Fatigue And ME

 

I have a worry on my mind

That spins my head around

It causes grief, it’s beyond belief

And an answer must be found

 

It’s about a word that’s used a lot

A word filled with intrigue

Not beat, not weary, not tired or wired

But that bleedin’ word fatigue !

 

It’s one to use after a busy day

Round the shops, or out at play

It’s what will fade with a bit of rest

But to explain ME ?…….. I do protest !

 

My trouble with this word is that

It’s not my biggest pain

It’s other things that clip my wings

And cause my life to wane

 

Light and sound is all around

And cause me endless grief

Background noise and kids with toys

Take my legs from underneath

 

Each bang or crash or background sound

Makes my head just spin around

To a normal soul it’s just a noise

To me it’s pain, an energy drain

Not something that just annoys

 

What we have is not fatigue

It’s the body closing down

Looking to protect itself

Trying not to drown

 

All these things I list above

Drain the spark from all our lives

You will see us wilt, our vigour spilt

Right before your eyes.

 

The wheels might still be spinning

But the gears just disengage

Our circuit’s fried, our system’s died

We’re trapped within a cage

 

The pain that rises, still surprises

It comes from oh so deep

There’s a silent shout

As nerves cry out

And stops any thought of sleep

 

I lose my senses one by one

My speech and sight has gone

I fail to hear, thoughts unclear

All my nerves are torn

All resources taken flight

I’m left with just my pilot light

 

So I say to you, the caring few

Is that the fatigue that you go through

Is your world wrapped in a bruise

Is this a life that you would choose ?

 

It’s time to lose that awful word

To link to ME is just absurd

Let’s get rid of that name fatigue

Out the door, it’s time to leave

 

Is Alzheimer’s just forgetfulness

I don’t think that’s the case

So fatigue no more explains our plight

So let’s ban it without trace

 

So the question left Is quite sincere

Where the hell do we go from here ?

To have ME is bad enough

Being looked down upon is pretty tough

We need awareness of our plight

Banish this word with all our might

 

So as I end this plea

It’s so clear to see

Drop fatigue

Just call it ME !

 

By Bill Clayton

The York ME Community © 2015
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