By Melissa Bailey in stuff.co.nz.
OPINION: This week is M.E (Myalgic Encephalomyelitis) awareness week. M.E. is a multi-system disease, affecting not only the neurological system but also the immune, musculoskeletal, endocrine and cardiovascular systems. It is a neuro immune disease that is in desperate need of research and a cure.
Millions of people are affected and yet this devastating disease remains largely missing from medical research,while the people themselves are often missing from society and missing from living a life they once knew.
If it were a more visible disease, or terminal, perhaps then it would be taken seriously by the medical world. M.E may not kill often, but patients often call it, ‘a living death’ and suicide rates of people with M.E are disproportionate to any other illness. Thankfully we finally have some momentum from people like Jennifer Brea who has a TED talk and filmed the documentary Unrest literally from her sick bed.
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