Column: ‘We Are Ill. We Are Not Faking This Illness. It Is Not In Our Heads’

ME 1

 

By Corina Duyn in The Journal.

 

We have all heard the news that yet again the HSE and the government are letting the ill people, especially women, of Ireland down.

One illness that rarely receives the attention of the press, the HSE and the government, is called ME.

ME

ME (or Myalgic Encephalomyelitis) is classified under the WHO International Classification of Diseases as an acquired neurological disease. Affecting adults and children, it presents itself with dysregulation of the nervous, immune, and endocrine systems.

On top of that we are dealing with an impaired energy metabolism, and post exertional neuro-immune exhaustion. As in, if we go even a tiny bit over our allotted energy for the day, we end up with a huge increase in our symptoms. Even to the point that we are stuck in bed for days, or even weeks/months.

And yet we do not even have a specialist or consultant service available to us here in Ireland. There is no clinical care plan pathway available. Some people affected by ME are completely bedbound, unable to feed themselves and unable to bear any stimulation such as light or noise.

 

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Link to ME story

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