The Government is investing over £1.7 billion a year in health research through the National Institute for Health Research (NIHR) and the Medical Research Council (MRC). Since 2011, the MRC has funded seven research projects totalling £2.62 million, following a call for proposals to help increase the understanding of the mechanisms of chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME). CFS/ME research remains an area of high strategic importance for the MRC. Applications are encouraged in response to MRC’s Science Boards and Panels under a Cross-Board highlight notice, in place since 2003 and updated in 2011.
On 20 September 2017, the National Institute for Health and Care Excellence (NICE) announced its decision to undertake a full update of the guideline, ‘Chronic fatigue syndrome/myalgic encephalomyelitis (or encephalopathy): Diagnosis and management of CFS/ME in adults and children’, following a review of the latest available evidence on the diagnosis and management of CFS/ME and a public consultation. New guidance is expected in October 2020. More information on this decision can be found at the following link:
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