Chronic Illness Is A Rollercoaster Ride You Can Never Get Off

Sarah Wells


By Sarah Wells in My Stripey Life.


I must admit this morning I’m having a bit of a meltdown.

Schools again are causing me stress.  Different schools, different reasons, different children.

I’m in the midst of hunting for a secondary school for my son and I am trying desperately hard to make to right choice for him.  I know from experience that you can visit all these schools and think that you have made the right decision only to find out that you have made a mistake.  At the end of the day all schools are good schools until you have a problem, it’s how well they deal with things when they go wrong that defines them, anyone can promise you the world but unless they deliver the goods in practice it’s all lip service.  It scares me.

My other son is in a flare, a slight runny nose is enough with his hypermobile Ehlers-Danlos syndrome and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome to make him unable to function at all, literally.  He’s in his first GCSE year and this week is struggling to sit up on the sofa.  I’m second guessing all the decisions about his education and obsessing about all the different options for his future.  As I walk round the many schools considering the options for my middle son it makes me painfully apparent to me the life he is missing out on right now.


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