Raising Funds For ME Research

A Movie David Goes Against A Goliath Of A Disease

Jennifer Brea

    By Llewellyn King, in Huffpost.   The movie is called “Unrest.” The unrest of the title is one of the many symptoms of Myalgic Encephalomyelitis, also known as Chronic Fatigue Syndrome, often expressed as ME/CFS. It is at one level a touching love story and at another, where its real purpose lies, a cry […]

Fund Update For COFE B-Cell/Rituximab Research


  From Invest in ME Research.   Invest in ME Research has now reached the target set for the B-cell/rituximab fund. This is another major target reached and is a wonderful achievement by dedicated supporters and friends across the world. The total of funds raised or pledged for B-cell/rituximab projects is £520,000. From this the […]

2017 Ramsay Award Program Results


  A Letter from President Carol Head in Solve ME/CFS Initiative.   With Dr. Nahle, I’m delighted to announce our 2017 Ramsay Award Program recipients. As you may know, the Ramsay Award program is a foundation of SMCI’s commitment to explore all worthy research avenues. We’re proud that our organization is operating at the center […]

Chronic Fatigue Syndrome / Myalgic Encephalitis


  From The Parliament of New South Wales.   Mr GREG APLIN ( Albury ) ( 20:15 ): I have witnessed the damage wrought on healthy, happy individuals by chronic fatigue syndrome. I have also witnessed the additional harm caused by health professionals and ordinary people who regard it as “all in the mind”. This is a one-two hit that delivers […]

Three NIH Funded ME/CFS Research Centers….And (What Else ?) A Controversy


  By Cort Johnson in Health Rising.   And then there were three. Almost two years after Dr. Collins announced that the NIH would reinvigorate ME/CFS, the NIH has finally provided funding for three research centers and one data center. Earlier this year the ME/CFS research community surprised by submitting no less than 10 applications, […]

Mike’s EU Marathons – Slovenia

Mike Harley Luxembourg 27 May 2017

  By Mike Harley.   SLOVENIA I talked to a number of patients within the only Slovenia ME/FM facebook group (500 members) about their experiences living with ME & FM in Slovenia, here’s what they told me….. How do doctors in Slovenia perceive ME? Some are professional but others are very unprofessional. The result seems […]

October 2017 Research 1st – Dr. Nahle Letter


    From the Solve ME/CFS Initiative.   Dear Friends, On Saturday, October 14th, we held our annual Discovery Forum in Washington, DC. The forum, now in its second year, brought together leaders with affiliations in academia, biotech, government, research, and clinical settings. The driving concept of the forum was to be disrupt the status […]

Solving The Mystery Of Chronic Fatigue


    By Matt McMillen in Webmd.   It is a very complex, very real physical disease, and one that for years has caused uncertainty, confusion and even dismissal by many medical professionals. But now, thanks to a new, multi-year grant, there is hope for a better understanding and treatment for chronic fatigue syndrome, or CFS. In […]

Mike’s EU Marathons – Amsterdam Report

Mike Amsterdam

    From Mike Harley’s EU Marathons Website.   Ahead of my trip to Amsterdam I’d made contact with a number of Dutch patient groups and associations who had all been very interested in supporting my challenge.  I interviewed M.E patients Anil and Frank along with campaigner and carer Rob, click here to read what they had […]

Precise.ly Chosen As Patient-Tracking Platform In ME/CFS Study


By Linda Avey in prweb.   Precise.ly, Inc. has been selected to be the patient portal in a $40 million, five-year NIH-funded, multi-center study focused on the study of chronic fatigue syndrome (ME/CFS). It represents the first major research support for a condition that affects millions of Americans.   SAN FRANCISCO, (CALIF.) (PRWEB) OCTOBER 09, 2017 […]

Ian Lipkin & Simmaron To Collaborate In New NIH ME/CFS Research Center

Dr Ian Lipkin

  By Cort Johnson and Courtney Miller in Simmaron Research. (Dr Ian Lipkin pictured) “These important grants will provide a strong foundation for expanding research in ME/CFS, and lead to knowledge about the causes and ways to treat people affected by this mysterious, heartbreaking, and debilitating disease,” Dr. Francis S. Collins, Director of the NIH Simmaron […]

Bottom Of The Ramp

Research Funding

  From The Occupy ME Blog.   In aggregate, 2017 turned out to be the biggest year of ME/CFS funding at NIH ever. But when I scratched the surface, I found bad news buried within the superficially good news. We are still at the bottom of the funding ramp that Dr. Collins promised us, and […]

Raising Funds For Invest In ME Research – At No Cost To You !


An easy way to raise funds for Invest in ME Research without it costing you a penny. Who says you don’t get owt for nowt ? There are over 3,000 retailers at GoRaise who will donate to Invest in ME Research every time you shop with them via our link at the top of this […]

Trial By Error: NIH Grants $2.1 Million To UK Biobank !

David Tuller

  By David Tuller, DrPH   The National Institutes of Health is making a $2.1 million grant to the UK ME/CFS Biobank–a huge endorsement of this important project run by CureME and housed at the London School of Hygiene and Tropical Medicine. Here’s what the ME Association wrote on its website: “The funding represents the biggest ever single […]

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