Invest in ME Research – Integrity in Media and Research




A week can be a long time in ME.

Although Invest in ME Research has been highlighting plans to establish a Centre of Excellence for ME for some years, and although our supporters have been raising funds for the UK rituximab trial since we announced plans for that in 2013, it has suddenly been seen by many more people to have become the reality we have known for some time.

And that is fine – “……. a hundred acorns are sown in silence by an unnoticed breeze.

Two events conspired to raise the awareness.
One a visit by the Norwegian Haukeland University Hospital in Bergen, Norway.
The other a set of interviews by BBC Look East covering the UK rituximab trial and the establishment of the UK Centre of Excellence for ME.

Both of these events consisted of qualities of excellence and integrity – attributes which people with ME have long desired, but often seen too little of in the media or research.

The visit by the Norwegians showed the excellence of their research, the modesty of the Norwegian researchers regarding their achievements, and the integrity behind how they conduct themselves – both in the public eye and in the research workshops.
Quite simply they were impressive, admirable and honourable ambassadors for Norway in all ways and it was our great pleasure to be their hosts.

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