Failings Of The Establishment Organisations Toward People With ME



From Invest in ME Research.


It may have escaped the notice of some that the MRC is preparing to be absorbed into the new UK Research and Innovation (UKRI) and the existing CEO, Sir John Savill, will be winding down affairs until the transition is completed. Link to Appointment notification

We have stated several times before that the MRC performs excellent work and can be a force for change.

Yet that has never been the case with regards to ME.

And, sadly, Sir John’s reign over the MRC, as well as the previous policies of the MRC, has been a failure as far as ME is concerned.

He had the chance, the opportunity, to correct MRC policy toward research into ME and change the lives of ME patients and their families for the better, and quickly.
He failed to do so.

He had the chance to condemn the PACE trial, the conduct of the PACE trial investigators, the way the PACE trial was managed – and he had had the chance to demand that public funding for the PACE trial (awarded by the MRC) should be returned.
He failed to do so.

He had the chance to respond to Invest in ME Research’s letters [1] and engage with us and commit to a change in the policy toward ME research and make it truly a priority.
He failed to do so.

To read the rest of this story, click on the link below:



Link to Invest in ME story

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