‘I Was In Denial And Ashamed By My CFS’

ME4

 

By Simon Del Favero in SBS Insight.

 

When Simon realised that treatment options in Australia for his chronic fatigue syndrome were limited he looked overseas for answers.

I was diagnosed with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome  (ME/CFS) in early 2011 after a severe bout of glandular fever. In the years prior to my diagnosis I was studying architecture at the University of Sydney and working part time as an architectural model maker. I was 21, healthy, and physically very fit. I had plans to complete a masters degree in Berlin while working in the studio of an artist I greatly admired. I was initially shocked by my diagnosis. In many ways I was in denial, and so ashamed that I rarely spoke about it to friends or family. Over the next few years I tried a variety of treatments administered by various Australian specialists, none of which were successful. Years later I discovered there is no effective treatment for ME/CFS and that the best option for its management lay overseas.

 

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