Politics

The NIH Is Thwarting Research On A Poorly Understood Yet Serious Condition

NIH

      By JENNIFER SPOTILA in statnews.com.   When I first developed myalgic encephalomyelitis in 1994, I had no idea that I would be just as sick 25 years later, or that there would still be limited scientific understanding of the disease and no effective treatments. Nor did I imagine that my career as a lawyer was over, and […]

Rudd Has Not Delayed Roll Out Of Universal Credit, DWP Confirms

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  By John Pring in Disability News Service.   The roll out of the government’s much-criticised universal credit benefit system has not been delayed and will proceed as planned, the Department for Work and Pensions (DWP) has confirmed. Reports at the weekend suggested that new work and pensions secretary Amber Rudd had decided on a […]

Officials Fail To Collect Data On People Wanting To Apply Offline For Online-Only Universal Credit

Universal Credit

  By Simon Rushton in iNews.   Officials behind Universal Credit are being criticised for failing to track data on people who want to apply offline. Universal Credit is the government’s first digital-only service, and claimants must apply online for the Department of Work and Pensions benefit. But there worries that the system is excluding […]

Not All Disabilities Are Visible……..

Invisible Illness

One of my favourite Christmas presents this year, a sticker for the car from my wife and daughter…… There is a need for a Government backed, nationwide TV and Radio educational campaign to raise awareness of Invisible Illnesses and Disabilities.    

Trial By Error: Australian Draft Report Seeks Comments

David Tuller

    By David Tuller, DrPH in Trial By Error. In an eagerly awaited draft report, an Australian advisory committee on ME/CFS has called for the development of up-to-date domestic clinical guidelines and an increase in biomedical research into the pathophysiology of the illness. The draft report, which could have a major impact on health policy […]

UN Day Of Disabled People: Government Could Face Court Over Universal Credit

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  By John Pring in Disability News Service.   The government could be forced into court to defend its failure to make the much-criticised universal credit benefit system accessible to disabled people. A parliamentary meeting held to mark the International Day of Persons with Disabilities (IDPD) on Monday – and to call for universal credit […]

Australia’s Health Minister Listening To People With ME

Australia

    From ME Australia. by Sasha Nimmo Australia’s Health Minister, Greg Hunt, listened to people with Myalgic Encephalomyelitis (ME), families, scientists and organisations. Minister Hunt had a second meeting with ME Australia, along with Prof Paul Fisher, head of microbiology at La Trobe University and Dr Heidi Nicholl, Emerge Australia on Thursday. ME Australia […]

More Than A Million Homes Will Be Cut Off From The New Fully Switchable Smart Meters

Smart-Meters

  By Sam Meadows in The Telegraph.   More than a million households may be unable to benefit from the new breed of fully switchable smart meters, it has emerged. The £11bn smart meter roll-out, promoted by celebrities including Kirstie Allsopp has seen more than 12 million installed, but has been dogged by issues of meters “going […]

DWP Admits Failing To Keep Track Of Disability Discrimination Claims By Its Own Staff

DWP Caxton House

By John Pring in Disability News Service. The government department responsible for running the Disability Confident employment scheme has admitted failing to keep track of how many complaints of disability discrimination are made by its own staff. The Department for Work and Pensions (DWP) repeatedly brags about its much-criticised scheme, which aims to help employers recruit […]

Almost Half Of Disabled People Fear Being Stripped Of Benefits For Being ‘Too Active’

disability

    By Rachel Wearmouth in The Huffington Post . ‘You feel that whatever you say may be taken out of context,’ says former Paralympian. Disabled people avoid exercise as they fear being stripped of much-relied on benefits for appearing “too independent”, campaigners say. New research, published by Activity Alliance, says that almost half (47%) […]

Trial By Error: Some Thoughts About NICE

David Tuller

  By David Tuller, DrPH. The UK’s National Institute for Health and Care Excellence (NICE), which develops clinical guidelines for a range of medical conditions, is currently selecting a committee to develop a new guidance for the illness it refers to as myalgic encephaloymyelitis/chronic fatigue syndrome (ME/CFS). The new guidance will replace one written in 2007, when […]

UN Warns Of Damage To “The Fabric Of British Society” As The State Turns On Its People

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  By Jack Peat in The London Economic.   Drastic cuts to social support and welfare risk damaging the very fabric of British society, a UN report has today revealed. Concluding his 12-day visit to the country the UN Special Rapporteur on extreme poverty and human rights, Philip Alston, said the UK Government’s policies are […]

9 Tips To Guide You Through A PIP Benefit Application

Benefits

By Jo Moss in A Journey Through The Fog.   We all know the anxiety inducing feeling of the dreaded brown envelope falling on your door mat. Being assessed, or reassessed for health and disability benefits, is both exhausting and scary. We are often made to feel we are faking it or exaggerating our symptoms. […]

The Triumph of Eminence-Based Medicine

Research Study

  By Brian Hughes in Not The Science Bit.   Lines are drawn A quarter of a million Britons have been diagnosed with myalgic encephalomyelitis (ME), the condition also known as chronic fatigue syndrome (CFS). ME/CFS is a severe debilitating illness that renders patients either temporarily or perennially immobile. Sufferers will have often led very active lives […]

Woman’s Fight To Stop Disabled People Travelling For Benefit Assessments

disability

  By Emily Hennings in This Is Local London.   Claudette Lawrence, 49, is an activist and campaigner who also suffers with myalgic encephalomyelitis (ME), which can cause extreme mental and physical exhaustion. She has set up the petition because she has recently come into contact with a lot of people who are having problems when it […]

Carol Monaghan Continues Fight For Parliamentary Debate On ME

Carol Monaghan SNP

This is the text of an email I’ve sent to York MPs to gain support for a Parliamentary Debate on ME. We are entering an extremely crucial period where NICE are reviewing their guidelines to potentially remove the harmful Graded Exercise Therapy (GET) as a recommended treatment for this illness. They are however loading their […]

Universal Credit Roll-Out Delayed – Again

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    By Katie Campbell in UNITE.   Leaked documents seen by the BBC have shown that the government will once again delay the rollout of Universal Credit, with Esther McVey saying that a “small amount of people – maybe 10,000” will be moved onto the system in 2019. Despite the government’s plans to have Universal Credit fully up-and-running […]

Watchdogs’ Concern Over Government Refusal To Act On UN Rights Reports

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  By John Pring in Disability News Service.   Four equality and human rights watchdogs have heavily criticised the government for its failure to address the serious concerns raised in a “damning” UN report on the rights of disabled people across the UK. A year on from the report by the UN’s committee on the rights […]

Esther McVey: Disabled People Will Get “Significantly More” On Universal Credit

Esther Mcvey

  by Katie Campbell in UNITE.   Esther McVey has told the BBC that one million disabled people will get “significantly more on Universal Credit,” despite previous evidence showing that disabled people face losing out on up to £4,000 every year under the new system. Speaking to the BBC yesterday, McVey admitted that the Tories have made some “tough […]

Almost Impossible To Get A Fair Pip Assessment

benefits

  From The Guardian.   Ann Moore says the ‘health professionals’ often have little or no expertise in the medical condition or disability being assessed. Plus letters from Rev Paul Nicolson of Taxpayers Against Poverty, and from disabled war pensioner Mo Stewart. I fully empathise and sympathise with the article about Andrew McDonald (Top former civil servant lambasts ‘hostile’ disability […]

Tory Conference: Charity’s Silence On Universal Credit Deaths, Hours After Minister Announces £51m Funding

Benefits

By John Pring in Disability News Service.   A charity has refused to criticise the Department for Work and Pensions (DWP) over four deaths linked to universal credit, hours after a minister announced it would receive tens of millions of pounds to support claimants on the new benefit system. Work and pensions secretary Esther McVey […]

Plans For New Scottish Disability Support Assessments Set Out

Disability

  In BBC News.   Changes to the way assessments for disability support will be carried out under Scotland’s new social security agency have been announced at Holyrood. The new body is to take responsibility for a range of welfare benefits, including disability support. Ministers have set out plans for how assessments will be run […]

Dropping The Curtain On CFSAC

CFSAC

  BY MEADVOCACY ADVISORY-COMMITTEE.   The US federally chartered Chronic Fatigue Syndrome Advisory Committee (CFSAC) – formerly known as the Chronic Fatigue Syndrome Coordinating Committee – was established by the Secretary of Health and Human Services on September 5, 2002. Its purpose included advising and providing recommendations to the Secretary of Health and Human Services, through the […]

Scottish Lib Dems Pass Motion For ME, With Amendment

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  By Susan Cole in #MEAcion.   ME history was made this week in the historic capital of Scotland when delegates at the Scottish Liberal Democrats autumn conference voted to support conference motion SC5: Investing in ME – Recognition, Research, and Education. So it’s official, the motion, drawn up in consultation with #MEAction Scotland, is […]

If The Government Won’t Take ME Seriously Who Will ?

Nervous System

  By Lesley Scott in Third Force News.   What happens to patients’ rights when there is no accountability in the system? Myalgic encephalomyelitis (ME) is categorised by the World Health Organisation under diseases of the nervous system. The Scottish Government supports this categorisation and it underpins the current Scottish good practice statement on ME. […]

Councillors To Spend Day In Wheelchairs For Wheelchair Awareness Day

Wheelchair

  From The Skye Times.   Skye’s Councillors will spend a day entirely in wheelchairs for Wheelchair Awareness Day. Organised by the Skye and Lochalsh Access Panel, the event will take place in Broadford and Portree on Monday 27 August. The Councillors have given the day their full support and will spend the day trying a […]

I’ve Been Told To Wait Three Years For A Wheelchair That ‘Can Go Outside’

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  By Frances Ryan in The Guardian.   One of my abiding childhood memories was being given my first wheelchair. Until I was six, I had to resort to a large buggy, a mass of translucent plastic frames and ugly grey wheels. It was through the charity Whizz-Kidz that I finally got my first wheelchair, a streamlined […]

Minister Snubs DPOs – And ‘Breaches UN Convention’ – By Refusing Meeting

disability

By John Pring in Disability News Service.   The minister for disabled people is refusing to meet a coalition of disabled people’s organisations, in an apparent breach of the UN disability convention. The coalition wrote to Sarah Newton yesterday (Wednesday) to express its “deep disappointment and concern” about her refusal to meet them to discuss […]

The UK’s General Medical Council Just Threw 250,000 Disabled People Under A Bus

General Medical Council

By Steve Topple in The Canary.   A response from the General Medical Council (GMC) to hundreds of complaints has effectively abandoned 250,000 disabled people. It also demonstrates the GMC’s contempt for the patients it’s supposed to protect. Moreover, in dismissing patient’s concerns, it’s whitewashed what one MP believes could be the “biggest medical scandal of the 21st century”. […]

DWP Figures Provide Fresh Evidence To Explain PIP Claim Rejections

DWP Caxton House

  By John Pring in Disability News Service.   New figures show that Department for Work and Pensions (DWP) civil servants are questioning only a tiny proportion of the benefit assessment reports written by discredited government contractors Atos and Capita. Campaigners have been trying for months to secure evidence that would explain why such a […]

DWP Refuses To Pay £125 To Discover Number Of Disabled People In Full-Time Jobs

Disability

  By John Pring in Disability News Service.   Ministers are refusing to commission work that would cost just £125 and would show how many disabled people are in full-time paid employment, and how that number has changed under successive Tory-led governments. Ministers, including the current work and pensions secretary Esther McVey, have repeatedly boasted of […]

Benefits Calculator

Benefits

  From Age UK.   What is the benefits calculator? Our personalised benefits calculator can tell you if you’re potentially entitled to claim extra money, based on the information you provide – such as whether you’re single/in a couple, where you live or if you care for anyone. It’s easy to use, quick, free and all […]

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