Politics

Advisor Says 30 Local Claimants With Terminal Cancer Had PIP Rejections Overturned

benefits

    By John Pring in Disability News Service.   A welfare rights advisor has described how at least 30 local benefit claimants with terminal cancer have had their claims rejected in the last year, with every one of the decisions later overturned by an appeal tribunal. In every case, the claimant has been terminally-ill […]

Precise.ly Chosen As Patient-Tracking Platform In ME/CFS Study

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By Linda Avey in prweb.   Precise.ly, Inc. has been selected to be the patient portal in a $40 million, five-year NIH-funded, multi-center study focused on the study of chronic fatigue syndrome (ME/CFS). It represents the first major research support for a condition that affects millions of Americans.   SAN FRANCISCO, (CALIF.) (PRWEB) OCTOBER 09, 2017 […]

Ian Lipkin & Simmaron To Collaborate In New NIH ME/CFS Research Center

Dr Ian Lipkin

  By Cort Johnson and Courtney Miller in Simmaron Research. (Dr Ian Lipkin pictured) “These important grants will provide a strong foundation for expanding research in ME/CFS, and lead to knowledge about the causes and ways to treat people affected by this mysterious, heartbreaking, and debilitating disease,” Dr. Francis S. Collins, Director of the NIH Simmaron […]

Trial By Error: NIH Grants $2.1 Million To UK Biobank !

David Tuller

  By David Tuller, DrPH   The National Institutes of Health is making a $2.1 million grant to the UK ME/CFS Biobank–a huge endorsement of this important project run by CureME and housed at the London School of Hygiene and Tropical Medicine. Here’s what the ME Association wrote on its website: “The funding represents the biggest ever single […]

Are PIP And ESA Assessments Working Well ?

Parliament

    From www.parliament.uk.   The Work and Pensions Committee launches a new inquiry on how the assessment processes for Employment Support Allowance (ESA) and Personal Independence Payments (PIP) are handled by Department for Work and Pensions contractors ATOS, Capita and Maximus, and how the application, assessment and appeals processes for these two benefits are working. Disparity between […]

Three NIH Funded ME/CFS Research Centers….And (What Else ?) A Controversy

research

  By Cort Johnson in Health Rising.   Almost two years after Dr. Collins announced that the NIH would reinvigorate ME/CFS, the NIH has finally provided funding for three research centers and one data center. Earlier this year the ME/CFS research community surprised by submitting no less than 10 applications, including one from a research […]

NIH Awards $10.6m Research Center Grant To The Jackson Laboratory For Study Of Chronic Fatigue Syndrome

Funding

    By Joyce Dall’Acqua Peterson in The Jackson Laboratory website.   As part of a major, multi-institutional, multidisciplinary assault against myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), a highly debilitating and poorly understood chronic disease, Jackson Laboratory (JAX) Professor Derya Unutmaz, M.D., has received a five-year grant totalling $10,553,732 from the National Institutes of Health. This Center will be […]

PIP Investigation: Welfare Expert Says Two-Thirds Of Appeals Involve Lying Assessors

benefits

    By John Pring in Disability News Service.   Welfare rights experts have produced evidence that backs up the findings of a Disability News Service (DNS) investigation into the lies told by healthcare professionals in their disability benefit assessment reports. Last week, the two-month investigation revealed how assessors working for the outsourcing companies Capita […]

Why Did It Take The CDC So Long To Reverse Course On Debunked Treatments For Chronic Fatigue Syndrome ?

CDC

  By Julie Rehmeyer and David Tuller in statnews.com.   For years, people with chronic fatigue syndrome have wrangled with the Centers for Disease Control and Prevention over information on the agency’s website about this debilitating illness. The website highlighted two treatments that became the de facto standards of care: a gradual increase in exercise and a form of psychotherapy […]

#MEAction Rejects The Findings Of The SMILE Trial Of The Lightning Process For Chronic Fatigue Syndrome

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    From #MEAction.   Trial Uses Flawed Methodology That Can Lead To False Positives Following the release of the results of the SMILE trial, Ben HsuBorger of ME Action said: “The SMILE trial of the Lightning Process, a known quack treatment, for ME/CFS, used unblinded treatment coupled with subjective, self-report outcomes. It illustrates that such serious […]

As Summer Ends, A Warning To NIH

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  By Adriane Tillman in #MEAction.   Johanna Kaiser, a person who has had ME for decades, sent this open letter over Labor Day to Dr. Walter Koroshetz, director of the National Institute of Neurological Disorders and Stroke (NINDS) and Dr. Francis Collins, director of National Institutes of Health (NIH). Staff member Adriane Tillman only posted the article.  Dear Dr. Walter Koroshetz and […]

UK Slammed For Media Portrayal Of People With Disabilities

Disability

  By Catholic News Agency.   A United Nations committee addressing the rights of disabled people has rebuked the U.K. for how people with disabilities are portrayed by the government and seen in the media, with one expert expressing concern for attitudes which may lead to euthanasia. “Disabled people being portrayed as parasites, living on social benefits, and […]

PIP: The Truth Is Out

benefits

  By Mik Scarlet in HUFFPOST.   On April 2013 the government introduced the Personal Independence Payment, a new so called “disability benefit” which would replace Disability Living Allowance. DLA itself was introduced in 1992, when the existing Mobility Allowance, which helped disabled people with the financial cost of getting around, and Attendance Allowance, designed to […]

An Entire State Goes “M.E.” In Congressional Breakthrough

Change

    By Cort Johnson in Health Rising.   An entire state goes “ME”. That’s never happened before. Courtney Miller of Simmaron, Emily Taylor of the Solve ME/CFS Initiative, MEAction and the USAWG worked together to enroll the entire Nevada Congressional delegation to put its total support behind increased funding for ME/CFS. This is notable not just […]

MPs To Hear Evidence On ‘Troubled’ Universal Credit Roll-Out

DWP Caxton House

  By Welfare Weekly.   MPs will today (Wednesday, 13th September 2017) hear evidence from food banks, housing groups, and others, on how the roll-out of Universal Credit is progressing and which elements of the new benefits system still require improvement. Universal Credit is replacing a number of existing social security benefits and tax credits […]

A Third Of Young People Wish They Had Grown Up In Their Parents’ Era

Growing Up

  By Pascale Hughes in iNews.   Among older generations, just 15 per cent said they would rather be a young person growing up today, while one in three millennials would forgo technological and social advances to have grown up in their parents’ era, according to new research. When 2,179 people aged between 16 and 75 were […]

DWP Spends £39m Defending Decisions To Strip Benefits From Sick And Disabled People

DWP Caxton House

  By Daniel Kraemer and Harriet Agerholm in The Independent.   Ministers have spent almost £40m in an “appalling” attempt to stop sick and disabled people receiving the financial help they are entitled to, The Independent can reveal. Freedom of Information requests have exposed how taxpayers’ money has been spent on futile legal battles to prevent vulnerable people receiving […]

Government Agrees To Review ‘Discriminatory’ Blue Badge Guidance

Disability Parking

    By John Pring in Disability News Service.   The government has agreed to review “discriminatory” guidance that has made it almost impossible for many disabled people whose mobility is affected by mental health conditions or autism to secure a blue parking badge. The pledge follows a legal challenge from a disabled person who […]

Disability Campaigners From Britain Tell The United Nations The Government Has Betrayed People In The UK

disability

    By Ben Glaze in The Mirror on 21 August 2017.   United Nations officials will hear evidence of how British ministers are breaching disabled people’s rights today. The UN’s Committee on the Rights of Persons with Disabilities is investigating the UK’s progress in implementing the UN Convention on the Rights of Disabled People. […]

Four In Five Unpaid Carers Socially Isolated Because Of Their Role

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    By Paul Gallagher in iNews.   Four in five unpaid carers feel lonely or socially isolated because of their role, a new poll suggests. The amount of people struggling to deal with caring rises to 86 per cent for those who provide care for 50 hours or more each week, according to a […]

Survey Suggests Chronic Fatigue In Canada Is ‘Even Worse Than We Thought’

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    From CTV News.   A new survey suggests chronic fatigue syndrome may be far more prevalent in Canada than previously thought, and more widespread than many more well-known conditions. The suggestion is based on a Statistics Canada survey in which respondents were asked whether their doctor had diagnosed them with chronic fatigue or […]

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