ME And Me: Making Films About Disability To Raise Awareness





From Disability Horizons.


Disabled writer and actor Thom Jackson-Wood, who has ME, talks to Disability Horizons about his films, Awaken and The Black Box, both of which are about disability. Written after frustrations at disabled people being misrepresented on TV, he hopes the films will raise awareness of different disabilities, and ME in particular.

What is ME and what are some of the issues that you deal with on a daily basis?

Myalgic Encephalomyelitis (sometimes called Chronic Fatigue Syndrome and known for short as ME), is somewhat difficult to explain. Action for ME defines it is a long-term (or chronic), fluctuating neurological condition that causes chronic fatigue and pain.

Imagine being tired all the time, unable to shake it off with a long sleep, and being in pain, even when you don’t do any physical activity.

Additional symptoms can include lapses in mental processing (commonly known as ‘brain fog’), extreme sensitivity to light and sound, gastrointestinal issues (with your stomach and intestines), incontinence, partial paralysis and social anxiety. However, this is not a complete list. Generally, the more severely you are affected, the more likely it is that you will have to deal with additional symptoms.


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