ME World Perspective

No Increased Risk Of Chronic Fatigue Syndrome After HPV Vaccination

Vaccination

    From Medical Press.   Girls receiving one or more doses of HPV vaccine have no greater risk of chronic fatigue syndrome/myalgic encephalomyelitis (CFS / ME) than unvaccinated girls. This is shown in a new major study from the Norwegian Institute of Public Health. The study is part of the national surveillance of the […]

Prevalence Of And Risk Factors For Severe Cognitive And Sleep Symptoms In ME/CFS And MS

Biomed Central

  From Biomed Central.  Authors as listed.   Abstract   Background There are considerable phenotypic and neuroimmune overlaps between myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and multiple sclerosis (MS). While the precise aetiologies of both MS and ME/CFS are unclear, evidence suggests that deterioration in cognitive function is widely prevalent in patients with either condition. Little […]

Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Diagnosis And Management In Young People: A Primer

Children

    From Frontiers in Pediatrics.  Authors as listed.   Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a complex disease that affects children and adolescents as well as adults. The etiology has not been established. While many pediatricians and other health-care providers are aware of ME/CFS, they often lack essential knowledge that is necessary for diagnosis […]

Dancers & CBT/GET-Realness

ballet

    By Anil van der Zee.   As a dancer I have been surprised by the treatments I’ve received for my disease Myalgic Encephalomyelitis. I want to share my opinion from a dancer’s perspective. What do other professional ballet dancers think about the treatments and the current care that’s being offered to ME patients??   […]

Myalgic Encephalomyelitis: International Consensus Criteria

ME Explanation

    From The Journal of Internal Medicine.   Abstract:   The label ‘chronic fatigue syndrome’ (CFS) has persisted for many years because of the lack of knowledge of the aetiological agents and the disease process. In view of more recent research and clinical experience that strongly point to widespread inflammation and multisystemic neuropathology, it […]

The Last Major Disease To Be Studied ? Ron Davis of Stanford Thinks So

Ron Davis

    by Ayanna Monteverdi in menedelspod.com.   Let’s say you’re a biomedical researcher looking for a place to make your mark. You find out that there is still a major disease that affects more than 2 million people in the US, and we still know virtually nothing about this disease at the molecular level. […]

Viruses And CFS: Statements By Ron Davis And Bob Naviaux

Medicine Foundation

    From Open Medicine Foundation.   Ron Davis: There is a great deal of evidence that a variety of viruses can initiate ME/CFS, but it is less clear that a virus is involved in sustaining the disease. However, some patients may have a continuous problem with viruses, especially those viruses we always carry like […]

New Members Of The European ME Alliance

EMEA

  From the European ME Alliance Website.   Recently the European ME Alliance met in London for its 2017 Annual General Meeting. The events took place following the Invest in ME Research Conference week consisting of research Colloquium and Conference events. Amongst the other business at the meeting was the acceptance of applications from two […]

ME/CFS: A New Explanation – And Cure ?

Dr Eriksen

      From TraceyDuvall.com.   In a recent paper, Dr. Willy Eriksen proposes a complete explanation for the development, diversity, and persistence of myalgic encephalomyelitis, aka chronic fatigue syndrome (ME/CFS). He also suggests a possible cure. Seeing that this potentially groundbreaking research was attracting little attention, I contacted Dr. Eriksen and interviewed him via […]

7 TV Shows That Got Chronic Illness (Mostly) Right

Golden Girls

    By Erin Migdol in The Mighty.   If you’re looking for an accurate, informative, compassionate representation of your illness, it’s safe to say you’ll probably have a hard time finding it on TV. Most shows portray illnesses in a sensational, highly dramatized way, picking and choosing certain symptoms or stereotypes to emphasize and […]

Passionate Pragmatist: Carol Head And The Fight For ME/CFS Equality: The SMCI Pt. I

Carol Head

    By Cort Johnson in Health Rising.   As we head for International ME/CFS Awareness Day and the biggest advocacy effort that I’ve ever seen, it’s a good time to look at The Solve ME/CFS Initiative (formerly the CFIDS Association of America) – the oldest and most prominent chronic fatigue syndrome (ME/CFS) organization. For […]

Bias, Misleading Information And Lack Of Respect For Alternative Views Have Distorted Perceptions Of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome And Its Treatment

Nervous System

    By Ellen Goudsmit and Sandra Howes in Journal of Health Psychology.   Abstract The PACE trial is one of the most recent studies evaluating cognitive behavioural therapy and graded exercise therapy for myalgic encephalomyelitis/chronic fatigue syndrome. These interventions are based on a model which assumes that symptoms are perpetuated by factors such as misguided beliefs […]

University of Toronto Study Offers Hope To Sufferers Of Chronic Fatigue Syndrome

University of Toronto

    From University of Toronto News.   A new U of T study may lead to help for sufferers of chronic fatigue syndrome (CFS) who face debilitating fatigue that can’t be cured by rest. The study, which looks at epigenetic changes in people with CFS, is the first to identify differences in sensitivity to a hormone found in the […]

Fermanagh ME Sufferer Michelle, Wants People To See A Witty Side To Disability

Michelle Cowan

      By Katie Dickie in The Impartial Reporter.   Michelle Cowan (pictured right) from Tamlaght has started a blog called Witshelly, having suffered from ME (Myalgic Encephalomyelitis) since the age of 15. The condition meant she lost her eyesight, the power in her hands and legs, her swallow and memories from before the […]

The Scientist, The Seahorse And The Nanoneedle – Catching Up With Ron Davis On ME/CFS

Ron Davis

      By Cort Johnson in Health Rising.   The “most famous scientist in the world” visited Ron Davis and his End ME/CFS group a couple of weeks ago and gave the project a thumbs up. James Watson and Francis Crick produced arguably the single most important breakthrough in science in the past 100 […]

The Mystery Illness That Plagued This Writer For Years

Julie

      By Julie Rehmeyer in Opera.com.   On Saturday, November 4, 2006, I woke up semiparalyzed. My legs felt lead-plated; the signals instructing them to move seemed to get scrambled on the way down. It was as if someone had sloppily replaced my limbs with those of an elephant and connected only 10 percent […]

ME/CFS Research Community Surprises: Submits Ten Research Center Applications to NIH

Cort Johnson

  By Cort Johnson in Health Rising.   The NIH Research Center applications are in. The NIH is surely looking closely at how the chronic fatigue syndrome (ME/CFS) research community responds. After all, they haven’t responded very well over time. A Freedom of Information Act (FOIA) request indicated that the NIH receives few – really […]

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