Losing Myself To Myalgic Encephalomyelitis

GP

 

By Lisa Alioto in The Mighty.

 

The doctor walks into the room and gives me my diagnosis – myalgic encephalomyelitis (ME). Finally, a name (and what a name!) to what has been happening.

 

A sense of relief actually washes over me. Almost a weird sense of elation. Even though I’ve just been told I have a chronic, painful, incurable condition. A name though…. that has to come with answers and treatment options. Right??

 

But the elation is short-lived. I realized all I got was a name, not solutions, not answers and there was no talk of a cure. There is no cure. Instead, with that name comes losses and limitations, both big and small. Some that don’t really matter and others that are beyond heartbreaking.

 

To read the rest of this story, click on the link below:

 

Link to ME Story

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