Underpaid Disability Claimants To Receive Up To £20,000

DWP Caxton House

  By Patrick Butler in The Guardian.   Tens of thousands of severely disabled and ill claimants are set to receive backdated payments of up to £20,000 after being wrongly underpaid for years by social security officials, the government spending watchdog has revealed. An estimated 70,000 claimants were underpaid about £340 m between 2011 and 2014 after […]

Queen Elizabeth And Imphal Barracks: MOD Commit To Exploring Opportunities For Retaining Civilian Posts

Imphal Barracks

  By Joe Penny from the York Liberal Democrats website.   In a recent letter from Tobias Ellwood MP, the Ministry of Defence (MOD) have openly committed to working with the Council to explore potential opportunities for retaining civilian posts in York, despite the closures of Queen Elizabeth and Imphal Baracks. Tobias Ellwood MP, the […]

The Mainstream Medical Community Just Declared War On People Living With ME


  By Steve Topple in The Canary.   The publication of a study into what an MP called one of the “biggest medical scandals of the 21st century” has sparked a war of words between areas of the medical and science communities. Caught in the crossfire are between 17 and 24 million disabled people worldwide, on whom critics of […]

York Lib Dems Motion To Raise Awareness Of ME In York Passes Through Council Unanimously !

Lib Dem

On the evening of Thursday 22 March, Cllr Runciman proposed the Liberal Democrat motion to raise ME Awareness in York.  This was passed through council unanimously ! I would like to thank all in council who listened to my support of the motion and Cllr Runciman and her staff for getting this through.

Disabled Boy Shows Why People Parking On Pavements Are Being Selfish


    By Kate Buck in METRO.   A wheelchair-bound nine-year-old’s journey to school takes four times longer than it should because drivers are selfishly parking their car on the pavements. It should take 10 minutes for Josh Carter to get to school using his electric wheelchair. But when cars are parked on the curb, […]

55 Reasons Why NICE Must Recommend A Home Visiting, Biomedical Service, For People With Severe Myalgic Encephalomyelitis


  By Stonebird. People with Severe and Very Severe ME are not safe within the current health system; this is not an exhaustive list by any means : 1. It is virtually impossible for the most severely affected to travel to a clinic or a hospital. 2. It is extremely difficult to find a knowledgeable […]

How To Future-Proof The NHS – Copy The Bank Of England


    By Anne Marie Rafferty and Jonathan Grant in The Conversation.   Faced with an ageing population and funding pressures, fresh thinking is needed to brace the NHS for what lies ahead. Perhaps the answer to some of the impending problems in health policy can be solved with a relatively old idea adapted from the world of monetary […]

Trial By Error: The Australian Situation, And Professor Crawley’s New Position

David Tuller

  By David Tuller, DrPH.   So I arrived in Melbourne on Wednesday afternoon. I’ll be in Australia for several weeks for meetings, interviews and general information-gathering. I’ll post occasionally, but some of the information might be for future blogs and stories. I’ve conducted a Q-and-A about the general situation in the country with Penelope […]

Trial By Error: The Dutch Review; My Trip; Bristol’s Silence


  By David Tuller, DrPH.   And now some potentially good news from the Netherlands. Two years ago, the Dutch parliament asked the Health Council—an independent scientific advisory body—to review the state of evidence related to the illness generally called chronic fatigue syndrome in the Netherlands. That review was to include the evidence for rehabilitative […]

Victories For People Appealing For Disability Benefit Reach Their Highest Rate Ever


    From Disabled Go News.   The victory rate for people appealing for disability benefit has reached its highest ever. Personal Independence Payment (PIP) assessments have been branded a “total failure” as 69% of people appealing them at a tribunal now win their case. That is the highest percentage success rate ever recorded since […]

Raising ME Awareness In York Through City Of York Council

York Council

You will be aware that I had a meeting with City of York Council on the subject of Raising ME Awareness.  I have received notification that the Lib Dem Group will be proposing a motion at the next full council to raise awareness of ME in York. There will also be a Press Release by […]

Authors Of Premier Medical Textbook Didn’t Disclose $11 Million In Industry Payments


  By Adam Marcus and Ivan Oransky in STAT News.   It’s a textbook that has graced the shelves of untold thousands of medical students going back decades. Harrison’s Principles of Internal Medicine, now in its 20th edition, is a must-read for medical students and young internists. It has been called “the most recognized book in all of medicine.” It’s also […]

Myalgic Encephalomyelitis. Unknown Cause. No Cure. New Hope.


By Lily Williams in ASBMB Today. Lizzie Mooney is 12 years old. She is tall for her age with long blonde hair. She likes to wear Chicago Bears pajama bottoms and a hoodie. She’s funny, making up games and teasing her siblings. Lizzie excels in reading and math. She spends time crafting and watches science […]

Trial By Error: Yesterday’s News From The CFS/ME Research Collaborative


  By David Tuller, DrPH.   Two pieces of news dominated yesterday’s announcement from the CFS/ME Research Collaborative: First, the group is narrowing its scope of activities to focus on promoting “the discovery of the biological mechanisms that underpin CFS/ME.”Second, Professor Esther Crawley is not only stepping down as deputy chair of the executive board but leaving […]

How Will Inflation Affect My State Pension ?


  By Paul Lewis in SAGA Magazine.   Every April, state pensions and benefits for older people are increased to help them pay for the rising cost of food, energy and other essentials. But this year the amount paid to around two million of the poorest pensioners will not keep up with rising prices, as […]

Good News: First Licence Granted to Treat Pain With Medicinal Cannabis


  From Your Daily Ideas.   License to treat pain with medicinal cannabis given the go ahead A license to treat chronic pain with medicinal cannabis has been granted here for the first time, it has emerged. A 3-month agreement was given the green light by the Department of Health to use Tetrahydrocannabinol (THC) people […]

How Big Pharma Is Corrupting The Truth About The Drugs It Sells Us


  By Kate Harveston / AlterNet.   Remember how appalled we felt as a society when we discovered that, for so long, we had been mistakenly taking Big Tobacco’s word that cigarettes are harmless? Rinse and repeat with lobbyists for Big Alcohol fear-mongering about legal weed. And again and again with a panoply of consumer-level commodities and goods. Nowadays we have […]

Westminster Hall Debate On The PACE Trial And Its Effects On People With ME: An Analysis Of The Response From Caroline Dinenage MP, Minster Of State For Care


  By Robert Saunders in #MEAction.   On the 20 February 2018 a debate was held in the Palace of Westminster (UK) on the PACE trial and its effects on people with ME. (See #MEAction summary.) Carol Monaghan MP, who secured the debate, raised many valid and important concerns, as did several MPs who intervened during […]

Tory Peer Attacks McVey Over ‘Litany Of Inaccuracies’ On Motability


From Disabled Go News.   A Tory peer has accused work and pensions secretary Esther McVey of making a series of untrue statements about the Motability car scheme to fellow MPs. Lord Sterling, who co-founded Motability in 1977, has told McVey in a letter that he found the “litany of inaccuracies” in the comments made […]

Mike’s EU Marathons For Invest In ME Research – Malta

Mike Malta

    By Mike Harley.   I made contact with the Malta ME, CFS and Fibromyalgia Alliance before flying out for number 15 of 28, here’s what they told me about life in Malta with ME.  I had lots of great support from the group and they managed to get the challenge featured in Lovin Malta alongside the coverage I managed […]

ME Research To Receive £90,000 Funding Boost


  By Catriona Webster in The Sunday Post.   Funding of £90,000 has been announced for research into the causes, diagnosis and treatment of a little-understood illness that blights the lives of at least 20,000 Scots. The money will fund a new PhD studentship focused on improving understanding of Myalgic Encephalomyelitis (ME). ME, sometimes known as […]

The Puzzle Solver – A Researcher Changes Course To Help His Son

Whitnet Dafoe

  By Tracie White in Stanford Medicine.   For three years, Whitney Dafoe’s world has been a darkened room at the end of a hallway in the back of his childhood home. An insidious disease, one with no known cause or cure, has slowly stolen his life from him, turning his body into a prison. […]

‘Muddle’ And ‘Confusion’ Over DWP’s 1.6 Million PIP Reviews

DWP Caxton House

  From My Disability Matters.   The Department for Work and Pensions (DWP) is causing “muddle” and “confusion” by refusing to clarify which disabled people will have their claims re-examined through its mammoth programme of disability benefit reviews. Sarah Newton, the minister for disabled people, announced last week that DWP would review 1.6 million personal independence payment […]

PACE Trial: People With ME


  From The House of Commons Hansard. [Mr Philip Hollobone in the Chair]  11.00 am Carol Monaghan (Glasgow North West) (SNP) I  beg to move, That this House has considered the PACE trial and its effect on people with ME. It is a pleasure to serve under your chairmanship, Mr Hollobone. “The doctor doesn’t see me crawl […]

Trial By Error: A Letter To BMJ Open

David Tuller

  By David Tuller, DrPH.   Three weeks ago, Professor Racaniello e-mailed a letter of concern to Archives of Disease in Childhood about its recent study of the Lightning Process as a treatment for ME/CFS in kids. The journal’s editor, Dr. Nick Brown, answered within an hour, assuring Professor Racaniello that he took the matter seriously and that the […]

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