By Anna Redshaw in her M.E. Myself And I Blog.
This post has been years in the making. And even after sitting on it for so long and coming back to it to triple check I’m expressing myself as carefully and as clearly as I can, it still feels controversial to click Publish. There is so much more to say about this. But I am being cautious.
Myalgic Encephalomyelitis. Chronic Fatigue Syndrome. Post Viral Fatigue Syndrome. Systemic Exertion Intolerance Disease. All these labels are used by the medical world to refer to the same condition; the condition that has plagued my own life for almost a whole decade. I prefer Myalgic Encephalomyelitis, as do the majority of my peers. For this post I’m using ME/CFS.
Too often we see fractures within the ME/CFS Community that are causing incredible damage to the very people who are on our ‘team’. This post was inspired by my increased exposure to those divisions within the Community. Frustrations run high within this Community and we surely have been dealt a dreadful hand. Not only can our symptoms be incomparably disabling, but we are isolated and forgetten about the majority of society and the medical world.
But it feels important to declare that:
An individual’s diagnosis is not their fault.
If you disagree with the label Chronic Fatigue Syndrome being lumped with the label Myalgic Encephalomyelitis, your anger and frustration should not be placed at the door of any individual sufferer.
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