ME Treatments And Therapies

Small Nerves – Big, Big Problem ? Drug Trial Points Finger At Autoimmunity In Fibromyalgia And ME/CFS

Cort_Johnson

  By Cort Johnson in Health Rising.   Dr. Anne Oaklander MD, PhD, is making a difference – maybe a very big difference in the lives of many. Making a difference runs actually runs in her  family. Her mother, the neurologist Louise Rapin, was one of the seminal figures advancing the concept of autism spectrum disorder. […]

Myalgic Encephalomyelitis (ME) – Treatment Database

Database

  From The American Myalgic Encephalomyelitis and  Chronic Fatigue Syndrome Society.   Although it is routine for doctors to prescribe drugs to help alleviate the symptoms of ME/CFS, patients may respond in unpredictable ways. Specialists report that it is common for ME/CFS patients to have paradoxical responses. For example, an anti-anxiety drug may produce anxiety. […]

Chronic Fatigue Syndrome (ME/CFS) Researcher And Patients Shine During NIH Call

Cort_Johnson

  By Cort Johnson in Health Rising.   It’s great the NIH is doing telebriefings a couple of times a year to inform the chronic fatigue syndrome (ME/CFS) community of their progress.  The calls can be more or less interesting. This one was definitely on the more interesting side. NIH Intramural Study Proceeding on Pace Nath […]

Chronic Fatigue Syndrome, Fatigue, And Safety

cells

  by Kathleen Hoffman in Medivizor.   What’s the difference between Chronic Fatigue Syndrome and fatigue?  A huge difference according to an article in the Proceedings of the National Academy of Sciences that focused on a cutting edge research study conducted at Stanford University.  Researchers found that inflammation is the driver of Chronic Fatigue Syndrome or it’s other name myalgic encephomyelitis. […]

Support Myalgic Encephalomyelitis Research And Funding

research1

    By Lisa M. Alioto in SC Times.   Do you believe cancer exists? That heart attacks happen? Or that an aneurysm can kill you?  That Alzheimer’s really causes memory loss? Or that strokes can cause paralysis? Of course you do — they exist and they happen, sadly, every day. Do you know what else happens […]

My Promised Saline IV Update. How Did It Go ?

Anil

  By Anil van der Zee, from his Blog, Capture, Dance, Words.   This year I’ve arranged for saline IV’s. As I have a hard time tolerating any medication, and I’m not improving enough because of it. Saline IV’s seemed to be the best solution to help with my orthostatic intolerance or rather my postural […]

Cellular Bioenergetics Is Impaired In Patients With Chronic Fatigue Syndrome

Stem Cells

    From ME Research UK.   Authors Cara Tomas C, Brown A, Strassheim V, Elson J, Newton J, Manning P Institution Institute of Cellular Medicine, Newcastle University, Newcastle upon Tyne, UK Abstract Chronic fatigue syndrome (CFS) is a highly debilitating disease of unknown aetiology. Abnormalities in bioenergetic function have been cited as one possible cause for […]

Through The Looking Glass: Cerebral Spinal Fluid Leaks & Ehlers Danlos Syndrome – An Alternate Reality To ME/CFS ?

brain-power

  by Caroline Christian in Health Rising.   Caroline returns with a not uncommon story of a complicated chronic fatigue syndrome (ME/CFS) diagnosis. From fibromyalgia to Ehlers-Danlos syndromes to postural orthostatic tachycardia syndrome (POTS) to mast cell activation syndrome (MAST) to intracranial hypertension to mold sensitivity (and more), the number of alternate or comorbid diagnoses associated with […]

ME Questions Put To Department Of Health

Soap Box

    Hi.  You might recall that I posted a few weeks ago to say that my MP was writing to the Department of Health on a couple of points on my behalf.   Julian Sturdy is my local MP and I’ve got him on board to help me on the ME Awareness front.   I received […]

SAHMRI Researchers In Hunt To Find Cure For Chronic Fatigue Syndrome

research

  Rebecca Baker, Social Affairs Reporter, The Advertiser (Australia).   World-first research in Adelaide that involves taking the blood samples of donors every seven minutes aims to unlock the mystery of a debilitating illness that has no cure or treatment. Thousands of samples taken for the study are now being stored in a freezer to […]

Trial By Error: The Crawley Chronicles, Continued….

David Tuller

  By David Tuller, DrPH.   Update: About 20 minutes after posting this blog, I received the following communication from Ms. Paterson: Dear Dr Tuller Thank you for your email of 22 November. If by a ‘cease and desist’ letter you mean a letter threatening legal action if the recipient does not stop a specified […]

Pacing vs Push And Crash

Pacing

  From Treating Chronic Fatigue Syndrome and Fibromyalgia.   If you have CFS or fibromyalgia, you are probably acquainted with the experience of push and crash. This is the frustrating loop in which people swing between overactivity and forced rest, feeling caught in a vicious cycle illustrated in the diagram. When their symptoms are low, […]

Why ‘Healthy Coping’ Is Better for Our Health Than Positive Thinking

positive

    By Mary Mattio in The Mighty.   “Keep thinking positively!” “Keep your chin up!” “Stay strong!” These are some of the most common cliché responses we hear from people in society on a regular basis. They aren’t incorrect responses, and are often made with the best of intentions. However, when the people telling […]

New Recognition For Chronic Fatigue

MECFS

    By Jane E. Brody in New York Times.   Having recently endured more than a month of post-concussion fatigue, I can’t imagine how people with so-called chronic fatigue syndrome navigate through life with disabling fatigue that seemingly knows no end. Especially those who are erroneously told things like “It’s all in your head,” “Maybe you […]

Placebo Myths Debunked

Placebo

By Steven Novella in Science Based Medicine.   Placebo effects are largely misunderstood, even by professionals, and this leads to a lot of sloppy thinking about potential treatments. This problem has been exacerbated by the alternative medicine phenomenon. Several decades ago, the proponents of so-called CAM promised that if only their preferred if unconventional treatments were properly […]

What is Myalgic Encephalomyelitis ?

ME

  by John Duncan and Maryann Spurgin.   A Brief Historical Introduction.   In the first half of the twentieth century, Myalgic Encephalomyelitis outbreaks appeared to be associated with polio outbreaks, but with the eradication of polio the meaning of this connection has not been given attention [6-8].The name “Myalgic Encephalomyelitis” comes from a 1955 outbreak […]

The York ME Community © 2015
Powered by Live Score & Live Score App