Claiming PIP And ESA: “Horrific And Inhumane”


  Author: Liam.Evans@turn2us.org.uk   The inquiry into Personal Independence Payment (PIP) and Employment and Support Allowance (ESA) has revealed testimonies of despair.   A Work and Pensions Committee inquiry into disability benefits has heard from more than 3,000 people despondent with the system. The inquiry into PIP and ESA has revealed countless experiences of severely disabled […]

Chronic Fatigue Syndrome (ME/CFS) Researcher And Patients Shine During NIH Call


  By Cort Johnson in Health Rising.   It’s great the NIH is doing telebriefings a couple of times a year to inform the chronic fatigue syndrome (ME/CFS) community of their progress.  The calls can be more or less interesting. This one was definitely on the more interesting side. NIH Intramural Study Proceeding on Pace Nath […]

Why Is The Government Waging A War Against Disabled People ?

Disability Dice

  By Peter Beresford in The Guardian.   A recent United Nations report on its inspection into the UK’s record on disabled people’s rights was described as a “17-page-long catalogue of shame” by one commentator, who wrote: Over the past seven years, cuts to benefits, social care, the legal system and local authority funding have effectively put decades of […]

ME Questions Put To Department Of Health

Soap Box

    Hi.  You might recall that I posted a few weeks ago to say that my MP was writing to the Department of Health on a couple of points on my behalf.   Julian Sturdy is my local MP and I’ve got him on board to help me on the ME Awareness front.   I received […]

The Female War Medic Who Refused To ‘Go Home And Sit Still’

Elsie Inglis

  By Steven Brocklehurst BBC Scotland News.   When Elsie Inglis asked the War Office if female doctors and surgeons could serve in front-line hospitals in World War One she was told ‘my good lady, go home and sit still’. Elsie, a pioneering Edinburgh doctor who had already become well-known as a champion of women’s health, […]

You Must Remember This: Casablanca At 75 – Still A Classic Of WWII Propaganda


    By Stephen McVeigh in The Conversation.   Casablanca, which brought together the combined star-power of Humphrey Bogart and Ingrid Bergman, remains one of the best-loved movies ever produced in Hollywood. But the film, which hit the silver screen on November 26 1942, is more than just a love story set in Morocco. Released in the […]

A Movie David Goes Against A Goliath Of A Disease

Jennifer Brea

    By Llewellyn King, in Huffpost.   The movie is called “Unrest.” The unrest of the title is one of the many symptoms of Myalgic Encephalomyelitis, also known as Chronic Fatigue Syndrome, often expressed as ME/CFS. It is at one level a touching love story and at another, where its real purpose lies, a cry […]

What Really Killed Prince Albert ?

Prince Albert

    By Derek Gatherer in The Conversation.   Spoiler alert. Those following ITV’s epic costume drama, Victoria, starring Jenna Coleman and Tom Hughes, should look away now – unless you want to know what happens to Albert… It was Queen Victoria’s darkest day. On December 21, 1861, her husband of 21 years, Prince Albert, died at […]

Debate In Parliament The Lack Of An Effective Policy For The Treatment Of M.E.


    This is a renewed Petition as the previous one was cancelled due to the election taking place.   Myalgic Encephalomyelitis (ME) means “muscle pain plus inflammation of the brain/spinal cord”, a chronic neurological illness, but “the majority of patients presenting with symptoms of ME in the UK are still referred to psychotherapists for […]

Why People Believe In Conspiracy Theories – And How To Change Their Minds


    By Mark Lorch in The Conversation.   I’m sitting on a train when a group of football fans streams on. Fresh from the game – their team has clearly won – they occupy the empty seats around me. One picks up a discarded newspaper and chuckles derisively as she reads about the latest […]

Julian Sturdy MP Contacts Health Secretary On ME

Julian Sturdy

Just to let you know that my local York MP Julian Sturdy has tabled the following parliamentary written questions to the Health Secretary:   “To ask the Secretary of State for Health what actions the government is taking to raise awareness of Myalgic Encephalomyelitis (ME) among (i) healthcare professionals and (ii) the general public.   […]

2017 Ramsay Award Program Results


  A Letter from President Carol Head in Solve ME/CFS Initiative.   With Dr. Nahle, I’m delighted to announce our 2017 Ramsay Award Program recipients. As you may know, the Ramsay Award program is a foundation of SMCI’s commitment to explore all worthy research avenues. We’re proud that our organization is operating at the center […]

Chronic Fatigue Syndrome / Myalgic Encephalitis


  From The Parliament of New South Wales.   Mr GREG APLIN ( Albury ) ( 20:15 ): I have witnessed the damage wrought on healthy, happy individuals by chronic fatigue syndrome. I have also witnessed the additional harm caused by health professionals and ordinary people who regard it as “all in the mind”. This is a one-two hit that delivers […]

I Take Your Calls To The DWP About Universal Credit – I Feel Your Heartache


  By an anonymous author in The Guardian.   I’m a call handler for the DWP, where empathy isn’t a trait that’s valued very much. But I’ve been on benefits and I know how difficult it can be looking for work while trying to survive on a minimal amount of money. I wish I was […]

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