From Solve ME/CFS Initiative.
My ME/CFS story is 30 years long.
It began in 1985 when I was stricken with a virus that never left and evolved in its effects. In the early days, I had to go back to bed after cleaning my teeth. Now, fatigue is not so much a problem but still evident when I over exert myself. I have muscles and organ twitches, cramps, spasms and joint pain.
I did not get much support for the first five years and continued to work as a deputy head teacher, but with many absences and criticisms. My GP is still skeptical but my Union supported me in getting a diagnosis from a neurologist. This enabled a health-based early retirement.
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