‘Lockdown Is Basically What Having M.E/C.F.S Is Like’: An Interview With Sally Callow, Pt 1

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By Paris Ali-Pilling inThe Star and Crescent.

 

Paris Ali-Pilling talks to Sally Callow in a two part series. In part one, Sally explains about the impact of the pandemic on her social enterprise. Sally is the founder of Stripy Lightbulb CIC and ME Foggy Dog, which offer training and aim to raise awareness about M.E/C.F.S. Interview transcribed by Peta Sampson.

Paris Ali-Pilling: Can you tell me briefly what your organisation is and what it does in the local community?

Sally Callow: Stripy Lightbulb is a Community Interest Company, registered in September 2018. We work for the Myalgic Encephalomyelitis (M.E) community, M.E is otherwise known as chronic fatigue syndrome (M.E/C.F.S.). Portsmouth is where I’m based and there are, from our figures, over 450 M.E/CFS patients in Portsmouth so although my company benefits patients and learners worldwide, people in Portsmouth also benefit.

It’s an online training company that is CPD accredited, and it’s the only one of its kind worldwide. M.E/C.F.S. is a massively misunderstood illness and the only way to tackle it, as there is a huge amount of stigma and misunderstanding around it, is by educating the people that look after patients like myself.

 

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