ME Research And Researchers

No Increased Risk Of Chronic Fatigue Syndrome After HPV Vaccination

Vaccination

    From Medical Press.   Girls receiving one or more doses of HPV vaccine have no greater risk of chronic fatigue syndrome/myalgic encephalomyelitis (CFS / ME) than unvaccinated girls. This is shown in a new major study from the Norwegian Institute of Public Health. The study is part of the national surveillance of the […]

Prevalence Of And Risk Factors For Severe Cognitive And Sleep Symptoms In ME/CFS And MS

Biomed Central

  From Biomed Central.  Authors as listed.   Abstract   Background There are considerable phenotypic and neuroimmune overlaps between myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and multiple sclerosis (MS). While the precise aetiologies of both MS and ME/CFS are unclear, evidence suggests that deterioration in cognitive function is widely prevalent in patients with either condition. Little […]

Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Diagnosis And Management In Young People: A Primer

Children

    From Frontiers in Pediatrics.  Authors as listed.   Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a complex disease that affects children and adolescents as well as adults. The etiology has not been established. While many pediatricians and other health-care providers are aware of ME/CFS, they often lack essential knowledge that is necessary for diagnosis […]

PACE-GATE: An Alternative View On A Study With A Poor Trial Protocol

Pace-Study-debunkedrev-330x330

    By Bart Stouten in Journal of Health Psychology.   Abstract The controversies surrounding the effectiveness of cognitive behavioural therapy and graded exercise therapy for chronic fatigue syndrome are explained using Cohen’s d effect sizes rather than arbitrary thresholds for ‘success’. This article shows that the treatment effects vanish when switching to objective outcomes. The preference […]

Failings Of The Establishment Organisations Toward People With ME

invest

  From Invest in ME Research.   It may have escaped the notice of some that the MRC is preparing to be absorbed into the new UK Research and Innovation (UKRI) and the existing CEO, Sir John Savill, will be winding down affairs until the transition is completed. Link to Appointment notification We have stated […]

The Last Major Disease To Be Studied ? Ron Davis of Stanford Thinks So

Ron Davis

    by Ayanna Monteverdi in menedelspod.com.   Let’s say you’re a biomedical researcher looking for a place to make your mark. You find out that there is still a major disease that affects more than 2 million people in the US, and we still know virtually nothing about this disease at the molecular level. […]

Viruses And CFS: Statements By Ron Davis And Bob Naviaux

Medicine Foundation

    From Open Medicine Foundation.   Ron Davis: There is a great deal of evidence that a variety of viruses can initiate ME/CFS, but it is less clear that a virus is involved in sustaining the disease. However, some patients may have a continuous problem with viruses, especially those viruses we always carry like […]

New Members Of The European ME Alliance

EMEA

  From the European ME Alliance Website.   Recently the European ME Alliance met in London for its 2017 Annual General Meeting. The events took place following the Invest in ME Research Conference week consisting of research Colloquium and Conference events. Amongst the other business at the meeting was the acceptance of applications from two […]

ME/CFS: A New Explanation – And Cure ?

Dr Eriksen

      From TraceyDuvall.com.   In a recent paper, Dr. Willy Eriksen proposes a complete explanation for the development, diversity, and persistence of myalgic encephalomyelitis, aka chronic fatigue syndrome (ME/CFS). He also suggests a possible cure. Seeing that this potentially groundbreaking research was attracting little attention, I contacted Dr. Eriksen and interviewed him via […]

Could We Finally Have A Definitive Biomarker For ME/CFS ?

research

  From ME Research UK.   It’s a recurring theme, but the diagnosis of ME/CFS is severely hampered by the lack of a test that can distinguish people with the illness from those without. This is a challenge in many diseases, but particularly in ME/CFS which affects so many different systems of the body. ME/CFS […]

Bias, Misleading Information And Lack Of Respect For Alternative Views Have Distorted Perceptions Of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome And Its Treatment

Nervous System

    By Ellen Goudsmit and Sandra Howes in Journal of Health Psychology.   Abstract The PACE trial is one of the most recent studies evaluating cognitive behavioural therapy and graded exercise therapy for myalgic encephalomyelitis/chronic fatigue syndrome. These interventions are based on a model which assumes that symptoms are perpetuated by factors such as misguided beliefs […]

The Scientist, The Seahorse And The Nanoneedle – Catching Up With Ron Davis On ME/CFS

Ron Davis

      By Cort Johnson in Health Rising.   The “most famous scientist in the world” visited Ron Davis and his End ME/CFS group a couple of weeks ago and gave the project a thumbs up. James Watson and Francis Crick produced arguably the single most important breakthrough in science in the past 100 […]

MTHFR Mutation, Symptoms And Diet: What You Need To Know

MTHFR

      By Joe in Diet vs Disease.   All humans have the same set of genes. Our differences come from the tiny variations in those genes. Those variations influence not only in how you look or behave different to others… But in how your body reacts differently to external factors. Especially how it […]

ME/CFS Research Community Surprises: Submits Ten Research Center Applications to NIH

Cort Johnson

  By Cort Johnson in Health Rising.   The NIH Research Center applications are in. The NIH is surely looking closely at how the chronic fatigue syndrome (ME/CFS) research community responds. After all, they haven’t responded very well over time. A Freedom of Information Act (FOIA) request indicated that the NIH receives few – really […]

The ME/CFS Biomarker Roller-Coaster

Rollercoaster

    From MEAction.   Biomarkers are a holy grail for ME/CFS because they have the potential to help diagnose disease, track disease progression or progress and help inform which treatments might help. The need for biomarkers is immense and researchers will identify many possible ones. It is encouraging that there have been more possible biomarker […]

Everest Base Camp Reached For ME Awareness !

FullSizeRender

    Everest Base Camp Reached For ME Awareness ! After a pretty tough time, the guys have made it to Everest Base Camp. Their brief report is below. I hope we can use this story to gain interest from media sources to help raise awareness for us all. I have a radio slot promised […]

“Change Won’t Happen Through One Country…” | ME Awareness Day Interview With Jennifer Brea | 12 May 2017

Jen Brea TED

    From the ME Association.   January 2013. Jen Brea is lying in a New York hospital, wracked by pain. Her head is pounding, her body barely able to move. A doctor walks in, flicks through her notes, reads a diagnosis of Chronic Fatigue Syndrome and tells her to go home and take an […]

May 12 ME/CFS FM Awareness Day Celebrates 25 Years

Bateman Horne Center

    By Leigh Reynolds at the Bateman Horne Center.   On May 12th, individuals around the globe will be celebrating International ME/CFS and Fibromyalgia Awareness Day and 2017 marks the 25th anniversary. The May 12th date was chosen because it is Florence Nightingale’s birthday and she was believed to have suffered from ME/CFS. Every year a […]

Trial By Error, Continued: My Libelous Blogging On Virology Blog

David Tuller

  By David Tuller in Virology Blog.   During a recent talk at the annual conference of the British Renal Society, pediatrician and staunch PACE proponent Esther Crawley accused me of libeling her. I wasn’t at her presentation, but her slides were captured and tweeted. Dr. Crawley’s lecture recounted her heroic struggle against the dark […]

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