Losing Myself To Myalgic Encephalomyelitis



By Lisa Alioto in The Mighty.


The doctor walks into the room and gives me my diagnosis – myalgic encephalomyelitis (ME). Finally, a name (and what a name!) to what has been happening.


A sense of relief actually washes over me. Almost a weird sense of elation. Even though I’ve just been told I have a chronic, painful, incurable condition. A name though…. that has to come with answers and treatment options. Right??


But the elation is short-lived. I realized all I got was a name, not solutions, not answers and there was no talk of a cure. There is no cure. Instead, with that name comes losses and limitations, both big and small. Some that don’t really matter and others that are beyond heartbreaking.


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