Politics

9 Tips To Guide You Through A PIP Benefit Application

Benefits

By Jo Moss in A Journey Through The Fog.   We all know the anxiety inducing feeling of the dreaded brown envelope falling on your door mat. Being assessed, or reassessed for health and disability benefits, is both exhausting and scary. We are often made to feel we are faking it or exaggerating our symptoms. […]

The Triumph of Eminence-Based Medicine

Research Study

  By Brian Hughes in Not The Science Bit.   Lines are drawn A quarter of a million Britons have been diagnosed with myalgic encephalomyelitis (ME), the condition also known as chronic fatigue syndrome (CFS). ME/CFS is a severe debilitating illness that renders patients either temporarily or perennially immobile. Sufferers will have often led very active lives […]

Woman’s Fight To Stop Disabled People Travelling For Benefit Assessments

disability

  By Emily Hennings in This Is Local London.   Claudette Lawrence, 49, is an activist and campaigner who also suffers with myalgic encephalomyelitis (ME), which can cause extreme mental and physical exhaustion. She has set up the petition because she has recently come into contact with a lot of people who are having problems when it […]

Carol Monaghan Continues Fight For Parliamentary Debate On ME

Carol Monaghan SNP

This is the text of an email I’ve sent to York MPs to gain support for a Parliamentary Debate on ME. We are entering an extremely crucial period where NICE are reviewing their guidelines to potentially remove the harmful Graded Exercise Therapy (GET) as a recommended treatment for this illness. They are however loading their […]

Universal Credit Roll-Out Delayed – Again

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    By Katie Campbell in UNITE.   Leaked documents seen by the BBC have shown that the government will once again delay the rollout of Universal Credit, with Esther McVey saying that a “small amount of people – maybe 10,000” will be moved onto the system in 2019. Despite the government’s plans to have Universal Credit fully up-and-running […]

Watchdogs’ Concern Over Government Refusal To Act On UN Rights Reports

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  By John Pring in Disability News Service.   Four equality and human rights watchdogs have heavily criticised the government for its failure to address the serious concerns raised in a “damning” UN report on the rights of disabled people across the UK. A year on from the report by the UN’s committee on the rights […]

Esther McVey: Disabled People Will Get “Significantly More” On Universal Credit

Esther Mcvey

  by Katie Campbell in UNITE.   Esther McVey has told the BBC that one million disabled people will get “significantly more on Universal Credit,” despite previous evidence showing that disabled people face losing out on up to £4,000 every year under the new system. Speaking to the BBC yesterday, McVey admitted that the Tories have made some “tough […]

Almost Impossible To Get A Fair Pip Assessment

benefits

  From The Guardian.   Ann Moore says the ‘health professionals’ often have little or no expertise in the medical condition or disability being assessed. Plus letters from Rev Paul Nicolson of Taxpayers Against Poverty, and from disabled war pensioner Mo Stewart. I fully empathise and sympathise with the article about Andrew McDonald (Top former civil servant lambasts ‘hostile’ disability […]

Tory Conference: Charity’s Silence On Universal Credit Deaths, Hours After Minister Announces £51m Funding

Benefits

By John Pring in Disability News Service.   A charity has refused to criticise the Department for Work and Pensions (DWP) over four deaths linked to universal credit, hours after a minister announced it would receive tens of millions of pounds to support claimants on the new benefit system. Work and pensions secretary Esther McVey […]

Plans For New Scottish Disability Support Assessments Set Out

Disability

  In BBC News.   Changes to the way assessments for disability support will be carried out under Scotland’s new social security agency have been announced at Holyrood. The new body is to take responsibility for a range of welfare benefits, including disability support. Ministers have set out plans for how assessments will be run […]

Dropping The Curtain On CFSAC

CFSAC

  BY MEADVOCACY ADVISORY-COMMITTEE.   The US federally chartered Chronic Fatigue Syndrome Advisory Committee (CFSAC) – formerly known as the Chronic Fatigue Syndrome Coordinating Committee – was established by the Secretary of Health and Human Services on September 5, 2002. Its purpose included advising and providing recommendations to the Secretary of Health and Human Services, through the […]

Scottish Lib Dems Pass Motion For ME, With Amendment

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  By Susan Cole in #MEAcion.   ME history was made this week in the historic capital of Scotland when delegates at the Scottish Liberal Democrats autumn conference voted to support conference motion SC5: Investing in ME – Recognition, Research, and Education. So it’s official, the motion, drawn up in consultation with #MEAction Scotland, is […]

If The Government Won’t Take ME Seriously Who Will ?

Nervous System

  By Lesley Scott in Third Force News.   What happens to patients’ rights when there is no accountability in the system? Myalgic encephalomyelitis (ME) is categorised by the World Health Organisation under diseases of the nervous system. The Scottish Government supports this categorisation and it underpins the current Scottish good practice statement on ME. […]

Councillors To Spend Day In Wheelchairs For Wheelchair Awareness Day

Wheelchair

  From The Skye Times.   Skye’s Councillors will spend a day entirely in wheelchairs for Wheelchair Awareness Day. Organised by the Skye and Lochalsh Access Panel, the event will take place in Broadford and Portree on Monday 27 August. The Councillors have given the day their full support and will spend the day trying a […]

I’ve Been Told To Wait Three Years For A Wheelchair That ‘Can Go Outside’

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  By Frances Ryan in The Guardian.   One of my abiding childhood memories was being given my first wheelchair. Until I was six, I had to resort to a large buggy, a mass of translucent plastic frames and ugly grey wheels. It was through the charity Whizz-Kidz that I finally got my first wheelchair, a streamlined […]

Minister Snubs DPOs – And ‘Breaches UN Convention’ – By Refusing Meeting

disability

By John Pring in Disability News Service.   The minister for disabled people is refusing to meet a coalition of disabled people’s organisations, in an apparent breach of the UN disability convention. The coalition wrote to Sarah Newton yesterday (Wednesday) to express its “deep disappointment and concern” about her refusal to meet them to discuss […]

The UK’s General Medical Council Just Threw 250,000 Disabled People Under A Bus

General Medical Council

By Steve Topple in The Canary.   A response from the General Medical Council (GMC) to hundreds of complaints has effectively abandoned 250,000 disabled people. It also demonstrates the GMC’s contempt for the patients it’s supposed to protect. Moreover, in dismissing patient’s concerns, it’s whitewashed what one MP believes could be the “biggest medical scandal of the 21st century”. […]

DWP Figures Provide Fresh Evidence To Explain PIP Claim Rejections

DWP Caxton House

  By John Pring in Disability News Service.   New figures show that Department for Work and Pensions (DWP) civil servants are questioning only a tiny proportion of the benefit assessment reports written by discredited government contractors Atos and Capita. Campaigners have been trying for months to secure evidence that would explain why such a […]

DWP Refuses To Pay £125 To Discover Number Of Disabled People In Full-Time Jobs

Disability

  By John Pring in Disability News Service.   Ministers are refusing to commission work that would cost just £125 and would show how many disabled people are in full-time paid employment, and how that number has changed under successive Tory-led governments. Ministers, including the current work and pensions secretary Esther McVey, have repeatedly boasted of […]

Benefits Calculator

Benefits

  From Age UK.   What is the benefits calculator? Our personalised benefits calculator can tell you if you’re potentially entitled to claim extra money, based on the information you provide – such as whether you’re single/in a couple, where you live or if you care for anyone. It’s easy to use, quick, free and all […]

Karina Hansen 8 (Updated): The Aftermath Continues

Valerie Eliot-Smith

  By Valerie Eliot-Smith.   GOOD NEWS: I originally published this post in June 2018. I am re-publishing it today (10 August) as there has been an encouraging development since then. Thank you to Bente Stenfalk (see below) for the updated information. Original post follows the update. UPDATE August 2018 On 9 July 2018, psychiatrist Dr Charlotte Emborg […]

Friends In Australia’s Parliament For People With ME And Chronic Fatigue Syndrome

Australia

  By Sasha Nimmo in ME Australia.   Three senators have formed Parliamentary Friends of Myalgic Encephalomyelitis (ME) and chronic fatigue syndrome (CFS) group in Australia’s federal parliament. The Parliamentary Friendship group is co-chaired by Western Australian Greens Senator Jordon Steele-John,  Tasmanian Liberal Senator Jonathan Duniam and Queensland Labor Senator Claire Moore. This group will provide a […]

The Monster Disease Medical Schools Don’t Mention

Llewelyn King

  By Llewellyn King in Inside Sources.   For 10 long years, I’ve been writing and broadcasting about Chronic Fatigue Syndrome, now called Myalgic Encephalomyelitis (ME). Like all chronic diseases, it’s brutally unfair to the afflicted. But ME also can claim to have been unfairly treated by doctors and medical researchers, the pharmaceutical giants, and the politicians […]

Esther McVey Loses In Court On Universal Credit – But Says She Will Still Fight Others

Esther Mcvey

  By Ros Wynne Jones in the Mirror.   The long waits for help under UC continue to drive impoverished families below the breadline. In May I wrote about the ­distressing case of two men – one dying and one disabled – fighting Esther McVey in the high court over cuts to their support due to Universal […]

The Children Left Bed-Bound By Fatigue

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  By Felicity Monk in the New Zealand Herald.   What do you do with a child who falls ill and is never again well enough to return to school? Felicity Monk reports for The Wireless on the illness striking down thousands of New Zealand children and teenagers. Seven years ago, Teresa’s* three children, then aged 9, […]

Blue Badge Parking Permits To Cover ‘Hidden Disabilities’ In England

access-bluebadge

  From BBC News.   Blue badge parking permits are to be made available for people in England with “hidden disabilities” such as autism or mental health problems. The Department for Transport said people with non-physical disabilities would have an equal right to free parking from next year. Currently the rules do not explicitly exclude […]

Esther McVey And Her Department Are Now Totally Out Of Control

DWP Caxton House

  By Steve Topple in The Canary.   Last year, the UN accused the Department for Work and Pensions (DWP) and successive governments of creating a “human catastrophe” for disabled people in the UK. Since then, the situation has seemingly got worse. The department is now out of control. But is the misery and torture the DWP […]

Watchdog’s ‘Issues Of Concern’ Over Regulator’s Treatment Of PIP Complaints

DisabledGo

From Disabled Go News.   A regulator has been told there are “issues of concern” about the way it deals with complaints against health and care professionals, including those who write dishonest benefit assessment reports. The Professional Standards Authority (PSA) agreed in January to look at concerns about the way regulators deal with complaints about […]

Why the Medical Research Grant System Could Be Costing Us Great Ideas

Research

    By Aaron E. Carroll in The New York Times.   The medical research grant system in the United States, run through the National Institutes of Health, is intended to fund work that spurs innovation and fosters research careers. In many ways, it may be failing. It has been getting harder for researchers to obtain grant support. A […]

Universal Credit IT System ‘Broken’, Whistle-Blowers Say

DWP Caxton House

  By Patrick Butler in The Guardian.   Universal credit is so riddled with design flaws and process faults that it is practically guaranteed to generate mistakes and delays that would push vulnerable benefit claimants into hardship, according to whistle-blowers. Service  centre workers have told the Guardian that glitches and errors in the “cobbled-together” system have […]

The Medical Community Is Changing Its Mind On Chronic Fatigue Syndrome. Why Aren’t Insurers ?

Brian Vastag

  By Steven Lubet and David Tuller in STAT News   Brian Vastag was enjoying a life that many people would envy. At age 41, he had achieved professional success as an award-winning health and science reporter for the Washington Post, covering important stories from around the world. That came to an end in July 2012, when he […]

Emerge Australia Welcomes $370,000 In Federal Funding

Australia

  From Mirage News.   Emerge Australia, the national organisation providing support, information and advocacy for people with Myalgic Encephalomyelitis (ME) / Chronic Fatigue Syndrome (CFS), has received $370,000 in Federal funding to support its work. It is the largest Federal funding that has been committed to a support organisation working in the ME/CFS space. CEO […]

MPs Raise Concerns With McVey Over ‘Stress And Poverty’ Caused By WRAG Cuts

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  By John Pring in Disability News Service. Cross-party MPs have raised a series of concerns with work and pensions secretary Esther McVey about the government’s treatment of disabled people on out-of-work benefits. Members of the Commons work and pensions select committee were questioning McVey (pictured) more than a year after her government introduced cuts of nearly […]

Mother Of Epileptic Boy Becomes First Person To Legally Enter UK With Cannabis Oil

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  By Benjamin Butterworth in INews.   The mother of a six-year-old epileptic boy has legally brought medicinal cannabis oil through the border in the first known successful attempt since the Government paved the way for reforms. Hannah Deacon was allowed to pass through London City Airport on Tuesday carrying a five-month supply of the […]

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