By Cort Johnson in Simmaron Research.
Making Music For ME/CFS
For the second time this month, the loved one of an ME/CFS patient has dedicated talent and sacrifice to raise funding for Simmaron Research and awareness of the disease more broadly.
Michael Jasper met Terry’s husband, Silvestre, 13 years ago and over time the two couples became best friends, even like family to each other but for a while they were a family with a mystery: Terry would mysteriously disappear at times. When the Jaspars were told she had something called “chronic fatigue syndrome” the explanation helped even as it obscured.
It wasn’t until Michael and his wife Marie saw a screening of “The Forgotten Plague” earlier this year that they really began to understand what was going on. Terry wasn’t just tired – she was really sick! They’d seen her only on her best days, which unfortunately were few and far between.
“The Forgotten Plague” turned out to be a line of demarcation for them. They’d pounded Terry with questions about the disease after that. They now know the history, they know the neglect, they know the seeds of change that are sprouting now and they wanted to do something for their friend.
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