From Solve ME/CFS Initiative.
Back in 1983, when I was only 13, my mother and I finally realized I was sicker than the doctors were telling me. They sent me home from the hospital telling me my tests were under control and I should be feeling fine. I wasn’t feeling fine. My mother complained to the doctors that I still felt sick. She wanted answers and they were providing none. So for 34 years, I’ve lived my life knowing something was wrong because I had flu-like symptoms and was exhausted. But I pretended I was ok because neither I, nor anyone else, understood what was going on. Standing or sitting up felt horrible so I fell to the floor every hour to lie flat. I would have went crazy if I couldn’t lie flat and this happened on several occasions.
To read the rest of this story, click on the link below: