ME Research And Researchers

The Struggle You Don’t Realize When You See Me Out And About

Frustration Chronic Illness

    By Lindsay Karp in The Mighty.   There is a lot you don’t realize when you see me out and about. You may think I’m fine when you see me at the playground pushing my son on the swing. You may think this is an ordinary day for me when you see me […]

Small Nerves – Big, Big Problem ? Drug Trial Points Finger At Autoimmunity In Fibromyalgia And ME/CFS

Cort_Johnson

  By Cort Johnson in Health Rising.   Dr. Anne Oaklander MD, PhD, is making a difference – maybe a very big difference in the lives of many. Making a difference runs actually runs in her  family. Her mother, the neurologist Louise Rapin, was one of the seminal figures advancing the concept of autism spectrum disorder. […]

Myalgic Encephalomyelitis (ME) – Treatment Database

Database

  From The American Myalgic Encephalomyelitis and  Chronic Fatigue Syndrome Society.   Although it is routine for doctors to prescribe drugs to help alleviate the symptoms of ME/CFS, patients may respond in unpredictable ways. Specialists report that it is common for ME/CFS patients to have paradoxical responses. For example, an anti-anxiety drug may produce anxiety. […]

Chronic Fatigue Syndrome (ME/CFS) Researcher And Patients Shine During NIH Call

Cort_Johnson

  By Cort Johnson in Health Rising.   It’s great the NIH is doing telebriefings a couple of times a year to inform the chronic fatigue syndrome (ME/CFS) community of their progress.  The calls can be more or less interesting. This one was definitely on the more interesting side. NIH Intramural Study Proceeding on Pace Nath […]

Support Myalgic Encephalomyelitis Research And Funding

research1

    By Lisa M. Alioto in SC Times.   Do you believe cancer exists? That heart attacks happen? Or that an aneurysm can kill you?  That Alzheimer’s really causes memory loss? Or that strokes can cause paralysis? Of course you do — they exist and they happen, sadly, every day. Do you know what else happens […]

My Promised Saline IV Update. How Did It Go ?

Anil

  By Anil van der Zee, from his Blog, Capture, Dance, Words.   This year I’ve arranged for saline IV’s. As I have a hard time tolerating any medication, and I’m not improving enough because of it. Saline IV’s seemed to be the best solution to help with my orthostatic intolerance or rather my postural […]

Cellular Bioenergetics Is Impaired In Patients With Chronic Fatigue Syndrome

Stem Cells

    From ME Research UK.   Authors Cara Tomas C, Brown A, Strassheim V, Elson J, Newton J, Manning P Institution Institute of Cellular Medicine, Newcastle University, Newcastle upon Tyne, UK Abstract Chronic fatigue syndrome (CFS) is a highly debilitating disease of unknown aetiology. Abnormalities in bioenergetic function have been cited as one possible cause for […]

Through The Looking Glass: Cerebral Spinal Fluid Leaks & Ehlers Danlos Syndrome – An Alternate Reality To ME/CFS ?

brain-power

  by Caroline Christian in Health Rising.   Caroline returns with a not uncommon story of a complicated chronic fatigue syndrome (ME/CFS) diagnosis. From fibromyalgia to Ehlers-Danlos syndromes to postural orthostatic tachycardia syndrome (POTS) to mast cell activation syndrome (MAST) to intracranial hypertension to mold sensitivity (and more), the number of alternate or comorbid diagnoses associated with […]

ME Questions Put To Department Of Health

Soap Box

    Hi.  You might recall that I posted a few weeks ago to say that my MP was writing to the Department of Health on a couple of points on my behalf.   Julian Sturdy is my local MP and I’ve got him on board to help me on the ME Awareness front.   I received […]

A Young Hero

Truls

  From ME-foreldrene.  The ME Parents Group.   Truls, a young boy of 12 years, has ME. Because of his ME, Truls is rarely able to leave home.  But when his doctor Kristian Sommerfelt asked for his help in educating medical students, Truls didn’t hesitate at all. He agreed to join Sommerfelt’s lecture. «We need more […]

SAHMRI Researchers In Hunt To Find Cure For Chronic Fatigue Syndrome

research

  Rebecca Baker, Social Affairs Reporter, The Advertiser (Australia).   World-first research in Adelaide that involves taking the blood samples of donors every seven minutes aims to unlock the mystery of a debilitating illness that has no cure or treatment. Thousands of samples taken for the study are now being stored in a freezer to […]

Trial By Error: The Crawley Chronicles, Continued….

David Tuller

  By David Tuller, DrPH.   Update: About 20 minutes after posting this blog, I received the following communication from Ms. Paterson: Dear Dr Tuller Thank you for your email of 22 November. If by a ‘cease and desist’ letter you mean a letter threatening legal action if the recipient does not stop a specified […]

New Recognition For Chronic Fatigue

MECFS

    By Jane E. Brody in New York Times.   Having recently endured more than a month of post-concussion fatigue, I can’t imagine how people with so-called chronic fatigue syndrome navigate through life with disabling fatigue that seemingly knows no end. Especially those who are erroneously told things like “It’s all in your head,” “Maybe you […]

Welcome to IiMER Research Blog !

invest

  From Invest in ME Research.   Invest in ME Research have created a page on their Centre of Excellence website for blogs by researchers funded by the charity to describe what they are doing, what experiences they have, what they think of research into ME, what they hope to achieve – and allow more communication with […]

What is Myalgic Encephalomyelitis ?

ME

  by John Duncan and Maryann Spurgin.   A Brief Historical Introduction.   In the first half of the twentieth century, Myalgic Encephalomyelitis outbreaks appeared to be associated with polio outbreaks, but with the eradication of polio the meaning of this connection has not been given attention [6-8].The name “Myalgic Encephalomyelitis” comes from a 1955 outbreak […]

Rituximab Trial Status November 2017

Fluge and Mella

  From the Let’s do it for ME website.   Surprising news from Norway today, but the ground-breaking work continues in UK thanks to all involved and everyone supporting Invest in ME Research, so please don’t be too disappointed, as the charity explains in the following statement published today and reposted below. Professor Olav Mella […]

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