ME Treatments And Therapies

New Test For Chronic Fatigue Syndrome Could Help COVID-19 Patients

Blood Test

  By Erica Gerald Mason in Very Well Health.    Researchers have developed a new test to diagnose myalgic encephalomyelitis (ME), also known as chronic fatigue syndrome (CFS). The test stands out as the first successful molecular diagnostic tool for ME, a development that has been long anticipated by many healthcare providers and patients. This new tool […]

Trial By Error: Thoughts On The Observer, The Guardian, And Paradigm Shift

David Tuller

    By David Tuller, DrPH Earlier this week, I blogged about a story in The Observer that provided an inaccurate description of what it called chronic fatigue syndrome. For much of the piece, the writer, Eleanor Morgan, offered a sympathetic portrait of people, including herself, experiencing prolonged symptoms after an acute bout of Covid-19. A lot of what […]

Manx Radio Turn Up The Volume For A Specialist ME/CFS Service On The Island

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  By Ewan Gawne on The ME Association website. A Manx Radio reporter has produced an excellent 25-minute podcast on the campaign for a specialist service for people with ME/CFS on the Isle on Man. Ewan Gawne, the radio station’s deputy news editor, featured relaxed chat with three guests on the podcast – broadcast on […]

Blood MicroRNA Patterns Linked To Chronic Fatigue Syndrome

Blood Test

By Katarina Zimmer in The Scientist.   A finding of distinct patterns of gene-regulating RNA snippets in the blood of ME/CFS patients in response to a stress test could pave the way for a diagnostic tool for the condition and help untangle its underlying mechanisms. Formerly known as chronic fatigue syndrome, myalgic encephalomyelitis/chronic fatigue syndrome […]

Deep phenotyping of myalgic encephalomyelitis/chronic fatigue syndrome in Japanese population

Research

  By Toshimori Kitami et al in Nature.   Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a complex and debilitating disease with no molecular diagnostics and no treatment options. To identify potential markers of this illness, we profiled 48 patients and 52 controls for standard laboratory tests, plasma metabolomics, blood immuno-phenotyping and transcriptomics, and fecal microbiome analysis. […]

Whoops ! Did A GET Study Just Explain Why It DOESN’T Work In Chronic Fatigue Syndrome (ME/CFS) ?

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  By Cort Johnson in Health Rising.   Question: When does a graded exercise study explain why graded exercise is not helpful for chronic fatigue syndrome (ME/CFS)? Answer: when it employs an exercise test with it. Just as NICE was pulling back on graded exercise therapy (GET) a GET study was published showing why it doesn’t work. The authors […]

Paul Garner On long Haul Covid-19—Don’t Try To Dominate This Virus, Accommodate It

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  From BMJ Opinion.   “Has covid-19 gone?” My first thought every morning for six months. A few weeks ago, I was jubilant. The muscle aches had evaporated, my head was clear. I announced this to Rachael, a friend who knows chronic fatigue well. “Fantastic, Paul. You have found your baseline.” Crestfallen, I realised this […]

Long Covid: Overlap Emerges With ME – Including Debate Over Treatment

COVID-19-Pandemic-min

  By Linda Geddes in The Guardian. Six weeks after contracting Covid-19 in April, Dr Amy Small felt well enough to attempt a walk around Holyrood park in Edinburgh with her young family. Her kids wanted to climb Arthur’s Seat – the craggy hill at its centre. Thinking it would be OK if she walked slowly, […]

Why Is ME/CFS Getting So Little Research Funding?

Funding

  By ME/CFS Skeptic.   In a previous blog, Evelien and I argued that ME/CFS is getting less research funding than illnesses with a comparable prevalence and disability. In this article, we will try to get a better understanding of why ME/CFS gets so little research funding. Many causes have been proposed such as stigma, lack […]

Activity And Energy Management – Pacing

Pacing

  From the ME/CFS Clinician Coalition USA.   “Striking the right balance between activity and rest is one of the most difficult aspects of coming to terms with M.E. On one hand is the need to take an appropriate amount of rest and relaxation, especially during the very early stages, as well as during periods of […]

The Present (And Future) CoQ10 for Fibromyalgia And Chronic Fatigue Syndrome (ME/CFS)

OIP (8)

By Cort Johnson in Health Rising. This blog is one of a continuing series of blogs that are attempting to peer into the future and see what treatments possibly await us. This blog provides an overview on CoQ10 – what forms work best and how to take it – and then takes a look at […]

No More Mr NICE Guy…

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    By Brian Hughes in The Science Bit.   The newly released draft NICE guidelines for the management of “myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome” continue to cause a stir. And rightly so. The new guidelines not only repudiate a heretofore favoured treatment approach for a particular illness, they also threaten to discredit an entire (albeit quirky) branch of medicine — […]

Controversial Study On ME-Patients Receives Ethical Approval

Lightning

By MElivit.   On November 10th 2020, English health authorities published a draft of a new set of guidelines for ME/CFS. It is confirmed that ME is a physiological disease, and it is advised against therapy and exercise as treatment. It is especially warned against the Lightning Process (LP). Read more here: English health authorities reject […]

“Ice Cream & Hypothermia” Revisited + A Chilling NICE Consultation Process

Valerie Eliot-Smith

By Valerie Eliot Smith in Law and Health: due process and civil society.   Note: this post runs at 2270 words. It falls naturally into two sections of approximately the same length.  ************** The blog has been rather quiet for a while. While my day-to-day work does not stop, my ability to write blog posts is […]

Long-Covid And Exercise

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  Despite NICE potentially dropping Graded Exercise Therapy as a treatment for ME, it’s still being suggested by GP’s to those with Long-Covid that they should exercise more as a way out of it. If your GP recommends exercise, please ignore, as it is very likely to make you worse.

Proposed British Guidelines Reject Useless Chronic Fatigue Syndrome Treatments

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  By DAVID TULLER and STEVEN LUBET in Statnews.com.    irrational fears they had an organic illness. The favored treatments were graded exercise therapy, designed to counter the deconditioning with a program of progressively increasing activity, a form of cognitive behavior therapy specifically designed to address the unfounded illness beliefs, or a combination of the two. In the […]

Trial By Error: Jennie Spotila’s Annual Review Of NIH Funding

Funding

  By David Tuller, DrPH Every year, Jennie Spotila posts her analysis of annual funding for ME from the US National Institutes of Health on her invaluable blog, Occupy M.E. (On the other hand, Occupy Me is a 16-minute gay drama from 2015 about an interlude between two guys. I have no idea if it’s any good, but looks […]

Montreal Researchers Make Chronic Fatigue Syndrome Discovery

Blood Test

  By Jean-Benoit Legault  The Canadian Press. A discovery by Montreal researchers is expected to improve the diagnosis and treatment of patients with myalgic encephalomyelitis (ME), better known as chronic fatigue syndrome. In most instances, ME is currently diagnosed by elimination, as doctors put aside other possible causes of the patient’s symptoms. But researchers from the University […]

Could This Actually Be Happening ?

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      By Brian Hughes In The Science Bit.   Mark this day in your calendar. We could be observing the beginning of the end of a decades-long medical scandal. In the UK, the National Institute for Health and Care Excellence (NICE) have published new draft guidelines for the management of “myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome”. […]

NICE Draft Guidelines On ME Published

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  After a very long wait, too long, NICE have publised their draft guidlines on the treatment of ME. It seems that at long last, and after huge pressre by the ME Community, Graded Exercise Therapy has been removed as a recommended treatment for ME.  It shouldn’t have taken this long, and too many individuals […]

Meet The Long Haulers Developing ME/CFS

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  From #MEAction.   #MEAction sent out a press release last week to 300 major publications in the US introducing them to the long haulers who are experiencing symptoms of myalgic encephalomyelitis (ME), specifically post-exertional malaise. We alerted the press to the terrifying possibility that 1 million more Americans could develop ME following COVID-19 at […]

A Never-Ending Immune Battle In ME/CFS ? The Regulatory T-cell / Herpesvirus Hypothesis

Blood Cells

By Cort Johnson in Simmaron Research. The failed Rituximab trial might seem like the death knell for autoimmunity in chronic fatigue syndrome (ME/CFS) but it’s not – not by a long shot. While the B-cells that Rituximab targeted are at the heart of much autoimmunity, T-cells can also cause autoimmune diseases. They also play a […]

Trial By Error: NICE’s Upcoming Draft Guidance On ME/CFS

David Tuller

    By David Tuller, DrPH *October is crowdfunding month at Berkeley. I conduct this project as a senior fellow in public health and journalism and the university’s Center for Global Public Health. If you would like to support the project, here’s the place: https://crowdfund.berkeley.edu/project/22602 The UK’s National Institute for Health and Care Excellence, or NICE, […]

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