Politics

The Medical Community Is Changing Its Mind On Chronic Fatigue Syndrome. Why Aren’t Insurers ?

Brian Vastag

  By Steven Lubet and David Tuller in STAT News   Brian Vastag was enjoying a life that many people would envy. At age 41, he had achieved professional success as an award-winning health and science reporter for the Washington Post, covering important stories from around the world. That came to an end in July 2012, when he […]

Emerge Australia Welcomes $370,000 In Federal Funding

Australia

  From Mirage News.   Emerge Australia, the national organisation providing support, information and advocacy for people with Myalgic Encephalomyelitis (ME) / Chronic Fatigue Syndrome (CFS), has received $370,000 in Federal funding to support its work. It is the largest Federal funding that has been committed to a support organisation working in the ME/CFS space. CEO […]

MPs Raise Concerns With McVey Over ‘Stress And Poverty’ Caused By WRAG Cuts

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  By John Pring in Disability News Service. Cross-party MPs have raised a series of concerns with work and pensions secretary Esther McVey about the government’s treatment of disabled people on out-of-work benefits. Members of the Commons work and pensions select committee were questioning McVey (pictured) more than a year after her government introduced cuts of nearly […]

Mother Of Epileptic Boy Becomes First Person To Legally Enter UK With Cannabis Oil

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  By Benjamin Butterworth in INews.   The mother of a six-year-old epileptic boy has legally brought medicinal cannabis oil through the border in the first known successful attempt since the Government paved the way for reforms. Hannah Deacon was allowed to pass through London City Airport on Tuesday carrying a five-month supply of the […]

Australia Needs Lasting Consensus On NDIS Funding

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  From Probono Australia.   People with disability, their families, carers and advocates deserve the certainty of a National Disability Insurance Scheme which is sustainable, writes Bruce Bonyhady. Australia urgently needs a lasting consensus on the funding of the NDIS which builds trust in the disability sector, confidence in the Australian community and sustainability of […]

Charities Fail To Tell MPs About Clauses That ‘Prevent Them Attacking McVey And DWP’

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    By John Pring in Disability News Service.   Representatives of disability charities have given evidence to MPs about the impact of government social security reforms on disabled people, without disclosing that they signed contracts preventing them from attacking work and pensions secretary Esther McVey. Senior figures from Shaw Trust and the Disability Benefits […]

Parliamentary Debate On ME Research And Treatment

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  From Invest In ME Research.   A parliamentary debate on the research and treatment of Myalgic Encephalomyelitis (ME) secured by Carol Monaghan MP for Glasgow North West was held on Thursday 21 June 2018 at 1.30-4.30pm in Westminster Hall. The request for debate was raised with cross-party support at a Back Bench Committee Meeting […]

DWP Is Failing ‘Vulnerable’ Claimants Of Universal Credit, Says Watchdog

DisabledGo

  From Disabled Go News.   The Department for Work and Pensions (DWP) is failing to support “vulnerable” claimants and is unable to monitor how they are being treated under its new universal credit benefit system, according to an investigation by the public spending watchdog. The report by the National Audit Office (NAO) raises a string […]

Minister For Disabled People Caught Misleading MPs On Cuts To Support… Again

Sarah Newton MP

  By John Pring in Disability News Service.   The minister for disabled people has been caught misleading MPs – again – as she tried to defend her government’s repeated breaches of the UN disability convention. It was the second time in five months that Sarah Newton (pictured) has misled MPs in a House of […]

Atos And Capita Win PIP Contract Extension ‘Because DWP Is Chained To A Corpse’

DisabledGo

From Disabled Go News.   The government’s decision to extend the contracts of two discredited companies that carry out disability benefit assessments has been branded “appalling”, “shocking” and “a complete con”. The move has also been criticised by the Scottish government. Sarah Newton, the minister for disabled people, told MPs in a written statement this week that […]

“Listened To But Were We Heard ?” The NICE Guidelines Scoping Workshop

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  From #MEAction.   On 25th May 2018, NICE held an engagement workshop with stakeholders, looking at the draft scope for the new guideline on ME/CFS. This is the second workshop held by NICE in which stakeholders were given a chance to influence the development of the new guidelines. The draft scope will be amended […]

DWP Should Think Again On ESA Back Payments And Offer Compensation

DWP Caxton House

  From My Disability Matters.   The Department for Work and Pensions (DWP) should reconsider its decision to offer only a partial backpayment of the money owed to 70,000 disabled people who for years were not receiving the correct level of out-of-work benefits, MPs have heard. One Conservative member of the public accounts committee, Anne […]

Application In Parliament For Debate On ME

Parliament

  Below is a link to an application put forward today in Parliament to have ME debated in the main chamber.   This was put forward by Carol Monaghan MP, and supported by York MP’s, Julian Sturdy and Rachael Maskell.     Link to Parliamentary Application

What Lies Beneath England’s Allegiances And Rivalries ?

England

  By Mark Easton in BBC News.   Beneath the veneer of national identity, England is an elaborate tapestry of allegiances and rivalries. For centuries, bureaucrats have drawn lines on the map without understanding the invisible ley lines of belonging that criss-cross the English countryside. There are deep loyalties to ancient counties, proud cities and […]

Public Meeting On Flood Defences In Fulford

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  A public meeting will be held next week for local residents to hear more about the plans for flood defences in Fulford. This follows on from a successful campaign led by Liberal Democrat ward councillor, Cllr Keith Aspden, and local residents, which secured a total of £500,000 to be spent on additional flood defences […]

Judges Just Forced The DWP To Review The Benefit Claims Of Countless Disabled People

Disability Dice

  By Steve Topple in The Canary.   A panel of judges has backed the Department for Work and Pensions (DWP) into a corner. So much so that it’s being forced to review the benefit claims of countless disabled people. Another defeat for the DWP On Wednesday 30 May, the legal firm Garden Court North […]

An MP Is Calling For A Debate Into One Of The ‘Biggest Medical Scandals’ Of The 21st Century

Carol Monaghan SNP

  By Steve Topple in The Canary.   A Scottish National Party (SNP) MP is calling for a debate into the controversy surrounding a disease she thinks will be one of the “biggest medical scandals of the 21st century”. Calling for a debate Glasgow North West MP Carol Monaghan has launched an early day motion in parliament […]

The Truth About NHS Research Funding That Should Shame The Government

Funding

  By Steve Topple in The Canary.   A parliamentary question from an SNP MP has forced the government to reveal some disturbing facts about its funding for research into a chronic disease. But when put together with other figures, it reveals a crisis in an area of UK healthcare. A chronic disease Glasgow North West MP […]

ESA Sanctions Are Counter-Productive And Dangerous, MPs Are Told

DWP Caxton House

  By John Pring in Disability News Service.   Imposing benefit sanctions on disabled people is counter-productive, ineffective and “probably too dangerous”, a trio of experts have told MPs. The Commons work and pensions committee also heard that the failure of the Department for Work and Pensions (DWP) to research the impact of its sanctions […]

Belle And Sebastian’s Stuart Murdoch To Join Campaigners Marking ME Awareness Day

Stuart

  By Catriona Webster in The Sunday Post.   BELLE and Sebastian frontman Stuart Murdoch will call on people to “make a noise” to help improve the lives of at least 20,000 Scots living with myalgic encephalomyelitis (ME). The lead singer of the indie band, who has lived with the condition most of his adult life, […]

Clifford’s Tower In York Turning Blue For M.E Awareness

Clifford's Tower York 9 May 2018

  The City of York is supporting ME awareness week, as a result of a recent Liberal Democrat motion to kick-start an awareness campaign on the issue. Over this week, York’s historic city walls and Clifford’s Tower will be lit up every night until the 13thMay to show support for The York ME Community, who […]

Researcher Disinterest Still Hampering Chronic Fatigue Syndrome (ME/CFS) Field

Funding

  By Cort Johnson in Health Rising.   A Freedom of Information Act (FOIA) reveals that during the three grant review panels from July 2017 to April 2018, chronic fatigue syndrome (ME/CFS) researchers applied for a total of 12 grants.  It was the lowest number of grant applications to the panel dating back at least […]

Mike Harley’s EU Marathons For Invest In ME Research – Denmark

Denmark

  By Mike Harley.   I spoke to Rebecca Hansen from the Danish ME Association ME Foreningen and severe ME patient Kamilla Thomsen.  Here’s what they told me about living with ME in Denmark. For Danish translations click here Rebecca Hansen​ ​ Can you give us an overview of what life is like for ME patients in […]

Greenland: How Rapid Climate Change On World’s Largest Island Will Affect Us All

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  By Kathryn Adamson in The Conversation.   The largest wildfire ever recorded in Greenland was recently spotted close to the west coast town of Sisimiut, not far from Disko Island where I research retreating glaciers. The fire has captured public and scientific interest not just because its size and location came as a surprise, but also because it is […]

What Does The New Financial Year Mean For Me ?

Benefits

  From Independent Age.   These are the main changes you need to know about for the start of the new financial year (1 April) and tax year (6 April), including changes to State Pension and benefit rates. The figures listed below are the weekly amounts you’ll get unless stated otherwise.   To read the rest […]

Almost A Third Of PIP Disability Assessments Are ‘Not Up To Scratch’

DisabledGo

  From Disabled Go News.   Almost a third of assessments for the PIP disability benefit are not fully up to scratch, figures reveal. The data shows the shocking full story behind the official figure that 95% of reports are “acceptable”. Atos and Capita have a target for 3% or fewer of their reports to […]

Picture Post: Nearly All Gone – Third Energy Empties Kirby Misperton Fracking Site

Fracking

  By Ruth Hayhurst in Drill Or Drop.   Drone pictures taken today of Third Energy’s Kirby Misperton fracking site in North Yorkshire show that the site has now been cleared. Third Energy told local people last week that is was releasing the frack spread after the contractor wanted to use it in Europe. Equipment has gradually […]

BBC One To Broadcast Live From York Next Weekend – And You Can Take Part

Nicky Campbell

  From YorkMix.   The big issues of the day are to be debated live on TV in York this weekend – and you can be a part of it. Discussion show The Big Questions will come live from Manor CE Academy between 10am-11am on Sunday (April 8). Hosted by Nicky Campbell, the programme debates moral, ethical and religious issues. A […]

Underpaid Disability Claimants To Receive Up To £20,000

DWP Caxton House

  By Patrick Butler in The Guardian.   Tens of thousands of severely disabled and ill claimants are set to receive backdated payments of up to £20,000 after being wrongly underpaid for years by social security officials, the government spending watchdog has revealed. An estimated 70,000 claimants were underpaid about £340 m between 2011 and 2014 after […]

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