ME Treatments And Therapies

Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Diagnosis And Management In Young People: A Primer

Children

    From Frontiers in Pediatrics.  Authors as listed.   Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a complex disease that affects children and adolescents as well as adults. The etiology has not been established. While many pediatricians and other health-care providers are aware of ME/CFS, they often lack essential knowledge that is necessary for diagnosis […]

Dancers & CBT/GET-Realness

ballet

    By Anil van der Zee.   As a dancer I have been surprised by the treatments I’ve received for my disease Myalgic Encephalomyelitis. I want to share my opinion from a dancer’s perspective. What do other professional ballet dancers think about the treatments and the current care that’s being offered to ME patients??   […]

PACE-GATE: An Alternative View On A Study With A Poor Trial Protocol

Pace-Study-debunkedrev-330x330

    By Bart Stouten in Journal of Health Psychology.   Abstract The controversies surrounding the effectiveness of cognitive behavioural therapy and graded exercise therapy for chronic fatigue syndrome are explained using Cohen’s d effect sizes rather than arbitrary thresholds for ‘success’. This article shows that the treatment effects vanish when switching to objective outcomes. The preference […]

Meditation

Meditation

    From Yoga Journal.   “Meditation” and “mindfulness” are buzzwords these days for good reason. Yogis have been practicing dhyana (meditation) for millennia. Get expert insight here on meditation and its symbiotic relationship to yoga. Use this hub as your go-to resource for simple tips and guided practices to quiet your mind and make meditation part of your modern daily […]

The Last Major Disease To Be Studied ? Ron Davis of Stanford Thinks So

Ron Davis

    by Ayanna Monteverdi in menedelspod.com.   Let’s say you’re a biomedical researcher looking for a place to make your mark. You find out that there is still a major disease that affects more than 2 million people in the US, and we still know virtually nothing about this disease at the molecular level. […]

What’s The Harm ? How I Turned To Wellness Out Of Desperation To Cure My Chronic Illness

Natasha Lipman

    By Natasha Lipman.   This week, I headed up to Leeds to speak at the British Dietetic Association’s Eat Fact Not Fiction event, where I had the pleasure of telling my story of falling for wellness, and why it’s so important that we don’t just dismiss people as stupid for falling for these trends. I’ve […]

10 Mic-Drop Replies For Every Time Someone Doubts Your Illness

Mike Drop

  by Elaine Atwell in Healthline.   If you’ve ever had to explain your medical condition to a stranger, you’ve probably experienced the wide-eyed pity, the awkward silence, and the “Oh yeah, my cousin has that” comment. But the most frustrating experience of all may be when you patiently explain your condition to someone, and […]

Viruses And CFS: Statements By Ron Davis And Bob Naviaux

Medicine Foundation

    From Open Medicine Foundation.   Ron Davis: There is a great deal of evidence that a variety of viruses can initiate ME/CFS, but it is less clear that a virus is involved in sustaining the disease. However, some patients may have a continuous problem with viruses, especially those viruses we always carry like […]

ME/CFS: A New Explanation – And Cure ?

Dr Eriksen

      From TraceyDuvall.com.   In a recent paper, Dr. Willy Eriksen proposes a complete explanation for the development, diversity, and persistence of myalgic encephalomyelitis, aka chronic fatigue syndrome (ME/CFS). He also suggests a possible cure. Seeing that this potentially groundbreaking research was attracting little attention, I contacted Dr. Eriksen and interviewed him via […]

Could We Finally Have A Definitive Biomarker For ME/CFS ?

research

  From ME Research UK.   It’s a recurring theme, but the diagnosis of ME/CFS is severely hampered by the lack of a test that can distinguish people with the illness from those without. This is a challenge in many diseases, but particularly in ME/CFS which affects so many different systems of the body. ME/CFS […]

Bias, Misleading Information And Lack Of Respect For Alternative Views Have Distorted Perceptions Of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome And Its Treatment

Nervous System

    By Ellen Goudsmit and Sandra Howes in Journal of Health Psychology.   Abstract The PACE trial is one of the most recent studies evaluating cognitive behavioural therapy and graded exercise therapy for myalgic encephalomyelitis/chronic fatigue syndrome. These interventions are based on a model which assumes that symptoms are perpetuated by factors such as misguided beliefs […]

University of Toronto Study Offers Hope To Sufferers Of Chronic Fatigue Syndrome

University of Toronto

    From University of Toronto News.   A new U of T study may lead to help for sufferers of chronic fatigue syndrome (CFS) who face debilitating fatigue that can’t be cured by rest. The study, which looks at epigenetic changes in people with CFS, is the first to identify differences in sensitivity to a hormone found in the […]

The Scientist, The Seahorse And The Nanoneedle – Catching Up With Ron Davis On ME/CFS

Ron Davis

      By Cort Johnson in Health Rising.   The “most famous scientist in the world” visited Ron Davis and his End ME/CFS group a couple of weeks ago and gave the project a thumbs up. James Watson and Francis Crick produced arguably the single most important breakthrough in science in the past 100 […]

MTHFR Mutation, Symptoms And Diet: What You Need To Know

MTHFR

      By Joe in Diet vs Disease.   All humans have the same set of genes. Our differences come from the tiny variations in those genes. Those variations influence not only in how you look or behave different to others… But in how your body reacts differently to external factors. Especially how it […]

Missing More: Exercise To Keep Job

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From Missing More. Brett’s experience from Australia illustrates the global impact of UK graded exercise therapy and related research. It also shows the immense pressure that people with ME are under to comply with exercise regimes: When I first was diagnosed with ME, I was told that the illness was psychosomatic and that I had […]

Living With M.E. Series …. A 17 Year Old Boy Who Is Living With M.E. For The Past 5 Years

Missing Shoes

  From LifewithMEWithoutme.   With May being International M.E. Awareness Month and with the #MillionsMissing campaign taking flight, it is the hope that we can bring the lived experiences of people with M.E. to the fore, in an effort to highlight the illness, the symptoms, the lack of care, the neglect, the isolation, the lack […]

The Puzzle Solver – A Researcher Changes Course To Help His Son

Ron Davis

    By Tracie White in Stafford Medicine.   For three years, Whitney Dafoe’s world has been a darkened room at the end of a hallway in the back of his childhood home. An insidious disease, one with no known cause or cure, has slowly stolen his life from him, turning his body into a […]

“Change Won’t Happen Through One Country…” | ME Awareness Day Interview With Jennifer Brea | 12 May 2017

Jen Brea TED

    From the ME Association.   January 2013. Jen Brea is lying in a New York hospital, wracked by pain. Her head is pounding, her body barely able to move. A doctor walks in, flicks through her notes, reads a diagnosis of Chronic Fatigue Syndrome and tells her to go home and take an […]

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