Raising Funds For ME Research

Royal Parks Half Marathon

detail of the legs of runners at the start of a marathon race

  From Invest in ME Research.   Invest in ME Research have secured FIFTEEN places in the Royal Parks Half Marathon on Sunday 14th October 2018. This will be another great opportunity for the charity to raise awareness of its strategy of funding high-quality biomedical research and the development of a UK/European Centre of Excellence for ME – […]

The Music4ME Project

Music4ME - Copy

  An album of original songs and poetry composed and performed by people with M.E. from all over the world, will be released on ME Awareness Day, 12 May 2018. They may have been singers, performers, writers or musicians before they became ill and still have so much to give but are now too ill […]

Trial By Error: A Post About Andrew Lloyd

David Tuller

  By David Tuller, DrPH.   I know folks are eager to hear more about what I’m learning in Australia. I’m finding it challenging to have meetings, prepare for talks, conduct interviews, promote the crowdfunding, keep up with my BMJ Open correspondence, and also write posts about what’s happening here. It will take a bit of time […]

Mike’s EU Marathons For Invest In ME Research – Austria

Austria

  AUSTRIA I’ve interviewed 3 people with ME in Austria who have given me their account of life there with the illness. How did you get ill and how were you diagnosed? Sebastian:  Probably following an EBV infection at elementary school age. Sonja:  I had neuroborreliosis from 2011-2014, after which I was fine for 1 year. When […]

2018 Budget Gives NIH Big Boost – ME/CFS CDC Program Spared – Insurance Markets Not Stabilized

Cort_Johnson

  By Cort Johnson in Phoenix Rising.   NIH Budget Grows for Third Year in a Row For the past two years Donald Trump has tried to cut the NIH budget significantly but NIH spending has bipartisan support and the 2018 budget resolution increased NIH funding significantly (once again). – about 10% or $3 billion […]

Higher Prevalence Of “Low T3 Syndrome” In Patients With Chronic Fatigue Syndrome: A Case–Control Study

Research

  By Begoña Ruiz-Núñez, Rabab Tarasse, Emar F. Vogelaar, D. A. Janneke Dijck-Brouwer, and Frits A. J. Muskiet in Frontiers Media.   Chronic fatigue syndrome (CFS) is a heterogeneous disease with unknown cause(s). CFS symptoms resemble a hypothyroid state, possibly secondary to chronic (low-grade) (metabolic) inflammation. We studied 98 CFS patients (21–69 years, 21 males) and 99 age- and sex-matched […]

Trial By Error: The Australian Situation, And Professor Crawley’s New Position

David Tuller

  By David Tuller, DrPH.   So I arrived in Melbourne on Wednesday afternoon. I’ll be in Australia for several weeks for meetings, interviews and general information-gathering. I’ll post occasionally, but some of the information might be for future blogs and stories. I’ve conducted a Q-and-A about the general situation in the country with Penelope […]

Seeking An Elusive Cure

Ithaca College

  By Matt Butler in Ithaca Times.   Two professors from Cornell University and Ithaca College are combining on a study taking on one of the world’s strangest ongoing medical phenomena, a disease that affects more than a million people in the United States yet largely remains a confounding mystery.  Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, commonly […]

Myalgic Encephalomyelitis. Unknown Cause. No Cure. New Hope.

ME

By Lily Williams in ASBMB Today. Lizzie Mooney is 12 years old. She is tall for her age with long blonde hair. She likes to wear Chicago Bears pajama bottoms and a hoodie. She’s funny, making up games and teasing her siblings. Lizzie excels in reading and math. She spends time crafting and watches science […]

Trial By Error: News About My Plans

David Tuller

  By David Tuller, DrPH.   So I’ve been asked about my plans after June 30th, which is the end of the period covered by last year’s crowdfunding campaign. There’s been significant progress since I launched that effort. Among other developments, the CDC dropped its recommendations for CBT and GET, NICE decided to withdraw its preliminary […]

Raising Awareness Of ME In The Heart Of London – The Royal Parks Half Marathon

Run

  From Invest in ME Research.   Invest in ME Research have secured FIFTEEN places in the Royal Parks Half Marathon on Sunday 14th October 2018. This will be another great opportunity for the charity to raise awareness of its strategy of funding high-quality biomedical research and the development of a UK/European Centre of Excellence for ME – […]

Mike’s EU Marathons For Invest In ME Research – Malta

Mike Malta

    By Mike Harley.   I made contact with the Malta ME, CFS and Fibromyalgia Alliance before flying out for number 15 of 28, here’s what they told me about life in Malta with ME.  I had lots of great support from the group and they managed to get the challenge featured in Lovin Malta alongside the coverage I managed […]

Removing Isolation From Young People With ME

invest

  Background Invest in ME Research concentrates much effort on finding, funding and facilitating biomedical research into myalgic encephalomyelitis (ME) as this, we believe, provides the only means to resolve the situation in which millions of people find themselves. A disease such as ME presents many challenges to a patient and to a family. It […]

ME Research To Receive £90,000 Funding Boost

research1

  By Catriona Webster in The Sunday Post.   Funding of £90,000 has been announced for research into the causes, diagnosis and treatment of a little-understood illness that blights the lives of at least 20,000 Scots. The money will fund a new PhD studentship focused on improving understanding of Myalgic Encephalomyelitis (ME). ME, sometimes known as […]

Ben Runs 4 ME – The Malta Marathon

Ben in Malta

    Marathon number 11 done at the beautiful Malta Marathon 2018! We started up in ancient Mdina and ran an overlapping first half of the course through the amazing countryside before turning towards the coast. After passing through a few small villages we arrived at the walled city of Valetta, the European Capital of […]

The Puzzle Solver – A Researcher Changes Course To Help His Son

Whitnet Dafoe

  By Tracie White in Stanford Medicine.   For three years, Whitney Dafoe’s world has been a darkened room at the end of a hallway in the back of his childhood home. An insidious disease, one with no known cause or cure, has slowly stolen his life from him, turning his body into a prison. […]

The Fight That Follows Pain And Prejudice

Carol Head

  From MS Blog Magazine.   More than four decades ago, while a high school junior in Columbus, Indiana, I decided I wanted to run track. But I was told that girls were not allowed to compete in sports. Angry and confused—why can’t girls do sports?—I fought for and eventually won the right to start […]

Mike Harley’s 28 EU Marathons For ME Awareness

Mike Barcelona

  My name is Mike Harley, I’m 35 and live in Bristol, UK and I’m running Malta Marathon as part of my challenge to run a marathon in every country in the EU (28 in total) to help raise money and awareness for biomedical research to find a cure for Myalgic Encephalomyelitis (M.E.) One of […]

Worldwide ME Talent Search !

Talent

  Hi Everyone.  I’m on the lookout for anyone in the ME Community, anywhere in the world who would like to lend their talents to raising ME Awareness. We are working on putting together an album consisting of Music, Poetry Readings and the like, so are on the lookout for singers, writers and musicians to […]

ME/Chronic Fatigue Syndrome

quadram-logo

  From The Quadram Institute.   Myalgic Encephalomyelitis (ME), also known as Chronic Fatigue Syndrome (CFS), is a severely debilitating condition that is thought to affect up to 250,000 people in the UK. Symptoms include widespread pain, extreme tiredness and an inability to concentrate. The causes of ME/CFS aren’t known, and there are no effective […]

13th Invest In ME Research International ME Conference

invest

  Background   As an independent UK charity with one objective being to find, fund and facilitate biomedical research into ME, IiMER has, since 2007, been championing the idea and the necessity of international collaboration in research into ME. The charity has promoted the development of a Centre of Excellence for ME for eight years […]

Ron Davis Talks On ME/CFS………And Texas Listens

Ron Davis

  By Cort Johnson in Health Rising.   Ron Davis was invited to the University of Texas to talk to the biological and bioengineering departments over two days. His long talk was putatively on developing affordable technologies that can be used by doctors, but it ended up being more than that. On the technology side, […]

OMF Receives $1 Million Donation

Ron Davis

  From The Open Medicine Foundation.   2018 is starting off to be a fantastic year. Today, OMF has received a $1 million donation! The Pineapple Fund has generously donated $1 million to OMF through Bitcoin, stating, “We chose the Open Medicine Foundation because ME/CFS is a serious and complicated condition that torments the life of its sufferers. […]

The York ME Community –  York Inter Company Fantasy Football League For The York ME TGA Shield

Winner

  The York ME Community runs an Inter-Company Fantasy Football League sponsored by TGA Mobility.  This is to help raise awareness of the illness that affects around 250,00 people in the UK, and 800 in the York area alone. Companies enjoyed a great 2016/17 season with Bransby Wilson coming out on top and winning the […]

How Disabled People Care For Each Other When Doctors Can’t

Caring

  By David M Perry in Pacific Standard.   In her new film Unrest, Jennifer Brea offers a groundbreaking look at the power of community where medicine falls short. When Jennifer Brea was 28 years old, she got sick and spiked a fever of 104.7 degrees. The fever went down, but soon she found herself […]

This New Documentary On Chronic Fatigue Syndrome Is A Must-See—And Not For The Reason You Think

Unrest

  By JE BANACH in Vogue.   Most of us only watch Netflix in bed. Jennifer Brea self-directed a documentary, now streaming on the service, from hers, offering up a stunning glimpse of life with myalgic encephalomyelitis, the mysterious illness better known as ME, or chronic fatigue syndrome. Brea was a Ph.D. student at Harvard University and a soon-to-be bride […]

NIH Striving To Avoid False Hope In Chronic Fatigue

Scientist using a microscope

  By Joyce Frieden, in, MedPage Today   BETHESDA, Md. — The National Institutes of Health is trying hard to bring real hope — not false hope — to patients with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), NIH director Francis Collins, MD, PhD, said during an exclusive interview with MedPage Today. “Five years ago … there was this big […]

Trial By Error: My Six-Month Review

David Tuller

  By David Tuller, DrPH.   This month is the start of the second half of my one-year crowdfunding commitment to keep reporting on ME/CFS, so I figured I should review what I’ve done so far, what I still hope to do, and what changes have taken place during the last six months. So, here […]

The York ME Community © 2015
Powered by Live Score & Live Score App