulnerable, You’re Talking About Me

Coronavirus Generic 1

  BY BROOKE VITTIMBERG in Fast Company.  When news of COVID-19 started to spread, there were two popular responses. The first was to rush to the store, buying N95 masks and hand sanitizer until shelves were bare. The second was to shrug and comfort the masses because mostly immunocompromised people—people like me—would die. On Twitter, […]

Protecting Yourself From Coronavirus Is Proving Harder For Disabled People Like Me

Disability

  By Chloe Tear in Huffpost.   It feels like every headline you read now is about coronavirus. With the virus causing concern and costing lives worldwide, it isn’t surprising. But it’s important that we talk about what that concern looks like if you’re disabled. We already know those with pre-existing conditions, like me, are more […]

Disabled Workers Paid 12% Less, ‘Damning’ UK Official Figures Show

Disability

    By Patrick Butler in The Guardian.   Disabled people continue to face prejudice in the workplace campaigners have said, after latest government figures showed they were paid on average 12.2% less than those without impairments, equivalent to £1.48 an hour. According to Office for National Statistics (ONS) data, the median pay for disabled employees in […]

Labour Leadership: Starmer Backs Calls For Free Social Care

keirstarmer1007

  By John Pring in Disability News Service.   The MP leading the race to be Labour’s next leader has become the first candidate to back calls by disabled people’s groups for the introduction of free social care, funded by national progressive taxation. Sir Keir Starmer, Labour’s shadow Brexit secretary, said he supported the motion passed […]

The York ME Community © 2015
Powered by Live Score & Live Score App