In Response: Even Doctors Need To Learn More About Myalgic Encephalomyelitis

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By Richard L. Kronzer in The Duluth News Tribune.

 

As a follow-up and response to the Nov. 28 column in the News Tribune about myalgic encephalomyelitis, or M.E. (Local View: “Why won’t Minnesotans help me — or ‘M.E.’?“), I would add some information of my own personal experience watching someone close suffer from this horrible disease.

My daughter was struck with M.E. (often called by the unfortunate and inaccurate name CFS, or chronic fatigue syndrome) about five years ago. It seemed to start with a viral infection. The differential diagnosis included a myriad of diseases that can have similar symptoms, such as Lyme disease.

My own physician, trained at the Mayo Clinic, had no clue about M.E., its etiology, or its symptoms — much less its treatment. This disease has been renamed systemic exertion intolerance disease, or SEID, by the Centers for Disease Control, which is a not-so-accurate or all-encompassing description.

 

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