ME Research And Researchers

Trial By Error: FITNET-NHS Falls Short In Recruitment Drive

David Tuller

  By David Tuller, DrPH Professor Esther Crawley, Bristol University’s methodologically and ethically challenged pediatrician and star researcher, has weighed in with an interim analysis of FITNET-NHS, her trial of online cognitive behavior therapy for adolescents with what she calls CFS/ME. Poor Professor Crawley! Despite her ambitious goal of enrolling a whopping 734 participants, early […]

Meet The Scientist: Professor Chris Ponting – DecodeME

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By Dylan Murphy, Guest Blogger, ME Association. Professor Chris Ponting is Chair of Medical Bioinformatics at Edinburgh University and a Principal Investigator at the MRC Human Genetics Unit, Institute of Genetics and Molecular Medicine. His research group has made substantial contributions to protein science, evolutionary biology, genetics, and genomics. He has served on the editorial boards of […]

Are COVID-19 Studies Already Providing Clues For ME/CFS And The Long Haulers ?

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By Cort Johnson in Health Rising.   Could COVID-19  studies already be providing clues about what went wrong with the long haulers and people with post-infectious chronic fatigue syndrome (ME/CFS), fibromyalgia and other diseases? Two articles in the New York Times – a feature length one, “How Covid Sends Some Bodies to War With Themselves“, […]

Infographic: What Is ME/CFS ?

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By Katarina Zimmer in The Scientist.   The COVID-19 pandemic is sparking renewed efforts to study the underlying causes of this complex, debilitating disease, which might be triggered by the novel coronavirus.   People with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) suffer from a chronic, debilitating fatigue that can leave them unable to maintain a job or […]

Trial By Error: More CBT Research From Sir Simon And Professor Chalder

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  By David Tuller, DrPH (*Thanks to the the very informed discussion–and discussants–on the Science For ME forum for alerting me to this study and its many problems!) In 2011, Professor Trudie Chalder declared at a press conference for the high-profile PACE trial that twice as many chronic fatigue syndrome patients who received cognitive behavior therapy and […]

Purely Pacing

Jacques

By  Jennie Jaques. This is an article to assist patients with the long-haul symptoms following COVID-19. My article is likely most relevant to Long Covid sufferers in their ‘post-viral’ stage – i.e those who find themselves still battling the symptoms after 4 months. But the sooner the advice can be understood the better. We will […]

The Roles Of Autoimmunity And Inflammation In Chronic Fatigue Syndrome

Chronic Pain

  By Adrienne Dellwo in Very Well Health.  You still hear that chronic fatigue syndrome (ME/CFS) is a “mystery illness,” but that viewpoint is becoming dated. The nature and mechanisms of the disease are beginning to take shape, thanks to the ongoing efforts of researchers. Over the years, especially recent ones, we’ve learned a huge amount. Some of that […]

Graded Exercise Therapy Dangers

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  From ME International.   Some of these links refer to ME/CFS as per the IOM which is a broad criteria encompassing many patients who may not have ME as defined by the ICC.  For choosing proper research candidates, the IC Primer states on page ii: “…the ICC [International Consensus Criteria] select patients who exhibit explicit multi-systemic […]

The Netherlands Is Set To Make A Huge Investment In Biomedical Research

Research

  By Simon McGrath in ME/CFS Research Review.   A patient-led petition asked the Dutch parliament to tackle ME properly. It instructed the Government to take action, which eventually led to the Dutch health research agency recommending a €25m biomedical research programme. Patients are playing a central role in the process. The Dutch national health […]

The York ME TGA Inter-Company Fantasy Football League

Football

The York ME TGA Inter-Company Fantasy Football League   The York ME Community runs an Inter-Company Fantasy Football League sponsored by TGA Mobility.  This is to help raise awareness of the illness that affects around 250,00 people in the UK, and 800 to 1,000 people of all ages in the York area alone. Companies enjoyed […]

Post-Covid Syndrome, Myalgic Encephalomyelitis, And The Recurring Pseudoscience Of Mass Hysteria

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By Brian Hughes in The Science Bit. The people who want you to think that everything is “all in your mind” are back, their schtick now revised and updated for a COVID-19 world. Here’s the Daily Telegraph: Some local coronavirus outbreaks could be ‘mass hysteria’, Joint Biosecurity Centre warns Some local coronavirus outbreaks may just be mass […]

Covid-19 Could Lead To ‘Explosion’ In Tapanui Flu Cases

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  From Star News.   In a cruel twist, many Covid-19 survivors could be affected by a once-obscure chronic fatigue condition, initially termed the Tapanui flu, and whose existence was once ridiculed and denied.Emeritus Prof Warren Tate (73), of the University of Otago biochemistry department, officially retired recently but is continuing his molecular-level research into […]

Drug Delivery Nanoparticles Given Neurotransmitter “Passports” To Cross Blood-Brain Barrier

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  From Genetic Engineering & Biotechnology News.   Biomedical engineers at Tufts University School of Engineering have developed tiny lipid-based nanoparticles that incorporate neurotransmitters, which can help to carry drugs, large molecules, and even gene editing proteins across the blood-brain barrier (BBB) and into the brain in mice. The researchers believe the new neurotransmitter-derived lipidoids—or […]

Ritalin (Methylphenidate) For Chronic Fatigue Syndrome And Fibromyalgia

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  From Health Rising.   Ritalin Is… a central nervous system stimulant. Created in 1954, Ritalin has been in use for over sixty years. (Check out a History of Ritalin here). It was first FDA approved in 1955 to treat ‘hyperactivity’ and later was approved to treat attention deficit hyperactivity disorder (ADHD). Ritalin increases extracellular levels […]

OMF Announces New “Brain Fog” Study

Brain Fog

  From the Open Medicine Foundation. Open Medicine Foundation (OMF) is excited to announce a new collaborative study between the ME/CFS Collaborative Research Center at Uppsala, Sweden and the Harvard ME/CFS Collaboration. This study focuses on biomarkers for long-term neurocognitive outcomes. It provides an excellent opportunity to understand the mechanism of long-lasting viral-induced cognitive complications, commonly referred to […]

Coronavirus And ME: Doctors Fear Wave Of Chronic Fatigue Syndrome

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  From The Week.   As the UK’s daily death tolls fall and the immediate threat of Covid-19 recedes, doctors are warning that the outbreak may lead to a long-term surge in cases of a debilitating and untreatable disease. Chronic fatigue syndrome, also known as myalgic encephalomyelitis or CFS/ME, is an “illness with a wide […]

Trial By Error: Disinformation About Treatments For Post-Covid Syndrome

David Tuller

    By David Tuller, DrPH Professor Trudie Chalder is a lead investigator of a series of studies of rehabilitative interventions for so-called “medically unexplained symptoms” that have failed to meet expectations but have nevertheless been promoted as demonstrating treatment success. The piece of crap known as the PACE trial is a prime example. Most famously, Professor […]

A Proteomics Study From The Center: Searching For The Criminal

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By Dr. Anthony Komaroff in Center For Solutions For ME/CFS. On July 21, 2020, the results of a proteomics study by the Center for Solutions for ME/CFS was published by the journal PLoS ONE. Proteomics uses new technologies—that have become available in the last two decades—to precisely identify large numbers of proteins and measure their levels. The measurement […]

Update: Post-Covid Fatigue, Post/Long-Covid Syndromes, And ME/CFS

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  By Dr Charles Shepherd, Hon. Medical Adviser, ME Association. I am aware that some people with ME/CFS have a number of concerns about the amount of time and effort we are devoting to people with Post-COVID Fatigue and Post/Long-COVID Syndromes. In particular: — the possibility that people with post-COVID fatigue and post/long-COVID syndromes are […]

The ME Association End Of Week Research Round-Up

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  By Charlotte Stephens, Research Correspondent, ME Association. We show below brief summaries of the research studies about ME/CFS that have been published in the last week, followed by the abstracts from those studies. All research relating to ME/CFS can be located in the Index of ME/CFS Published Research which is correct to the end of June […]

For ME/CFS Patients, Viral Immunities Come At A Devastating, Lifelong Cost

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by University of California – San Diego   Mylagic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a disabling and complex illness. Affected persons often cannot pursue ordinary activities—physical or mental—because of an incapacitating loss of energy and other symptoms, and may find themselves confined to bed or house-bound for years. Anyone can develop ME/CFS, though it most commonly […]

COVID-19 Patients Could Be At Risk For Chronic Fatigue Syndrome: ‘Your Whole Life Can Change If You Get This’

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By Darcel Rockett in The Chicago Tribune. As the world continues to watch the number of COVID-19 cases increase (and daily records being broken), patients with myalgic encephalomyelitis, aka chronic fatigue syndrome, want to tell those recovering from coronavirus to listen up. COVID-19 patients may be at risk of developing the neuroimmune condition ME/CFS that depletes one’s energy. ME/CFS, […]

A Picture Of ME

Writing Poetry

  A Picture Of ME In my mind there is a picture That fades some more each day It shows how my life used to be Before M.E. came to stay A picture full of colour Of fun, of laughs, of life Not of where I am today Of worries, pain, of strife My picture […]

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